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The Art of the Possible Using CPCSSN Data for Primary Care Research
Family Medicine ForumNov 16, 2012
Karim Keshavjee - EMR Consultant & Research Data ArchitectKen Martin - Information and Technology Manager
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Outline• Introduction to CPCSSN• CPCSSN Data Holdings• A Tour of CPCSSN Data Tables• Current Research Projects at CPCSSN• The Art of the Possible• How to use CPCSSN data for your research• Goodies for Today
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329 physicians in 8 provinces using 10 EMRs
10 PC-PBRNs• British Columbia - BCPCReN (Wolf ) • Alberta - SaPCReN, Calgary (Med Access, Wolf) - AFRPN, Edmonton (Med Access)
• Manitoba - MaPCReN, Winnipeg (Jonoke)
• Ontario - DELPHI, London (Healthscreen, Optimed, OSCAR - NorTReN, Toronto (Nightingale, xwave, Practice Solutions) - CSPC, Kingston (P&P, OSCAR, xwave)
• Quebec - Q-Net, Montréal (Da Vinci, Purkinje)
• Nova Scotia / New Brunswick - MarNet, Halifax (Nightingale, Purkinje)
• Newfoundland - APBRN, St. John’s (Wolf , Nightingale)
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CPCSSN population
CPCSSN PopulationData Extracted on all patients in the practice, including children Studying patients with the following chronic diseases
• Chronic Obstructive Lung Disease • Depression• Diabetes• Hypertension• Osteoarthritis
Chronic Neurological Disease• Dementia• Epilepsy• Parkinson's Disease
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Data Holdings Q2 2012
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6Database Schema - ERD
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Data Cleaning/Recoding• We clean and recode the following fields
• Billing, Encounter and Problem List Diagnoses (ICD9)• Medications (ATC)• Lab results (LOINC)• Referrals (SNOMED CT)• Physical signs (Wt, Ht, BP, unit conversion, calculate
BMI)• Vaccines (ATC)• Risk factors (smoking, alcohol, diet --Text)
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8Patient Demographics
} < 5%
} < 5%
368,000 Records
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Provider Information
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Billing
6.8 Million Records
Dates of Encounter
Original diagnosis sent for billing
Text from Code Recoded by CPCSSN
Original Diagnosis Code sent for billing
Recoded by CPCSSN
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Research Discussion• Useful for case finding• Useful for understanding deficiencies of using
billing information for clinical research
• There is some inconsistency in use of billing codes across the country
• CPCSSN recodes all billing diagnosis codes to a standard version
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Encounters
5.1 Million Records
Dates of Encounter
Data inconsistent across the Country
CPCSSN Cleaning Not Started
Active area of CleaningE.g., Office Visit, Phone, E-mail etc
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Research Discussion• Can we segment patients by pattern of visits?• Does pattern of visits predict other things?
– Control of disease– Frequency of prescriptions– Multiple comorbidities
• Does visit type affect quality of care?
• Reason for Encounter is poorly captured in most EMRs
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Problem List Diagnoses
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Original Diagnosis Written by UserE.g. DMT2
Recoded by CPCSSNE.g., Diabetes Mellitus, Type 2
} Not well populated
1.8 Million Records
Active = Problem ListInactive = Past Medical History
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Problem List Diagnoses
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List of cleaned up diagnoses
Chronic airway obstruction, not elsewhere classified (496)Bronchitis, not specified as acute or chronic (490)Chronic bronchitis (491)Emphysema (492)Diabetes mellitus (250)Depressive disorder, not elsewhere classified (311)Suicide and self-inflicted poisoning by solid or liquid substances (E590)Suicidal ideation (V62.84) Adjustment reaction (309)Post traumatic stress disorder (309.81)Major depressive disorder, recurrent episode (296.3)Bipolar I disorder, most recent episode (or current) (296.7)Mental disorders complicating pregnancy, childbirth, or the puerperium (648.4)Essential hypertension (401)Osteoarthrosis and allied disorders (715)Spondylosis and allied disorders (721)Total knee replacement (81.54)Total hip replacement (81.51)Polycystic ovarian syndrome (256.4)Abnormal glucose tolerance of mother complicating pregnancy childbirth or the puerperium (648.8)Secondary diabetes mellitus (249)
MORE BEING ADDED SOON
Other abnormal glucose (790.29)Migraine (346)Heart failure (428)Acute myocardial infarction (410)Old myocardial infarction (412)Other forms of chronic ischemic heart disease (414)Cardiac dysrhythmias (427)Essential and other specified forms of tremor (333.1)Esophageal varices with bleeding (456.0)Esophageal varices without bleeding (456.1)Angina pectoris (413)Other acute and subacute forms of ischemic heart disease (411)Calculus of kidney and ureter (592)Portal hypertension (572.3)Asthma (493)Dementias (290)Alzheimer's disease (331.0)Dementia with lewy bodies (331.82)Parkinson's disease (332)Epilepsy and recurrent seizures (345)Epileptic convulsions, fits, or seizures nos (345.9)
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Research Discussion• Sensitivity and specificity of problem list
diagnoses not currently known, so cannot determine incidence and prevalence of disease from problem list alone
• Need to develop case finding criteria for diseases (includes diagnosis, meds, labs, etc)
• Need to identify sensitivity and specificity of having a diagnosis in the problem list
• Currently in the process of validating 8 case finding criteria across the country
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Vital Signs
Name of exam (e.g., sBP)
Cleaned up result(e.g, lbs -> kg, inch -> cm)
5 Million Records
Cleaned up unit of measure(e.g., unit is kg, but result was lb)
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Research Discussion• Currently have access to
– sBP/dBP– Ht– Wt– BMI– Waist circum
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Allergies
Name of allergen
Cleaned up name
155K Records
Data will be coded as ATC
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Research Discussion• Not yet cleaned, but will soon clean it• Focus of cleaning will be on medication
allergies– All other allergies will be retained as original text
• Useful when assessing why patients are not receiving medications for a particular disease
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Risk Factors
Name of Risk Factor (e.g., smoking)
Cleaned up version of Risk Factors.
588K Records
Working on cleaning up Current Exposures & Cumulative Exposures
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Research Discussion• Risk factors are actively being cleaned
• Getting the status of the risk factor (i.e., smoker/non-smoker) is difficult, but easier than
• Current levels of exposure (e.g., # of cig/day)• Cumulative exposure (e.g., pack years)• Alcohol use is also being cleaned up
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Laboratory Results
Original Lab Result Name(e.g., Hb A1c, HGbA1c, etc)
Recoded by CPCSSN 100% LOINC(e.g., HBA1C)
3 Million Records
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Research Discussion• Currently only capturing the following
• One site does not capture labs yet
HDLTRIGLYCERIDESLDLTOTAL CHOLESTEROLFASTING GLUCOSEHBA1CURINE ALBUMIN CREATININE RATIOMICROALBUMINGLUCOSE TOLERANCE
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Encounter Diagnoses
Original Diagnosis Recorded in Encounter(e.g., axniety)
83% Recoded by CPCSSN(Anxiety ICD-9 300)
6.3 Million Records
63% Originally coded by Doctor
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Research Discussion• Not all EMRs capture Encounter Diagnoses in a
structured manner
• This table is not ready for prime time across all sites, but may be useful for projects where data from just a few sites is acceptable
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Medications
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What the doctor orderedE.g., HCTZ 25 mg bid
91% Recoded by CPCSSNE.g., Hydrochlorthiazide
56% Coded as DIN
Strength 56%Dose 70%
Unit of Measure 84%Frequency 95%Duration 52%
Dispensed 86%
72% Coded by doctor (DIN + other)
91% Coded by CPCSSN (ATC)
4.9 Million Records
}
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Research Discussion• Medication name data is relatively clean• Medications coded as ATC
– Allows easy grouping by class
• Don’t have daily dose and months supply for many records –working on clean up
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Referrals
Original Text of Referral
80% Recoded by CPCSSNSNOMED-CT
600 K Records
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Procedures
Original Text of Procedure
Not Currently Coded by CPCSSN
1.3 Million Records
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Vaccines
What the doctor typed
93% Recoded by CPCSSN (ATC)
960 K Records
46% Coded by Doctor (DIN)
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Disease Cases
173,000 Records
Case Definitions are developed by CPCSSN and are in the process ofbeing validated through chart reviews
How a Case is identified is recorded in this table
Allows full traceability for each case
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Current Research Projects at CPCSSN
N=46
Association Study 9%Attitudes 2%Audit and feedback 2%Case control study 7%Case Finding 9%Clinical Quality Improvement 2%Continuity of Care 2%Data Quality 20%De-identification 2%Denominator 2%Descriptive Study 2%EMR Adoption 2%Feasibility 2%Intervention Assessment 2%Medication 2%Practice Profile 4%Prevalence 7%Prevalence, Case finding 2%Resource Use 7%SES Study 4%Treatment pattern 4%Validation 4%
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Research Opportunities• Population Health and Epidemiological Studies
– Incidence/Prevalence of disease– Impact of SES on health– Rates of treatment for diseases– Rates of disease control– Burden of illness and multi-morbidity
• Clinical –database studies– Comparative effectiveness– Case-Control– Exposure-Outcome– Quality Improvement– Associations– Intervention-Outcome– Guideline effectiveness
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Research Opportunities• Clinical –prospective, interventional studies
– Conduct pragmatic RCTs –data is already collected– Conduct in-clinic interventions– Not ready for these yet
• Health Services– EMR adoption– Resource Utilization (consults, labs, procedures)– Policy Intervention (cross-province comparisons)– Patient behaviors –frequency of visits– Medical errors and patient safety
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Research Opportunities• Health informatics
– Natural language processing– Machine learning– De-identification algorithms– Predictive Analytics
• eHealth and mHealth– Develop and test apps using CPCSSN data– Patient education apps with their own data– Apps for healthcare providers to educate patients
about their disease with nice visualizations
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Research Using CPCSSN Data
ResearcherLetter of
Intent
CPCSSN Research
Committee
Writes
Letter of Intent
Reviews
1 page, includes: Researchers, Organization, Research Title,
Objective, Methodology, Data Required
Approved
1. Resubmit2. Not Feasible
3. Outside Mandate
No
Researcher
1. Protocol2. Data Access Request Form
3. Data Sharing Agreement
Letter of Acceptance Yes
Writes
CPCSSN Research
Committee
CPCSSN Data
ResearcherInvoice
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Goodies For Today• Copy of the presentation: The Art of the Possible: Using CPCSSN
Data for Primary Care Research• Sample of CPCSSN data for 200 patients
– Anonymized and scrambled to protect patient privacy– (MS Access file format)
• CPCSSN database entity relationship diagram (ERD)• CPCSSN database data dictionary• CPCSSN central repository data holdings summary• CPCSSN Data Access Request Form Central Repository• Process for Requesting Access to CPCSSN Data
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Next Steps• Sign a License Agreement today to get your copy of
the CPCSSN Data Product
• Evaluate the data CPCSSN has
• Plan your next grant application around CPCSSN data
• Add CPCSSN Data as a budget item into your next grant application– You can contact us to get a quote
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Contact
Tyler Williamson, Senior Epidemiologist Canadian Primary Care Sentinel Surveillance Network
Centre for Studies in Primary CareQueen’s UniversityKingston ON K7L 5E9
Tel: (613) 533-9300, Ext. 73838Fax: (613) 533-9302e-mail: [email protected]
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Thanks to all Funders, Stakeholders, Partners, AND sentinel Physicians
Cette publication a été réalisée grâce au financement de l'Agence de la santé publique du Canada. Les opinions exprimées ici ne reflètent pas nécessairement celles de l'Agence de la santé publique du Canada.Funding for this publication was provided by the Public Health Agency of Canada The views expressed herein do not necessarily represent the views of the Public Health Agency of Canada.