Great Lakes Collaboration Focus on Autism October 4, 2012

POPULATION BREAKDOWN Overall state population:

12,869,257 Chicago Metropolitan Area

population: 9,729,825 (76%) Economic differences

• Chicago public school district: 617 schools, ~400,000 students (86% low income).

• New Trier school district: 2 schools, approx. 4,000 students (4% low income).

• Pope county school district: 2 schools, 569 students (54% low income).

Autism prevalence urban vs. rural 1 in 144 8-year olds in Illinois has autism (2009-2010 public school data)

• Cook county: 6,558 students with autism • Pope county: 2 students with autism

Data from ISBE IDEA Count December 2002, 2004, 2010 provided by the Illinois Autism Training and Technical; Assistance Project IATTAP

Graph provided by the Illinois Autism Training and Technical Assistance Project IATTAP

1960 2305 29043662

43305175

61257193

82939455

10608

1223913764

1522416432

17895

0

2000

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20000

1996-1997

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2004-2005

2005-2006

2006-2007

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2008-2009

2009-2010

2010-2011

2011-2012

num

ber o

f chi

ldre

n

school year

Number of Children in Ilinois Receiving Special Education under the Category of Autism Ages 3-21

Source: Illinois State Board of Education IDEA Child Count Data December 1, 2011

Graph provided by the Illinois Autism Training and Technical Assistance Project IATTAP

641

1248

1757

2545

4171

8027

947

2496

6627

197 378

1484

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1999-2000 2004-05 2011-12

# o

f stu

dent

s

Students with Autism in Illinois by Age Group

03-05

06-11

12-17

18-21

PUNS is a database of people in Illinois with DD who need services. 4,898 individuals receiving waiver; 1,685 on wait-

list Wait-list and provision of services not

guaranteed.

Children’s Home-Based Support Services Waivers Allows state to provide home and community-

based services/supports for children and young adults (3-21 yrs.) so they may live at home with their families and avoid residential placement.

8/6/12

Data counts of children approaching national prevalence rates.

Developing family/workforce competencies:

• ASD Certificate program across disciplines; • Training and support across the lifespan for families in each

region; and • Training in academic, residency and practice settings for health

care providers.

Funding for community-based services and supports ensured through:

• Reforms to Medicaid for better home and community based services & supports;

• Leverage EPSDT mandate for the diagnosis and treatment of children (0-21) with ASD; and

• Opportunities to utilize Community Health Centers and/or FQHCs in the provision of coordinated care for persons with ASD and DD (lifespan with a target of individuals 21+)

IL Dept. of Human Services Autism Task Force

The Autism Program of Illinois (TAP)

Illinois Autism Training & Technical Assistance Project (IATTAP)

Early Intervention Bureau

Autism Speaks – Chicagoland Chapter

Illinois Chapter of the American Academy of Pediatrics (ICAAP)

Data collection

• Improved diagnostic reporting in EI system

Funding

• Ligas lawsuit allowed adults with DD access services in the community

• Behavioral treatments now reimbursed through early intervention system

Family competencies in supporting people with ASDs

• IATTAP model family support program;

• TAP network of family support and bilingual workshops

• Strong Autism Speaks Chicagoland Chapter

• Grupo SALTO

Workforce Competencies • IATTAP developed a graduate level program for educators that is available

through IL State University (ISU);

• Autism Task Force is tracking trainings related to ASD to be posted in an online Clearinghouse;

• ICAAP offers (at no charge) online training on screening and referral for developmental concerns

• IL LEND targeted health care providers in underserved areas in southern IL for training on early identification; and

• Updates in diagnostic trainings (e.g., toddler ADOS) have been made available for providers in diagnostic programs.

8/6/12

Inconsistent data collection;

Disparities & gaps in family supports;

Non-standardized professional training;

ESL issues;

Disparities in diagnostics and service provision;

Limited post-secondary transition services;

Limited services for adults; &

FUNDING!!!

Improve systematic collection of Early Intervention data;

Expand Early Identification training to health care professionals in underserved areas;

Expand Basic Level Online Autism Training Courses from IATTAP across state;

Implement competency-based pediatric residency training on ASDs across residency programs state-wide

Address funding disparities:

• Partner with Autism Speaks to enhance insurance coverage

• Work with legislators regarding approval mechanisms for FQHCs

8/6/12

Questions