Issue No. 28 Spring 2001

News, Views & Do’s -

♥ Meet our Representatives

♥ Newsletter

♥ Kids for CRY ♥♥♥♥♥♥♥ Julie’s Interview

♥ Jokes Corner

♥ Puzzles

♥ Jan`s Report

♥ Steve`s Report

♥ Marathon tales

♥ Our Fundraisers

♥ Raising Awareness

♥ Bulletin Board

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MEET OUR REPRESENTATIVES

IN FLINTSHIRE, WREXHAM & CHESTER - IT`S DOREEN HARLEYMy husband and I received a telephone call from our son-in-law on Saturday, 10 January 1998 at approximately 8.15 a.m.

to say that our daughter, Lisa Jane Browne, a nurse, aged 27 years, was being taken to hospital. When I asked what

was the matter with our daughter, my son-in-law told me that he could not wake her up. She was being taken to hospi-

tal by ambulance. My son-in-law had received a phone call at 7.15 a.m. from the hospital ward where our daughter

worked, to ask if Lisa had overslept. My son-in-law went back upstairs to wake our daughter, but he could not rouse her,

feel a pulse and could not find any signs of our daughter breathing. An ambulance was called shortly afterwards, and the

paramedics tried to resuscitate our daughter with CPR and defibrillation at her home, but to no avail. She was taken to

hospital on oxygen, where further attempts were made to resuscitate her. We were told when we arrived at the A & E

department of the hospital, at approximately 8.45 a.m., that our daughter was dead. The A & E Registrar told us that a

post mortem would be carried out on the Monday morning, but at the time of our daughter’s death, it was believed by the

hospital doctor that she had either suffered a heart attack, a brain haemorrhage or had a deep vein thrombosis.

Following the post mortem examination on Monday,

12 January 1998, we received a telephone call from

the Coroner’s Office, who told us that the

Pathologist could find no obvious cause of death,

and in his opinion our daughter should still be alive.

Various specimens were sent away for toxicology

and histology examination.

At the Inquest hearing on Wednesday, 26 August

1998 the Coroner heard evidence from the

Pathologist, and we were told that an extensive post

mortem had been carried out at the Coroner’s

request as no cause of death could be established.

The Pathologist said that “there was a slight possi-

bility that Lisa could have had an electrical rhythm

fault with her heart, which could not be detected

after someone had died”. He said “that Lisa’s death

was not a unique case, in so far as there are

approximately 4 cases of sudden adult death in the Cheshire area each year”. We were given an “open verdict” with the

cause of death as “unascertainable”.

Approximately six months prior to Lisa’s death, she had visited her GP with light headedness, chest pains and palpita-

tions, and as a result of this she was diagnosed as being under stress and depressed, and was prescribed antidepres-

sants. At a follow up visit a few weeks later Lisa still complained of the symptoms, and the GP said she was stressed.

The antidepressants she was prescribed are on the list of banned drugs for anyone suffering from Long QT Syndrome.

Had Lisa been offered an ECG tracing it is quite possible that Long QT Syndrome may have been detected and if treat-

ed with beta-blockers she could still be alive today. Lisa had been exceptionally tired for the last three years of her life,

but no medical person would take her seriously or offer any investigations as to the cause of this tiredness. However, a

date had been fixed for three days after her death for an appointment with her GP yet again, when Lisa was going to ask

for various investigations to be carried out.

In March 1999, after reading articles provided by Cardiac Risk in the Young, on Sudden Adult Death, we contacted

Professor McKenna at St George’s Hospital in London to see if my husband, myself and surving daughter could be

screened for possible Long QT Syndrome. In December 1999, my husband and myself finally went to St George’s

Hospital in London for screening tests, when it was discovered that my husband also has Long QT Syndrome, unknow-

ingly to ourselves. My husband has never suffered any symptoms of the disease. He was put on beta-blockers, which

unfortunately reduced his heartbeat to 36 beats per minute. The beta-blockers were stopped immediately, and my hus-

band is now under the care of the Electrophysiologist at Broadgreen Hospital in Liverpool. Should my husband develop

symptoms in the future, he will be put back on the beta-blockers, and have a pacemaker fitted. The treatment for Long

QT Syndrome is beta-blockers taken daily for life. We were told that it is almost certain that Lisa died of Long QT

Syndrome. Her death appears to have happened when she switched her alarm clock off at 6 a.m. in the morning. Sudden

noises occurring whilst the person is asleep can cause sudden death. Long QT Syndrome is hereditary.

If teenagers in their early teens were offered screening for heart problems, may be there would be a lot less of these

Sudden Adult Deaths.

I am now the County Contact for Flintshire and Wrexham and with current duties for Chester, for CRY. I hope to raise

awareness of the aims of CRY, i.e. to try and get a national screening programme, and to support bereaved families who

have been affected by the loss of a family member due to SADS.

Lisa & Doreen

NEWSLETTERSpring 2001

CRY started the year with the news that dreams are made of - that the highest

profile athlete in the land, Sir Steve Redgrave CBE, has agreed to be our Patron.

When he was 16 Sir Steve witnessed the sudden cardiac death of his best friend

and crewmate Robert Hayley. They were watching TV at his home after a train-

ing session when Robert stood up, asked permission to have an apple, and

dropped dead. The memory has haunted him ever since and has led to him ded-

icating each of his Olympic Gold medals to Robert. Especial thanks to Robbie

and Kate Fox who contacted me with this information and who wrote to Sir Steve

to tell him about CRY.

One of my goals for 2001 is to have a major push forward focusing on raising

awareness of CRY. To endorse this we had our biggest event ever - 118 CRY

runners in the London Marathon on Sunday April 22, including 16 in giant red

CRY hearts. As we had hoped they caused a great stir!! Our 3 firemen, mag-

nificent in their scarlet CRY hearts, and running in memory of Sarah Louise

Williamson, were interviewed just before the start gun went off. There were 3

more "hits" during the event, a spot in the highlights and National News. Matt

Wilson, our CRY funded Research Student was the first CRY runner to finish, and

the first Marathon full costume runner across the line with an incredible time in

his huge CRY heart of 3.16.

Congratulations to all our 100 runners and especially those intrepid participants

in CRY hearts, who participated with such enthusiasm. Well done also to Steve

Cox for taking over the organisation of the costume design, negotiations with our

runners, and the CRY reception for all at The Britannia Hotel on Marathon

Saturday which was well supported and very worthwhile. It was sobering to

learn that in the year when CRY had its biggest profile (in the top 5% of chari-

ties entered), a 34 year old fitness instructor died of a cardiac arrest shortly after

crossing the finishing line.

Many moons ago I was advised that what CRY really needed to do was recruit a

"lobbyist" organisation to target M.Ps about our remit. However the cost, even

then, was in excess of £30,000 and therefore untenable. However in February

we were approached to be a coalition partner (at no cost to CRY!) with the

Medical Technology Group working to raise the profile of how medical technolo-

gy saves lives (see Update and Web). This was launched in the House of

Commons and Lord Hunt (Parliamentary Under Secretary of State for Health)

described it as "a celebration of innovations in science and medicine" and that

the aims of the group were consistent with what the Government was seeking to

achieve within the NHS.

Lord Hunt was among 30 MPs., Ministers and Peers who supported the event

aimed at raising awareness of the positive impact of technology on people's lives

NEWSLETTERSpring 2001

and pressing for health-care policies that facilitate patient access. The Group

wants to ensure that funding is available for all patients who would benefit from

new technology which it believes is "saving and improving lives." Stephen Allan

accompanied me, making a stunning contribution to the evening with his willing-

ness to “show” all interested parties his ICD.

CRY's particular interest is in the development and application of the ICD

(Internal Cardiac Defibrillator) which is a device for rapid detection and treatment

of life threatening changes in heart beating patterns and sudden cardiac arrest

and is increasingly being used to treat individuals found to have a potentially life

threatening cardiac abnormality. In the UK we have an ICD implant rate of 17 per

million - compared to 185 per million in the USA and 67 per million in Germany.

There are also significant regional variations in the use of ICDs with patients in

the London area twice as likely to receive implants as those in the North. The

objective is to put pressure on M.P.s to alter this imbalance.

In spite of having been introduced to Lord Hunt, and making the opportunity to

"present our case," and in spite of having the support of Earl Freddie Howe who

wrote to the Minister on our behalf, CRY was again unsuccessful in our Section

64 Funding application. There is more detail of this in the Update. Suffice it to

say that it was hugely disappointing, having met all the right people, at just the

right time and suggests CRY certainly is not a charity that meets with the

approval of bureaucrats in high places.

As well as our TV coverage in the London Marathon, the Allan family were inter-

viewed on GMTV talking about the tragic death of their son Richard and the sav-

ing of their son Stephen’s life by the implantation of an ICD. CRY also has had

exposure on Harlech with Paulette Smith being interviewed as she went to inform

her M.P. at the Welsh Assembly about CRY's goals, and with Alison Doyle's very

moving account of the impact of the death of her husband Colin on Carlton.

In concluding I would like to apologise for us again having to make this Update a

late bumper issue. Our plans to get up to date by February were thrown to the

winds by Rose's sudden death which had a severe practical and psychological

toll on all of us in this office, and in particular of course on her son Tony who is

CRY's Office Manager. Rose knew everything about everything that made our

office work and life without her predictably difficult. In future, in order to give us

a bit more leeway we will be producing seasonal Updates - Spring, Summer,

Autumn and Winter - with all the instant news going on our Website which will

be updated weekly. If you have events, articles, ideas or research information

please send them to Steve for the Website so that we can keep you all in touch

with what is going on. Sometimes I feel things are happening so fast we almost

do not have time to circulate the news!

JULIE`S INTERVIEW

WITH

SIR STEVENREDGRAVE

CBECRY`s

New PatronJulie Sir Steven we are so excited that you are CRY's Patron. Please could

you tell us how you first heard about CRY?

Sir Steven Alison wrote to me, and also the Fox family about the sudden death of their

daughter. I then spoke to CRY's Chairman Greg Whyte to find out more

about what CRY was doing.

Julie Why did you decide to support us?

Sir Steven I am very interested in what CRY is doing. My best friend and crewmate

Robert Hayley dropped dead in the sitting room of my home when we had

been watching TV. He was 17 and I was 16. He was a very fit fellow. You

never forget something like that. How can such things happen? There was

not a lot of information available then. We just had to accept it. CRY really

seems to be raising awareness of how much this is going on. If something

can be done, it must be done.

Julie One of my best friends died too. His Mum has run in the London Marathon for the last 3 years. She says it is an amazing event. Was it what you expected?

Sir Steven The London Marathon was incredible. I couldn't believe it. Thousands and

thousands and thousands of people cheering us on for over 26 miles, and

nearly 5 hours! It was like an on-going Olympic roar. A memorable event

to be a part of.

Julie How did you feel afterwards?

Sir Steven Sore! I was seriously under-prepared. As I had been so busy it had been

hard to maintain my training schedule. However all the interviews and

autograph stops gave me a chance to get my breath back! Ann and I were

just really pleased we were able to complete it and that it was such a

success for everyone.

CRY really seems to be raising awareness of how much thisis going on. If something can be done, it must be done.

Theme - Rowing / Boats

Photo-CallwHAT HAVE

THE CRY

HEARTS BEEN

UP TO?. . . . . . . . . . . . . . . .

. . . . . . . . !

Answers onJan s Page!

A FANTASTIC 581.34 HAS BEEN RAISED

IN MEMORY OF LEON ASHLEY MANNERS & IAN BOWEN

The TeenyBoppers and theGrange town carol singers cametogether to put on a brilliantevenings entertainment. OrganiserPaul Tuffs did a wonderful job ofcharming the audience for a fullthree and a half hours. A littleBingo got things under way. Theshow started with 5 songs anddances. Pie & Peas were served. More bingo and a Raffle draw.Then back to the show with another 5 great numbers. With special

thanks to the Cast ofJodie Welsh, AndrewElcoate, Paul Watson,Rachael Watson,Natalie Strang, LeanneScott, Robert Scott,John Warrior, AmyTuffs, Katie Welsh,Hayley Welsh, ZoeDouglas, Lisa Martin &

Chantelle Monaghan.

IN MEMORY OF LEWIS MARSH

2 Schools have been extremely busy raising

awareness and funds for The Lewis Marsh

Memorial Fund - Sandhurst School has raised a

brilliant £657.00, and Crowthorne Church of

England Primary School has raised a fantastic

£1,200.00.

Lewis (on right) taken with his friend Nick on a trip to Monte Carlo

An Oak tree was planted at Ranelagh School in memory of Lewis

at a spot where he used to meet his year 9 friends at lunch time

can you find

these words?WORDSEARCH

Last December a tremendous donation of £1,200 (see UpdateRaising Awareness) was presented toJo Cross from the Junior SectionNorthumberland Caravan Club whoadopted CRY as their charity for2000. A huge thank you to all thoseon the Junior Committee of theNorthumberland Club and all thosewho participated in this massive contribution to CRY.

Hello from St George's -

This is our first Update for 2001 and the

New Year has brought in some big

changes for CRY.

______________________________________

Firstly, both the Western Isles Health Board and

Education Board provided absolute and final

clearance for our Pilot Study to test the effec-

tiveness of the ECG machine in detecting hid-

den heart conditions in young people. This is, to

our knowledge, the first study of its kind in the

UK. Linking into the study will be a psychologi-

cal evaluation reviewing the overall effect of

ECG testing on individuals taking part. We are

delighted to be working with Alex and Frasier Fotheringham on this project. We believe

that the research material drawn from the Pilot Study will provide a solid platform of evi-

dence which will formally open discussions on ECG Testing as a Government issue.

From this Pilot Study we aim to develop up a blue print which will enable CRY to

approach other Health Authorities. This is a very exciting time and I would like to thank

Alex and Frasier for their incredible hard work and continued commitment to this particu-

lar project and to CRY as a whole, during a very tough year. We shortly begin work on

the operations plan and funding bids.

_______________________________________________________________________

Onto the Sports Cardiology Unit - we are now waiting on a response to our proposal toa second official body. We have been offered a marvellous opportunity to place our bid,and I hope to have good news for you for the next Update.

_______________________________________________________________________

The long promised Guidelines for those volunteers interested in applying for CRY

community projects are now available. Inevitably, as CRY has grown, so too have our

procedures for managing CRY events. Our screening programme has been successful,

but in order for us to continue with this line of work, the CRY Mobile Team will take a

more directive role in how events are managed.

These written guidelines have been devised to give families a better idea of what's

involved when agreeing to commit to a CRY project. The Guidelines do take some time

to read, but understanding what's involved prior to making a commitment to a project is

absolutely essential. Please contact me directly to request our Guidelines.

JAN SMITH CRY`S ADMINISTRATOR REPORTS

FROM CARDIOLOGICAL SCIENCES

ST GEORGE`S HOSPITAL MEDICAL SCHOOL

Onto medical equipment and one of our ECG machines, originally funded by the

Shuttlewood Clarke Foundation has been re-housed. This machine, donated in memory

of Paul Scotton has been moved from Anstey Surgery in Leicester to Hugglescote

Surgery. Thanks go to John Bick, who collected, cleaned and repaired the ECG prior to

placing it with its new "caretakers". John also supplied a training session which was

attended by a range of medical staff, so he was the all round star of the day! It transpired

that Anstey Surgery already had an ECG machine in place, of which we were unaware,

and so the CRY ECG was not put to best use. We are very pleased to know that it is now

housed in an environment where it will be used for the benefit of patients on a daily basis.

Tracy Scotton will be contacting Dr Newman at the Hugglecote Surgery shortly, to

arrange for local publicity.

Dorset County Hospital’s Paediatric Department has been presented with an ECG

machine by the Moss family in memory of Laura Moss. Alan and Gloria have had some

amazing local support, which has helped them to reach their fundraising target. The

machine has been placed into the Paediatric Unit, where is will be used in the treatment

and management of young inmates during their stay at Hospital. The Unit was both

touched and delighted that they had been given an opportunity to receive such a valuable

piece of equipment, particularly as Gloria is linked to the Hospital through her work.

To date, CRY has placed 26 ECG machines. These have either been donated or paid for

by the hard work and dedication of our families and supporters who want to raise levels

of awareness within local communities.

_______________________________________________________________________

We are now in the process of putting together our summer programme of ECG Testing

and Screening events. To date, we have Irene Wickers and Granville Staff booked in for

Testing on 30th June and 1st July and Jo and Charlie Cross for August 18th and 19th.

This will be a special event for Jo and Charlie as Charlie is due to retire in September.

Sally Reid has just held an ECG testing session (on 31st March and 1st April), so we will

have results available shortly. Two further Lawn Tennis Screenings will be booked in

between now and the end of July too. These will be based in Leeds and Bolton. We have

already held an LTA screening earlier this year in Hertfordshire, with two to follow in

Loughborough on 24th April and Cambridge on 16th May.

_______________________________________________________________________

Finally, we have been offered an incredible ECG Testing opportunity with Millfield

School in Somerset. Millfield is a private school famous for its standards of academic

and sporting excellence with approximately 1200 children. Of these there are at least 200

pupils who are involved in serious competitive sports, operating at County level and

above. We have been invited to visit the school in early May to ECG Test school leavers

as a priority, working our way through post pubertal young people whose parents have

agreed to the testing. This is a marvellous opportunity and we look forward to reporting

back progress on the event.

If you would like CRY to hold either an ECG Testing Session or Mobile Screening

Weekend contact me to discuss arrangements.

That's it for now - speak to you soon.

Answers to 5 Gold Medal Test - 1. Los Angeles 2. Seoul 3. Barcelona 4. Atlanta 5. Sydney

REPORT FROM STEVE COX CRY`S

MARATHON CO-ORDINATOR

The London Marathon 2001

This year many of our runners were staying

at the Britannia International Hotel. They

kindly offered us a reception room, at a

hugely reduced rate. After much debate,

and negotiating over the price of coffee and

tea, we decide it was an opportunity not to

be missed. Thank you to all who came to

the hotel on Saturday. Everyone greatly

appreciated the opportunity to meet with

other CRY runners, CRY staff and our sup-

porters. It was nice to put a face behind all

those runners I had been talking with over

past months, and the courageous efforts of our CRY hearts who gave great

strength to some of the other participants who were trying to remember why

they wanted to run in the first place.

Receiving my wake up call, it was a relief to finally be facing the day itself and

confronting those many Marathon Nights of 'panicked dreams' - running around

St. James Park, desperately trying to find just one of our runners who had sur-

vived the torrential rain that had soaked the foam, dissolved the glue and disin-

tegrated the costume - not to mention those nightmares when I had at the last

minute to replace an injured costume runner.

Watching TV just before the starting gun, after spending half an hour pinpoint-

ing red splodges in the crowd of thousands, the TV screen was suddenly filled

with huge red hearts, with Mark Orchard, Head Fireman, being interviewed for

CRY. The gun went off and the race began.

It is hard to predict the potential problems for an event of this size, with the

inevitable pitfalls. However, somehow with tremendous team support we man-

aged to pull it off - even the weather was kind, saving the rain until the last

costume had been taken to the CRY van (which I had managed to park very

conspicuously on the Marathon route!)

Special thanks to the Britannia Hotel for the incredible deal you gave us. Also

to the CRY team - Pat our volunteer Family Co-ordinator; Jan our Administrator

and her partner Dave; Tony our Office Manager; and my sister Lorraine and

my partner Lada who were there to help make the day run smoothly and were

amongst the last people to leave the park on Sunday night. Also to all those

formidable supporters of our runners throughout the race.

Steve, Paul & Anujska

(costume designer)

Although personal contact is so important in communication, the Internet is

a place where news can be exchanged with many different audiences, and

more specifically can help the small organisations communicate in a way

that was previously only possible for the larger government funded groups.

For many reasons, people are often unable to call the office to ask for

much needed advice. Individuals from around the world have access to

medical literature that is teaching them about these potentially sinister con-

ditions.

Back in September of last year it was an exciting day when the CRY web-

site had a couple of visitors! Over the following months, as the site has

developed, that figure has risen considerably, to a high of 110 visitors on

the day before the London Marathon. This is without being registered with

many of the major search engines, which I hope to now organise.

The news section has been developed to keep articles on CRY updated so

that readers can, in some cases, see them within a few days of us receiv-

ing them, or even going to press. This is dependent on having permission

from the papers’ News Desk so it is not always possible to have every arti-

cle. However Editors are usually supportive.

The upcoming events section of fundraising on the web site is to help all

our supporters keep in touch with what is going on and when. This will help

everyone know where events are being held well in advance. Many events

are annual, such as the London Marathon, and it is an excellent way of

keeping people in touch with how they are developing. Often our volun-

teers have said that if only they knew something was being held they

would have liked to turn up on the day and given their support.

After fundraising the past events section is for those supporters who would

like to put together a write up of how the day(s) went. If these can be e-

mailed it will help us considerably and if you can also send or e-mail us

some of your favourite pictures that would be fantastic.

Over the past months we have been making every effort to have as much

detail on the web site as is possible. I aim to keep this updated on a week-

ly basis. If you have any further ideas on how the site could develop I

would be delighted to hear from you.

CRY’S WEB SITE

CRY AGAIN REFUSED FOR

CRY AGAIN REFUSED FOR SECTION 64 GRANT FUNDING

Every year through the Section 64 grant scheme the government allocate £21 million for

charities that they consider to be of strategic importance.

Every year (5 so far) CRY has applied to be considered for a grant from this fund.

Every year we have been unsuccessful in spite of the fact that:

· we have now donated 26 ECG machines to local communities which are placed in

hospitals or doctors’ surgeries for general use - total value approximately £130,000

· our echo machine placed in outpatients at St George's Hospital, Tooting (considered

a centre of excellence for referrals for these conditions) has screened over

12,500 patients. The estimated value when purchased in 1994 was £120,000.

· we have funded and developed a counselling skills programme to train families

who have suffered a tragedy and are developing a national network of trained

volunteers who have themselves suffered the loss of a first degree relative, to help

others through a similar loss. G.P.s, who often have very little information on these

conditions that can kill apparently fit and healthy young people so swiftly, do not

know how to help affected families and are relieved to be able to refer them on to

a specialist organisation.

· we have a pro-active screening programme that works with volunteer fundraising

and expert medical support to take ECG testing and our mobile screening team

(ECG and Echo) into communities that do not have access to such a facility. This

can be in response to a young sudden cardiac death, when there is disbelief and

considerable distress in the community and where we aim to educate and reassure

by screening, those that request it.

· by raising awareness and sending out free medical information on request we

save lives. Usually there are symptoms. Often these are dismissed or ignored. We

aim to inform people by helping them understand the symptoms and support them

until they have been listened to.

When the "rejection" letter comes each time telling us we are unsuccessful with our appli-

cation there is never any explanation of why, or what we should be focusing on to attract

government support. Consequently it is difficult to understand exactly what constitutes

an application of "strategic importance" so that we can progress future proposals.

SECTION 64 GRANT FUNDING

So far we have:raised over 1 million pounds in 5 years entirely through our own and volunteers effortsdonated medical equipment to the NHS worth approximately £250,000 contributed to medical research through our pro-active screening programme whichgives experts the opportunity to evaluate fit and healthy hearts. By comparing these withyoung hearts that are affected it has enabled experts to be more accurate in their diagno-sis and understanding of the progressions of disease.

yet - we have never been given any acknowledgement or encouragement at a gov-

ernmental level

Accurate statistics are not available but

· We know that at least 4 apparently fit and healthy young people a week are

dying suddenly from undetected cardiac abnormalities.

· We know that further research due to be published this summer is going to

show that this is a conservative estimate.

· We know that young sudden deaths are incorrectly attributed to other causes

such as asthma, epilepsy, pneumonia, accident.

Before CRY started official statistics were 1 death a week.

Within 3 years we found it was 4 deaths a week.

It is now believed it could be 8 deaths a week.

We are told that our screening programme is not "cost effective". Statistically the impact of

all cardiac deaths are treated equally and that of an apparently fit and healthy young per-

son is given the same significance as that of a geriatric.

But cardiac problems in the young are treatable and worth the NHS investing in. Our

young people have the whole of their lives ahead of them. Some will also have dependant

young families that will have to be supported in the event of their death. Evaluated clini-

cally it should be highlighted that those that are not diagnosed and die, will be deprived of

the opportunity to put into effect the investment that has been made in their education by

the government as their income earning (and tax paying) years are ahead of them.

Another consideration not evaluated is the support needed by the peer group and family

after a young sudden cardiac death of an apparently fit and healthy individual. This cannot

be exaggerated. The effect is catastrophic and something from which all those who have

experienced it will possibly never fully recover. The sudden cardiac death of a young per-

son results in the crucifixion of a family.

CRY is trying to make people listen.

WHEN WILL ANYONE HEAR WHAT WE ARE SAYING?

RUNNING AROUND LONDON IN A CRY HEART

As we approached Blackheath at 7.00 a.m. last Sunday, the morning of my third London Marathon,

I found myself wondering "Why?" Not only was I about to put myself through all that agony again,

but this time I had agreed to do it in a large red heart. Friends had said I must be mad and now I

was beginning to believe them!

It had all seemed like a very good idea at the time (months ago) but now that the event was immi-

nent and the heart was sitting in the back seat of the car grinning at me I felt an impending sense

of what was to come!

I had collect my heart from the CRY office a month before

and had practised once in it, running 6 miles along the

beach with my (very) brave running partner and my dog.

It was our regular Monday run and I have to say that it

was very interesting with many bemused looks, some

choice comments and even one or two, who being

unsure of what was going on or what to say, chose to pre-

tend they had not seen me at all!!!

I was pleasantly surprised at how well that run had gone

and I felt confident, but that was then, and now I was con-

templating 20 further miles to run. What had I done?

What if I got too hot, what might rub and chafe, what if it

rained?

At the start I spotted a group of other CRY hearts and we

got together for some photos and a comparison of vaseline areas (you had to be there really),

before we made our way to the start.

Once in the group at the start, the nerves seemed to evaporate and the emotions of the situation

really took over. I will never cease to be moved by all the high emotion and drama of the event,

and just talking to all the others around you is an experience that brings me close to tears.

Suddenly the gun is heard, a cheer from all around as we begin our slow process towards the line.

11 minutes after the gun our feet cross the start line (still walking at this stage as the road is still

blocked with the large numbers of competitors!)

One of my main concerns had been how I was going to manage with the portaloos if needed, being

such a wide load, and with arm restrictions. Well in the end I didn't need one so can't shed any light

on the answer to that particular problem!

So how was it? Well I can honestly say that the heart felt great and there were no restrictions to

running at all. In fact by the end I was very attached to my heart and it had made me really feel

part of the whole London Marathon experience. I had loads of people asking me what CRY was all

about, and as I made my way round people kept calling my name and encouraging me with "come

on the heart" or even once or twice "come on the tomato!!! "

So how did I feel at the end? Well after 4 hours and 41 minutes, elated, tired, hungry and elated

again. There is nothing like the feeling at the completion of a marathon and unless you've been

there it is very hard to explain. The hearts were great and the feeling of being in with the spirit of

the marathon with the other fancy dress runners made this one extra special for me, and it is cer-

tainly something I will never forget.

Caroline Gard

CRY ATTENDS LAUNCH OF MEDICAL TECHNOLOGY GROUP

Cardiac Risk in the Young is part of a coalition group working to raise the profile of how

medical technology saves lives. At the recent launch of The Medical Technology Group in

the House of Commons Lord Hunt (Parliamentary Under-Secretary of State for Health)

described it as "a celebration of innovations in science and medicine."

He was among 30 MPs, Ministers and Peers who supported the event aimed at raising

awareness of the positive impact of technology on people's lives and pressing for

health-care policies that facilitate patient access. The Group wants to ensure that funding

is available for all patients who would benefit from new technology which it believes is

"saving and improving lives."

The ICD (Internal Cardiac Defibrillator) is a device for rapid detection and treatment of life

threatening changes in heart beating patterns (ventricular arrhythmia) and sudden cardiac

arrest. It is implanted in the lower chest muscle, with one or more leads passed through

into the heart. Should the device detect an arrhythmia, it sends electrical impulses into the

heart to correct and restore normal rhythm. ICD implantation in the UK needs to triple

before it can compare to the average rate in Europe. It is now considered to be the most

effective response to those young people considered to be at risk of suffering a sudden

cardiac arrest, who will have been diagnosed with a potentially life threatening cardiac

condition. Stephen Allan's brother Richard died suddenly aged 16, last September from

Sudden Death Syndrome. Stephen was immediately screened and given an ICD.

CRY SUPPORTER STEPHEN ALLAN SHOWS HIS RECENTLY INSERTED ICD TO EARL

HOWE AND MARK WENDRUFF AT THE RECENT HOUSE OF COMMONS LAUNCH OF

THE MEDICAL TECHNOLOGY GROUP. EARL HOWE IS HOLDING AN ICD SIMILAR TO

THE ONE STEPHEN HAS. MARK WENDRUFF RECEIVED HIS ICD 5 YEARS AGO. THE

NEW PROTOTYPES ARE FITTED INTO THE LOWER CHEST

MUSCLE. EARLIER MODELS WERE PLACED IN THE STOMACH.

LAUGH OR CRY?

Well, I have been asked to write a short summary of my problems and what happened tome with my condition. Well firstly I must apologise for the light hearted-ness that I treat thesubject matter. For those that have lost loved ones it is not so easy. For me I have beenlucky and I have lived through something that takes so many lives. I have the privilege tobe asinine about it, and that's the way I like to stay.

At 15 I had become to feel more stressed andworn out than all my other school companions.During sports I was dragged into team gamesand athletics. I was grudgingly put on theNetball team and ran the 1500 metres eachsports day. Shot Putt was okay; I was able to dothat without feeling ill. No one ever asked mewhy I felt sluggish, or unable to do anything, soI grew to feel it was my fault. That I was fat andunhealthy. I wasn't either. I was just unlucky.Gradually the pressure of exam revision andteenage life escalated to a summit, my exams.

I was fifteen when my symptoms first appearedin the middle of Maths GCSE, the exam Idreaded the most. My head started spinningand I was allowed to leave the room.Considering I had never passed out before, or fainted it surprised me that I knew that thiswas what I felt like I was about to do. A year later during a History lesson I woke up on thefloor.

This was the beginning of a long process of useless tests . The hospital could not find any-thing wrong with me, so I was sent home. They seemed to think I may be epileptic. I wassent to another hosptial for a neurological test.

I was strapped to a table with lights and other things attached to my head. 'Fit, Nadine, Fit'the nurse said as she flashed the strobe light into my eyes. It just made them ache. I feltlike a freak. I tried to explain how I felt when I passed out, which was happening everymonth now, and if I didn't go all the way out I kinda floated, my brain shutting off from theworld. It was hard to explain, but I did try.

I was then treated for epilepsy for 2 years. On medication the attacks still occurred. I kindalearnt how to control them. If I felt a head rush coming on (a sudden rush of blood straightto my head making it feel like a hot popcorn kernel) I'd buckle my legs and land on my bum.Unfortunately it didn't always work like that. One time when I was at work I was handingover a computer game to a young boy and passed out, cracking my jaw on the record cab-inet behind me. Another time it was a little more serious. It was a Sunday and my colleaguePhil and I were laughing and joking as we served customers their Sunday papers. Then theworld was black again. I fell into a bucket we had been using to clean the shelves. Myemployer feeling I was less important than the price of 'The Sun', walked over me. Phil ranto the shop where my mother worked, when she arrived, my 'boss' was standing on mynumb hand serving customers.

I went to the hospital again. Nothing happened and I was sent home. That night went onfor 10 days. I fell unconscious 14 times, but it could've been more, when you're uncon-scious you can't count can you. I remember my poor mum sleeping in the bed next to me.She was so exhausted she didn't see all my syncope, but I remember waking up with myface squashed against the radiator when I fell off the bed. We called a local doctor. By thetime he arrived I had begun to be sick. I took the opportunity to do a 'why is it always dicedcarrots?' joke. He laughed, which made me happy. I wanted to go out on a joke. I did kindathink I was dying at this point, but hell if I was gonna let anyone know, particularly my Mum

by NADINE FARNON

and Dad. I was sent to hospital again. This time they finally believed it was not epilepsy.

I can't remember too much of it. It was a good 10 days before I was fully conscious. I hadtubes everywhere, central lines, taps, venfloms, monitors on my heart etc., etc. The attacksof syncope were getting longer. I was moved from A & E to ITU, the Doctors became wor-ried. The syncope was becoming dangerously long now, between 3 and 4 minutes; theybegan to defibrillate.

The first pads jolted me back into consciousness; the next one was literally a shock, as Iwas already awake. Each time I began to come round I was faced with a row of doctorsand nurses that were as worried as I. I came out of the syncope to face a person with thecharged up pads, ready to shock me. They hit me like an angry horses hind legs 'Pow'. Ipassed out again. When I woke, I felt the after effects. Unbelievable, I had laid there star-ing into their faces yet no one had heard me. I looked dead, but I was awake. When I cameround I was faced with a chest black and layered as jet. From amber to ebony the bruisedskin shone transparently. I felt like I had done something wrong. They kept asking my Mumand Dad whether it was drugs and stuff. It was very frustrating. I spent the next week or soin the Coronary Care Unit.

No one knew what was happening, or what was wrong with me, only that my heart was nowenlarged from all the defibbing. The doctor came to the conclusion it was a virus, like a coldor something that had attacked the electro-chemical impulses in my heart.

I was ordered to take 2 years rest. No A Levels nothing. My friends did theirs and went offto University. I couldn't go out anymore so only two or three stayed in touch. Over the yearsI had several tests, angiograms, physical, 24 hour and 48-hour tapes, ones you use downthe telephone. Still the results were unclear. I kept going to the clinics. The doctor was anice guy so me and my Mum always looked forward to seeing him. The tablets I was onmade me feel ill sometimes, particularly in hot weather as they made my eyes and skin verysensitive to sunlight, and I was always getting burnt.

4 or 5 years after the first stay at the hospital the doctor felt that the problem should havegone away by now, so my medication was stopped. For about a week I didn't feel too bad.Then one day I passed out a couple of times. Later that night I was lying in bed, and I start-ed to feel dizzy again. I then passed out. When I woke I knew I had to get Mum and Dad.I crawled on my hands and knees into their room; I was too weak to get up. I went back tohospital again.

Nightimes were the worst as it was so lonely. One doctor helped me one night by calmingmy nerves and holding my hand. Finally after about 2 weeks everything settled down, andI was put back on some anti-arrhythmia tablets. One of the Nurses joked 'shall we book abed for another five years?' Oh I wish she hadn't said that!

It was now over 9 years since I had first become ill, and I was still going to the clinics. Oneday I saw a Dr P Boreham, 'Oh yeah' I thought not another new one. But the guy was greatand really interested in my illness. He asked whether I'd mind if he had a closer look at mynotes. I then got a phone call telling me he thought I had Long Q-T. Just like that after thislong.

I was sent to have a MRI scan . Bit like going into space, or being in a coffin - dependswhat CD they put on for you I guess. Weeks later the doctor confirmed it was Long Q T. Ithen saw the story run by GMTV, and contacted CRY

Nowdays I'm feeling a lot better and my heart rate even slips into normal sinus rhythm nowand then. I even had a print out given to me to prove it. Maybe I should frame it?

Nadine C F Farnon age 27.

THE DAVID STAFFMEMORIAL FELL RACE

10 th DECEMBER 2000

Too dizzy to talk. Lungs and heart fit to burst. Wouldn't be too surprised if theyalready had to be quite honest. Legs insisting that they should, by rights, bedetached from the body. It's cold. It's wet. We've just paid£3 a head to run up a big hill in the middle of December.However, if you were to ask any of us how we felt at thatmoment, you'd get answers like "proud" and "great".

In order to get us to do anything, it takes something quitespecial to convince us, four out of shape twenty some-things, to commit any more effort than it takes to, say,raise a pint glass from table to mouth. These days we allfeel more at home in a pool hall rather than a sports hall,at the bar rather the park. Still, for just one day, as agroup, we decided to move away from the warmth of a barroom fire, or from our respective front rooms, to do some-thing a little more worthwhile.

You see, it has been pretty much six years since our friend David died. We were allabout 17 or 18 when it happened, just after Christmas in 1994. No warning, no hintin anything said or done. He died during a run he was competing in. It's beenexplained to us what happened - something was wrong with his heart. None of uscould tell you the details, all we know and all that matters to us is that our friend isgone.

We were together that night, sharing a grief that we had never expected to experi-ence at that stage of our lives. Since then, we have visited David's parents once ayear, on the anniversary of his death, to see how they are, and to let them knowhow we are all getting along. It has become a fixed annual event that everyoneenjoys and looks forward to.

At the same time however, we have , as a group, managed to avoid running in theannual memorial race. You see, the way we look at it, it's five miles of pure torturethat we would have to be insane to actually want to take part in. But we all knew that we would do it one day. And that was how the conversationalways went …..." yeah, maybe next year …...". Every year, without fail. And for thepast few years that is how it has been. This year, something changed. Fingers haven't quite been put on it, but one sug-gestion is that , as we are starting to drift apart as a group ( spread betweenDarwen, Bolton, St. Anne's and Durham ), this might be our last chance of doingthis together.

And that's what it is about. We were all David's friends. For one or two of us to runthe race would mean a lot, but not the same as if we were ALL to do it.

We don't want thanks for it as such. We don't need congratulations on the finishline ( although first aid wouldn't go amiss ) and we certainly don't need medals orany kind of recognition.

All we need to know is that for one day we have done the best job we can for aspecial friend, our special friend.

Ross, Adam, Neil, Nathan.

A FANTASTIC £1262.63 HASBEEN RAISED IN MEMORY

OF THERESE FIELD

On 9th September 2000 I organised a song and dance show in aid of CRY. It was titled"Unforgettable" and was in memory of my sister Therese who died suddenly on 9th April1997. The show raised £1262.63 and consisted of jazz, tap and ballet routines as well assome vocal numbers. There was a cast of 60 ranging in ages from 4 to 37. I must thankthem all for their tremendous work and support they gave to me and the show. The showwas performed at the Theatre Royal, Margate and they were so impressed that they havegiven us a date for next year. I will do another show on that date and hopefully raise evenmore money for CRY. Tara Field

THE SNOWDON CLIMB

John participated in a hike up Snowden which Linda helped organisein memory of their son Andrew who died while playing football for hisUniversity Hall of Residence football team on May 10th 1998.

The climb wasblessed with goodweather and so suc-cessful that Johnhopes to do it again.

John and Linda wereoverwhelmed by

everyone's kindness. Especial thanks to the Dry family and friends,David Titchfield, Dave and Sylvia Francis, John Highton and Mike andAndrew Glover for their fantastic support.The Co-operative InsuranceSociety that John is employed by donated sponsorship of £1,000when John told them that 5 members of staff had participated. Thismoney came from a Community Award Scheme run by the company.Over £3,000 was raised from the hike to go towards a mobile screen-ing in Andrew's memory.

OVER £3,500.00 HAS BEENRAISED IN MEMORY OF

ANDREW BLOW

A donation of £200 was made by The University of Hull Business School which

Andrew attended. John and Linda raised £150 from the proceeds of a Christmas

Raffle they held. Andrew's grandmother ran a Bingo event and raised £206.A fami-

ly Car Boot sale raised £100.

Andrew, a second year Businessstudent at Hull University, diedon 10th of May 1998 of DilatedCardiomyopathy. He died play-ing football for his Hall ofResidence team. The last timehis parents John and Linda sawhim was on the week of his birth-day.

The Knights of St Columba donated £200 towards the Andrew Blow

Memorial Fund which was raised through a Supper Dance

attended by friends and family of the local church group.

A WONDERFUL £6247.01 HASBEEN RAISED IN MEMORY OF

STEWART HOWARD

Ever since Jane Howard got involved with CRY, Tesco has con-sistently supported her fundraising efforts for her son Stuart`sMemorial Fund.

In the early months of 1999 their staff held a Car Boot Sale atTesco’s, Thetford on Easter Sunday raising £884.

D Burley also organised a quiz night and raised £130.

In the months building up to Christmas, a hugely successful spon-sored slim by the TescoTubby Team produced afantastic £709. They allwent on a sponsored dietfor two months beforeChristmas and lost 20stone and 3lbs between them.

In December 1999 they sponsored a fabulousFashion Show, producing a magnificent £2225.61.A special thank you to Scott Garrod who we hearworked his socks off on the show and without whomthe event would not have proved so successful.

Several donations and fundraising events held inthe run up to Christmas and just after produced as u p e r

£846.90. for Stewart’s Memorial Fund Thisincluded selling of badges, Sponsored Slim,selling Star Wars posters, a Disco arranged bythe CRY Committee together with donations tomake up the total.

In April 2000, Mrs Pip Jepson raised £133 byplaying the organ in Thetford’s Tesco. A further£191.50 was raised to add to the total of theirTesco sponsored slim including the proceeds ofselling their Fashion Show videos.

In April of this year £525 was raised by JasonAylott through sponsors from workers at Tesco Kilverstone store for the Great North Race

in memory of Stewart. Nine employees from thestore raced to cover as many miles as possible injust 24hrs.

In February of this year a Sponsored Walk, CarBoot Sale , Halloween Disco and last but notleast Bread sold for Ducks by the Riverside Kioskat Thetford raised a fantastic £629 for Stewart’sMemorial Fund.

THE CROSS FAMILY AND THEIR

SUPPORTERS HAVE NOW

Colin and Mary

Wilkinson, of

'Colin's

Hairdressers'

Brunswick,

Newcastle upon

Tyne, instigated a

fundraising event,

raising a total of

£155 with the sup-

port of customers

for David’s

Memorial Fund.

The Sunderland Health and Racquet Club raised £419.10 with two

hugely successful fundraising events in memory of David. The

Guisborough Amateur Swimming Club and The Tyne Triathlon Club

have also given the family considerable support.

Jo’s brother in law raised over £600 running in

David’s memory at the Great Great North Run. This

inspired Adrian Woodhead who had a great time

competing and raising nearly £200. After losing his

wife Sarah from ARVC Adrian became close friends

with Jo and Charlie and often visits them at their

home in Ponteland.

This year Jo and Charlie Cross will be having their

3rd mobile screening in August.

Jo always does a fantastic job raising awareness of

CRY in the media at these events and we have

received terrific TV and newspaper coverage as a

result of all her hard work.

David seen right at a party in Singapore in 1996The CRY Team at one of Jo’s screening’s (exc.Sanjay) John

& Gill Waudby, Jo, Harry, with Caroline & Richard Kumar

After seeing a notice in the Ponteland Lesiure

Centre regarding one of Jo’s screening weekends,

Maureen White raised £183.50 towards screening

in the North East.

Jo and her supporters have had tremendous success with the sale of Christmas

Cards raising over £3,000 for CRY, The proceeds from selling the Bolam Lake card,

which was reproduced with the kind permission of Margaret Morrison, have been a

fantastic fund raiser. This was supported by the Stables Coffee Shop at Bolam Lake,

and the Ponteland Gift Shop who raised nearly £400. We still hold stock of the

Bolam Lake card in the office

which sell fo £5.00 for 10.

Once again many thanks to Betty

Crawford for all her support in

selling CRY cards and gifts. Also

to Connie Platten who has been

making and selling needlepoint

cards for CRY raising over £100

RAISED OVER £16,000.00 IN

MEMORY OF DAVID

Last July Carol Wood of Kingston Park, Newcastle accomplished the well-known Great

North Walk. Carol raised £200 through sponsorship which she kindly donated to David’s

Memorial Fund. Susan Ewart of Northumberland also took part in this 10-mile trek sup-

porting David’s Memorial Fund.

Jo and Charlie (and ‘Royal spade)

with Lucy from Northumberland

County Council, planting the first of

26 Oak trees around Bolam Lake in

memory of David

IN MEMORY OF PHILIP ABRAHAM

Mary Abraham (Philip`s Mum) has sent in a wonderful £500 donat-

ed in memory of Philip through a local parent, Mr Rob Burnett, who

has been so supportive over the years since she lost her dearly

loved son. What a wonderful gesture of support that must have

meant so much to Philip`s family.

OUR FUNDRAISERS

IN MEMORY OF DARREN CHASE

CRY are extremely grateful for

the cheques received from

Darren`s Mum Shirley Damon

for £670 raised by friends and

family in memory of her

beloved son.

The sum of £200 was kindly

donated in memory of Darren

by his cousin Barbara and a

further £15 was the contents of

a penny jar that Darren used to put in his loose change. Thank you

Shirley for sending this in to CRY.

IAN JOHNSON MEMORIAL FUND

Jean Johnson received a lovely letter and a very generous £1000

donation to CRY for her husband Ian, who died in July 1999. This

came from a kind gesture of Frank Collins who was a business

associate and had dealt with Ian through his business for several

years. They had a mutual respect and admiration for each other.

Having both started with nothing and both built thriving businesses

in the retail trade. A further £200 was a token of appreciation from

Jean herself and to thank CRY for all our help.

Leanna, James & Darren

DIANA STAFFORD HAS RAISED AN

INCREDIBLE £30,896.96

IN MEMORY OF HER SON DAVID

A special thank you to Diana Stafford for all

the letters that she wrote on CRY’s behalf

appealing for funds. This yielded a wonderful

donation of £30,000 in January - which

came just in the nick of time to see us over

a very ‘tight’ patch.

Diana was keen to support CRY after her

son David died suddenly of a heart attack

age 30 in 1988.

David, one month

before he died

MARJE`S GREAT NORTH RUN

In February 2000, around Mike’s 21st Birthday I decided that I wanted to do something for him, something

‘big’, something I had never attempted before. I decided to compete in the Great North Run.

Training started at the end of May, very slowly at first, which was just as well, as I had never run since leaving

school - too many years before. The first mile was the best thing I had done in my life, even though the breath

was coming in great rasps, but I was encouraged all the way. As the weeks went by the training became more

intense, and one or two dropped out through injury. I was running with Steven, Jane, Harriet, Domenica, Claire

and Francis and was trailing quite a bit as they were nearly all younger than me, BUT I never stopped. Karen,

Steven’s wife, was brilliant and also helped me to train .

The big day dawned, very frosty and very early as we had a long journey to Newcastle. I went on a minibus

with Domenica, Claire, Francis and family. Allan, Ben and the rest of my family were to meet me at the finish –

if I got there! I wasn’t too worried, knowing that my only intention was to complete the course, not run for a

time. We were dropped off somewhere in Newcastle and had to walk to the starting line. I knew my bearings

as Ben had been to Newcastle University for a while and we walked past his old haunts. I knew that Domenica

had known Mike at school, but hadn’t realised until we were about at the start line that she had been in Mike’s

Ladies’ Basketball Team. I must admit to being a bit emotional when she told me, and was glad I had taped his

photo to my wrist. He was with me all the way.

The scene ahead was breathtaking, so many people, such a long way back from the starting line. Above us

was an enormous screen and the tanoy kept us informed. The warm-up began! It was great, I started chatting

to a gentleman who said he used to do this run with a full army pack on, now he was just a Careers Officer.

Behind us were four ladies dressed as fairies, not far away we could see a ‘bush’ (they were also in the

London Marathon). The atmosphere was fantastic. Then we were off.

I wanted to shake hands with Jimmy Saville and we made our way to the central reservation where Jimmy was

too busy waving to everyone, not shaking hands, but he was there! This was probably the best move though

as the ones who were overtaking us had to go round, and we could just keep going steadily away. We hadn’t

been going long when we heard very loud shouting, we were approaching an underpass, and on entering it

everyone was shouting 'Oggy, Oggy, Oggy'. Round the corner the jazz band was playing, all along the route

people were shouting and clapping for you. It was great! We had covered about eight miles before we even

realised. The whole atmosphere keeps you going.

Running uphill, not far into the race, someone put his arms around me and said ‘Hello my love, how are you

doing’.. Claire was astounded, she said "Marje, all these thousands of people and you KNOW someone! It

was Andrew, a friend from Kirkbymoorside, and such a nice ‘young man’ . Running towards a roundabout

Steven overtook us, he was amazed to see where we were but didn’t stop to chat – I wonder why!. Further on

and the crowds still clapped, shouted and encouraged. The sun was shining, the weather was perfect, but the

hills were getting harder. My poor old knees began to hurt and I stopped for a bandage. Little did I realise that

you couldn’t just pop a bandage on, you had to go into the First Aid tent and have it done properly. The trouble

is that you get cool and stiffen after that. Still we carried on.

As we went round the roundabout into South Shields, only a short way to go, the spirits began to rise. I have to

say though, that was the hardest bit for me, the long, long, uphill struggle was so painful, the knees (both of

them now) just would not bend properly. Then, the top of the hill, and down onto the sea front. A lot of runners

were saying, ‘Oh, this is the longest mile ever’. I had seen the flags ahead though and had something to aim

for. I gritted my teeth, (it’s a wonder I have any left) and we carried on. Domenica was brilliant, she stayed with

me all the time – what a star! I was looking for Allan, Ben, Sallie, Bren and Paul and they just weren’t there.

Then – I saw the CRY tee-shirts they were wearing, Allan looked round with a smile on his face and realised

we were there, Ben was grinning at me and I just wanted to cry and stop there and then, but we were almost

there. In no time we were running through the tape, collecting our medals and it was all over. Never again! (I

raised a total of £1380.50).

Six months on I am in training again to compete in The Great North Run 2001. I have got my place already.

Not bad for a 50 year old! Losing someone as special as Mike is so very hard, it wrecks your life forever, but it

can make you stronger. You just have to have a goal to aim for, and keep going, no matter what. I do know

that Mike is with me and helps me when I need it. I could never do anything like this without his silent support.

When the going gets tough, I say ‘come on Mike, help me’ and he does.

A BRILLIANT £2367.00 HASBEEN RAISED IN MEMORY OF

MIKE SCOTT

When people think of Mike they think of lots of different things: his

great and unrivalled skill as a basketball player; his good nature or his

cheesy grin. When I think of Mike I think of all these things, but above

all I think of the best friend I ever will have.

Friendship does not seem strong enough to describe the bond me and

Mike developed. He was more like a brother. Part of me lived in him

and part of him still lives in me.

None of my jokes were complete without him by my side, in fact there

was’t much that was complete without him by my side. Whatever was

happening in my life, however things were changing, one thing I knew

would never change was Mike.

In so many ways we were like chalk and cheese, I got drunk and

made a fool of myself, I stayed sober and still make a fool of myself,

whilst the whole time Mike was there, by my side, just grinning that great big cheesy grin that just

made everything O.K. But it wasn’t all about having a laugh. If I had a problem he would sort it out

and vice versa. We could talk about anyone or anything and know that it would go no further.

So many people wanted to be like Mike - Lord knows why, I was always the good looking one! - But

really, I can understand why; Mike could have been a role model for the world, everybody respect-

ed Mike, I don’t need to explain why.

It is very difficult to turn feelings into words, but if I could, not one of those would be bad.

I don’t know a word worthy enough of describing Mike, except....Mike.

People say think of the good times.... They were all good times!

Mike, you were and always be, the best friend I ever had. Your body may have gone but you are

still so alive... Here, in my head.... And here, in my heart.... With my memories.

I’ll miss you , Mike.

Hadleigh Standen

Ben and Allan, with Mike’sMum, Marje, who ran in lastyears Great North Run Athanks to all the sponsors that supported Marjeand raised money for Mike’sMemorial Fund. Further spon-sorship from The Great NorthRun and a Quiz Night producedanother terrific £213 for Mike’sMemorial Fund.

Sarah and David Bumby who celebrated their 25th

Wedding Anniversary in August donated £100 in lieu

of gifts from all their friends who came.

Mrs Mandy Silk kindly organised a fundrais-

ing for CRY at Ryedale School Re-union

and raised the fantastic sum of £220. Thank

you Ryedale and Lady Lumley’s schools for

your continued support

Tom Leng was tragically

killed in a car accident at the

age of 17. Tom was a great

supporter of CRY, in Mike’s

memory, and his parents

asked for the Retiring

Collection of £666.55 to be

donated to CRY.

I had never dreamt that I could ever run 26.2 miles.

This was such a mammoth task. It was my first Marathon and I was the first and only Irish runner for CRY.

The great event started at 8.30am,

on a cold Bank Holiday Monday

morning on 30th October 2000.

This was the 21st Dublin City

Marathon and 8,625 runners ran

through the scenic suburbs of

Ireland's capital city.In August I

heard an advertisement on 98FM-

radio station that they were looking

for participants to run in the

Marathon in October. Immediately, I

decided I was going to do the run

and I wanted to do it for a personal

charity, CRY. It is personal as my

cousin, Peter Greene, died at 15

years of age, four years ago, of an

undetected heart problem within

hours of showing symptoms. I

wanted to do this race in memory

of Peter, and his cheery outlook on

life. He was very much involved in

sports and was the captain of the

school rugby team. I knew that

once I told Marie Greene, (his

mum), that I would run the Marathon for CRY that I would definitely set my mind to the personal challenge

and I was determined to complete it.

As I had only decided to run the race last August I started to train extensively for two and a half-hours every

day for the next 2 months. I joined an Athletic Club and ran with them regularly. Paddy Craddock trained

me and gave me advice and continuous encouragement. Paddy is an experienced runner, this being his

37th marathon. I also joined 2 walking clubs, an aerobics class, swam, walked and ran every day. I did

some research on the best food, the best stretch etc, and had to purchase the proper road running

Marathon shoes, shorts and dri-fit running vest.With all the training, no alcohol, loads of advice from the

professionals, long list of the low-fat/high energy foods to eat, I prepared myself for the Marathon day.

I put a lot of hard work in to looking for sponsors. A big thanks to Marie & Michael Greene who prepared a

support letter, which I sent to many people explaining about the charity and seeking sponsorship funds. I

spoke to people about Sudden Death Syndrome and raised awareness of the cause. From that a huge

amount of money was raised for a great cause, hopefully for a pilot project to bring a mobile screening unit

to Ireland to detect early diagnosis of heart conditions in the young.

I know all the hard work is worth it. I am touched by the kindness of all my sponsors.The week before the

race a raffle was organised at work, my office manager donated the prizes, to raise extra funds for CRY.

Due to the excellent prizes the response was fantastic. £343.00 was raised, everybody was so generous. I

received a huge amount of Good Luck letters, e-mails and telephone calls, which I really appreciated. With

all the encouragement from my friends I trained even harder.I was so excited (my stomach was wibbly wob-

bly) and really looking forward to my run.

Now it was time to prepare myself mentally for the day. I enjoyed a massage and relaxed as best I could.

The day before I walked a few miles, ate no fruit and stocked up on isotonic drinks, sugar, pasta, vegeta-

bles and salmon the night before.At last the "Big Hype" was over and the day had finally arrived.

I had to eat my breakfast 3 hours before running (5.30am!) and smother myself in Vaseline. My dad drove

me into the city centre and I was a bag of nerves.I ran with Ruby, from Singapore. This was her 15th

SUZANNE MERRY RAISED £3,757

Brendan & Evelyn Merry (parents) David, Michael

and Marie, Kenneth, Suzanne and Aunt Brigid Greene

Marathon. The starting line being The Four Courts on Arran Quay. The atmos-

phere was electric, and everybody anxious to start, there was a bit of fun when

someone started the Mexican wave. Over half the runners were foreigners,

mostly Americans and Canadians and were really in a holiday mood. The gun

fired at 8.30am and it took us 7 minutes to cross the starting line. We had prom-

ised each other that we would start and finish together. We kept that promise

and never lost sight of each other. I had trained with Ruby and throughout the

race we had kept a steady pace, running at 5 miles an hour and thinking posi-

tive. We motivated each other.

Soon the nerves subsided and I got on with what I had worked so hard for.

Unfortunately, it started to rain and it only cleared up for a while. The crowd of

supporters that were throughout the race was amazing especially the Americans

who were shouting "Good job", "Keep going", "Well done", "Need a rub". What

kept us entertained were the cheerleaders and the other runners dressed in costume. I enjoyed crossing

the 15th mile marker knowing that I had run more than half the race and that I was getting nearer and near-

er to the finish. I had only trained up to 15 miles and I knew that I would be struggling beyond that on the

day, I was right. I only had to walk a mile of the race, as my knees were very painful. Ruby and I kept each

other going throughout the race, as we chewed Jelly Babies, Mars bars and drank isotonic drinks!

At times I had a tear in my eye (not just with pain) as I thought of the reason why I was running. I also

knew that CRY would be financially better off with all the money that I raised. All morning my supporters

chased from one venue to another appearing at various points along the route. I could see the red CRY

balloons in the distance and cheers "Come on Susie, keep going". My supporters kept in contact with each

other by mobile phone reporting where I was and how I was doing. I was determined to complete the race.

The last 4 miles were the worst ever, I was really struggling as I thought I would never see the finish line. I

was absolutely delighted when I saw my supporters at the 22-mile marker and thrilled when I saw my

cousin, Kenneth Greene, running beside me for the last 4 miles carrying the CRY balloons and my drink.

He encouraged me to keep running when I thought I had no more energy left. Kenneth is Peter's brother so

it was apt that he would finish it with me, it was also unplanned.

As I headed into Smithfield, it began to rain again, the supporters were lining the finish area, and it was an

exhilarating feeling. I successfully completed a 26.2 mile run and the adrenaline flowed. When I crossed the

line with Kenneth, still carrying the red balloons,

I was so overwhelmed that I had done it.

Peter's face flashed across my mind. I was so

happy to finish especially when I saw my family

waiting for me. It was wonderful, I felt proud. It

was such an achievement for me, I would rec-

ommend it to anyone, once in a life time experi-

ence and one I will never forget. I owe a Big

Thank You to my team of supporters. I thor-

oughly enjoyed the day.

I will always cherish the commemorative plaque

that I received after the race. Needless to say I

really enjoyed a long hot soak in a bath, fol-

lowed by a celebration party with my family and

my massage the next day. My legs were quite

sore up to the 4th day after the race. I can say

that I once ran the same race as Irish Olympic

Silver Medal winner Sonia O'Sullivan. A goal I

achieved for the Millennium year. At 31 years of age my dream became a reality.

MY TIME: 5 HOURS: 23 MINUTES: 5 SECONDS

RECEIVED: £3,757 FOR CRY A BIG THANKS TO ALL SPONSORS

IN MEMORY OF PETER GREENE

Coming to the finish line

with Kenneth (Peter’s brother)

Suzanne the

day before the race

Eight months after the loss of her son Leon Ashley aged

just four, Julie Hatton with the strong kind support of her

friends and family organised a Pub Night and Sponsored

Walk which raised more than they had ever hoped for.

Beacon Pub was the venue, the place of Julie's work and

with thanks to Ian Parker, the landlord hosted a charity

event in aid of CRY. By placing posters in the nursery

where Leon attended and around the village the event

attracted in excess of 250 people. A bit of a tight

squeeze for all. Friends, shops and businesses gave

generously to both the tombola and the raffle allowing

some wonderful prizes for the winners.

With so many prizes there was something to suit everyone. They included a walk-

man, free months gym membership, a

clock, bottles of spirit, vouchers, a magnifi-

cent hand carved ‘horse & cart’ for the gar-

den, gift sets not forgetting the cuddly toys.

The night continued with a Horse Racing

event which could be seen by all on a large

screen. You had to simply place your

money on the winning horse!! All those who

didn't study the form were only too pleased

to see their money going towards the Leon

Ashley Manners Memorial Fund.

And what better way to end a truly successful night than to call on all those Tom Jones

and Madonna sound-alikes for a spot of Karaoke. The night was an amazing success

and with thanks to the entire team who helped in putting the event together raised an

amazing £2,792.

Julie would like to express her gratitude and thanks to Landlord Ian Parker; Sanjay

and Neeta Patel for their generous dona-

tion;Peter King for the autographed

Premier Division football shirt; John

Hughes for his fantastic hand carved

‘horse and cart’, all the businesses that

gave gifts for the raffles and a very big

heartfelt thank you to all her friends for

their support, love, patience and under-

standing. A very special thank you goes

out from Julie to her partner, Abid, for his

constant support and for giving Julie the

strength and a reason to go on.

A FANTASTIC £2,792.00 HASBEEN RAISED IN MEMORY OF

LEON MANNERS

Julie, Landlord Ian and Janet

preparing for the Charity night

Leon Manners

the lucky

winner of the

Horse and Cart

RAISING AWARENESS

With Permission

RAISING AWARENESS

With Permission South Wales Evening Post 09.02.01

RAISING AWARENESS

With Permission Western Mail 01.01

RAISING AWARENESS

With Permission Daily Express 03.01.01

RAISING AWARENESS

With Permission Evening Chronicle 02.01.01

RAISING AWARENESS

With Permission Evening Chronicle 02.01.01

RAISING AWARENESS

With Permission Evening Chronicle 02.01.01

RAISING AWARENESS

With Permission Liverpool Echo 15.01.01

RAISING AWARENESS

With Permission The Gazette 11.10.01

RAISING AWARENESS

With Permission Lancashire Evening Telegraph 21.11.00

RAISING AWARENESS

With Permission Evening Gazette 30.10.01

RAISING AWARENESS

With Permission News & Mail 21.02.01

RAISING AWARENESS

With Permission

RAISING AWARENESS

With Permission Shuttle Times 11.01.01

RAISING AWARENESS

With Permission South Wales Echo 11.12.00

RAISING AWARENESS

With Permission the Sun

Copyright The Times,

5th March 2001

With Permission the Times

The Sun

The Times

RAISING AWARENESS

With Permission Evening News 14.04.01

RAISING AWARENESS

With Permission Evening News 14.04.01

RAISING AWARENESS

With Permission Evening News 14.04.01

RAISING AWARENESS

With Permission Morpeth Herald 16.11.00

RAISING AWARENESS

With Permission

RAISING AWARENESS

With Permission Somerset Standard 25.01.01

BULLETIN BOARD

As you know my Mum, Rose Hill, died on Valentine’s Day February 14th.

Thank you so much to everyone who has called in or sent cards to the office in sympathy. To lose her from my life has been indescribable.

She was a fantastic Mum, a terrific work colleague and an awesome friend.

Many of you have had such devastating tragedies and yet have still been so supportiveto me. I would just like to say that your support at this time has meant so much.

With love from

LLuuccii’’ss LLoocckkeett ffoorr CCRRYYLuci has designed, especially for CRY, a

superb sterling silver (or 9 carat gold)

locket which opens to hold two photos.

The silver chain can be any length up to a

maximum of 20 inches, and the locket can

be personalised with the addition of any

initial. The cost, including post, packing & insurance is £75,00 and order forms are

available from the office. Gold initial and clasp are available for the additional charge

of £15.00. All lockets are made individually, hallmarked and engraved on the back

with CRY and our ECG line.

SECTION 64 GRANTS

CRY was again unsuccessfull in it`s application for a

Section 64 Grant for 1999. Ifanyone would like the list of

successfull applicants pleaseapply to the office

CRY`S Powerpoint Presentation is now

available in either CD ROM or FLOPPY

DISC formats. Ideal for fundraisings

where a computer can be used to dis-

play information about CRY. Also fea-

tured is CRY`S Website so if any of you

haven`t got access to the Internet and

you would like to see the site now`s your

chance! The cost is £10.00 inc P&P and

can be obtained from the office

Maureen Ward CRY`s

ECG “Consultant”!

Maureen has offered to

talk to anyone needing

help with organising

Mobile Screenings,

ECG Testing , or Ethical Approval. You name

it. She`s done it!

Try her on 01834 843742

June Boulton is dedicating

all her fundraising money

for office furniture and

equipment, in memory of

her 17 year old son John,

who died suddenly last

year in his sleep of Sudden

Adult Death Syndrome.

She is doing a “Pubs &

Clubs” circuit & would be

grateful for Raffle prizes. If

you have any ideas or

prizes please contact her on

0151 287 2519

ESPECIAL THANKS TO NIGEL COLE FOR THE FANTASTIC

AMOUNT OF TIME HE SPENT IN ORGANISING THE ORDERING &

DELIVERY OF OUR WONDERFUL NEW VAN

Michelle Houghton has compiled a brilliant recipes book if

anyone would like a copy please contact Irene Wickers on

01254 707895. They cost £1.00 and all proceeds to go to the

Neil Wickers & David Staff Memorial Fund

LATEST STATISTICS

NOW REVEAL THAT

NEARLY 1 IN 100

CHILDREN ARE

BORN WITH A

HEART DEFECT

SINEAD CHAPMANWe have heard that thesurgery Sinead had toinsert a defibrilator wentvery well, but she will beneeding to return to thehospital for further treatment. We are all thinking of you Sinead, especially yourfriends on the CRY Counselling Course.

NEW CRY GUIDELINES

BECAUSE OF THE GROWTHOF CRY, GUIDELINES FORREPRESENTATIVES ARE

BEING INTRODUCED WHICHWILL BE AVAILABLE ONREQUEST. CRY WILL BE

INTRODUCING 8 U.K DIVISIONAL REPRESENTA-

TIVES WHO WILL BE SUPPORTED BY COUNTYREPRESENTATIVES. OUR

CRY ADMINISTRATOR JAN SMITH IS ALSO

PRODUCING A MANUALON “GETTING INVOLVEDWITH CRY” WHICH WE

HOPE TO HAVE READY BYLATE SPRING 2000

UPDATE MAILING LIST

IF YOUR MAILING

ADDRESS IS INCORRECT

PLEASE LET US KNOW

AT THE OFFICE SO WE

CAN KEEP OUR MAILING

LIST UP TO DATE

QUESTIONS & ANSWERS

If anyone has any questions that they

would like answered in the Brochure

then please fax them through to the

office. If we have enough interest then

a Questions and Answers Page

will be included in the Update.

(No medical queries please)

CRY COMMANDO CHALLENGE

Unfortunately we have had

insufficient entries for this

event, which will now be

postphoned for this year.

We anticipate running the CRY

Commando Challenge again next

year in the Autumn of 2001

RAISING AWARENESS

NOT INCLUDED IN ISSUE 28

2/04/01 513 £50 CF Bracknell Berks Royal County of Berkshire

Raquets & Health Club Mrs G Childs Our grateful thanks to the "Royal

County of Berkshire Raquets & Health Club" for their donation towards CRY'S work

which was forwarded by Mrs G Childs

picture

kids

20/04/01 522 £58 CF Croydon Surrey Sally Kibble Many

thanks for your wonderful cheque, collected at Croydon High School at Christmas for

which CRY are most grateful.

9.00 148 £51.32 M/F Darwen Wickers Two little

girls named Jodie and Charlotte held a 'garden wall sale' and raised this amount (their

grandmother also raised £120.09p through various sales)

Debbie Thomas lost her brother Karl in May of 1998. Through numerous

activities at Ysglong Grange School in Wrexham Cry received a kind donation of £40.00.

Many thanks

The Blythe Community College, in Northumberland, chose CRY as one of their charities

and raised £100 through their pupils for the David Cross Memorial Fund.

2/4/01 446/7 £143 MF Nawton York Allan & Marjorie Scott Lady

Lumley's once again raised money(£128) from a non-uniform day in Mike's memory. Also

a cheque from Mrs Gamble , Mike's Auntie who donates each year instead of putting

flowers on his grave.

10.01.01 No Ryedale School last year decided that instead of sending cards to

each other they would put a greeting onto a Christmas Tree in the staff room and donate

funds to CRY in Mike's memory. Through this idea they raised a fantastic £190.00

Andrew Blow

Children and staff at Holy Cross R.C. School and St Bede's R. C. High School held a non-

uniform day raising over £500 in memory of Andrew Blow.

St Anne's Scout raffle raised £58 in Andrew's memory

16.11.00 Yes Write up and photos sent in 16.11.00. Dame Allens Girls School

Over Wednesday and Thusday in early Novemeber, the girls of Dame Allan’s class 11J

took it upon themselves to raise money for charity. They made cakes and biscuits, bought

sweets and sold the lot off in school, at their very own stall, over the lunch and break

times. Over £160 was raised and it was decided to donate it all to CRY through one of

teh girl’s boy freinds mum. Richard, the boy in question had recently died very suddenly

from teh not so rare heart disorder HOCM (Hypertrophoci Obstructive Cardiomyopathy)

and all the girls including his friend Helen Bell had all agreed that this was a very worth-

wile charity to receive their money. Well done girls!

13.12.00 Last December a tremendous donation of £1,200 was presented to Jo Cross

from the Junior section Northumberland Caravan Club, who adopted CRY as their charity

for 2000. A huge thank you to all those on the Junior Committee of the Northumberland

Caravan Club.

GARY CHALWIN

23.10.00 Yes £2556.04

‘The reason for throwing ourselves out of this plane was in memory of my 20 year old

cousing Gary Chalwin who sadly died in APril. He was found dead in a bus shelter five

minutes from his home in Cuckfiled. He was taken to hospital where they tried to resusi-

tate him but after two hours they declared him dead. The doctoers siad he probably died

before he hit the ground. The only signs Gary had were two weeks before when he had

severe chest pains but only told his girlfriend.’

‘This has been a tragedy for our family. Our friends have been very supportive and have

helped us raise over £3,000 for CRY.’

Photos: Sally Mitchell (1st from left), Amanda, and Paul Mason before jumping 3500 ft

from a plane travellin 70 miles an hour. ‘Very scary!’

CORE FUNDING

27/02/01 469 £370 CF Gulidford Sy University of Surrey (Student

Union)Sarah Broadley Many thanks to The Student Union of the

University of Surrey for raising a fantastic £370 for Cry. We're so glad you had

such fun raising this money.

08/02/01 474 £150 CF Tyne & Wear Ingham Reunion Mrs Cecilia

Gibson SRN Many thanks for your kind donation of £150, raised at Inham

Infirmary's staff reunion

14/02/02 472 £100 CF Tadworth Rod & James Sumner

For the loan of our CRY Van many thanks.

2/4/01 452 £250 CF Woodthorpe Sheffield Mr JP Howell

Jason Howell who himself suffers from Cardiomyopathy, has raised a fantastic

£250 by having all his hair shaved off. The money was raised with the help of fam-

ily and friends and work collegues. We have to admire your total dedication to our

cause Jason, to take such a drastic action.

ANDY GARD

27/02/01 461 £365 MF ring fenced Frinton 0n Sea

Caroline Gard Received the sum of £365 from Caroling Gard,

proceeds from ECG Testing on 9/12/00

27/02/01 459 £1561.2 CF Frinton 0n Sea Caroline

Gard Thank you Caroline for your support in selling a huge number of

Xmas Cards for CRY and for your cheque of £1561.25.

27/02/01 460 £500 CF Frinton 0n Sea Caroline Gard

A magnificent £500 was raised in memory of Andrew Gard. £400 from

the Lock & Barrel pub at Frinton and £100 from the fundraising efforts of Julie

Moorhen.

08/00 225/6 £600 &£508.12 MF Caroline

Gard sent in two super cheques, one for £600 raised from various donations

badge sales etc plus a further £508.12 from Merrill Lynch & Co, both in memory

of Andrew Gard. Thank you for all you do for CRY Caroline.

LEWIS MARSH

26/02/01 458 £5600 MF Sandhurst Berks Sally

Reid Yes A Colossal £5600 sent in by Sally Reid. This fantastic

amount was raised by The Sandhurst Boys Football Club at The

Lewis Marsh tournament last September, in memory of Lewis, this

included a cheque for £200 collected at the tournament weekend

through a tomboy stall. Gill Marsh and her family are very keen that

the money is used to donate an ECG machine to their local hospital

"Frimley Park".

Lewis Marsh 20/4/1 506 £3454.79 MF Sandust Berks Gill Marsh

We Were open-mouthed when a total of 83 cheques came in from Gill Marsh raised by

holding a show in memory of Lewis. What an absolutely amazing success for all of you,

and of course for CRY.

27/02/01 479/478 £112 & £95 MF Sandhurst Berks Sally Reid

Received from Sally Reid £207 in payment for merchandise for fundraising

events. Thank you Sally and Good Luck

INCLUDE FRONT OF CONMCERT

IAN BOWEN

At the initiative of Tony Duffy raised over £175 from a quiz night for Ian’s Memorial Fund.

Congratulations to Steven

Davison for raising a super

£127 by running the Great

North Race in memory of

Ian Bowen.

In April of this year, Neil & Judy Sereinson generous

donated a bike after winning it in a raffle. Kenny &

Maralyn Bowen raised a huge £600 for Ian's Memorial

Fund by raffling the bike once again. The person who

won the bike, Mrs Betty Taylor, kindly gave it straight

back to be re-raffled and therefore raised an even

greater amount.

Once again a Boxing day

dip was held in memory

of Ian. A Freezing

Fantastic £377.14 was

raised by Chris Brouder,

and The Middlesborough

Teeside Lions Club.

Terry Glasper, who lives

next door to Chris (front

right),nominated CRY to

Uniquema who donated

£400 to Ian’s Memorial

Fund

Ann and Nick Coulson giving a cheque for

£500 for Ian’s Memorial Fund. Ann and Nick,

along with friends Yevonne Flintcroft, Stewie

Jones, Ged Ryan, and Barbara Clarkson,

from the Pig and Whistle, did the Lyke Wake

Walk, a 42 miles hike across the North

Yorkshire Moors.

Neil and Judy with Kenny

and Maralyn

Transco staff raised £590

from the sale of disused

cameras. Peter Race and

Steve Lanley presenting the

cheque???

Ann & Nick with Kenny & Maralyn

LAMB

20/03/01 509 £77.69 MF Stakeford Northumberland Asda Blythe Charity

Fund Keith Lamb A colleague of Keith Lamb, Simon Story of Ashington

Northumberland was training to run in the London Marathon but an injury has prevented his

participation. Asda has seen fit to donate the money £77.69 despite the fact Simon is

unable to run.

ROWENA MINSHALL CRABB

Crabb-Minshall Rowena 1869 £115.70 MF Yeovil Somerset

Somerset County Council Annie Cant A big thank you to Somerset County

Council for their donation of £115.70 for the Rowena Crabb-Minshall memorial fund.

Crabb-Minshall Rowena 1471 £650 MF Yeovil Somerset Oakham

School J L Carnell A kind and generous donation was received for the

Rowena Crabb-Minshall MF. The money was raised from the proceeds of a play held by

Oakham School.

Crabb-Minshall Rowena 1570 £300 MF Yeovil Somerset Oakham

School Mary Frimley Mary Frimley and house members sponsored run

efforts raised a super £300 for CRY in memory of their friend Rowena Crabb-Minshall.

Crabb-Minshall Rowena 1302/3/4/5 £266.41 MF Yeovil Somerset

Fords of Oakham Rutlands Dept Store Jenny Thompson/Mrs J Minshall Thank

you so much for the generous cheques to the value of £266.41 given to CRY in lieu of

flowers in memory of the late Rowena Crabb-Minshall (age 15 yrs) received from "Fords

of Oakham Department Store".

DAVID CHAPMAN

Chapman David 1557 £300 MF Hawes N Yorkshire Janet

Chapman Janet Dinsdale and Janet Chapman raised a super £300 for her

brother David Chapman's MF by having a very successful disco evening.

kids

Chapman David 1858 £150.00 MF Hawes N Yorkshire Janet

Chapman Janet Chapman sent in a super cheque for £150 raised by organising

a disco for her brother David's MF

DARREN CHASE

half page

16.11.00 Yes

We were lucky to have a fine clear day, so two car loads of friends and very anx-

ious parents made an early start for Dunkerswell Airfield in Devon. Claire, Esther

and Andrew went off to get dressed up and instructed for their jump. Bob, my

brother said " They jump two miles, that's not too bad, that's just up to the shops

and back again". Sue and I tried to imagine 'up to the shops and back again' stood

on end! - it just made us feel worse. The plane was so small, it would only take two

instructors, two jumpers, the pilot of course and a cameraman. Everyone but the

pilot sitting on an old piece of carpet on the floor with not even a door to the plane

just an old piece of Perspex to pull over the opening! Claire and Esther were first

up. It took 20 minutes of circling to get to 10,000 feet. The place looked so small,

we heard its engine splutter and knew that was when the girls strapped to their

instructors had to somersault out of the doorway. We couldn't see them until the

parachutes opened at 5,000ft. The first 5,000ft had been freefall. Once the para-

chute opened I felt a little better, but once they were on the ground a 100 times bet-

ter. Poor Sue had to go through it all over again an hour later when Andrew

jumped. It was a long morning for us parents. All three enjoyed every minute, and

would have gone straight back up. I drive home, they were on such a high, no way

was I going to let anyone of them drive on the way home. (I've had enough excite-

ment for one day). Now they are wondering how they can beat a freefall parachute

jump for thrills, any idea? All the money raised is for The Michael Andrews

Memorial Fund who was Claire's Godson and cousin.

MICHAEL ANDREWS

WICKERS AND STAFF

22/5/00 130 £303.50p M/F Darwen Galligreaves & District Comm.

Assoc. AND Cleansing Dept of Blackburn/Darwen Irene Wickers

Football Match and Quiz Night.

00 3, 4 & 5 £542.00 M/F Darwen £500 Bolton Evening News.£15

C.Bannister£27 Joanna Baxter, Paul Pickup & John Marsden Granville Staff

Lovely Card whichAlisonWould like included The card included messages of remem-

brance to David

1837 £1,209.65p M/F Darwen Wickers An incredible

Christmas Fair - fantasticly bright posters advertising Fair (letter looked up) Could the

photographs of Father C be this fair/ Irene says that his name is Brian Elvey and the

children loved the fact that he came from australia, where he and his wife May and family

live. The lucky ladies sitting on his knee are Pat Rutter (a great fund raiser) and

Jacqueline who has been like Irene's right arm since Neil died - nothing is too much trou-

ble for her.

Staff/Wickers 23.8.99 1653 £204.25p M/F Darwen Wickers

Tombola Stall (nothing on letter)

30.5.00 144 £321.98p M/F Darwen Wickers Charity

Stall - I could not find letter in file!

12/99 1843 £50 M/F Darwen,Lancs Wickers Irene wrote to

Julie Hesmondhalgh (Coronation Street Star) asking for photo of her for a sale to be held

in November. She sent this and also a CAF cheque for £50.

Staff/Wickers 1546 £400.30p M/F Darwen Wickers

Proceeds from various fundraising events. She asked that Mrs Squelch and Mrs Yates

were thanked for their tremendous freely given help for Cry.

158 £200 M/F Darwen Wickers

Donated from Sainsbury's in Darwen - no letter

170 £238.12p M/F Darwen Wickers Charity Stall at

the Lions Gala Day

19/6/00 171-174 £397.37 M/F Darwen Wickers

182 £500 M/F Irene applied to John Frederick leach Charity

?July 2000 214/215 £440.00 M/F Darwen Photo Rotary

Club of Heywood donated this amount. Money was raised by holding a duck race on the

River Roch (all plastic!) and a maggot race. Nothing included cruelty to animals. The

21.12.00 At the back end of November friends of Neil Wickers hosted a

Carity Concert where they kindly raised £135.00

18.10.00 No The Two gates Bowling Club in Darwen held a raffle at their Bowling

match in October which raised over £117.00 for Neil Wickers Memorial Fund.

IAN JOHNSON

11.12.00 Yes

THE GREAT NORTH RUN ADVENTURE IN MEMORY OF DAVID STAFF.

Saturday 21 st. October - the eve of the Great North Run 2000. I was sitting in a B & B

somewhere to the west of Durham City, and feeling extra-ordinarily nervous. I can hon-

estly say that the three leaves of lettuce and a single cherry tomato that I had consumed

earlier weren't going to help me get through thirteen miles the following day. " Shouldn't

you be eating pasta ?" asked my parents. Why did I feel so anxious ? I had always

enjoyed running for my own sake and although this was the first time I had taken part in

an organised event, I had spent seven or eight months training for it.I was fairly confident

about finishing the race and no one was really expecting me to beat Paula Radcliffe,

even on a bad day. Were the other thirty nine thousand, nine hundred and ninety-nine

runners feeling the same way. Having survived the night, I woke early to catch the train

to Newcastle. Having been an under graduate at Durham for four years, it was a journey I

was used to, but as a shopping trip or a night out Fortunately, by this time, my nerves

had disappeared, I was more concerned with safety pinning my race number to my T-

shirt rather than my flesh and trying not to think about that my fingers and toes were so

cold that I could no longer feel them. By this time I had made it to the start of the race

and had managed to link up with Uncle Granville ( David's father and running partner

extraordinaire ), I was really caught up in the atmosphere. The anticipation was almost

palpable and the thirteen miles ahead of us seemed irrelevant as everyone was in party

mode. It felt entirely natural to be sharing a motorway with forty thousand people on a

Sunday morning in Newcastle whilst mingling with a group of Teletubbies chatting to a

Giraffe. As the race began, the party continued with much shouting, shuffling and excite-

ment - I missed Jonathan Edwards but ran past Jimmy Saville. Amazing ! The real live

Jim'll Fix It ! ( God to my generation despite his dubious taste in jewellery. ) Crossing the

Tyne Bridge on a clear, sunny morning with thousands of other people was fantastic and

an experience beyond compare. In fact, my good mood continued right up until I had

crossed the bridge and faced the first hill of the morning. So this was what the training

was for then………. Miles 3 - 10 passed in a reasonably pleasant way, and once I had

settled into some sort of steady pace, I actually started to notice more of what was going

on around me. There were runners making money for babies, older people, younger peo-

ple, people-in-between and I have not even started to mention the variety of human

organs that were represented……. Apparently, every postcode in the country had a repre-

sentative too. " What an incredible event." Mile eleven was, shall we say, less enjoyable

and even forgettable. It was a hill, not a short hill, but a long, drawn out hill. As I paused

for my sixth bottle of water I started to doubt that the end of the race would ever happen.

This feeling became stronger as I looked ahead to try and spot the fluorescent yellow

twelve mile marker that would mark the beginning of the end. I became increasingly con-

vinced that someone had been moving the mile markers as the race had gone on, I firmly

believed that Blackpool Tower would appear somewhere on the horizon. Fortunately, it

didn't, and with a great deal of encouragement from my running partner, I began the last

mile. " Come on pet, only six hundred to go someone shouted !!! Six hundred !!! Six

hundred what ??? Six hundred ice cream vans, six hundred hot dog stands, six hundred

people, actually it was six hundred metres. Then four hundred, then two hundred, and

with twenty five metres to go, I managed a smile and sprinted over the line in two hours

and sixteen minutes. Jubilation !!! I had always been told that running is as much about

psychology as it is stamina and fitness. In my case, that was certainly true, there was a

STAFF

lot more to MY run than just getting from Newcastle to South Shields in the quickest time

possible.A few years ago, I would not have believed myself capable of such an undertak-

ing - me ? A half marathon ?? Never !!! No way !!! Impossible !!! However, a few years

ago I would not have conceived of losing a dearly loved cousin to an undiagnosed heart

condition about which I knew nothing. David died at Christmas in 1994, just weeks after

his seventeenth birthday due to Hyperthrophic Obstructive Cardiomyopathy. The emo-

tions that derive from such an event need not be discussed here, suffice to say that none

of us quite understand what had hit us. The death of any young person leaves in it's

wake many questions and the need for justification impossible. It is then that attention

has to be turned to life and the living. With that in mind, I chose to take part in the Great

North Run and to raise money for C.R.Y. It was a privilege to represent C.R.Y., an honour

to represent my family and I hope, a suitable tribute to David.

Gillian Haddow.

13.21.00 No Duncan & Lisa Nield also took part in the Great North Run and raised

an amazing £408.00 which is to be donated to The David Staff and Neil Wickers

Memorial Fund.

one staff only to

go in

Granville Staff has raised a fantastic £336 for CRY. £250 from The David Staff

Memorial Fell Race which takes place each year. We hope Ross, Nathan, Neil

and Adam have all recovered from their experience in the Fells …thank you

lads for your wonderful effort for David, and for the £71 raised. Are you up for

this year too ??? Also included was a donation of £15 from Mrs P Little, thank

you so much for your kind support.

LISA JANE BROWNE

12/03/01 484/487 £120 CF (councelling) Flintshire N Wales

Doreen Harley We're glad to see how keen and dedicated you are Doreen

to attend our CRY Counselling Course, by raising all this money to pay for the costs.

Keep up the good work !!

12/03/02 492 £450 CF (councelling) Flintshire N Wales Doreen

Harley Fundraising for your counselling course is going great guns Doreen with

another £450 toward its costs.

02/04/01 502 £500 CF Flintshire North Wales Doreen Harley

Yes Doreen Harley has sent in a further cheque for £500 from MBNA International

Bank toward her counselling course. You certainly have the knack of persuasion

Doreen at getting great sponsors to identify with your cause. WELL DONE.

DARREN BRUCE

27/02/01 477 £300 MF Colchester Sue Bruce

Thank you Sue for your fundraising efforts for CRY in memory of Darren

and David and for sending your donation of £300

1494 £825 MF Walker roast Colchester Essex Eileen Upster

A very generous donation of £825 towards The Darren Bruce MF was

made by his fathers company "Walker roast" . This is money that would have

been spent on corporate gifts, but in view of Darren's tragic sudden death

they felt it would be more appropriate to make a donation to CRY.

Richard Allan

443 £836 MF Newcalstle Mandy& Denis Allan

Mandy and Denis Allen have sent in a magnificent total of £836 in memory of their son

Richard. This total was made up from a variety of fundraising events, their encouraging

comment say's " We find our fundraising gaining strength and the people willing to sup-

port us growing each day".

William Tyley

This was from a kind donation from Mr & Mrs Peter Culley

donated £480, the proceeds from their Golden Wedding

Anniversary to Williams Memorial Fund

Mr and Mrs R Coward of Wood Farm, Mere, Wiltshire had a

clay pigeon shoot held on the farm on 19 September 99. A

fantastic £782 was raised.

A tot

tions

her a

peop

expla

drink

199

Mr and Mrs Rodney Coward

the owners of wood farm, Mear

Wiltshire and Mr David Marks (right)

4.30am - 1.1.2000 CRY TAXI Daphne Tyley &’C

jumper & polo shirt ‘uniform’

20/04/01 519 £350 MF St Albans Herts Mr & Mrs Merchant

A super cheque for £350 sent in from Dennis & Barbara Merchant for their son Ian's

memorial fund raised from a raffle and collection box's.

IAN MERCHANT

recepit 321

Sally Mitchell of Hertfordshire jumped to raise money for Ian Merchant who died 5 years

ago on 25th September to Sudden Death Syndrome. Jumped with Amanda Chandler

and Paul Mason (Check all of this?????)

LYNSEY BOWE

1514 £465 MF Carlisle Cumbria Angela & Peter Bowe

Having a fundraising dance in their village hall raised over £900 in memory of

Angela & Peter Bowes daughter Lyndsey. The amount was shared between CRY

and The British Heart Foundation.

SARAH LOUISE WILLIAMSON

2/12/99 1859 £215.00 M/F W.Midlands John Williamson YES

Group of lads borrowed a raft earlier in year and entered a charitable raft race. They are

friends of friends so no real details - only that the firm is Inbis Limited and the organiser

was Craig Wall. THE PHOTO IS (from far right clockwise Nick (Swifty) Davies, Graham

Cox, Brian (Smithy) Smith, Alan (Rodney) Hindley, Temple (Moza) Jones, myself (com-

plete with Rod Stewart wig), Scott Morris and Mark (Gaffer) Smith - John Williamson took

this off the Fire Station notice board to send to us. John is Sarah's UNCLE. He is a

member of Red Watch at Tipton Fire Station in W.Midlands and raised £200 for their

efforts) Also a young girl walked into fire station (K.Fenton) and said she had raised this

amount for charity and wanted it to go to the same one as the fire station.

picture

July/99 1601 £90.56 Somerset Martock

Primary School was Sarah's old school and they have been very

EPA Foy Apr.991465 £162.20p M/F Somerset

Supportive in their fundraising. £90.56 was raised by a collection at their end of

" " 29.3.99 1405 £487.09 YES (not on

this file) Term service, £44 from the Easter Service and a fantastic £605.29 for a

mini-marathon which was run in the school grounds.

1.11.00 Yes Westland Ladies Bowls Club raise £300.00 for CRY. See

PictureGoldenstones Leisure Centre based in Yeovil Somerset have successfully raised

more funds to go towards the Sarah Louise memorial Fund. An amazing £500.00 was

raised through enthusiastic children participating in a sponsorship swimathon. See

Picture.

RAISING AWARENESS

NOT INCLUDED IN ISSUE 28

10/99 1751 £500 MF Mrs Costandina Jordan sent in a

grand cheque for £500 raised through her work as an event co-ordinator with a Leeds

based company Speed Queen. She would like the money to go toward an ECG machine

in memory of her brother Peter Jordan who died in November 1998.

PETER JORDAN

KEVIN SAYER

Nov.99 1220-1222 £127 M/F Bergh Apton Bergh Apton & District Society

I could not find correspondence. £51 from Gus and Steve's winnings on Race

Night and £35 from Bergh Apton & District Soc. £41 from bergh Apton Sculpture Trail.

Oct.991728-30 £520 total M/F Yes The Loddon United

FC held a memorial match for Kevin and raised £295.50p.The other cheques were for a

Victorian Musical Evening where three ladies from ARCADIA entertained everybody for

the evening. This event was organised by the Church who kindly gave the proceeds to

Cry.

Apr.00102 £100 M/F Bergh Apton Bergh Aptom Community Arts Programme

Hayley and Evy kindly supplied the refreshments for this event which was held at

the village hall.

16/8/99 1644 £268.50 M/F Norwich Jex Rangers Football Club

£268.50 - no details

12.00 1764 £329 M/F Bergh Apton Lorraine did a parachute

jump raising a fantastic £210.50p and £110 from Buckland Plasterings Race Night.

18.5.99 235 £546.57p M/F Norwich Jet Rangers FC

There was a whole day of hard work for thefootball club who completed in friendlies.

They forwarded us a staggering amount of £546.57p. Overall they have donated over

£800. The lads are aged 89-16 yrs of age. The club has progressed over the years to

one of the biggest youth football clubs in Norwich. Kevin played with this club and most

of the lads he played with are now grown men and not now actively involved in the club,

apart from one who is now an FA coach! =

If you would like Tony to consider any item for Bulletin

Board please fax details(including your item) through

to him on 01737 363444

Please bear in mind when organisingfundraisings that it would be brilliant if youcan take photos of your great day. It wouldalso be extremely useful to Tony if, whenyou write in to the office, that you clearly

state how much was raised, and by whom.

BULLETIN BOARD

RING FENCED

FUNDRAISING

Please remember that unless

you notify us and get the

necessary documentation and

confirmation from the office for

“ring fenced” fundraising before

you start a fundraising venture

all funds raised will be used for

CRY Core Funding.

Retrospective “ring fencing” is

unfortunately just not possible.

CRY cannot be responsible for

any “ring fenced” fundraising

unless it has been authorised.

Have you run in The Flora London

Marathon for CRY?

Did you raise at least £1,000?

Would you like to be featured in our

Update Brochure?

Could you write an account of your

run in 400-700 words?

Can you supply a photo of yourself

at the event?

If you have answered ‘Yes’ to all of

the above Tony would be very

pleased to hear from you on

01737 363222

Would you like to run in

The London Marathon for CRY?

If so please contact Jo Roffey at

the office on 01737 363222

Munah & Margy for Badir Al-Chalabi 1999

SPECIAL THANKS TO

Steve Ashworth for nominating CRY to

receive 2 CRY Van loads of donated

office furniture from his company ACCO

UK based in Aylesbury. This wonderful

donation of excellent quality furniture has

made such a brilliant difference to the

feel of the office.

APPEAL FOR CURTAINS

We are currently seeking Stage

Curtains to cover our ‘up and over’

door downstairs, if anyone can help

please call the office.

JAMES DAVID DUDLEY

James David Dudley 08/99 1641 £919 CF

A wonderful donation was received of £919 in memory of

David Dudley James, from Mrs Shortall of Ballard & Shortall Ltd.

This will be an enormous help towards Cry's valuable work.

RAISING AWARENESS

With Permission

IF ANYONE HAS ANY

QUERIES ON ECG

PROGRAMMES OR MOBILE

SCREENING ENQUIRIES

PLEASE CONTACT

JAN SMITH, CRY`S

ADMINISTRATOR AT ST

GEORGE`S HOSPITAL

MEDICAL SCHOOL, ON

0208 725 5098

OR jsmith@sghms.ac.uk

BULLETIN BOARD

CRY WEB SITE www.c-r-y.org.uk

SPECIAL THANKS

To Diana Stafford who has

done so much work to

raise awareness of CRY

with applications for

JAN SMITH has asked that

b e f o r e

anyone sets anything up, could

they please call her. This should

be a great timesaver, as you

need to check your information

is correct before proceeding.

When sending in Raising Awareness articles for the brochure

please whenever possible state the name of the paper, date of

21/7/00 208/9 £2110 MF

article Richard Haynes wrote in enclosing magnificent cheques to the value of

£2110 from two fundraising events for The Colin Doyle MF. In June 2000 the Willow

Tree Pub raised a super £660. The other event a Charity 5-a-side Football

Tournament and Evening Disco at Slough Post Office Sports & Social Club on Sat 8

July 2000, which was a huge success and enjoyed by many, raised a further £1450 for

Colin's fund. Richard arranged for the Slough Observer to attend and have since

published an article in their "Observer Midweek".

COLIN DOYLE

1.11.00 No For the 3rd year running friends and family hosted The Colin Doyle

Memorial Tournament at the Royal Standard, Gwinear in Cornwall. This annual event,

yet again was a truly memorable and enjoyable for all those who attended. Success was

evident and raised in excess of £500.00. The money raised will be donated to Colin

Doyle's Memorial Fund.

PAUL DAVIES

Davies Paul 2000 188 £300 MF Redditch Worc Chelmsley Wood Lodge

D Hill A super cheque for £300 has been sent in by Chelmsley Wood Lodge,

The Banbury Club of Solihull after an appeal by Graham Taylor a staunch member of

the Lodge and Order and friend of the family of Paul Davies. They say, "We wish it

could be more but we are a small Lodge consisting of mainly pensioners, but wish us

well in all future fundraising activities". The family have raised over £700 which has

;been donated to the costs of sign writing the CRY van a nd for the CRY office sign

E MAIL CONTACTSCRY head office - cry@c-r-y.org.uk

Keeley Ashley - keeleyashley@aol.com

Roy & Gill Ball - royandgillball@selcroftavenue.freeserve.co.uk

Nigel & Jenny Cole - nigel1949@hotmail.com

Jo & Charlie Cross - chascross@compuserve.com

Caroline Gard - carolinegard@hotmail.com

Harry Hindle - capt.harry@ntlworld.com

Anne Jolly - jollyjon@netcomuk.co.uk

Alan & Gloria Moss - mosses@cherrystonescottage.freeserve.co.uk

Tim & Sylvia Salisbury - thesalisburys@cwctv.net

Granville Staff (work) - granville.staff@darwen.deconorth.com

Jan Smith - jsmith@sghms.ac.uk

Adrian Woodhead - adrian@woodhead88.freeserve.co.uk

More and morepeople are

using email as a fast

and convenientway of

communication.If you would like to be put on ourCRY list, please

email us withyour details.

BULLETIN BOARD

We have received a few requests for a copy of the

‘That`s Eshter’ programme which was broadcast

on 30.04.99. If you would like to borrow a copy

then please send a self addressed padded Jiffy

bag with stamps to the value of 66p to the Office.

If you have ever wanted to do a parachute jump here is your

chance. CRY - Cardiac Risk in the Young are looking for

adventurous volunteers to make a fundraising parachute jump

and if you raise enough in sponsorship you will get to jump for

free! There are two types of jump available - a 'Tandem

Skydive' from 10,000 feet attached to a professional instructor

and a 'Static Line' jump which is performed solo for up to 3,000

feet - and you can jump from any one of 23 British Parachute

Association approved airfields across the UK. No experience

is necessary as all training is given and if you raise between

£260 and £330 you will receive your jump for free.

So if you would like to make a thrilling skydive from 10,000 feet

or an exhilarating solo jump from up to 3,000 feet give Jo

Roffey a call at the office on 01737 363222 - she'll send you a

full information pack and everything you need to take part in

the experience of a lifetime.

CRY NOW HAS A

NEW WEBSITE

ADDRESS WHICH IS

www.c-r-y.org.uk