headlines, fall/winter 2013

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Join the Quest for a CURE! • Special Issue: Changing Lives through Research • Thanks to Our Generous Donors • Mission Delivered! Join the Quest for a CURE! • Special Issue: Changing Lives through Research • Thanks to Our Generous Donors • Mission Delivered: Advocacy and Programs Three of the 53 million Faces of Arthritis. The mission of the Arthritis Foundation is to improve lives through leadership in the prevention, control and cure of arthritis and related diseases. Call 1.800.954.CURE (2873) or visit arthritis.org. FALL/WINTER 2013 SERVING ARIZONA, GREATER CALIFORNIA, HAWAII & NEVADA

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Headlines is a bi-annual publication of the Arthritis Foundation, Pacific Region created to update, inform and empower our supporters.

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Page 1: HEADLINES, Fall/Winter 2013

Join the Quest for a CURE!• Special Issue: Changing Lives through Research• Thanks to Our Generous Donors• Mission Delivered!

Join the Quest for a CURE!• Special Issue: Changing Lives through Research• Thanks to Our Generous Donors• Mission Delivered: Advocacy and Programs

Three of the 53 million Faces of Arthritis.

The mission of the Arthritis Foundation is to improve lives through leadership in the prevention, control and cure of arthritis and related diseases. Call 1.800.954.CURE (2873) or visit arthritis.org.

FALL/WINTER 2013

SERVING ARIZONA, GREATER CALIFORNIA, HAWAII & NEVADA

Page 2: HEADLINES, Fall/Winter 2013

LEADERSHIP PERSPECTIVES

page 2

ARTHRITIS FOUNDATION PACIFIC REGION

Board of Directors

OFFICERS Peter Mainstain, C.P.A.

Chair

John A. Heydt, M.D.Chair-Elect

Stephen A. Schneider, Esq.Treasurer

Dennis M.P. EhlingSecretary

Manuel LoyaChief Executive Officer

E. Robert Harris, M.D.Past Chair

BOARD MEMBERSSusan Beat

Leroy Bobbitt, Esq.James Campbell Chow

M.D., A.B.O.S.Art Gladstone, R.N.

Christopher Middleton Wesley Mizutani, M.D., M.B.A.

Marcia W. Wasserman

LIFE BOARD MEMBERST. Arthur Kvaas

Philip S. Magaram, Esq.Mark E. Meyerson, Esq.

Thomas R. MurphyStanford K. Rubin, Esq.

Leonard Unger, Esq.

ADVISORY BOARD CHAIRS Kaleo Ede, M.D.

Arizona

Maury Hayashida D.P.T., O.S.C., C.S.C.S.

Central Coast

David HahnInland Empire

Dale SurowitzLos Angeles/Valley

Robin K. Dore, M.D. Orange County

Eric BurgerGreater Sacramento Valley

Susan BeatSan Diego

Art Gladstone, R.N.Hawaii

Timothy Jones, C.S.P., R.E.H.S.Nevada

MESSAGE FROM THE CHAIRAspiring baseball player Will Tellez came down with a viral infection at the age of 11. After six weeks in the hospital, he was finally released, only to return to the intensive care unit the next day due to severe chest pains. Will had fluid on his heart, one of the symptoms of systemic onset juvenile idiopathic arthritis. The doctor prescribed a drug which cleared up the inflammation within a few days. After the weeks-long ordeal, his grateful mom Jeri said, “It felt like a miracle.” Will’s dramatic recovery was the result of a research breakthrough funded by the Arthritis Foundation 30 years ago. Research also changed the lives of volunteers Joyce and Tom Murphy. Read on to see how this dedicated couple is taking action to increase research support on behalf of the 53 million adults and 300,000 children with arthritis.

In this issue of HEADLINES, you will learn about national strategic research initiatives led by research scientists and their teams, policymakers and advocates, doctors and people with arthritis—all made pos-sible through your contributions. One exciting new research study is the ACL (anterior cruciate ligament) initiative, which can potentially change the lives of 27 million people with osteoarthritis, including young sports athletes like Will Tellez.

You will also be informed about ways the Arthritis Foundation is fulfilling its mission TODAY through life-enhancing programs and advocacy at all levels of government.

Please take a few minutes to read about the many ways you can help end arthritis pain and find a cure. Can you make a difference? Yes, YOU CAN.

Peter MainstainPeter MainstainChair, Pacific RegionBoard of Directors

MESSAGE FROM THE C.E.O.In my opinion, investing in Arthritis Foundation-funded research offers the greatest opportunity to make a difference in the lives of those with arthritis. Why do I say this?

First, the Arthritis Foundation is the largest nonprofit funder of arthritis research in the world, and has funded nearly $500 million in research grants over the past 65 years.

Second, the Foundation uses a centralized and vigorous peer-review selection process to award grants to the top research projects in the country. Many out-standing research institutions are located within the Pacific Region, and ten of the nationally-ranked research studies are going on within our region this year.

Third, our research projects target three primary types of arthritis—osteoarthritis, rheumatoid arthritis and juvenile arthritis. We are squarely focused on funding grants with the greatest potential for breakthroughs.

You can help the Foundation make a difference in someone’s life by supporting research that will end the chronic pain and limitations of this debilitating disease. Increased funding is absolutely essential. I urge you to invest in Arthritis Foundation-funded research. Together we can win the fight for a cure.

Manuel LoyaC.E.O., Pacific Region

This issue of HEADLINES is dedicated to the memory of 12-year-old Kassandra R., who passed away due to complications of overlap arthritis, a rare form of juvenile arthritis. News of this tragic event has triggered an outpouring of support from the members of the national JA community who are shocked and dismayed at the loss of one of their own. The lives of children like Kassandra are precious and highlight the urgent need to find a cure. Our hearts go out to her family.

Page 3: HEADLINES, Fall/Winter 2013

RESEARCH IMPACT: PROFILES

THE MURPHYS: GIVING THANKS FOR THE PAST AND CREATING HOPE FOR THE FUTURE

Joyce and Tom Murphy have volunteered for the Arthritis Foundation for more than 30 years at local and national levels. They received the prestigious national Charles B. Harding Award for Distinguished Volunteer Service and continue to lead the way in advocating and raising funds for arthritis research. Forty years ago, Joyce Murphy was bedridden for a year. The 39-year-old mother of six children was stricken with rheumatoid arthritis in her feet and hands. Her treatment? Sixteen aspirin a day to reduce the pain and inflam-mation of her arthritis.

Over the years, Joyce used numerous medications and underwent more than seventeen surgeries to re-pair or replace damaged joints. Her husband, Tom, who has had both knees replaced, credits an experi-mental drug for getting her back on her feet. Joyce smiled, “I went through so many drugs. I was relieved when the biologics* came out. After more than 30 years of other medications and multiple surgeries, it stopped the progression and symptoms of my arthritis.”

“It’s very, very important for us to give back because of what research has done for us,” said Tom. “Advances in medications and surgical procedures have improved the quality of our lives. We’ve gone from 16 aspirin a day forty years ago to one injection and one pill today with far more beneficial effects than before. Due to research advances, we are able to travel all over the world and enjoy our big family of six children, nineteen grandchildren and six great-grandchildren.”

The Murphys “walk the talk” for research. Their Murphy’s Angels Arthritis Walk team has raised hundreds of thousands of dollars. They also have made countless trips to Washington, D.C. and Sacramento to speak with legislators on behalf of those with arthritis. When asked how advocacy benefits research, Tom stated, “The largest potential contributor to arthritis research is the United States Federal government. We need to keep beating the drum to get federal and state legislators’ attention about arthritis.”

Back home in California, the Murphys continue to reach out to donors and legislators through letter-writing campaigns, phone calls and personal visits. Their passion for research traces from their desire to give back. But it also reflects their vision for the coming years. Tom and Joyce said, “We want to do all we can to pre-vent arthritis in the future of our family. Treatments available today can be directly attributed to break-throughs in the past. With continued advancements in research, we have great hope for the future. Please join us today to help find a cure.”

RESEARCH UPDATE FROM ARTHRITIS FOUNDATION GRANT RECIPIENT, DOMINIK HAUDENSCHILD, PH.D., UC DAVIS

Dr. Dominik Haudenschild’s groundbreaking research was profiled in the Spring/Summer 2012 issue of HEADLINES. We are pleased to present his research update.

“Scientifically, there has been a lot of progress since we received the Arthritis Founda-tion Innovative Research Grant in early 2012. As background, there is a class of genes called primary response genes that are ready for immediate activation by a variety of stresses. Many of these primary response genes are inflammatory mediators that ulti-mately contribute to cartilage breakdown and arthritis progression. For the Arthritis Foundation grant, we hypothesized that preventing injury-induced activation of this

class of primary response genes would be protective in cartilage. We have made substantial progress to-ward this goal. First, we showed that this class of primary response genes is truly activated by various stresses in the laboratory, and that our intervention strategy to prevent their activation actually works in the lab setting on isolated cartilage and cells. This study will soon be published in a leading journal. Second, we tested whether joint injury in mice also activates this class of primary response genes, and found that it does. Importantly, our intervention strategy also works very effectively in mice to prevent the activation of this class of genes. We are very excited by how effective the intervention is in the short-term, and we are now performing the longer-term studies to ask whether preventing activation of this class of genes will prevent or delay the onset of osteoarthritis in mice with a joint injury.

We have been able to leverage the preliminary experiments funded by the Arthritis Foundation to obtain greater funding from the Department of Defense and the NIH. We are incredibly grateful to the Arthritis Foundation for helping us get these lines of research started. Our vision is to provide the sports medicine doctor with a therapeutic intervention option, to be delivered at the time of joint injury, which will prevent or delay the onset of future arthritis.” *Biologics: Biologics are medications genetically engineered from a living organism, such as a virus, gene or protein, to simulate the body’s natural response to infection and disease. The body naturally produces small amounts of these agents, but when produced in large amounts in the laboratory and given by injection or infusion, biologics can interfere with different inflammatory substances, cells or pathways responsible for the symptoms and damage of rheumatoid arthritis and some other inflammatory forms of arthritis. –Arthritis Today

page 3

CALENDAROF EVENTS

DECEMBERDecember 1 - 14

Jingle Bell Run/Walks®Los Angeles, Orange County,

Sacramento andSan Diego, CA

2014 MARCH March 2

“GlitzGlamGive” Benefitting the Arthritis Foundation

Phoenix, AZ

March 24-26Advocacy SummitWashington, D.C.

APRIL April 26

Central Coast Arthritis WalkSan Luis Obispo

ccarthritiswalk.org

MAYMay 3

Arizona Arthritis Walk Phoenix

azarthritiswalk.org

June 1Hawaii Arthritis Walk

Honoluluhiarthritiswalk.org

May 17

Central Coast Arthritis Walk Santa Barbara

ccarthritiswalk.org

May 17Inland Empire Arthritis Walk

iearthritiswalk.org

May 31Los Angeles Arthritis Walk

Los Angeleslaarthritiswalk.org

JUNEJune 1

Orange County Arthritis WalkAnaheim

ocarthritiswalk.org

June 1Sacramento Valley Arthritis Walk

Sacramentosacarthritiswalk.org

June 1Hawaii Arthritis Walk

Honoluluhiarthritiswalk.org

June 7San Diego Arthritis Walk

sdarthritiswalk.org

Page 4: HEADLINES, Fall/Winter 2013

THE ARTHRITIS FOUNDATION’S RESEARCH PROGRAM

page 4

“ An ACL tear immediately triggers the OA disease process at a molecular and cellular level and it continues for one or more years. If we can detect and measure these early changes, we could likely discover treatments

to prevent or slow down the disease in the general population.”– Dr. John Hardin, Arthritis Foundation Director of Osteoarthritis Research

• American College of Rheumatology (ACR)• AOII Foundation• American Orthopaedic Society for Sports Medicine (AOSSM)• Centers for Disease Control and Prevention (CDC)• Childhood Arthritis Rheumatology Research Alliance (CARRA)

• Foundation for National Institutes of Health (FNIH)• National Institutes of Health (NIH)• OA Research Society International (OARSI)• Other organizations

“ In 2012, the Foundation funded $13.1 million in research and

training grants at 61 institutions.”

The Arthritis Foundation is one of the leading worldwide private, nonprofit contributors to arthritis research. Since its inception in 1948, the Foundation has invested nearly $500 million to support the work of 2,653 scientists in 236 research institutions across the country.

For a listing of grant recipients and currently-funded research studies, visit: http://goo.gl/rlzJ3g.

ARTHRITIS FOUNDATION RESEARCH FLAGSHIP INITIATIVES DRIVE MAJOR DISCOVERIESThe Arthritis Foundation’s research strategy focuses on three types of arthritis: Osteoarthritis, rheumatoid arthritis and juvenile arthritis. Through a disciplined peer-review process, Innovative Research and Arthritis Foundation Investigator grants are awarded to the highest nationally-rated studies with the greatest potential to create breakthroughs.

As part of its research strategy, the Foundation partners with governmental agencies and other nonprofit organizations to effectively advance its research goals:

INITIATIVE 1 Osteoarthritis

Osteoarthritis is the most common form of arthritis. It affects 27 million Americans and results in one million joint replacements every year. Presently, there are no medications to slow or stop osteoarthritis and no tools to identify early stages of the disease. Two major research initiatives are underway to address the needs of patients with osteoarthritis: 1) The OA Biomarkers Initiative, and 2) The ACL Injury Feasibility Trial.

OA BIOMARKERS INITIATIVEThis major initiative brings together the Arthritis Foundation, the Foundation for National Institutes of Health (FNIH) Biomarkers Consortium and OARSI (OA Research Society International). Research Goal Identify and classify biological markers of knee OA progression through use of medical imaging and biochemical markers. Impact Learning will be used to monitor the progression of OA and support development of new OA drugs and treatment options to prevent the occurrence and progression of osteoarthritis.

ACL INJURY FEASIBILITY TRIAL Anterior cruciate ligament (ACL) injuries are common among young athletes. About 200,000 ACL repairs are required in the United States each year. ACL tears often lead to a diagnosis of OA within 10 to 20 years. With the support of generous donors, the Arthritis Foundation recently awarded a $1 million, multi-institutional grant that could revolutionize future treatment for OA. Research GoalLay the groundwork to establish a new clinical strategy for OA drug development and to prevent the onset of OA after ACL injuries. Impact There will be treatment for the disease, not just its symptoms, so people can avoid the progressive damage of OA and reverse its course. People will also know whether or not they are at risk of OA so they can take steps to prevent it.

Page 5: HEADLINES, Fall/Winter 2013

LEADING THE WAY TO A CURE

page 5

BE PART OF THE QUEST FOR A CURE!Here’s how you can support Arthritis Foundation research initiatives:• Join the Arthritis Foundation. Become a member and start enjoying Arthritis Today magazine and other benefits.

http://goo.gl/0m0Sfc• Become a Research Advocate

Benefits include the quarterly Research Update newsletter and more! http://goo.gl/t0z99O • Be Informed: Visit arthritis.org/research/ and find out more about the Arthritis Foundation’s exciting research program. • Advocate for More Research Funding: Make your voice heard! Register to become an e-advocate.

arthritis.org/advocacy/• Leave a Living Legacy with a planned gift. See page 7 for more information. • Support Arthritis Foundation Fund Raising Activities: Participate in your local Arthritis Walk, Jingle Bell Run/Walk,

California Coast Classic Bicycle Tour or social event. Learn more on pages 8-9. • Enroll in Patient Registries: Join the Arthritis Internet Registry (OA/RA) or register your child in the CARRA patient

registry (JA). Visit arthritis.org/research/participate-in-research/.• Contact Your Local or Region Office: Find out how you can make a difference for those with arthritis.

“ Using his Arthritis Foundation research grant in the early 1980s,

Dr. Bill Arend studied the role of IL-1 in rheumatoid arthritis. His work led to the development of Kineret, one of the biologics used to treat rheumatoid arthritis and juvenile arthritis today.”

• Foundation for National Institutes of Health (FNIH)• National Institutes of Health (NIH)• OA Research Society International (OARSI)• Other organizations

INITIATIVE 2Rheumatoid Arthritis

Rheumatoid arthritis (RA) affects 1.5 million people in the U.S. – most of them women.The disease can be highly unpredictable, ranging from ex-treme inflammation, rapid progression and joint degradation in one patient to limited inflammation and a small degree of joint deterioration in another. Research advances can lead to development of personalized patient thera-pies and needed treatments.Research Goals • Identify genetic, molecular and immunologic factors that predict RA risk • Increase knowledge about genetic or environmental factors that affect the

initial development or progression of RA • Better understand patient response to RA therapies which will slow pro-

gression and inhibit long-term effects of the disease

Key InitiativeThe Arthritis Internet Registry is a large clinical database that allows researchers to exam-ine similarities and differences between patients and their responses to treatments. The data can help to determine how genetic factors relate to treatment responses and lead to development of the safest and most effective treatments for RA patients. The Arthritis Internet Registry (AIR) has more than 3,700 online registered patients and urgently needs more people to provide information that will lead to desired research break-throughs. If you qualify, please visit http://goo.gl/810hvm to register.

ImpactImproved treatments that are safe and effective over the long-term will be developed so that patients can regain good health and enhanced quality of life.

INITIATIVE 3Juvenile Arthritis

Nearly 300,000 children endure the debilitating pain and disabling effects of the many forms of juvenile arthritis (JA). Until a cure is found, JA robs them of the joys of childhood and continues to affect their lives as they transition to adulthood. Research Goals • Identify who is at risk for juvenile arthritis based on genetics or environment • Develop therapies to rapidly reduce or prevent the effects of JA• Develop new drugs that are safer and better for children with arthritis

Key InitiativesDuring its 10-year partnership with CARRA (Childhood Arthritis and Rheumatology Research Alliance), the Arthritis Foun-dation has contributed more than $2.3 million to fund JA research and support the national CARRA registry (www.carranet-work.org) of more than 8,000 patients. The CARRA registry provides the long-term information that can lead to develop-ment of the safest and most effective treatments for children with JA.

ImpactSafe and effective treatments will be available at the onset of the disease so children with JA can rapidly regain good health and long-term quality of life.

Page 6: HEADLINES, Fall/Winter 2013

MISSION DELIVERED: PROGRAMS AND ADVOCACY

page 6

2013 NATIONAL JUVENILE ARTHRITIS CONFERENCE CHANGES LIVESDreams came true for families of children with juve-nile arthritis at the National Juvenile Arthritis Confer-ence on July 18-21 in Anaheim, Calif. More than 1,250 participants from 42 states joined 350 expert speakers, children’s program staff and volunteers for an educational, fun and life-changing experience. Parents enjoyed sessions on issues ranging from nu-trition to research, while children engaged in creative activities with their peers. Hundreds of conference attendees donned blue “Faces of Arthritis” T-shirts for a fun evening out at the Disneyland Resort. Throughout the conference, family members discov-

ered that they were members of a broader JA community who understood the challenges of living with juvenile arthritis.

The Foundation thanks the wonderful volunteers, staff and generous sponsors who made this year’s conference an unforgettable one for all. Next year’s JA Conference will be held in beautiful Keystone, Colorado on July 3-6.

PROGRAMSYouth ProgramsThe Pacific Region hosted medically-supervised summer youth camps for more than 200 children and teens with juvenile arthritis and related conditions. Campers from Arizona, California, Hawaii and Nevada enjoyed the great outdoors while making friendships for a lifetime.

For more information or to donate to Pacific Region youth programs, please contact Jennifer Ziegler ([email protected]).

ADVOCACYNews from Capitol Hill Thanks to the hard work of arthritis advocates, the Senate Appropriations Committee approved a $5 million spending bill to fund a student loan forgiveness program for pedi-atric rheumatologists who will provide care in underserved areas. To achieve this goal, arthritis advocates sent over 2,000 messages to their Senators while Arthritis Ambassa-dors worked directly with key Senators to take a stand for children with juvenile arthritis. Looking forward to next year, the 2014 National Advocacy Summit will be held on March 24-26 in Washington, D.C. Volunteers from across the United States will meet with legislators and staff on Capitol Hill to educate them about the unacceptable pain, disability and economic impact of arthritis. For more information about the Advocacy Summit, please visit http://goo.gl/vxdteO or contact Director of Advocacy, Krystin Herr at [email protected]. To learn about advocacy priorities and to make your voice heard on behalf of those with arthritis, visit arthritis.org/advocacy/.

Pacific Region volunteers gather at the 2013 Advocacy Summit.

“ It was so empowering to walk around and see all of our new JA family members! Thank you for embracing our family and reminding us that we are not alone.” – Barbara J.

Imagine a sea of blue T-shirts at Disneyland!

Camp Mana’olana, Hawaii Camp Sol, Nevada Joint Adventure Camp, California

Camp Cruz, Arizona Camp Esperanza, California Camp Esperanza Teen Leadership Session, California

Page 7: HEADLINES, Fall/Winter 2013

THANK YOU TO OUR GENEROUS DONORS

page 7

PLANNED GIVING: RETIREES APPRECIATE CHARITABLE GIFT ANNUITIES Retired people, and those who plan to retire in the near future, are finding charitable gift annuities to be an ideal way to support the Arthritis Foundation while locking in stable annuity payments for the rest of their lives–no matter how long they may live. Indeed, charitable gift annuities are truly called “the income you cannot outlive.” Why? Because they are backed by all of the resources of the Arthritis Foundation.

For more information, please contact Matthew Duggan, gift planning professional for the Pacific Region. His toll-free number is 1.877.577.0087, and his email address is [email protected].

Matthew will be pleased to answer questions relating to charitable gift annuities or other charitable estate planning matters such as wills, trusts, retirement plans, life insurance and other planning matters. There is no cost or obligation, and your inquiry will be treated in complete confidence.

ADVANCEMENT SOCIETY($300,000-$499,999)Jane Wyman Charitable Trust

CENTURY SOCIETY ($100,000-$299,999)AbbVieAmgen U.S.A., Inc.Genentech

JUBILEE SOCIETY ($50,000-$99,999)Desert Healthcare District The Hoag FoundationPfizerJimmy Rollins Family FoundationStryker Orthopaedics Wasserman Foundation

ENRICHMENT SOCIETY ($25,000-$49,999)Crescendo Bioscience, Inc.BMW Santa Barbara Creative Artists Agency French Hospital Medical CenterGlendale Adventist Medical Center Legendary Pictures, Inc.Richard V. MahonyThe Queens Medical Center Takeda Pharmaceuticals, USA, Inc. Vons Foundation Warner Bros. Entertainment, Inc. INVESTMENT SOCIETY ($10,000-$24,999)Alere Health Systems Inc. Arizona Community Foundation Arthritis Foundation Orange County AuxiliaryBelieve Media, Inc.Kristin Burke Tina C. Foundation, Inc. California Rheumatology Alliance Comerica Community Bank Cruel & Unusual Films Disney Worldwide Services, Inc. First Foundation Bank Mr. & Mrs. Doug Garn

INVESTMENT SOCIETY (cont.)Gila River Gaming Enterprises, Inc. Dorothy Mulholland Gillespie TrustMr. David S. Goyer The Green Foundation Leo S. Guthman FundHaggett Trust Hawaii Pacific Health Dr. & Mrs. Anthony K. HedleyMs. Barbara B. Herman Hoag Memorial Hospital Presbyterian LAgraphico, Inc.Harry and Yvonne Lenart Charitable FoundationKelly LiebhartLoeb & Loeb, LLPMarborg IndustriesMr. & Mrs. Elliot Megdal Mob Scene, LLCmOcean, LLCMoffatt Revocable Trust Price Family Charitable Fund Quest Software, Inc. Ms. Shelley Resnik Roberts Hawaii Mr. Jeffrey RobinovRabobank Michael Alan Rosen Foundation Mr. & Mrs. Stanford K. Rubin, Esq. STAR Orthopaedics Inc.The T & T TrustUnion Bank of California, N.A. The Harry & Jeanette Weinberg Foundation Wood-Claeyssens Foundation Works Advertising Paul & Eleanore Ziegelmaier Endowment

BEQUEST GIFTS Selma E. Andrews Franciszka ClarkElizabeth Hofert-DaileyJames GrassickLucille Koch Annie Morris Jane Wyman Charitable Trust

2012 PACIFIC REGION MAJOR DONORS

Page 8: HEADLINES, Fall/Winter 2013

SPECIAL EVENTS SUPPORT OUR CAUSE

page 8

ORANGE COUNTYSunday, December 1

Laguna Niguel, CAContact: Laura Ouimet

949.585.0201ocjinglebellrun.org

LOS ANGELES Sunday, December 8

Glendale, CAContact: Debbie Martin 323.954.5760 Ext. 262

lajbr.org

SAN DIEGOSaturday, December 14

San Diego, CAContact: Jim Rider

858.492.1090sdjbr.org

SACRAMENTOSaturday, December 14

Sacramento, CAContact: Eric Dahler

916.368.5599jbrsacramento.org

PHOENIXGLITZGLAMGIVE™, THE VIEWING PARTY

Experience Hollywood‘s red carpet glamour at GlitzGlamGive™ Gala benefitting the Arthritis Founda-tion on Sunday, March 2, 2014 at the Ritz-Carlton hotel. Enjoy gourmet food, festive activities and sophisticated swag bags while watching the telecast of the 86th Academy Awards™. Many thanks to Pfizer, ABC15 and Rolfs for supporting this 20th anniversary event benefitting the 1.2 million Arizonans living with arthritis. Visit glitzglamgive.org or contact Laura Rolfe at [email protected] for registration, sponsorship and event information.

SANTA BARBARATASTE OF THE TOWN

The 32nd annual Taste of the Town, Santa Barbara’s signature culinary event, attracted almost 1,000 gourmets in early September. Two hundred Connoisseurs’ Circle Pavilion guests savored an extraordinary seven-course meal designed by Patrice Martineau, Executive Chef of the El Encanto Hotel on Friday, September 6. The memorable evening also included a cooking demonstration by Chef Martineau and a live auction. On Sunday, September 8, the culinary event continued at the Riviera Park Gardens with food and wine tastings from forty of Santa Barbara’s finest restaurants and forty Central Coast vine-yards. Congratulations and thanks to the sponsors, volunteers and staff who helped raise over $140,000 to support Arthritis Foundation programs and services for Central Coast residents with arthritis.

HONOLULUHAWAII’S 50TH ANNIVERSARY CELEBRATION: COMMITMENT TO A CURE

More than 300 Arthritis Foundation supporters gathered at the landmark Hawaii State Art Museum in Honolulu on September 21 to celebrate the Arthritis Foundation’s 50 years of service in Hawaii. Festivities at “Commitment to a Cure” included entertainment by Hawaii’s renowned duo, HAPA, a silent auction and a delectable food and wine event hosted by Honolulu’s local chefs and restaurants. Keynote speaker Jeffrey Gottfurcht (the only person with rheumatoid arthritis to summit Mount Everest) mesmerized and inspired participants with his riveting story and words of encouragement.

The elegant anniversary event raised more than $100,000 for programs serving the 236,000 adults and children with arthritis in Hawaii.

LAS VEGASVOICES FOR A CURE FEATURING TERRY FATOR

Superstar Las Vegas Strip headliner and longtime Arthritis Foundation volunteer, Terry Fator, delighted Arthritis Foundation supporters with his singing, comedy and unparalleled celebrity vocal impressions at the 4th annual “Voices for a Cure” performance in October. Thank you to Terry for raising more than $50,000 for research and local patient education programs.

RUNNING FOR A CURE: JINGLE BELL RUN/WALK® FOR ARTHRITISRing in the holidays this December by donning your festive attire and running shoes for the Jingle Bell Run/Walk® for Arthritis! Whether you’re a veteran runner or a committed walker, you will enjoy the holiday-themed activities along the 5K course as you race towards the finish line for a cure.

Form a team and register today for one or more of the four Jingle Bell Run/Walks to be held in the Pacific Region this year:

Automotive Sponsor

Executive Chef Patrice Martineau demonstrates

his culinary skills.

Page 9: HEADLINES, Fall/Winter 2013

MOVING TOGETHER FOR A CURE

page 9

WALKING FOR A CURE: ARTHRITIS WALKSMore than 10,000 dedicated walkers and their teams honored friends and family members with arthritis at Arthritis Walks held in Arizona, California and Hawaii. Together, they raised almost $1.7 million for a cure! After walking the one- or three-mile course, participants enjoyed Walk festival activities including entertainment, a kid’s zone, educational resources and delicious food and beverages.

We are very proud that the Pacific Region was the #1 walk fundraising region in the nation, with the top two walks in the country! The Los Angeles Arthritis Walk was #1, and the Orange County Arthritis Walk took the #2 spot! Additionally, we had seven of the top ten teams in the entire country. Many thanks to Walk team captains, participants, sponsors, volunteers and donors who contributed to the huge success of this year’s walks. Get ready for the 2014 Arthritis Walk season, which promises to be even bigger and better than ever.

RIDING DOWN HIGHWAY ONE FOR A CURE: CALIFORNIA COAST CLASSIC BICYCLE TOUR PRESENTED BY AMGEN

More than 200 cyclists rode 525 miles along the scenic California coastline to raise nearly $1.1 million for a cure during the 13th annual California Coast Classic Bicycle Tour. The Bicycle Tour is the Arthritis Foundation’s largest single fundraising event in the nation. We are extremely proud of the riders and everyone involved!

Riders began in San Francisco on September 28, pedaled down the beautiful coast of California (primarily on Highway One), and crossed

the finish line eight days later in Los Angeles. Along the way, children and young adults with juvenile arthritis educated and inspired the cyclists with their stories. A very special thank you to our presenting sponsor, Amgen, official food and beverage sponsor, Safeway, and the many other sponsors and volunteers who made this event possible. For more information on the 2014 Bicycle Tour or to support this life-changing event, visit AFCABikeClassic.org.

Arthritis Walk® National Sponsors®

THANK YOU TO OUR WALK SPONSORS!National Sponsors

Local Sponsors

Arthritis Walk® National Sponsors®

Arthritis Walk® National Sponsors®

Arthritis Walk® National Sponsors®

Thousands walk for a cure at the Orange County Arthritis Walk.

Riders celebrate another great day along the California coast.

The breathtaking view of the Bixby Bridge in Big Sur.

Cyclists head into beautiful Monterey Bay.

Riders enjoy a thrilling moment on the coastline.

Page 10: HEADLINES, Fall/Winter 2013

TURN TO US FOR ARTHRITIS INFORMATION AND RESOURCES

page 10

FACES OF ARTHRITIS CAMPAIGN DISPELS ARTHRITIS MYTHS The “Faces of Arthritis” national awareness campaign debuted during Arthritis Awareness Month in May. The campaign creates awareness of the serious impact of arthritis, the nation’s leading cause of disability. It also communicates that arthritis affects people of all ages, genders and backgrounds.

The multi-year communications campaign includes print, billboard and online advertising, websites, social media, public relations and onsite promotion at Arthritis Foundation events. Visit facesofarthritis.org to meet the many faces of arthritis and find out how the Arthritis Foundation is making a difference in their lives.

Read more in the 2012 Arthritis Foundation annual report, “Facing Arthritis” at arthritis.org/about-us/AF-annual-report/.

NEW “KIDS GET ARTHRITIS TOO” WEBSITE FOR THE JA COMMUNITY

The new “Kids Get Arthritis Too” website debuted at the Juvenile Arthritis Conference in July. The website is “the online home” for the entire JA community. It provides needed information about juve-nile arthritis, highlights the extensive JA resources offered by the Arthritis Foundation, and connects parents with an understanding and supportive network of JA families. Visit kidsgetarthritistoo.org.

MAKING LIFE BETTER FOR HISPANIC CONSUMERS WITH ARTHRITIS Two new brochures are now available to educate Spanish-speaking consumers about the Arthritis Founda-tion and its programs. For comprehensive information in Spanish on arthritis and Arthritis Foundation resources, visit arthritis.org/espanol/.

Arthritis Today (bi-weekly) Practical news you can use immediately to live better with arthritis

DON’T MISS:• Breaking news about arthritis treatments• Drug side effects• How to stop arthritis pain• New arthritis supplements

Mind, Body, Spirit (monthly) Improve your mind, body and spirit

EACH E-NEWSLETTER PROVIDES:• News about arthritis care• Tips to reduce arthritis symptoms • Information about medications and

supplements• Inspirational stories

OA Insider (monthly) Beyond the basics of osteoarthritis

LEARN ABOUT:• The latest studies and research• OA news• New treatment options

Arthritis Today Fitness + Nutrition (bi-weekly) Improve your health and arthritis by exercising and eating right

YOU’LL RECEIVE:• Weight-loss tips and tricks • Tips to make exercise a habit• Healthy recipes • Stretches and exercises for every fitness type

RA Insider (monthly) Beyond the basics of rheumatoid arthritis

DISCOVER:• The latest studies and research• RA news• New treatment options

Research Update (quarterly) Arthritis research could change your life

KEEP AN EYE ON:• The latest arthritis research advances• Arthritis Foundation-funded researchers• Arthritis Foundation research grant program

Facing Arthritis2012 Annual Report

Working together to end pain and disability.

1

Le ayudamos a controlar la artritis

www.arthritis.org/espanol

Arthritis Foundation

PROGRAMAS para vivir mejor

arthrit is foundation

arthritis.org/espanol

VALUABLE ARTHRITIS FOUNDATION INFORMATION DELIVERED TO YOUR INBOXDid you know that the Arthritis Foundation offers free e-newsletters tailored to your interests? Register today for practical information to live better with arthritis–delivered straight to your inbox! Visit at.arthritistoday.org/0313newsletter/landing.cfm.

Dr. Grayson DuRaine, the face of arthritis research.

Page 11: HEADLINES, Fall/Winter 2013

YOU CAN MAKE A DIFFERENCE

page 11

CHANGE A LIFE TODAY

Your donation can help fight the chronic pain and disability of arthritis. Every dollar helps us carry out important work in the vital areas of research, advocacy, programs and services.

CHANGE A LIFE TODAY! Please contact your local Arthritis Foundation office to make a difference in the lives of the millions

of adults and children with arthritis.

$25 Can provide 5 people with educational materials on vari-ous forms of arthritis, exercise, nutrition and other topics that will improve their quality of life.

$45 Can enroll 1 new person in the Arthritis Internet Registry, which advances scientific discovery by connecting people with arthritis to clinical investigators.

$50 Can ensure that a newly-diagnosed child with arthritis receives a SAK (Supporting Arthritis Kids) backpack filled with resources and fun items.

$100 Can provide 1 training scholarship for an individual to be certified in the Arthritis Foundation’s Aquatic or Exercise Leader Training Workshops.

$200 Can fund face-to-face training to prepare 1 Arthritis Foundation advocate to meet with members of Congress.

$500 Can register 1 family to attend our annual Juvenile Arthritis (JA) Conference to connect with other families living with the daily challenges of JA.

$1,000 Can send 1 child to JA Camp for 1 week to learn valuable skills to take charge of their disease and develop lifelong friendships with other children living with arthritis.

$5,000 Could make the difference in funding of a promising research grant.

$50-100 thousand

Can fund a research grant for a talented scientist for 1-2 years. Your support can lead to better treatments and a cure for arthritis.

Page 12: HEADLINES, Fall/Winter 2013

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in

Client: Arthritis Foundation, Los AngelesProject: Spring/Summer Headlines 2011 PAGE8 PAGE1

PACIFIC REGION800 WEST SIXTH ST., SUITE 1250LOS ANGELES, CA 90017

NON-PROFIT ORGU.S. Postage

PAIDARTHRITIS

FOUNDATION

Community Connections

CALIFORNIA

Pacific Region / Los Angeles Office800 W. Sixth Street, Ste. 1250Los Angeles, CA 90017Ph. 323.954.5750

Coachella Valley Office73-710 Fred Waring Drive, Ste. 104Palm Desert, CA 92260Ph. 760.773.3076

Greater Sacramento Valley Office3040 Explorer Drive, Suite 1Sacramento, CA 95827Ph. 916.368.5599

Inland Empire Office9 TechnologyIrvine, CA 92618Ph. 949.585.0201

HAWAII

Hawaii Office615 Piikoi Street, Ste. 1109Honolulu, HI 96814Ph. 808.596.2900

NEVADA

Nevada Office1368 Paseo Verde Pkwy., Ste. 200BHenderson, NV 89012 Ph. 702.367.1626

Orange County Office9 TechnologyIrvine, CA 92618Ph. 949.585.0201

San Diego Office9089 Clairemont Mesa Blvd., Suite 104San Diego, CA 92123-1288Ph. 858.492.1090Toll-free: 800.422.8885

Santa Barbara Office2253 Las Positas Rd., Ste. ASanta Barbara, CA 93105Ph. 805.563.4685

Valley Office800 W. Sixth Street, Ste. 1250Los Angeles, CA 90017Ph. 323.954.5750

HEADLINES is a publication of the Pacific Region of the Arthritis Foundation. © 2011 All rights reserved. Editor: Teri S. Lim Contributors: Pacific Region Staff and Volunteers

Headlines Design & Layout: Rob Onekea for www.wayoutwestmultimedia.com

For more information, visit us online at arthritis.org!

SPRING / SUMMER 2011

The mission of the Arthritis Foundation is to improve lives through leadership in the prevention, control and cure of arthritis and related diseases. Call 1.800.954.CURE (2873) or visit www.arthritis.org.

Pacific Region HEADLINESSERVING GREATER CALIFORNIA, HAWAII & NEVADA

• Get Ready to Move! Walk or Ride With Us! • New Research Grants Awarded to Find a Cure!• We’re Making Our Voices Heard!

Volunteers Garrett, Beth and Taylor McLaughlin are committed to a cure!

ARIZONA1221 E. Osborn Road, Suite 201Phoenix, AZ 85014602.212.9900

CALIFORNIAPACIFIC REGION/LOS ANGELES800 West Sixth Street, Suite 1250Los Angeles, CA 90017323.954.5750800.954.CURE (2873)

CENTRAL COAST2261 Las Positas Road Santa Barbara, CA 93105805.563.4685

COACHELLA VALLEYP.O. Box 1395Rancho Mirage, CA 92270760.773.3076

INLAND EMPIRE9140 Haven Avenue, Suite 109ARancho Cucamonga, CA 91730951.320.1540

Mailing AddressP.O. Box 130 Rancho Cucamonga, CA 91729

ORANGE COUNTYP.O. Box 53490Irvine, CA 92619949.585.0201

GREATER SACRAMENTO VALLEY1851 Heritage Lane, #183Sacramento, CA 95815916.368.5599

HEADLINES is a publication of the Pacific Region of the Arthritis Foundation. © 2013 All rights reserved.Editor: Teri S. Lim Contributors: Pacific Region staff and volunteers

HEADLINES Design: red rocket LA Cover art: Warner Bros.

Community Connections

For more information, visit us online at arthritis.org! “Like Us” on Facebook by visiting facebook.com/arthritisfoundationpacificregion

Enjoy videos on YouTube at youtube.com/afpacificregionFollow us on Twitter at twitter.com/arthritispac

SAN DIEGO8555 Aero Drive, Suite 200San Diego, CA 92123858.492.1090

HAWAII760 Halekauwila Street, Suite 201Honolulu, HI 96813808.596.2900800.462.0743

NEVADAP.O. Box 778213Henderson, NV 89077702.367.1626