development and initial validation of the children participation questionnaire (cpq)
TRANSCRIPT
RESEARCH PAPER
Development and initial validation of the Children ParticipationQuestionnaire (CPQ)
LIMOR ROSENBERG1, TAL JARUS2 & ORIT BART3
1Department of Occupational Therapy, School of Health Professions, Sackler Faculty of medicine, Tel Aviv University,2Department of Occupational Science and Occupational Therapy, CanDo research center, Faculty of Medicine, University of
British Columbia, Vancouver, Canada, and 3Department of Occupational Therapy, School of Health Professions, Sackler
Faculty of medicine, Tel Aviv University
Accepted January 2010
AbstractPurpose. To develop and test the psychometric properties of a parent-reported questionnaire measuring participation ofpreschool children (Children Participation Questionnaire; CPQ) aged 4–6 years in their everyday activities.Methods. Reliability was tested by Cronbach’s a and by test–retest. Construct validity was computed by known groupdifferences analysis. Convergent and divergent validities were calculated by correlation with the Vineland AdaptiveBehaviour Scale (VABS). Two hundred thirty-one children with mild to moderate developmental disabilities (mean age5.16 + 0.66 years old) were compared to 249 children without disability (mean age 5.13 + 0.72 years old).Results. The CPQ has good internal reliability. Cronbach’s a for the participation measures ranged between 0.79 and 0.90,indicating good homogeneity. The temporal stability of the CPQ was supported with intra-class correlations ranging from0.71 to 1.00. Significant differences were found between children with and without disabilities in all the CPQ measures. TheCPQ could also differentiate between age groups and groups of varying socio-economic status. Convergent and divergentvalidity were supported.Conclusions. The CPQ has demonstrated good psychometric properties and can be used as a reliable and valid measure toassess children’s participation at the age of 4–6 years.
Keywords: Child participation, participation measurement, parent’s questionnaire
Introduction
Participation is defined by the World Health
Organization (WHO) [1] as involvement in life
situations and as engagement in occupations of
daily activities that are essential for development,
life experience and well-being [2]. Throughout
childhood, participation is the process and the
product of development [3–6]. Participation is a
multi-dimensional construct affected by many per-
sonal factors, such as gender, chronological or
developmental age, performance skills, and en-
vironmental factors, such as accessibility, supportive-
ness or socio-economic status [7–9]. Enhancing
children’s participation is an ultimate goal of rehabi-
litation in children with diverse health status and
disabilities.
Evaluating participation is essential for setting
goals, implementation of treatment programmes,
and evaluation of intervention efficacy [8,10].
Although the number of researchers investigating
participation in various paediatric populations has
increased [11–18], most focus on school age children
older than 6 years, with severe developmental
disabilities. A literature search [2,10,19,20] for the
assessment tools designed to measure child partici-
pation reveals a paucity of tools appropriate to
capture the full essence of the construct of parti-
cipation. Most of these tools, for example the
School Function Assessment (SFA) [21], Children’s
Correspondence: Limor Rosenberg, Department of Occupational Therapy, School of Health Professions, Sackler Faculty of medicine , Tel Aviv University,
Ramat Aviv, Tel Aviv, 69978, Israel. E-mail: [email protected]
Disability and Rehabilitation, 2010; 32(20): 1633–1644
ISSN 0963-8288 print/ISSN 1464-5165 online ª 2010 Informa UK, Ltd.
DOI: 10.3109/09638281003611086
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Assessment of Participation and Enjoyment (CAPE)
[22] and the Assessment of Life Habits (LIFE-H)
[23] are originally designed, as mentioned pre-
viously, for school-aged children with severe dis-
abilities. Little is known about participation patterns
of younger children with mild to moderate develop-
mental disabilities, although these children make up
the majority of referrals to developmental paediatrics
clinics [24]. It is especially important to assess
participation of young children as their function at
this age may predict their scholastic and social
adjustment in later years [25].
Several authors [8,10,20,26] discuss measurements
of participation according to the International Classi-
fication of Functioning, disability and health (ICF)
model, emphasising the importance of assessing the
actual doing of activity rather than capability [27]. It is
also suggested that participation measurement has to
reflect the child’s engagement in all areas of occupa-
tion that are common to children in their home,
educational setting and community [2,10,19,28]. In
addition participation should be measured by objective
dimensions, such as diversity (what one does),
intensity (how often one does it), and independence
(how much assistance one needs), alongside
with subjective dimensions such as how much enjoy-
ment and satisfaction one finds [2,8]. In constructing
participation evaluation methods for young children,
gathering information through their parents is recom-
mended in the literature [23,28]. Parents’ reports are
considered to be a sensitive, reliable and valid source
of information [29,30]. Moreover, the use of parents’
reports may be inexpensive and feasible [31].
Therefore, the purpose of the present study is to
develop and test the psychometric properties of a
parent-reported questionnaire measuring participation
of children (Children Participation Questionnaire;
CPQ) aged 4–6 years. We hypothesise that the CPQ
will be reliable and valid. In light of the ICF model and
previous findings that demonstrated personal factors
[7,9,32–35] and environmental factors [36–38] af-
fecting child participation, we predicted that the
CPQ participation measures will be able to differ-
entiate between age groups, between children with
and without developmental disabilities, and between
children from diverse socio-economic statuses. We
also hypothesise that construct validity will be
supported by significant correlations between the
CPQ and the Vineland Adaptive Behaviour Scale
(VABS) [39], which is an established functional
measure that is being used for validity studies
[30,20]. Specifically, we hypothesise that the objec-
tive measures of the CPQ will correlate with the
VABS to ascertain convergent validity, whereas
divergent validity will be supported by lower
correlations of the VABS to the CPQ subjective
measures, as this aspect is not included in the VABS.
Construction of the questionnaire
Children Participation Questionnaire description
The CPQ is a parent-completed questionnaire for
children aged 4–6 years. In order to avoid ambiguity
about the operational definition of participation, we
chose the Occupational Therapy Practice Frame-
work (OTPF) definition [40] to guide the CPQ
construction. The OTPF provides a classification
system (or taxonomy) of areas of occupations and
activities.
Based on the OTPF, the CPQ contains 44
activities in six areas of occupations: activities of
daily living (ADL; e.g. dressing), instrumental
activities of daily living (IADL; e.g. setting the
table), play (e.g. pretend play, computer games),
leisure (e.g. bicycle riding, listening to a story), social
participation (e.g. visiting a friend) and education
(e.g. drawing and graphic-motor exercises in a
preschool classroom). For each activity in which a
child participates, parents report on intensity, child’s
independence level, child enjoyment and their
satisfaction. Thus, the questionnaire yields five
participation measures: participation diversity (D)
is the number of activities in which a child
participates (maximum 44); participation Intensity
(I) is the child’s mean participation frequency
ranging from 0 (never) to 5 (everyday); indepen-
dence (Ind) is the mean assistance level of the child
ranging from 1 to 6, where 6 means fully indepen-
dent; child enjoyment (E) is the mean level of the
child’s enjoyment ranging from 1 to 6 and parent
satisfaction (PS) is the mean Parent Satisfaction with
the performance of their child, ranging from 1 to 6,
where 6 indicates highest enjoyment or satisfaction.
In addition, if needed, each total measure (diversity,
intensity, child enjoyment, and parent satisfaction)
can be split into six subtotal scores for each area of
occupation (i.e. ADL, IADL, play, leisure, social
participation, and education; see Appendix).
Children Participation Questionnaire content validity
In the first stage of the CPQ construction, we
phrased the questionnaire items based on all the
areas of occupation as outlined in the OTPF and
adjusted them to fit the activities and performances
of young children. We defined the measurement
indexes and selected the measurement scales. The
first version of the questionnaire was reviewed by a
group of six paediatric occupational therapists, and a
group of three occupational therapy academic
researchers to establish the questionnaire content
validity [41]. Based on their feedback, 4 items were
added and 3 were shifted from one category to
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another. Measurement scales were enlarged from 1–4
to 1–6 in order to increase the variability of the scores
and prevent ceiling effect. The revised version of the
CPQ was introduced to three paediatric occupational
therapy teams who pilot tested the questionnaire with
10 parents of treated children and 10 of non-treated
children. All the parents affirmed that the 44 activities
of the CPQ covered the full range of their children’s
life. Parents’ questions, comments and feedback were
discussed by team members and the researchers.
Based on those discussions, a few items were
rephrased (e.g. ‘free play’ was rephrased to ‘pretend
play’), examples were added where necessary (e.g. to
the activity of ‘use of arts and crafts materials’ we
added a list of materials, such as glue, clay and finger
paints), and the instruction guide was rewritten.
Following those steps, a final version was designed
(see Appendix).
Methods
Participants
We performed a power analysis using the data from a
pilot study (N ¼ 100, 50 for each group of children
with and without disability). The Diversity measure
did not differ between the two groups, therefore we
did not consider it in the calculation of sample size.
Assuming a 5% level of significance, 80% power and
a moderate effect size (Cohen’s d ¼ 0.5) [42,43],
247 participants were required per group based on
the Participation Intensity measure (the other CPQ
measures required much smaller sample sizes ran-
ging from 31 to 35 per group).
Five hundred twenty-eight parents were recruited
through a convenience sampling method and com-
pleted the CPQ. Nine per cent of the questionnaires
were incomplete and therefore only 480 children and
their parents participated in the study. Two hundred
thirty-one children (45 girls, 186 boys, mean age
5.16 + 0.66 years old) were recruited from seven
paediatric occupational therapy clinics in central and
northern Israel. To be included in this group, parti-
cipants had to attend regular preschool and had to be
referred to occupational therapy evaluation because of
mild or moderate developmental difficulties, including
clumsiness, gross motor difficulties, fine motor delays,
visual motor difficulties, sensory sensitivity, attention
deficit disorder or learning disabilities. The second
group contained 249 children without developmental
disabilities (45 girls, 204 boys, mean age 5.13 + 0.72
years old). There were no significant differences
between the two groups in age, gender and family
income. Sixty participants (23 children with disabil-
ities, 37 children without disabilities) were from
families with below average income, 222 participants
(115 children with disabilities, 107 children without
disabilities) were from families with average income
and 195 participants (91 children with disabilities, 104
children without disabilities) were from families with
above average income.
Measurements
Vineland Adaptive Behaviour Scale [39]. The VABS is
a semi-structured interview addressed to parents or
caregivers to assess children’s adaptive behaviour
from birth to 18 years of age. Originally the VABS
was developed for children with intellectual disabil-
ities to assess child adaptive behaviour in four
dimensions: ADL, communication, motor skills
and socialisation. The VABS was chosen to establish
criterion validity of the CPQ as it is the only
instrument that assesses similar constructs to those
of the CPQ, and is commonly used in validity studies
of developing new tools [20,30]. The VABS has
sound psychometric properties [44].
Procedure
Ethical approval was provided by the Behavioural
Research Ethics Board of Tel-Aviv University. Parents,
who agreed to participate in the study, received
information about the procedure and purpose of the
study, signed a consent form and completed the CPQ
independently at their own convenience. The ques-
tionnaires were collected a few days later. To assess
test–retest reliability, a randomly selected sub-sample
of 40 parents, 20 from each group (with and without
disabilities), completed the questionnaire twice in a 2-
week interval. To assess convergent and divergent
validity, another sub-sample of 108 parents of children
without disabilities was also interviewed for the
completion of the VABS [39].
Data analyses
For establishing the CPQ homogeneity (internal
consistency), we used Cronbach’s a coefficient and
Spearman correlations to calculate inter-item corre-
lations. For establishing temporal stability (test–retest
reliability), we used k test and intra-class correlations
(ICC). k 5 0.40 was considered poor to fair, and
0.41–0.60 indicated moderate agreement. k 4 0.61
is considered as a good level of agreement, and when
it exceeds 0.80 the agreement is very good [45]. The
ICC as the parametric equivalent test of the k can be
interpreted the same. The construct validity of the
CPQ was tested using two-way analysis of variance
(ANOVA) tests to establish group differences
The Child Participation Questionnaire 1635
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between age groups and diagnostic groups. Two
hundred six participants were assigned to the young
preschoolers’ group (M ¼ 4.48, SD ¼ 0.32, range
4.00–5.00) and 274 were assigned to the older
preschoolers’ group (M ¼ 5.65, SD ¼ 0.42, range
5.01–6.99). In addition, two-way ANOVA was
computed with group (with and without disability)
and family income (below average, average, above
average) as ‘between-group’ factors and participation
measures (Diversity, Intensity, Independence, child
enjoyment, Parent Satisfaction) as a ‘within-subject’
factor. We used the Eta square (Zp2) results to assess
effect size. Zp2 5 0.06 is considered to be poor, and
above 0.14 is considered to be high [46]. Convergent
and divergent validities were calculated using Spear-
man correlation between the CPQ measures and the
VABS subscales. To support convergent validity,
based on similar validity studies [47,48], we expected
significant, small to moderate correlations (around
0.4) between the objective measures of the CPQ and
the VABS subscales. To support divergent validity we
expected no significant or lower correlations (around
0.2) between the subjective measures of the CPQ and
the VABS subscales.
Results
Reliability of the Children Participation Questionnaire
Internal consistency reliability. Cronbach’s coefficient awas calculated to examine how well all items
measured the same construct and contributed to
the total assessment score, with 0.70 specified as an
acceptable level [49]. The a coefficients for the CPQ
total measures (Participation Intensity, Indepen-
dence Level, child enjoyment, and Parent Satisfac-
tion) and for each area of occupation (ADL, IADL
etc.) are presented in Table I. We did not calculate
an a coefficient for participation diversity as it is a
categorical measure. Of note, the reliability of all the
total measures is above acceptable level and
much higher than the reliability of each area of
occupation.
Test–retest
Temporal stability of each of the 44 activities on all
the CPQ total measures (i.e. participation diversity,
Participation Intensity, Independence Level, child
enjoyment, and Parent Satisfaction) was calculated
using k. When k could not be analysed we calculated
the agreement percentage. The temporal stability of
the CPQ was supported with a k ranging from 0.28
to 1.00 (96% of the calculated items scored between
moderate to very good), and an agreement percen-
tage ranging from 41 to 100% for all 44 activities6 4
measures.
Test–retest for the mean scores of the 5 CPQ total
measures (average scores across all 44 activities) were
calculated using ICC. The ICC results ranged from
0.84 to 0.90, exhibiting very good agreement (see
Table II).
Construct validity
Homogeneity. Estimating correlations between subt-
ests with the total score is a known procedure to anal-
yse homogeneity. Homogeneity of subtests indicates a
single construct [50]. Table III presents correlations
between the six areas of occupation with the CPQ total
measures. All associations were moderate to high,
significantly correlated, except for two significant low
correlations in the ADL area of occupation. Results
support the homogeneity of the CPQ.
Group and age differences
Two-way ANOVA was computed with group (with
and without disability) and age (young pre-schoolers,
old pre-schoolers) as ‘between-group’ factors for
each of the participation measures (diversity, inten-
sity, independence, child enjoyment, parent satisfac-
tion) as ‘within-subject’ factors. Table IV presents
means and standard deviations of CPQ participation
measures by group and age. No significant interac-
tion effect was found for group and age.
Table I. The Cronbach’s a coefficients for the CPQ total measures and sub-total measures for each area of occupation (N¼ 480).
Area of occupation Intensity Independence
Child
enjoyment
Parent
satisfaction
CPQ total measures 0.79 0.89 0.88 0.90
CPQ sub-total measures
ADL 0.57 0.68 0.68 0.66
IADL 0.45 0.65 0.63 0.62
Play 0.49 0.64 0.70 0.78
Leisure 0.62 0.70 0.70 0.76
Social participation 0.70 0.79 0.71 0.78
Education 0.52 0.78 0.78 0.77
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A significant main effect for age was found for
the total participation diversity measure [F(1,
479) ¼ 6.14, p 5 0.05, Zp2 ¼ 0.01]; and for the
total independence level measure [F(1,
479) ¼ 21.72, p 5 0.01, Zp2 ¼ 0.04] although the
clinical significance is low. In both groups, younger
children participated in fewer tasks compared to their
older peers (M ¼ 38.33 + 2.69, M ¼ 38.91 +2.86, respectively) and were less independent
(M ¼ 4.98 + 0.54, M ¼ 5.18 + 0.51, respectively)
while performing the activities included in the CPQ.
In the other three total CPQ participation measures
(Intensity, child enjoyment, and Parent Satisfaction),
no main effects were found.
A significant main effect for group was found in all
CPQ total measures. It was found that children with
disabilities participated in fewer activities (F(1,
479) ¼ 10.27, p 5 0.001, Zp2 ¼ 0.02) in lower
frequencies (F(1, 479) ¼ 13.00, p 5 0.001, Zp2 ¼
0.03), and were less independent (F(1,
479) ¼ 37.86, p 5 0.001, Zp2 ¼ 0.07). Their
enjoyment was decreased (F(1, 479) ¼ 44.97,
p 5 0.001, Zp2 ¼ 0.09), and their parents were less
satisfied with their children’s participation (F(1,
479) ¼ 64.59, p 5 0.001, Zp2 ¼ 0.12) (see Table
IV for means and SD).
Group and income differences
Two-way ANOVA was computed with group (with
and without disability) and family income (below
average, average, above average) as ‘between-group’
factors for each of the participation measures
separately (diversity, intensity, independence, enjoy-
ment, parent satisfaction). Table V presents means
and standard deviations of the CPQ total participa-
tion measures by group and family income.
Table II. ICC of the CPQ total measures, and for each area of occupation (N¼ 40).
Diversity Intensity Independence Child enjoyment Parent satisfaction
CPQ total measures 0.84 0.89 0.88 0.85 0.87
ADL – – 0.91 0.84 0.88
IADL 0.90 0.83 0.72 0.78 0.75
Play 1.00 0.87 0.87 0.85 0.83
Leisure 0.71 0.89 0.80 0.88 0.85
Social Participation 0.87 0.78 0.89 0.90 0.89
Education 0.96 0.90 0.95 0.89 0.96
ADL, Activity of Daily Living; IADL, Instrumental Activity of Daily Living.
Table III. Spearman Correlations between the areas of occupation with the CPQ total participation measure (N¼480).
Diversity Intensity total Independence total Child Enjoyment total Parent Satisfaction total
ADL .16** .18** .62** .68** .67**
IADL .67** .53** .64** .62** .65**
Play .40** .57** .67** .62** .73**
Leisure .51** .75** .82** .77** .82**
Social Participation .71** .63** .72** .63** .73**
Education .68** .50** .70** .75** .74**
**p5.0001.
Table IV. Means and standard deviations of CPQ total participation measures (diversity, intensity, independence, child enjoyment, parent
satisfaction) by group and age (N¼480).
Children with disabilities
(mean+SD)
Children without disabilities
(mean+SD) Total (mean+SD)
Young
(N¼ 94)
Old
(N¼137)
Young
(N¼ 112)
Old
(N¼137)
Children with
disabilities
(N¼ 231)
Children without
disabilities
(N¼ 249)
Participation diversity 37.70+ 2.82 38.67+ 2.90 38.86+2.46 39.15+ 2.81 38.28+2.90 39.02+ 2.66
Participation intensity 3.85+ 0.25 3.87+ 0.30 3.95+0.32 3.97+ 0.28 3.86+0.28 3.96+ 0.30
Independence level 4.86+ 0.59 5.01+ 0.56 5.07+0.47 5.36+ 0.39 4.95+0.57 5.23+ 0.45
Child enjoyment 5.28+ 0.42 5.27+ 0.46 5.49+0.39 5.56+ 0.32 5.27+0.44 5.53+ 0.36
Parent satisfaction 5.12+ 0.55 5.12+ 0.61 5.43+0.47 5.57+ 0.37 5.12+0.58 5.57+ 0.37
The Child Participation Questionnaire 1637
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A significant interaction effect was found for
group and family income in the participation
diversity measure (F(2, 476) ¼ 4.24, p 5 0.05,
Zp2 ¼ 0.02). Children with disabilities with a family
income below average participated in fewer activities
as compared to the other two groups (see Figure 1).
A significant main effect for family income was
found for the participation intensity measure (F(2,
476) ¼ 10.31, p 5 0.001, Zp2 ¼ 0.04). Participation
Intensity of children from families with below
average income was higher than that of children
from families with average and above average
income. A significant main effect for Income was
also found for the Independence measure (F(2,
476) ¼ 4.59, p 5 0.05, Zp2 ¼ 0.02) and for the
child enjoyment measure (F(2, 476) ¼ 6.08, p 50.05, Zp
2 ¼ 0.03). Children from families with above
average income were less independent and enjoyed
less everyday activities compared to their peers from
families with average and below average income. No
significant differences were found between the three
income levels in parent satisfaction.
Convergent and divergent validities
Convergent and divergent validities were computed
using Spearman correlations between the CPQ total
measures (diversity, intensity, independence, child
enjoyment, and parent satisfaction) and the VABS
subscales (ADL, Communication, Socialisation, and
Motor skills; see Table VI). Convergent validity was
partially supported by the significant, low to moder-
ate correlations between the objective CPQ total
participation measures (i.e. participation diversity,
participation intensity, and independence level) and
all the VABS subscales (except VABS Communica-
tion with Participation Intensity). In particular,
substantial correlations were found with the ADL
subscale of the VABS.
No significant correlations or low correlations
were found between the subjective CPQ total
participation measures (i.e. child enjoyment and
Parent Satisfaction) and the VABS Communication,
Socialisation, and Motor subscales (except VABS
ADL with child enjoyment), thus partially support-
ing the divergent validity of the CPQ.
Discussion
This study offers a new tool, the CPQ, for measuring
preschool child participation. The CPQ is grounded
in a family-centred approach, and assesses child
participation according to the parent’s perspective.
To capture all dimensions of the multi-dimensional
Table V. Means and standard deviations of CPQ participation measures (diversity, intensity, independence, enjoyment, parent satisfaction)
by group and family income (N¼477).
Children with disabilities (mean+SD) Children without disabilities (mean+SD)
Below
average
(N¼ 23)
Average
(N¼ 115)
Above
average
(N¼ 91)
Below
average
(N¼ 37)
Average
(N¼107)
Above
average
(N¼ 104)
Participation diversity 35.26+4.30 38.16+2.72 39.21+2.06 37.38+ 3.95 39.33+ 2.12 39.27+ 2.41
Participation intensity 4.01+0.36 3.86+0.30 3.82+0.22 4.11+ 0.36 3.96+ 0.31 3.90+ 0.26
Independence level 5.15+0.54 4.97+0.61 4.85+0.53 5.23+ 0.41 5.30+ 0.42 5.16+ 0.48
Child enjoyment 5.47+0.38 5.30+0.48 5.19+0.39 5.56+ 0.35 5.57+ 0.32 5.47+ 0.39
Parent satisfaction 5.25+0.67 5.13+0.62 5.06+0.51 5.54+ 0.43 5.54+ 0.38 5.45+ 0.46
Figure 1. Children’s participation diversity by family income level.
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and complex concept of participation, we used five
participation measures: participation diversity (the
number of activities a child takes part in), participa-
tion intensity (how often participation occurs),
independence level (how much assistance is re-
quired), child enjoyment and parent satisfaction.
Our findings suggest adequate initial psychometric
support for the CPQ as a promising new measure for
assessing pre-schooler’s participation in everyday
activities.
The internal consistency of the CPQ total mea-
sures is found to be good based on Cronbach’s acoefficient values which range from 0.79 to 0.90 in all
four participation measures. These results substanti-
ate the evidence that for each total measure (intensity,
independence, child enjoyment, and parent satisfac-
tion) all items measure the same underlying construct
and each are internally consistent. However, the
internal consistency of each area of occupation (i.e.
subtotal scores) is lower. These differences may be
due to the different length of the various scales. The
temporal reliability of the CPQ is adequately sup-
ported, although the test-retest sample size is small.
Similarly to the a results, the reliability coefficients of
the CPQ total measures are higher than that of the
individual items. Therefore, we suggest using the
CPQ total participation measures, which have higher
reliability, as the CPQ scores. Those scores reflect the
essence of participation as a complex construct.
However, it may be possible to cautiously use the
subtest scores for more detailed information if
needed, especially for clinical practice.
In order to examine the construct validity of the
CPQ, we used a group comparison method to
determine whether the CPQ can distinguish between
groups that are believed to score differently based on
theory. Our findings indicate that the CPQ has
satisfactory construct validity and the questionnaire
is sensitive enough to significantly differentiate
between participation patterns of children with and
without mild or moderate disabilities. In addition,
the CPQ can significantly differentiate between age
groups, and between children in families of different
socio-economic statuses.
Specifically, two CPQ participation measures can
significantly discriminate between the two assessed
age groups despite the narrow target age range of the
questionnaire (4–6.11 years old). The two
distinguishing measures are participation diversity
and independence level. Older children are usually
more independent and engaged in more diverse
activities than younger children, as would typically
occur in normal development. The participation
intensity measure does not discriminate between age
groups, as the timetable of children in these two age
groups are stable and mainly structured by their
parents [26, 33]. No differences are found between
age groups in child enjoyment and parent satisfaction
measures as these measures are not thought to
change across preschool years. As a whole, subjective
measures of participation that reflect well-being do
not appear to be strongly related to demographic
variables such as age or gender, at least not before
adolescence [51,52].
All the five CPQ total participation measures
significantly discriminate between children with and
without mild or moderate developmental disabilities.
These results are in accordance with the literature
describing decreased participation of children with
developmental disabilities in comparison to children
without developmental disabilities [7,16], and thus
support the CPQ construct validity. Although all
CPQ total participation measures can discriminate
between groups, their magnitude differs. Based on
the effect size, independence level, child enjoyment,
and parent satisfaction are the best discriminant
measures. Thus the unique format of the CPQ can
deepen our understanding about the implications of
even mild or moderate developmental disabilities on
well-being of children and their parents.
As it is documented that family income is one of the
fundamental contextual factors affecting child devel-
opment and participation [9,37], we compared the
participation of children from three family income
groups (below average, average, and above average).
All the CPQ total participation measures discriminate
between family income groups except for the parent
satisfaction measure. Children from families with
below average family income participate in fewer
activities. However, they were more independent than
children from the other two income groups. For the
diversity measure, an interaction effect is found
Table VI. Spearman correlations between the CPQ measures (Diversity, Intensity, Independence, Child Enjoyment, Parent Satisfaction)
and the VABS subscales (ADL, Communication, Socialisation, and Motor skills) of children without developmental disabilities (N¼108).
VABS Communication VABS ADL VABS Socialisation VABS Motor
Participation Diversity .42** .40** .36** .38**
Participation Intensity .18 .47** .36** .41**
Independence Level .29** .55** .36** .46**
Child Enjoyment .16 .41** .21* .24*
Parent Satisfaction .10 .33** .20* .22*
*p5.05; **p5.001.
The Child Participation Questionnaire 1639
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between income and group. This indicates that the
diversity participation measure of children who are
referred to occupational therapy services, and who are
from above average families, do not differ from
children without disabilities from the same socio-
economic status. Differently, children with disability
from below average income families exhibit the lowest
participation diversity scores. Taking together these
results, we may assume that high family income may
serve as a protective factor for participation diversity of
children with mild and moderate developmental
disabilities. These findings enrich our understanding
of how participation is affected by contexts. While
comparing the groups of children with and without
disabilities, the differences between the groups in the
child independence and parent satisfaction measures
are the highest, based on the Zp2 analysis. However,
while comparing family income groups, the most
significant measure is participation diversity. Family
income, as an environmental factor, contributes
differently to the variation in children’s participation.
These findings illuminate the unique contribution
of each one of the five CPQ total participation mea-
sures to the multidimensional construct of participa-
tion, and thus enhance the CPQ construct validity.
Although the effect of group, age and income are
significant, their effect sizes are small to moderate.
We assume that these results are due to the sample
characteristics. Our study consists of children with
mild or moderate developmental disabilities (chil-
dren with severe developmental disabilities were
excluded). We used a narrow age range, and all the
children have similar backgrounds. On the other
hand, the relatively small effect size between group,
age and income may reflect some traits of participa-
tion that should be further studied.
Convergent and divergent validities of the CPQ
are partially demonstrated by comparison with the
VABS. Although the correlations between the two
questionnaires were only calculated for children
without disabilities, meaningful results were ob-
tained. Higher levels of convergent validity (ex-
pressed by higher correlations) are found between
the three objective CPQ total measures, diversity,
intensity, and independence, and VABS subscales
which address similar theoretical constructs. Not
surprisingly, the highest correlations are found
between the ADL subscale of the VABS and all
the CPQ total measures, which reflect the similar-
ity in content addressed by these measures (i.e.
dressing oneself, helping setting the table). Yet,
lower correlations are found between the CPQ
total measures and the VABS-communication
subscale which reflects the dissimilarities in the
content addressed by these subscales.
Divergent validity is partially supported by the
absence of significant correlations or low correlations
between the subjective CPQ total measures, child
enjoyment and parent satisfaction, and all the VABS
subscales (except VABS–ADL where stronger corre-
lations were found). This indicates that the child
enjoyment and parent satisfaction, which were not
part of existing and conventional functional assess-
ment tools, are new measures unique to the CPQ.
These measures are subjective measures that reflect
well-being and life satisfaction, which are considered
to be essential inherent aspects of participation and
health outcomes according to the ICF model. Our
findings accentuate the importance of these mea-
sures to the study of child participation and the
unique contribution of the CPQ to this evolving
body of knowledge.
Limitations and conclusions
The gender imbalance in our sample (more boys
than girls) is in accordance to the higher prevalence
of boys in many developmental disabilities groups.
Previous literature discusses gender differences in
activities and occupations throughout childhood [20,
46]; however in our study we could not find gender
differences in the CPQ total measures. Further study
is needed to clarify gender differences in participa-
tion patterns of children at younger ages.
The reliability of the CPQ temporal stability
should be further assessed as we used relatively small
sample size in the current test–retest study. In
addition, we studied children with mild or moderate
developmental disabilities from relatively similar
demographic backgrounds which may limit the
generalisability of the findings. The convergent and
divergent validity of the CPQ should be further
assessed with diverse populations.
In conclusion, the CPQ has demonstrated accep-
table psychometric properties. Therefore, the CPQ
can be used as a reliable and valid measure to assess
children’s participation at the age of 4–6 years. The
findings support that the CPQ can assess participation
in everyday activities through multidimensional mea-
sures. Thus the CPQ enables us to derive important
information about participation. Further studies
should focus on the suitability of the questionnaire to
other populations, its feasibility for intervention plan-
ning and its responsiveness to treatment.
Acknowledgements
This work was performed in partial fulfillment of the
requirements for Ph.D. degree of Limor Rosenberg,
Sackler Faculty of medicine, Tel Aviv University,
Israel. We are grateful to the parents and children
who participated in this study.
1640 L. Rosenberg et al.
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Appendix. Children Participation
Questionnaire (CPQ).
Child Participation Questionnaire
Dear parent,
This questionnaire is intended to learn the participa-
tion habits of your child in different day to day
occupations.
Thank you for your responsiveness, this information
will assist in determining the goals of the treatment,
and in determining the efficiency of the treatment in
the future.
Name of child: Date of birth:
Name of parent: Current date:
This questionnaire is intended to learn about your
child’s participation in the various activities typical
for children aged 4–6. Please answer in accordance
to what your child actually does, and not what your
child is capable of doing.
Regarding the last three months, mark the following
for every activity:
1- The number representing how frequently
your child participates in a certain activity,
according to the key at the top of the table (for
example: showers- everyday, visits a friend-
twice a week, etc). In the event that your child
does not participate in a certain activity at all
(frequency of-0) there is no need to answer the
rest of the questions regarding that activity.
2- The degree of help/assistance/ encourage-
ment/ escorting, your child requires in parti-
cipating in the activity at hand (for example:
help dressing, guidance in playing a game,
parental presence at a friend’s birthday party).
3- In your opinion, the degree of pleasure
your child obtains from the activity (pleasure,
motivation, will to carry out).
4- The degree of satisfaction you have as a
parent, from the frequency of participation
and from your child’s independence in the
activity in general.
- In the event that an activity your child
participates in is not mentioned in the
questionnaire you could add it to the
questionnaire in the designated spot.
- Refer to the activities your child per-
forms outside the preschool.
- Only in the article of ‘‘Education’’ will
you be asked to regard the participation in
preschool, in the event you do not know,
consult with the teacher and converse with
your child.
Remember this information will assist in identifying
the activities in which you would like to see a change.
1642 L. Rosenberg et al.
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Ap
pen
dix
1
Fre
qu
ency
of
par
tici
pat
ion
Deg
ree
of
assi
stan
ce
Ch
ild
’sp
leas
ure
inp
arti
cip
atin
g
Par
enta
lsa
tisf
acti
on
fro
m
child
’sp
arti
cip
atio
n
Th
eac
tivi
ty
0-
nev
er1
-o
nce
inth
ree
mo
nth
s
2-
1,2
am
on
th3
-o
nce
aw
eek
4-
twic
ea
wee
k5
-ev
ery
day
Nee
ds
mu
ch
assi
stan
ceIn
dep
end
ent
Do
esn
ot
take
ple
asu
re
Tak
esm
uch
ple
asu
re
No
tat
all
sati
sfied
Ver
y
sati
sfied
Ed
uca
tio
n
1.
Att
end
ing
circ
leti
me
01
23
45
12
34
56
12
34
56
12
34
56
2.
Pla
yin
gat
sch
oo
lyar
d0
12
34
51
23
45
61
23
45
61
23
45
6
3.
Tak
ing
par
tin
soci
alp
lay
wit
hkin
der
gar
ten
’sto
ys
01
23
45
12
34
56
12
34
56
12
34
56
4.
Eat
ing
inm
eal
tim
e0
12
34
51
23
45
61
23
45
61
23
45
6
5.
Att
end
ing
spo
rtan
dm
usi
c
clas
sat
kin
der
gar
ten
01
23
45
12
34
56
12
34
56
12
34
56
6.
Do
ing
arts
and
craf
ts
atkin
der
gar
ten
01
23
45
12
34
56
12
34
56
12
34
56
7.
Usi
ng
arts
and
craf
ts
mat
eria
lsat
kin
der
gar
ten
01
23
45
12
34
56
12
34
56
12
34
56
8.
Att
end
ing
kin
der
gar
ten
cere
mo
nie
s/p
arti
es
01
23
45
12
34
56
12
34
56
12
34
56
9.
Tak
ing
sport
/d
anci
ng
less
on
s-af
tern
oo
n
01
23
45
12
34
56
12
34
56
12
34
56
10
.T
akin
gm
usi
c/ar
t
less
on
s-af
tern
oo
n
01
23
45
12
34
56
12
34
56
12
34
56
11
.T
akin
gse
lfim
pro
vem
ent
clas
s(sc
ien
ce,
lan
gu
ages
)
01
23
45
12
34
56
12
34
56
12
34
56
12
.O
ther
acti
vity
:__________
01
23
45
12
34
56
12
34
56
12
34
56
(e.g
.m
ovi
e,th
eatr
e)
11
.O
ther
acti
vity
:__________
01
23
45
12
34
56
12
34
56
12
34
56
So
cia
lP
arti
cip
ati
on
1.
Pla
yin
gw
ith
afr
ien
d0
12
34
51
23
45
61
23
45
61
23
45
6
2.
Vis
itin
gat
afr
ien
ds
ho
use
01
23
45
12
34
56
12
34
56
12
34
56
3.
Invi
tin
gan
dh
ost
ing
afr
ien
d0
12
34
51
23
45
61
23
45
61
23
45
6
4.
Att
end
ing
frie
nd
’sb
irth
day
par
ties
01
23
45
12
34
56
12
34
56
12
34
56
5.
Go
ing
tofa
mily
even
ts0
12
34
51
23
45
61
23
45
61
23
45
6
6.
Sle
epin
go
ver
atfa
mily
ho
use
01
23
45
12
34
56
12
34
56
12
34
56
7.
Sle
epin
go
ver
ata
frie
nd
’sh
ou
se0
12
34
51
23
45
61
23
45
61
23
45
6
8.
Tal
kin
gon
the
ph
on
e0
12
34
51
23
45
61
23
45
61
23
45
6
9.
Oth
erac
tivi
ty:
____________
01
23
45
12
34
56
12
34
56
12
34
56
Pla
y
1.
Ch
oo
sin
ga
gam
e0
12
34
51
23
45
61
23
45
61
23
45
6
2.
Pla
yin
gw
ith
con
stru
ctio
nto
ys
(bu
ild
ing
blo
cks,
pu
zzle
s)
01
23
45
12
34
56
12
34
56
12
34
56
(con
tinued
)
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nly.
Ap
pen
dix
.(C
onti
nued
).
Fre
qu
ency
of
par
tici
pat
ion
Deg
ree
of
assi
stan
ce
Ch
ild
’sp
leas
ure
inp
arti
cip
atin
g
Par
enta
lsa
tisf
acti
on
fro
m
child
’sp
arti
cip
atio
n
Th
eac
tivi
ty
0-
nev
er1
-o
nce
inth
ree
mo
nth
s
2-
1,2
am
on
th3
-o
nce
aw
eek
4-
twic
ea
wee
k5
-ev
ery
day
Nee
ds
mu
ch
assi
stan
ceIn
dep
end
ent
Do
esn
ot
take
ple
asu
re
Tak
esm
uch
ple
asu
re
No
tat
all
sati
sfied
Ver
y
sati
sfied
3.
Pla
yin
ggam
esw
ith
rule
s
(car
ds,
bo
ard
gam
es)
01
23
45
12
34
56
12
34
56
12
34
56
4.
Pla
yin
gco
mp
ute
rgam
es0
12
34
51
23
45
61
23
45
61
23
45
6
5.
Tak
ing
par
tin
pre
ten
d
or
mak
eb
elie
vep
lay
01
23
45
12
34
56
12
34
56
12
34
56
Leis
ure
1.
Ch
oo
sin
ga
leis
ure
acti
vity
(occ
up
yo
nes
elf)
01
23
45
12
34
56
12
34
56
12
34
56
2.
Pla
yin
go
np
layg
rou
nd
equ
ipm
ent
01
23
45
12
34
56
12
34
56
12
34
56
3.
Rid
din
ga
bik
e0
12
34
51
23
45
61
23
45
61
23
45
6
4.
Pla
yin
gb
all
gam
es0
12
34
51
23
45
61
23
45
61
23
45
6
5.
Lis
ten
ing
toa
sto
ry0
12
34
51
23
45
61
23
45
61
23
45
6
6.
Wat
chin
gT
V0
12
34
51
23
45
61
23
45
61
23
45
6
7.
Do
ing
arts
and
craf
ts
ath
om
e
01
23
45
12
34
56
12
34
56
12
34
56
8.
Usi
ng
art
and
craf
tm
ater
ials
01
23
45
12
34
56
12
34
56
12
34
56
9.
Go
ing
for
ad
aytr
ip,
pic
nic
,ca
mp
ing
01
23
45
12
34
56
12
34
56
12
34
56
10
.G
oin
gto
alive
even
t0
12
34
51
23
45
61
23
45
61
23
45
6
AD
L
1.
Dre
ssin
g0
12
34
51
23
45
61
23
45
61
23
45
6
2.
Sh
ow
erin
g/
Bat
hin
g0
12
34
51
23
45
61
23
45
61
23
45
6
3.
Bru
shin
gT
eeth
01
23
45
12
34
56
12
34
56
12
34
56
4.
To
ilet
ing
01
23
45
12
34
56
12
34
56
12
34
56
5.
Eat
ing
wit
hcu
tler
y0
12
34
51
23
45
61
23
45
61
23
45
6
6.
Oth
erac
tivi
ty:
_________
01
23
45
12
34
56
12
34
56
12
34
56
IAD
L
1.
Tak
ing
par
tin
Org
aniz
ing
roo
m/
ho
use
01
23
45
12
34
56
12
34
56
12
34
56
2.
Tak
ing
par
tin
Mea
l
pre
par
atio
n/
sett
ing
the
tab
le
01
23
45
12
34
56
12
34
56
12
34
56
3.
Op
erat
ing
elec
tro
nic
dev
ice
(TV
,D
VD
,p
ho
ne)
01
23
45
12
34
56
12
34
56
12
34
56
4.
Sh
op
pin
gin
gro
cery
sto
re0
12
34
51
23
45
61
23
45
61
23
45
6
5.
Tak
ing
care
of
pet
01
23
45
12
34
56
12
34
56
12
34
56
6.
Oth
erac
tivi
ty:
__________
01
23
45
12
34
56
12
34
56
12
34
56
1644 L. Rosenberg et al.
Dis
abil
Reh
abil
Dow
nloa
ded
from
info
rmah
ealth
care
.com
by
Nat
iona
l Sili
cosi
s L
ibra
ry o
n 10
/29/
14Fo
r pe
rson
al u
se o
nly.