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  • 8/9/2019 enewletterAADPab

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    Sherrie Cramer wont take no for an answer. Her 16-year-old adopted daughter Katie Cramer

    is diagnosed with leukemia and needs a matching marrow/stem cell donor to prolong and

    hopefully save her life. Katie is Chinese and is of Zhuang ancestry. The Zhuang are the largest

    minority group in China and most of them live

    in the central and western part of Guangxi

    region in Southern China.

    So far, even after searching all registries

    throughout the world, a perfect match for Katie

    has not been found. The Asian American Donor

    Program continues to host drives that attractChinese Americans, here in the Bay Area and

    beyond.

    To this end, Sherrie Cramer, who lives in

    Sacramento, is travelling to China to conduct

    marrow/stem cell drives to increase the number

    of Chinese available as potential donors. Cramer

    will spend two weeks in China and will try to

    conduct marrow/stem cell drives in Liuzhou and

    Nanning.

    July 15, 2010

    Since her return from China, Katies mom has been making headlines and spreading

    Family and friends of Sherrie Cramer at SFOInternational

    MOTHER WILL NOT GIVE UPSherrie Cramer Travels to China to Find a Matching/Stem Cell Donor for her AdoptedDaughter

    July 2010

    EAST BAY AREAJuly 25 2010 (Sun):St. Jarlath Parish

    2620 Pleasant St.,Oakland, CA 9460210:30am 1:20pm

    WEST BAY AREA

    NORTH BAY AREAJuly 20, 2010 (Tues):SF Courthouse

    400 McAllister Street,San Francisco CA 9410210am- 4pm

    July 31, 2010 (Sat)SF Main Library, SF

    100 Larkin St, SF CA 9410211am 2pm

    SOUTH BAY AREAJuly 24, 2010 (Sat):St. John Baptist Church,Milpitas

    279 South Main Street,Milpitas, CA 950355pm8:30pm

    St. Francis of Assisi, (twoday drive)

    Upcoming Drives andVolunteer Opportunities:

    Please visit www.aadp.orgfor more drive listings

    Patient and Family e-Newsletter

    AADP

    July 1-19, 2010

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    e news a ou er aug er s searc or a marrow onor. an ong s s ory

    about Sherrie Cramers trip to has reached media outlets nation and world wide,

    AMAZING! Here is a list, but there is several more:

    PROJECT MICHELLE

    Project Michelle was started by Michelle Maykin who was

    diagnosed with Acute Myeloid Leukemia when she wasonly 25 years old. Michelle fought to protect those who

    wished to donate life-saving bone marrow and organs.

    Unfortunately, Michelle passed away last year, 2 years

    after she was diagnosed, after struggling unsuccessfully

    to find a bone marrow match. Now her mother, Megan

    Williams is continuing this cause for her. Right now, with

    the lack of protection, people who donate bone marrow

    and organs DO NOT receive paid leave from work, and

    this life-saving action can ultimately lead to termination

    of employment. If SB1304 passes, people who donate

    bone marrow will receive 5 days paid leave, and those

    who donate an organ will receive 30 days paid leave

    from work. Petition for SB1304.

    Michelle Maykin passed away inJuly 2009. Her legacy continues tohelp make a difference in anotherpersons life.

    SB1304: The Michelle Maykin Memorial Donation Protection Actas of July 2010

    San Jose, CA 95135

    PATIENT SPOTLIGHT

    Are you interested involunteering at drives or inour office? Visitwww.aadp.org or email:[email protected]

    Josiah is 6

    years old.

    He was

    diagnosed

    with Wiskott-

    Aldrich

    Syndrome at3 months of age and had a

    stem cell transplant at 18

    months. He is doing

    fantastically, with his new

    great-working immune

    system and goes for check-

    ups once a year. His

    teachers always report that

    he is a very thoughtful and

    helpful person to other kids

    in his class and has a great

    heart.

    WBBM radio--an all news radio station inChicago

    This is a TV station in Columbia, SouthCarolina

    This is a newspaper in Vancouver, BritishColumbia

    Television station in Dallas/Fort Worth

    R&D Magazine

    The Atlanta Journal-Constitution

    TV station in Portland, OR

    Yahoo News: Philippines

    Newspaper in Old Greenwich, CT

    LA Times

    For more on Katie and Sherrie's story, please visit:

    Katie Cramer: http://katiecramer.org

    Adoption Talk Blog: China Adoptee Needs Bone Marrow Transplant

    Katie Supporters on Facebook

    Join us for the 201Light The NightWalk and help findcure for bloodcancers.AADP invityou to join staff, famand friends to participin Light the Night in S

    Francisco, Thursday, October 21If you are interested in joining orsponsoring AADPs team please emus at: [email protected]

    Barry Foon 4thAnnualCelebrity GolfTournamentwill take place onMonday, September20, 2010. This yeartournament will take

    place at Ruby Hill Golf course inPleasanton. Visit www.aadp.org formore info.

    AADP in Action: Past weekend marrow registration drives!

    Newly registered potentialdonors show off their AADPtattoos at Obon Festival,

    Mt. View 07/17/10.

    Summer intern, DonNguyen working hard to

    recruit new donors atAdobo Festival, Union

    City. 07/17/10

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    Y o u a r e r e c e i v i n g t h i s e m a i l b e c a u s e y o u s u b s c r i b e d t o A A D P s P a t i e n t a n d F a m i l y b i - w e e k l yn e w s l e t t e r . T o r e m o v e y o u r s e l f f r o m t h i s s u b s c r i p t i o n p l e a s e e m a i l i n f o @ a a d p . o r g

    Amanda (32),

    Filipina/Caucasian.

    ALL

    Katie (16),

    Chinese.ALL

    Jamison (2),

    Filipino.Aplastic Anemia

    Amy (2),

    Chinese.Fanconi Anemia

    Teri (60),

    Chinese.ALL

    Akshay (21),

    South Asian.Leukemia, MDS

    Searching Patients:

    WAITING ROOMA community for those

    affected by blooddisease.

    A non-profit organizationdesigned to increaseawareness about the

    importance of emotionalhealth and wellness in theSouth Asian community.