Forward for Life: Helping our Recipients Give

BackUNOS Region 7 Educational

ProgramFebruary 13, 2015

Jaime Myers, RN, MSN, CCTC

The Forward Focus Excellence in Organ Donation Collaborative is an initiative aimed at moving a donation process that works in silos to a process that has a shared vision, collaboration

and accountability across the donor hospital, OPO and transplant center.

Background: Forward Focus

Eligible Deaths

Other Potential Donors Not Declared Brain Dead

What Is The True Denominator for Potential Organ Donation?

Other Potential Donors (DCD, > age 70, etc.)

Cumulative data indicates a possible 66% increase in donors.

UWHC OPOActual Donor and Potential Donor Data Analysis

13

79

6

1815

10

19

11

6

14

85

6

64

8

1 8

9

9

15

8

9

6

4

19

13 1314

19

23

19

28

26

14

23

14

9

0

5

10

15

20

25

30

Jan-11 Feb-11 Mar-11 Apr-11 May-11 Jun-11 Jul-11 Aug-11 Sep-11 Oct-11 Nov-11 Dec-11 Jan-12

Actual Donors = 141 Potential Donors = 93 Actual Donors + Potential Donors = 234

The Possibility

Current State Breakthrough Improvement

200 more lives saved each year!!

88%Conversion

Rate

129Organ Donors

3.13OTPD

403Transplants

88%True Conversion

Rate

175Organ Donors

3.45OTPD

603Transplants

Select TopicMay and June 2011

Planning GroupJul and Aug 2011

Identify Change Concepts

Oct and Nov 2011

Enroll ParticipantsDec 2011

Prework

LS 1Mar 2012

LS 2Nov 2012

LS3Apr 2013

22 Faculty Members Committed

9 Largest Donor

Hospital CEOs Committed and Teams

Enrolled

Theda Clark

Facilitator

Commitme

nt of 8

hrs/week

Support System

•ListServe

•Site Visits

•Conference Calls

•Rapid Sharing

•Data Reporting

•Website

Collaborative Engine & Timeline

Team Transplant: Identify a Problem

• Limited means to communicate to patients and live donors about how they could assist with the promotion of organ donation.

• Transplant staff had limited materials and information on where to point patients who did inquire.

Goals

• Increase number of volunteers throughout the UW Organ & Tissue Donation service area

• Increase in volume of thank you’s sent to donor families and donor hospitals

• Increase in state registry volumes• Increase number of donors• Improve patient satisfaction

Aim Statement

To develop a formal program to heighten patient and family awareness of the need for organ donation and to better engage patients in donation awareness activities to increase organ donation.

• Transplant surgery• Inpatient Nurse Manager• Transplant coordinators• Transplant Recipient• Administrative support• Marketing• OTD Hospital Liaison • Live donor

Organize a Team

Target Population

• 1000+ wait list patients• 5600+ transplant recipients• 2900+ live donors• Family members of all groups

More than 10,000 people we can More than 10,000 people we can target to help with our mission!target to help with our mission!

Material Development

• Attended patient support group to elicit ideas:– Provide patients with folder/packet at time of discharge with

information and materials on organ donation. Materials provided can include volunteer information if patients wish to get involved at this time. Also, ways they can share their story, and information on community activities. Provide trinkets (bracelets, bumper stickers, pins) that patients might be willing to wear.

– It seemed patients would want to wait until they received the transplant, rather than being confronted about this while on the waiting list.

– Should wait to have discussions with patients to solicit their further involvement until 1st year anniversary.

Materials

Study: How are the materials doing?

Methods: Survey Monkey emailed out to patients who had a completed one year anniversary visit in our study period (August 2013-April 2014).

51 Surveys completed

Study Findings

Forward for Life Survey

Did you receive the Forward for Life folder?

Answer OptionsResponse Percent

Response Count

Yes52.0% 26

No48.0% 24

answered question 50

skipped question 1

Survey Findings

Forward for Life Survey

Have you had the opportunity to read and review the information in the folder?

Answer OptionsResponse Percent

Response Count

Yes78.6% 22

No21.4% 6

answered question 28

skipped question 23

Survey Findings

Forward for Life Survey

If you haven’t read the materials yet, will you in the future?

Answer OptionsResponse Percent

Response Count

Yes100.0% 6

No0.0% 0

If no, please tell us why:0

answered question 6

skipped question 45

Forward for Life Survey

You had your transplant approximately one year ago. Do you think this was a good time to be given the Forward for Life folder?

Answer OptionsResponse Percent

Response Count

Yes88.2% 15

No11.8% 2

answered question 17

skipped question 34

Study Findings

Forward for Life Survey

It was not the best time because:

Answer OptionsResponse Percent

Response Count

It was too soon for me to be given this folder33.3% 1

I wish I would have received the folder at an earlier clinic visit.66.7% 2

Please tell us why you selected the above choice:2

answered question 3

skipped question 48

Study Findings

Study Findings

Study Findings

Ways of Giving Back

Staff Survey

Staff Survey

• Folders moved to more convenient location

• Education to staff

Results

P. H. 45-year-old male08.29.2014

Letter from transplant recipient to team that

cared for donor

Forward For Life project/folder/materials won an Award of Excellence and a Judges Choice Award at the Wisconsin Public Relations and Healthcare Marketing Society annual conference Fall 2013

Other Acknowledgement

Phase 2

• Plan: Develop additional ways to help recipients thank donor hospitals

• Do: Record videos of patients• Check: Feedback from donor

hospitals