creating connections: working with people with dementia

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Creating Connections: Working with People with Dementia

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Page 1: Creating Connections: Working with People with Dementia

Creating Connections:Working with People with Dementia

Page 2: Creating Connections: Working with People with Dementia

• Why connect person-centred care with staff safety?

• Creating Connections background & structure• Workshop evaluation results• Future steps

Presentation overview

Page 3: Creating Connections: Working with People with Dementia

1. What is the injury rate for continuing care workers?

9.2 / 100 4.0 / 100 8.2 / 100

2. Of all reported injuries, what is the most-common accident type?

Acts of violence Overexertion Slips, trips and falls

3. What is the most common source of injury?

Working Surfaces People Boxes & Containers

4. Dementia is not a specific disease. True or False?

5. What % of people in residential care have a diagnosis of dementia?

52% 61% 85%

A quick quiz…

Page 4: Creating Connections: Working with People with Dementia

• 70,000 people in B.C. have Alzheimer’s disease or another form of dementia

• Over 10,000 of these 70,000 people are 65 years of age or younger

• 15,150 new cases in B.C. each year

Setting the context: Dementia in B.C.

Page 5: Creating Connections: Working with People with Dementia

“Seeing the person with dementia as a person first and foremost...Person-centred care means getting to know the person and then thinking how their condition is affecting them.”

Setting the context: What is “Person-Centred Care”?

Page 6: Creating Connections: Working with People with Dementia

• Person-centred care:– Fewer incidents of staff being verbally abused or

struck by residents (Chrzescijanski et al., 2007)– Higher levels of staff job satisfaction / lower levels

of burnout (Edvardsson et al., 2009)

So Why Staff Safety and Person-Centred Care?

Page 7: Creating Connections: Working with People with Dementia

Good for the person with dementia

=Good for staff

Page 8: Creating Connections: Working with People with Dementia

Vision: Our ultimate vision is to create a world without Alzheimer's disease and related dementias.

Mission: The Alzheimer Society of B.C. exists to alleviate the personal and social consequences of Alzheimer's disease and related dementias, to promote public awareness and to search for the causes and the cures.

Alzheimer Society of B.C.

Page 9: Creating Connections: Working with People with Dementia

Vision: Safe, healthy, and injury-free workplaces in continuing care.

Mission: To empower those working in the continuing care sector to create safer, healthier workplaces by fostering a culture of safety through evidence-based education, leadership, and collaboration.

SafeCare BC

Page 10: Creating Connections: Working with People with Dementia

• Partnership formed between WorkSafeBC and the Alzheimer Society of B.C.

• Purpose: Determine if there was a need and desire by B.C.’s paid frontline care workers for basic education on dementia.

• October 2012 to November 2013

Pre-Creating Connections: The pilot project

Page 11: Creating Connections: Working with People with Dementia

• 8 workshops (6 hours)• Led by Alzheimer Society of B.C. educator• Lower Mainland, Vancouver Island, Fraser

Valley, Interior and the North• 474 participants attended• Participants had an average of 11.4 years

experience

Pre-Creating Connections: The pilot project

Page 12: Creating Connections: Working with People with Dementia

• 98% agreed or strongly agreed that the workshops gave them a better understanding of dementia

• 100% agreed or strongly agreed that they were now more aware of the importance of their own safety while providing care to persons with dementia

Results: Better Understanding, Enhanced Awareness

Page 13: Creating Connections: Working with People with Dementia

• Follow-up survey in late 2013• Participants had opportunities to use

knowledge and strategies gained• They had shared the information with others in

their workplace• Great examples of changing behaviours and

work practices

Results: A workshop with lasting effects

Page 14: Creating Connections: Working with People with Dementia

“Breakfast time is always a challenge as care staff are trying to get as many residents up as possible for

breakfast as a routine. Now with the new knowledge, we don't routinely wake up residents. We find out

what would be their preference: to get up early, stay in bed for breakfast and get up later, it’s ok now for them just to come out in their house-gown for breakfast and

get dressed later - after all, it is their home.”-Director of Care

Results: Changes in care approaches

Page 15: Creating Connections: Working with People with Dementia

• New partnership established Spring 2014 • Creating Connections: Working with People

with Dementia

SafeCare BC & Alzheimer Society

Page 16: Creating Connections: Working with People with Dementia

What it is:• Basic information on dementia• Principles of person-centred care• Communication strategies• Responding creatively to behavioursWhat it isn’t:• Clinical information on disease management• Advanced neuropathology of diseases• Prescription for organizational practices

Program Content

Page 17: Creating Connections: Working with People with Dementia

• Basic understanding of dementia• Principles of person-centred care• How to be a ‘detective’• Practical communication tips• Application of knowledge• Knowledge of available resources

Learning Objectives

Page 18: Creating Connections: Working with People with Dementia

What are some things you’ve heard about

dementia that you think may not be true?

Dispelling the Myths

Page 19: Creating Connections: Working with People with Dementia

Dispelling the MythsDementia is not…

• A disease that only affects older people.

• Normal aging/memory loss.

• Preventable/curable.

• Caused by aluminum.

Page 20: Creating Connections: Working with People with Dementia

Dispelling the MythsDementia does not mean…

• The end of a meaningful life. • That a person cannot understand what is going

on around them.• That a person will become violent or aggressive.

Page 21: Creating Connections: Working with People with Dementia

Group Exercise

Page 22: Creating Connections: Working with People with Dementia
Page 23: Creating Connections: Working with People with Dementia

Who is attending?- Care aide: 40.5%- RN: 20%- LPN: 15.5%- Average number of years in the industry: 11.8

Workshop Evaluation

Page 24: Creating Connections: Working with People with Dementia

Immediately post-workshop:The workshop gave me a better understanding of dementia: 94%

The workshop was applicable to my job: 97%

I have learned the importance of person-centered care: 96%

I will recommend this workshop: 99%

I have learned/reinforced strategies for communicating with

people with dementia: 97%

I am now more aware of the importance of my own safety while

providing care: 89%

Making a difference

Page 25: Creating Connections: Working with People with Dementia

Immediately post-workshop:• “Doesn't matter what stage of disease, a

person is a person.”• “I did learn more even after being a nurse

after 19 years.”• “I learned more that I didn’t learn when I

went to school to take the care aide course.”

Making a difference

Page 26: Creating Connections: Working with People with Dementia

2-3 months post-workshop:

Have you used some of the strategies and techniques that

you learned in the workshop? 91%

Have you noticed a change in your own work practices

after attending the workshop? 81%

Have you shared any of the knowledge, strategies, or

resources that you learned in the workshop with others in

your workplace? 88%

Making a difference

Page 27: Creating Connections: Working with People with Dementia

2-3 months post-workshop:• “Being creative with approaches was

something I've definitely put into practice.”• “I move slower, and no longer use terms like

'dear’ and ‘sweetie’.”• “I'm not avoiding them anymore.”

Making a difference

Page 28: Creating Connections: Working with People with Dementia

Person-Centred Care in Practice• “I take more time talking to residents, and

make my tasks secondary as people come first!”

• “I no longer talk over patients like they are not there.”

• “I accept that what they feel is their reality.”

Making a difference

Page 29: Creating Connections: Working with People with Dementia

Sharing knowledge gained:• “I have posted 2 of the workshop handouts in

my office at work where everybody comes in to have report at shift changes.”

• “We are planning to add into our employee orientation some points around the client approaches and working with them, not for them…”

Making a difference

Page 30: Creating Connections: Working with People with Dementia

• What is the next step for workshop evaluation?

• Continuing to “Create Connections” – Alzheimer Society of B.C.’s perspective

• Continuing to “Create Connections” – SafeCare BC’s perspective

Looking forward…

Page 31: Creating Connections: Working with People with Dementia

Upcoming opportunities

Date Location Facility Time

Sept. 24 Burnaby Accent Inns Burnaby

9AM – 4PM

Oct. 20 Victoria Comfort Inn & Suites

9AM – 4PM

Nov. 4 Abbotsford Menno Place 9AM – 4PM

Register online at:safecarebc.ca/education-initiatives/course-listing

Page 32: Creating Connections: Working with People with Dementia

Contacts

There is more to a person than a diagnosis of dementia.

Alzheimer Society of B.C.:Jennifer Stewart,

Manager, Advocacy & Education

[email protected]

SafeCare BC:Jennifer Lyle,

Executive Director [email protected]

Page 33: Creating Connections: Working with People with Dementia

Thank-you!Questions?