conference handbook - w6p3u3w8.stackpathcdn.com€¦ · john hall, victorian aids council elizabeth...

39
Palliative Care Victoria Conference 2016 Conference Handbook #pcvconf2018

Upload: others

Post on 19-Apr-2020

2 views

Category:

Documents


0 download

TRANSCRIPT

Page 1: Conference Handbook - w6p3u3w8.stackpathcdn.com€¦ · John Hall, Victorian AIDS Council Elizabeth Crock, Bolton Clark 1.15 –1.30 Advance Care Planning Empowerment by Volunteer

Palliative Care Victoria

Conference 2016

Conference

Handbook

#pcvconf2018

Page 2: Conference Handbook - w6p3u3w8.stackpathcdn.com€¦ · John Hall, Victorian AIDS Council Elizabeth Crock, Bolton Clark 1.15 –1.30 Advance Care Planning Empowerment by Volunteer

Contents

Welcome 2

General Information 3

Venue Map 4

Acknowledgement & Appreciation 5

Conference Program 6 - 9

Conference MC 10

Keynote Speaker 11

La Voce Della Luna 12

Biographies & Abstracts

• Keynote and Plenary Speakers (morning)

• Speed Talks

• Concurrent Sessions

• Plenary Speakers (afternoon)

.

13 – 15

16 – 17

18 – 33

34 - 36

Your notes 37

Contents

Page 3: Conference Handbook - w6p3u3w8.stackpathcdn.com€¦ · John Hall, Victorian AIDS Council Elizabeth Crock, Bolton Clark 1.15 –1.30 Advance Care Planning Empowerment by Volunteer

Welcome

It is our great pleasure to welcome you to Palliative Care Victoria’s 2018 Volunteers

Conference – Supporting people to live, die and grieve well

This conference theme recognises that broad whole of health and community approaches are

needed to support people with a life limiting illness and their families to live, die and grieve

well.

The Conference will explore the role of volunteers in providing this support. Participants will

share experiences from across the health and human services sector, learn from innovative

work that is being done, and explore how volunteers might contribute to the provision of

integrated services for this client group.

Our aim is to inspire, challenge and empower you through a stimulating program that will

have an enduring impact on your volunteer work.

From our opening Keynote speaker, Alan Hopgood, who will share valuable insights and

experiences about story telling and health communication to our closing guest presenter

Meshel Laurie who will share her own personal reasons for volunteering in palliative care, the

program showcases the diversity of work being done by volunteers.

Thank you for your care, compassion and community spirit. You make an enormous

difference – to the people you support and your palliative care team colleagues.

Page 4: Conference Handbook - w6p3u3w8.stackpathcdn.com€¦ · John Hall, Victorian AIDS Council Elizabeth Crock, Bolton Clark 1.15 –1.30 Advance Care Planning Empowerment by Volunteer

General Information

Getting There

Parking is available at a range of nearby commercial car parks.

Further information is available from the City of Melbourne website

Public Transport – visit City of Melbourne website

Train - closest station is Parliament /Spring Street

Trams - 86 and 96 along Bourke Street, Spring Street stop

Name Tags

Your conference name tag is your entry pass to this conference. Please wear your name tag at all

times during the conference.

Registration Desk

The Conference registration desk is located on the first floor at the top of the stairs. Palliative Care

Victoria staff and volunteers will be happy to assist you throughout the conference.

Mobile Phones & Pagers

Please ensure all mobile phones and pagers are turned off or switched to silent mode while

conference sessions are in progress

Smoking

Smoking is not permitted in all areas of the conference venue.

Concurrent Sessions

The session after lunch from 1.00pm to 2.30pm will be parallel sessions and delegates should

choose one of these sessions to attend. There is no registration process for these sessions. Once the

room has reached capacity delegates may be asked to choose another session. Refer to the program

for further information.

Lunch & Refreshments

Lunches and refreshments will be served in the foyer areas on the first floor.

Lunch will be served in the foyer. Vegetarian food is marked and PCV staff will direct delegates to

special meals that were ordered when you registered

If you need any assistance on the day please speak with the Hotel serving staff.

Conference Feedback

We value your feedback about the Conference. Please provide your feedback as outlined at the

Conference.

Disclaimer

Palliative Care Victoria does not necessarily share the views expressed by Conference presenters. We

do not specifically recommend or endorse any organisation, activity or product presented, displayed

or advertised during this Conference.

General Information

Page 5: Conference Handbook - w6p3u3w8.stackpathcdn.com€¦ · John Hall, Victorian AIDS Council Elizabeth Crock, Bolton Clark 1.15 –1.30 Advance Care Planning Empowerment by Volunteer

Conference Venue

Rydges Melbourne

186 Exhibition Street, Melbourne

Phone (03) 9662 0511

Conference Floor Plan

Page 6: Conference Handbook - w6p3u3w8.stackpathcdn.com€¦ · John Hall, Victorian AIDS Council Elizabeth Crock, Bolton Clark 1.15 –1.30 Advance Care Planning Empowerment by Volunteer

General Information

Our thanks to all those who have contributed to the planning of this Conference, especially those

who have done so as volunteers.

Conference Reference Group:

Mike Kennedy, Palliative Care Victoria

Irene Blanck, Mercy Palliative Care

Tanya Holt, Goulburn Valley Hospice Care

Tanya Murphy, Eastern Palliative Care

Glen Riddle, Warrnambool and District Community Hospice

Conference Abstract Reviewers:

Irene Blanck, Mercy Palliative Care

Tanya Holt, Goulburn Valley Hospice Care

Mike Kennedy, Palliative Care Victoria

Roger Kibell, Eastern Palliative Care

Cheryl Lundin, Albury Wodonga Health Palliative Care

Tanya Murphy, Eastern Palliative Care

Glen Riddle, Warnnambool and District Community Hospice

Helen Shepherd, Melbourne City Mission Palliative Care

Krystal Wallis, Eastern Palliative Care

Jen Walsh, Barwon Health Palliative Care

Odette Waanders, Palliative Care Victoria

Palliative Care Victoria Conference Secretariat

Odette Waanders, Chief Executive Officer

Mike Kennedy, Projects Manager

Maree Chilton, Accounts & Grants Manager

Heather Stevens, Office & Member Services Manager

Acknowledgement

and Appreciation

Our thanks for the generous donation

of the reflection bowls for delegates

Page 7: Conference Handbook - w6p3u3w8.stackpathcdn.com€¦ · John Hall, Victorian AIDS Council Elizabeth Crock, Bolton Clark 1.15 –1.30 Advance Care Planning Empowerment by Volunteer

Program Content People

9.00-9.10 MC Welcome & introduce Elder Julie McCrossin, MC

9.10-9.25 Welcome to Country Aboriginal Elder

9.25 – 9.45 Minister for Health Opening Address Hon. Jill Hennessy (to be confirmed)

9.45-10.25 Keynote Address 1 Heather Richardson, St Christopher’s Hospice

10.25-10.45 Keynote Address Q&A MC, Heather Richardson & audience

10.45-11.15 Morning tea

11.15 – 12.15 Panel Discussion 1: Transforming palliative care and end of life care in the

21stcentury

MC, 3 person panel, audience (HIGH audience interaction) Discuss practical changes and change management issues for palliative care

in Victoria taking into account end of life care framework, end of life inquiry, health reform 2040, client directed care, etc.

12.15-12.45 Our Stories MC, carer, client, CALD bilingual health educators / community members (external perspectives)

12.45 – 2.00 Lunch Trade Exhibition & Poster Display (Death café experience/workshop Parkside 2)

2.00 – 3.30 Concurrent Sessions (7 venues) 9 oral presentations ( more if some < 20 min); 4 workshops/ dialogue sessions

3.30 to 4.00 Afternoon tea

4.00 - 5.00 Oxford Style Debate MC, Two teams of three people (3 insiders, 3 outsiders); MC and audience participation. Voting on motion before and after debate.

5.00 – 6.00 Mindfulness and networking options Plenary or small rooms available

6.00 – 9.30 Buffet, drinks, entertainment, networking PC Talent options: Jazz (Tanya’s band); stand-up comedy (Carm); singing (Kylie)?

Conference Program

Wednesday 23 May 2018

Time Program People

9.30 – 10:00 Registration and Refreshments

Didgeridoo player from 9.45 Wurundjeri Tribe

10.00 – 10.10 Palliative Care Victoria welcome Odette Wanders, Mike Kennedy

10.10 – 10.20 Welcome to country Wurundjeri Tribe

10.20 – 10.45 Keynote Speaker

Storytelling and health communication Alan Hopgood AM

10.45 – 11.15 Compassionate communities in action

Shannon’s Bridge: What was and what will be Jeremy McKnight, Dr Claire Hepper,

It Takes a Village: How a community can care for

their own at end of life and beyond

Libby Moloney

11.15 – 12.00 Spirituality and self-care

The role of spirituality in self-care and the care of

others

Ilsa Hampton,

Meaningful Ageing

12.00 – 1.00 LUNCH La Voce Della Luna, Italian women’s choir

1.00 – 2.30 Breakout session Refer program on following pages

2.30 – 3.00 AFTERNOON TEA and networking

3.00 – 3.30 Partnerships in palliative care volunteering

Backyard Blitz*

- A fresh approach to practical support*Use of this ™ name is authorised by CTC Productions Pty Ltd

Jen Walsh,

Barwon Health Palliative Care

Partnering with a palliative care service Megan Nutbean, Lyndal Ritchie

Lort Smith

3.30 – 3.45 Why we volunteer in palliative care … Meshel Laurie

3.45 – 3.50 Questions

3.50 to 4.00 Prize draw, close and thanks Tristan Meecham, Mike Kennedy

Note: All Plenary Sessions will be held in Broadway

Page 8: Conference Handbook - w6p3u3w8.stackpathcdn.com€¦ · John Hall, Victorian AIDS Council Elizabeth Crock, Bolton Clark 1.15 –1.30 Advance Care Planning Empowerment by Volunteer

Conference Program

1.00pm – 2.30pm Breakout Sessions

1.00 – 1.05 Introduction and instructions

1.05 – 2.30 The emu in the room Jan Simmons

Eastern Palliative Care

Hospice in the home – a new model of

collaboration

Glen Riddle

Warrnambool & District Community

Hospice

The importance of Network Groups Dawn Pink

Eastern Palliative Care

The successful palliative care client-volunteer

pairing time bomb – what works?

Cheryl Lundin

Albury Wodonga Health

Role of volunteers within support groups Denise Ritchens

Northeast Health Wangaratta

Returning to volunteering after a bereavement Mark Wheeler

Cabrini Palliative Care

Session 1 – Speed Talks (all talks will run concurrently)

Room: 42nd

Street

Session 2 – Improving patient/client/family centred care

Room: Chicago

Time Presentation Speakers

1.00 – 1.15 Support, love and connection to clients – a

place for palliative care volunteers as part of a

community of care

Greg Roberts

Peninsula Home Hospice

1.15 – 1.30 Caught in the moment Kerrie Cunningham, Maria Welsh

Banksia Palliative Care

1.30 – 1.45 Volunteer answered enquiries show higher

satisfaction rates on the national Advance Care

Planning Advisory Service

Jenny McGuirk

Advance Care Planning Australia

1.45 – 2.00 Knees knocking but I’m still standing Margaret Watkinson

Eastern Palliative Care

2.00 – 2.30 Questions and discussion

Page 9: Conference Handbook - w6p3u3w8.stackpathcdn.com€¦ · John Hall, Victorian AIDS Council Elizabeth Crock, Bolton Clark 1.15 –1.30 Advance Care Planning Empowerment by Volunteer

Conference Program

1.00pm – 2.30pm Breakout Sessions

Session 3 – Community engagement / community capacity building

Room: Carousel

Session 4 – Biography / Life stories / Innovation

Room: Chorus Line

Time Presentation Speakers

1.00 – 1.15 Palliative care in the HIV epidemic – an innovative

historical partnership

John Hall, Victorian AIDS Council

Elizabeth Crock, Bolton Clark

1.15 – 1.30 Advance Care Planning Empowerment by

Volunteer Community Ambassadors

Veronica Spillane

Advance Care Planning Australia

1.30 – 1.45 Debunking the myths – how volunteers can

educate the wider community

Margaret Young

Eastern Palliative Care

1.45 – 2.00 Anam Cara offers joy and dignity in a peaceful

“homelike” setting

Erika Pickering

Anam Cara Geelong

2.00 – 2.30 Questions and discussion

Time Presentation Speakers

1.00 – 1.15 A patient centered approach to the Life Stories

Program

Jen Walsh

Barwon Health Palliative Care

1.15 – 1.30 Your story matters Jolene Hill

Your Life Talks

1.30 – 1.45 Biography – the gift of a lifetime Tanya Murphy

Eastern Palliative Care

1.45 – 2.00 Reconciling with destiny Michele Hutchins

Eastern Palliative Care

2.00 – 2.30 Questions and discussion

Page 10: Conference Handbook - w6p3u3w8.stackpathcdn.com€¦ · John Hall, Victorian AIDS Council Elizabeth Crock, Bolton Clark 1.15 –1.30 Advance Care Planning Empowerment by Volunteer

Conference Program

1.00pm – 2.30pm Breakout Sessions

Session 5 – Supporting volunteers / service development

Room: Phantom

Time Presentation Speakers

1.00 – 1.15 The power of positive peering Lee Ewing

Eastern Palliative Care

1.15 – 1.30 Wrapped in community

– developing palliative care volunteering in NSW

Alex Huntir

Palliative Care NSW

1.30 – 1.45 The impact of networking, collaborating and sharing Sharon Walsh

Bendigo Health

1.45 – 2.00 Connecting our Caring Andrea Janes

South West Healthcare

2.00 – 2.30 Questions and discussion

Page 11: Conference Handbook - w6p3u3w8.stackpathcdn.com€¦ · John Hall, Victorian AIDS Council Elizabeth Crock, Bolton Clark 1.15 –1.30 Advance Care Planning Empowerment by Volunteer

Conference MC

Tristan Meecham

Tristan Meecham is an artist who facilitates creative frameworks that enable social transformation;

connecting community, audience and artists together in events that transcend the everyday. He is

the Director of All the Queens Men.

Recent creative actions include; The Coming Back Out Ball, a spectacular social event held at the

Melbourne Town Hall celebrating Lesbian, Gay, Bisexual, Transgender and Intersex (LGBTI) elders;

LGBTI Elders Dance Club, a monthly social event for LGBTI elders; Congress, a citizens’ assembly

in which diverse community members collaborate with professional wordsmiths to create first

speeches and personal visions for our collective future; and Fun Run, a riotous performance

spectacle in which Tristan runs a marathon on a treadmill live on stage supported by hundreds of

performers from the local community.

Tristan was Artistic Director of Give it up for Margaret: A month of philanthropic inspiration, a

month long festival inspiring innovative arts philanthropy. GIUFM was created in partnership with

Victorian College of the Arts, Margaret Lawrence Bequest and over 20 subsidiary organisations.

Tristan is the recipient of the VCA George Fairfax Memorial Award, British Council’s Realise Your

Dream Award and the inaugural Richard Pratt Scholarship. He was the Chair of Green Room

Award’s Contemporary and Experimental Performance Panel (2013-2017). Tristan has a Bachelor

of Fine Arts (Visual Arts) from QUT and Bachelor of Dramatic Arts (Acting) from VCA.

Page 12: Conference Handbook - w6p3u3w8.stackpathcdn.com€¦ · John Hall, Victorian AIDS Council Elizabeth Crock, Bolton Clark 1.15 –1.30 Advance Care Planning Empowerment by Volunteer

Keynote Speaker

Alan Hopgood AM

Alan Hopgood is well-known as a playwright and screenwriter (“And the Big Men Fly”, “The

Carer”) and as an actor (‘Dr Reed” in “Bellbird”) and ten years with the Melbourne Theatre

Company. In 1996, his personal story “Surviving Prostate Cancer” was published and then

adapted into a play “For Better, For Worse”. This was one of the first plays in the world to bring

the world of Arts and Health together.

He then wrote a further 10 plays about health under the title HealthPlay. One of these was

“Four Funerals in One Day” written with Molly Carlile. This play about palliative care was

supported by Palliative Care Victoria and toured 20 regional areas in Victoria and then every

State for the Australian Aged Care Quality Agency. On January 2005, Alan was made a

Member of the Order of Australia for services to the performing arts, as an actor, playwright

and producer and to the community through raising awareness of men’s health issues.

Page 13: Conference Handbook - w6p3u3w8.stackpathcdn.com€¦ · John Hall, Victorian AIDS Council Elizabeth Crock, Bolton Clark 1.15 –1.30 Advance Care Planning Empowerment by Volunteer

La Voce Della Luna (The Voice of the Moon) is an intergenerational Italian women’s choir founded in

Melbourne in 1996 by Kavisha Mazella who continued as Director of the choir until 2013. The

choir’s name was inspired by Federico Fellini’s final fairy-tale-like film La Voce Della Luna starring

Roberto Benigni.

The choir was originally founded as an eight-week community project and has gone on to become

an institution in the Italian community, recording an album of traditional Italian songs. You can learn

more about the album at https://www.blackmarketmusic.com.au/lavoca1.html.

The choir sings Italian popular and folk songs with a vocal repertoire that includes songs from all

areas of Italy, from Sicily to Friuli, sung in dialect, and ranging from the 16th to the 21st centuries.

The goals of La Voce Della Luna are for women of Italian heritage to get together and sing in an

atmosphere of friendship, love, respect and celebration and they seek to retain and promote their

Italian heritage, culture, arts and traditions through music, stories, song and food.

You can follow them on their Facebook page.

Page 14: Conference Handbook - w6p3u3w8.stackpathcdn.com€¦ · John Hall, Victorian AIDS Council Elizabeth Crock, Bolton Clark 1.15 –1.30 Advance Care Planning Empowerment by Volunteer

Wednesday 23 May 2018

Plenary

Broadway Room

10.45am - 11.00am

Shannon's Bridge: What was and what will be

Jeremy McKnight, Dr Claire Hepper, Shannon's Bridge: What was and what will be

Jeremy McKnight is a co-founder and director of Shannon’s Bridge after caring for his daughter

Shannon who died at home in regional Victoria aged 19 in 2016. Shannon's Bridge is a volunteer-

run charity that connects patients and families with palliative care services. They ‘bridge’ the

physical and service gaps if no formal services exist to support end of life care in the preferred

place of care. Shannon’s Bridge trains volunteers to provide practical help, arrange equipment to

enable patients to remain at home, improving death literacy in the community and assisting with

advance care planning.

Dr Claire Hepper is a GP living and working in the regional Victorian town of Creswick where she

was born. As a co-founder of Shannon’s Bridge Claire works as part of a team to help connect

families with services to support end of life care in their preferred site of care. Volunteers are

essential to community based palliative care and Claire would like to share some ideas and future

direction for Shannon’s Bridge.

Abstract

Authors: Dr Claire Hepper; Jeremy McKnight; Dr Alison O'Neill

End of life care in Victoria is a confusing and changing landscape at the moment. Advance

Care Directives were enshrined in law in March 2018 and the End of Life and Palliative Care

Framework is being implemented by health services. But what does this actually mean for

people living with a terminal illness?

Palliative care professionals across Victoria are exceptional, but like all health providers they

are being asked to do more with less and they cannot always be as flexible in responding to

needs as they would like to be. Care needs when someone is dying can be as variable as the

people involved and the places they live in. Services readily available in one postcode are

often unavailable to the next town over and access is often limited ‘after hours’.

Shannon’s Bridge combines formal health service knowledge with community energy to help

people navigate the convoluted system to get the support they need where they are. Where

gaps exist between formal health and informal support services, we work to ‘bridge’ them by

training volunteers, education of carers and health professionals. Shannon’s Bridge

recognises the amazing work already undertaken by volunteers across the State and we want

to help strengthen local responses to local gaps.

Page 15: Conference Handbook - w6p3u3w8.stackpathcdn.com€¦ · John Hall, Victorian AIDS Council Elizabeth Crock, Bolton Clark 1.15 –1.30 Advance Care Planning Empowerment by Volunteer

Wednesday 23 May 2018

Plenary

Broadway Room

11.00am - 11.15am

It Takes A Village - How a community can care for their own at end

of life and beyond.

Libby Moloney, It Takes A Village Inc

Libby Moloney, of Natural Grace, is a Holistic Funeral Director practising natural, culturally

sensitive, family led funeral care. Whilst Natural Grace specialises in home-based care, its own

home can be found in “The Sanctuary”, a purpose built funeral home in Woodend and in

community care centres around the state.

Libby is a founding committee member of the Natural Death Advocacy Network (NDAN), a not-

for-profit community organisation committed to demystifying and reclaiming death and dying in

our community as well as the founding Chair of It Takes A Village Compassionate Communities

Inc. (ITAV) which is also a not-for-profit community organisation whose vision is to encourage

capacity building in compassionate Australian communities. Passionately committed to raising

awareness about natural cemeteries in Australia, Libby works actively with community groups to

establish natural sanctuaries for the interment of our dead.

Abstract

Author: Libby Moloney

When Shevaun Noonan was diagnosed with a rare cancer in 2011, her family, friends and

local Mt Macedon community rallied around to provide her with exceptional support. Using a

roster, volunteers provided Shevaun and her immediate family carers with extensive

personalised support over three years (covering meals, shopping, massages, child care, house

cleaning and maintenance). Some of those who contributed didn’t know Shevaun personally or

interact with her. Shevaun’s supporters dubbed themselves the Orange Army, in honour of her

favourite colour.

The group has since established a charity, It Takes a Village Compassionate Communities, in

order to share their learning with other communities in the Macedon Ranges and encourage

them to do the same for people who have a terminal illness, or are elderly, and their families.

Page 16: Conference Handbook - w6p3u3w8.stackpathcdn.com€¦ · John Hall, Victorian AIDS Council Elizabeth Crock, Bolton Clark 1.15 –1.30 Advance Care Planning Empowerment by Volunteer

Wednesday 23 May 2018

Plenary

Broadway Room

11.15am - 12.00noon

The role of spirituality in self-care and the care of others

Ilsa Hampton, Meaningful Ageing

Ilsa Hampton, MPH, BA, BTheol, GradCertMgt, GradDipEd, commenced in March 2016 as CEO of

Meaningful Ageing Australia where she has led the organisation to triple in size. Prior to joining

Meaningful Ageing, Ilsa worked for 8 years at aged and community services organisation Baptcare

(Victoria & Tasmania) in a number of senior roles. During that time, she led the development of an

award-winning pastoral care volunteer program in community and residential aged care. Ilsa

worked as an accredited supervisor in Clinical Pastoral Education for over ten years in various

locations around Melbourne; building on a decade of experience as a spiritual care practitioner in

a wide range of settings. Ilsa has a long-standing passion for the role of spirituality in the lives of

professionals, volunteers, organisations, and those they are serving.

Abstract

Author: Ilsa Hampton

Sustaining ourselves for the journey is vital if we are to offer effective support as part of the

palliative care team. Spirituality has a part to play in this – either from within the context of

faith or beyond the boundaries of religious communities.

In Australia, we no longer have an assumed narrative about spirituality as inherently tied to

Christianity. We are in transition as a community whilst we find a new way to openly engage

with our biggest questions and what sustains us. Not unlike death and dying, many people in

the community have difficulty knowing how to talk about their spirituality.

This session will invite delegates to look through one window on spirituality, using one of

Meaningful Ageing Australia’s most loved tools, ConnecTo (originally devised by Dr Julie

Fletcher). We will consider some facets of spirituality in our own lives, as well as in the lives of

those we are serving. All of this will be considered in the context of another great taboo:

ageing.

Page 17: Conference Handbook - w6p3u3w8.stackpathcdn.com€¦ · John Hall, Victorian AIDS Council Elizabeth Crock, Bolton Clark 1.15 –1.30 Advance Care Planning Empowerment by Volunteer

Wednesday 23 May 2018

Breakout Session 1 – Speed Talks

42nd

Street Room

1.00pm – 2.30pm

The Emu in the Room

Bereavement Companion Volunteers visit carers at home following the death of a client and

provide reassurance and assistance to the carer. Two cases demonstrate the program in action.

Jan Simmons, Eastern Palliative Care

Spending time and just being with other people following a bereavement requires compassion,

sensitivity and empathy. After comprehensive training with Eastern Palliative Care I have

volunteered as a Biographer, and Bereavement Companion, within a multi-disciplinary palliative

care team. As a companion I am in the moment with carers; ready to listen, interact and respond

to their needs. Basically, I am undertaking a journey with carers as they are grieving.

Hospice in the home – a new model of collaboration

This brief case study highlights the benefits for one family from a community service where

volunteers provide extended daytime, weekend and overnight care in people’s homes.

Glen Riddle, Warrnambool and District Community Hospice

Apart from employment as a bank clerk and other clerical work, I was a serving member of the

Victorian Police Force for 41 years, completing duties in Uniform, Traffic Branch, Crime Cars and

the Criminal Investigation Branch. I was also the volunteer Welfare Officer for the Warrnambool

Police District for 30 years. I have been a hospice volunteer for 2 years and currently am a

volunteer for Sth. West Health Care. I am also the Police Legacy representative for the

Warrnambool area and have been for the past 40 years. I am also a member of Rotary.

The importance of Network Groups

Eastern Palliative Care’s small Network Groups are providing peer-to-peer practical and

emotional support to all volunteers in the often challenging roles faced when working with

terminally ill clients.

Dawn Pink, Eastern Palliative Care

Dawn has been a Home Support & Bereavement volunteer with Eastern Palliative Care for just

over three years. During this time, I have had four Home Support Clients & one Bereavement

Client and two Transport Clients. Currently I am the Facilitator of my Network Support Group.

Page 18: Conference Handbook - w6p3u3w8.stackpathcdn.com€¦ · John Hall, Victorian AIDS Council Elizabeth Crock, Bolton Clark 1.15 –1.30 Advance Care Planning Empowerment by Volunteer

Day 1

Thursday 28 July 2016

2.00pm – 3.40pm Concurrent Sessions

Wednesday 23 May 2018

Breakout Session 1 – Speed Talks

42nd

Street Room

1.00pm – 2.30pm

The Successful Palliative Care Client-Volunteer Pairing Time Bomb:

What Works?

Volunteers build rapport and accurately empathise with their clients, but their success in doing

so sets them up for grief when the client dies. How do we best manage this?

Cheryl Lundin, Palliative Care Consultancy Albury-Wodonga Health

Cheryl is a social worker, who joined the Wodonga Palliative Care Consultancy Service team of

three highly experienced nurses (.8 EFT each) two years ago. Cheryl’s role (.6 EFT) encompasses

direct client work, including bereavement support, and coordination of our small, but active and

dedicated team of volunteers. Prior to coming to palliative care, Cheryl worked in the field of

human service delivery for over 25 years. Her experience as a volunteer includes past

membership of management committees of local community-based organisations and a regional

agency supporting victims of violence, and an ongoing role with her local CFA brigade.

Role of Volunteers within support groups

The use of volunteers in support groups is a great learning tool for new volunteers to develop

understanding of living with a life limiting illness and loss and grief.

Denise Ritchens, Northeast Health Wangaratta

Denise has worked in palliative care as the Family Care Coordinator at Northeast Health

Wangaratta for 10 years. The role combines the coordination of the volunteers, health promotion

as well as psychosocial/grief support for families pre and post death.

Returning to volunteering after a bereavement

The individual experience of volunteering in a service in which the presenter's dying wife is a

patient and returning to volunteering there four weeks after the death of his wife.

Mark Wheeler, Cabrini Palliative Care

Mark has spent eleven years at Cabrini Palliative Care as a Patient and Resident volunteer and a

Pastoral Care volunteer.

Page 19: Conference Handbook - w6p3u3w8.stackpathcdn.com€¦ · John Hall, Victorian AIDS Council Elizabeth Crock, Bolton Clark 1.15 –1.30 Advance Care Planning Empowerment by Volunteer

Wednesday 23 May 2018

Breakout Session 2 - Improving patient/client/family centered care

Chicago Room

1.00pm - 1.15pm

Support, love and connection to clients: A place for palliative care

volunteers as part of a community of care

Dr Greg Roberts, Peninsula Home Hospice

Greg is Manager of Client Care Volunteers at Peninsula Home Hospice and a Social Worker with

20 years experience in health and community services in roles alongside volunteers. Over the past

18 years he has specialised in the field of grief, loss, bereavement and trauma working as a

counsellor/therapist and educator. Greg’s PhD focused on spontaneous creativity following the

death of a child and also explored expressions of love and connection as ways of living with grief

and loss. He has a longstanding interest in community connectedness and the ways in which

community members care for each other.

Abstract

Author: Greg Roberts

The presentation will explore examples of how volunteers demonstrate love and care for the

people they support in Community Based Palliative Care. The focus will be in regard to the

level and depth of connection that can occur between a volunteer and a client in ways that

respect personal boundaries and yet also create challenges for how these bonds and

relationships unfold. In short the presentation will look at developing role boundaries that are

flexible enough to support human connectedness at meaningful and sometimes profound

levels, while also ensuring that boundaries are in place to care for the ongoing social and

emotional wellbeing of both volunteers and clients.

Page 20: Conference Handbook - w6p3u3w8.stackpathcdn.com€¦ · John Hall, Victorian AIDS Council Elizabeth Crock, Bolton Clark 1.15 –1.30 Advance Care Planning Empowerment by Volunteer

Wednesday 23 May 2018

Breakout Session 2 - Improving patient/client/family centered care

Chicago Room

1.15pm - 1.30pm

Caught in the moment

Kerrie Cunningham, Maria Welsh, Banksia Palliative Care Service

Kerrie Cunningham has extensive palliative care experience, including in excess of 15 years as a

nurse. She is now the Engagement Manager at Banksia, supporting the Volunteer team.

Maria Welsh has been a Client Support Volunteer with Banksia Palliative Care for over 10 years.

She has played a very important role in the lives of many clients, families and carers. Her presence

and calm stops the busyness, just for a few moments. Her provision of in-home respite enables

holistic care; enhancing the emotional wellbeing of clients and their families whether through the

provision of a “break”, support, or diminishing isolation.

Abstract

Authors: Kerrie Cunningham; Maria Welsh

Life today never stops, never slows. News and social media is 24/7, an appointment here, a

meeting there. It’s relentless, and when someone is ill, life gets busier. In the palliative care

setting, we find families caught in this busyness, rushing between their ill family member, work,

general family commitments, sport, and all of the other things that ‘just pop up’.

Our volunteer visits are a time when our clients and/or their family members can stop, take a

breath and simply have a moment for them. Time can slow during a volunteer visit, the focus is

on the moment, the here and now, not looking at the clock or worrying about the next thing.

Our volunteers spend a significant time with the client, usually a 3-4 hour block, not a simple

‘drop by’, in and out in 10 minutes. Time that can be used to sit, chat, reflect, reminisce or in

some cases, just for quiet companionship.

Our volunteers are an integral part of Banksia Palliative Care Service and aid in the delivery of

quality, sustainable palliative care. Our volunteers working alongside our multidisciplinary

team, provide holistic care that enhances service support and delivery to our clients and their

families/friends.

Page 21: Conference Handbook - w6p3u3w8.stackpathcdn.com€¦ · John Hall, Victorian AIDS Council Elizabeth Crock, Bolton Clark 1.15 –1.30 Advance Care Planning Empowerment by Volunteer

Wednesday 23 May 2018

Breakout Session 2 - Improving patient/client/family centered care

Chicago Room

1.30pm - 1.45pm

Volunteer answered enquiries show higher satisfaction rates on the

national Advance Care Planning Advisory Service.

Jenny McGuirk, Advance Care Planning Australia

Jenny McGuirk has been an Advance Care Planning Community Ambassador for 5 years. She has

been involved in the development and expansion of this role. Prior to this Jenny was the Chaplain

for the pastoral care team and provided counselling to the Victorian liver transplant unit. 2 years

was also spent in the patient representative role at Austin Health.

Abstract

Authors: Jenny McGuirk; Linda Nolte; Dr Karen Detering

Advance Care Planning Australia operates a national advisory service responding to phone and

email enquiries from health professionals, aged care workers and the general public; providing

information, support and referrals. The phone advisory line has been operating since 2014.

Call volume has increased from approximately 16 calls per month up to an average of 72 calls

per month. Initially the advisory service was only staffed by health professionals.

In 2017 a 20-week study period was undertaken where volunteers and health professionals

answered the phone 50% of the time each. Level of satisfaction with the service provided was

measured and compared. 87% of survey respondents were satisfied or very satisfied with the

service by a health professional versus 92% of those who were answered by a volunteer.

This innovative volunteer led model of service is sustainable, values volunteers and meets a

need within the community and health sectors. There is a rigorous training program for

volunteers, and a strong support system in place. This enables volunteers to be highly skilled in

advance care planning knowledge and processes, and ensures accurate and up to date

information is provided. This is a Commonwealth government supported project.

Page 22: Conference Handbook - w6p3u3w8.stackpathcdn.com€¦ · John Hall, Victorian AIDS Council Elizabeth Crock, Bolton Clark 1.15 –1.30 Advance Care Planning Empowerment by Volunteer

Wednesday 23 May 2018

Breakout Session 2 - Improving patient/client/family centered care

Chicago Room

1.45pm - 2.00pm

Knees Knocking But I'm Still Standing

Margaret Wilkinson, Eastern Palliative Care

On retiring from 32 years of music teaching, I had earmarked a program for cuddling new borns,

and then accidentally fell into palliative care, the other end of the spectrum. I have been

volunteering for the last 3 years with Eastern Palliative Care, in a team that provides home support

for clients living with a life limiting illness. We provide respite, transport, and most importantly

companionship. I have been privileged to journey with six clients and their families during this

time. It has been life changing for me!

Abstract

Author: Margaret Wilkinson

Not everyone wants to walk alongside someone who is possibly facing the hardest journey of

their life. Supporting a dying person and their family, or someone on their own, is a serious

undertaking, that requires serious consideration and self reflection. However, there is much to

be gained. Purpose, self worth, meaning, joy, and learning. How lucky are we, who get to

meet and share with these clients in their homes. I look forward to the rest of the journey.

Page 23: Conference Handbook - w6p3u3w8.stackpathcdn.com€¦ · John Hall, Victorian AIDS Council Elizabeth Crock, Bolton Clark 1.15 –1.30 Advance Care Planning Empowerment by Volunteer

Wednesday 23 May 2018

Breakout Session 3 - Community engagement and capacity building

Carousel Room

1.00pm - 1.15pm

Palliative care in the HIV epidemic: an innovative historical

partnership

John Hall, Victorian AIDS Council; Dr. Elizabeth Crock, Bolton Clarke

John Hall is the Partnerships Manager at the Victorian AIDS Council (VAC) and has been an

advocate in the HIV sector for 30 years. After first volunteering at VAC in 1990, he went on to

study nursing, then held several positions at VAC managing the Community Support program. He

has served on the VAC Board, and is Secretary of the VAC Research and Ethics committee. John is

passionate about utilising the capabilities of broader communities in healthcare settings and has

spoken and published about this nationally and internationally.

Dr Elizabeth Crock is the HIV Clinical Nurse Consultant and HIV Team Coordinator at Bolton

Clarke (formerly the Royal District Nursing Service). She has worked in their HIV team for 17

years.

Abstract

Authors: John Hall; Dr Elizabeth Crock;

This presentation explores the VAC/RDNS Partnership model, describing its development at the

height of the HIV/AIDS epidemic in Australia and its adaptation to meet the changing needs of

people living with HIV.

In the 1980s, HIV/AIDS was little understood, it was usually fatal, highly feared and

stigmatised. VAC was established by volunteer peers to mobilise the community response to

this new ‘contagion’, and to build capacity to care for those dying. VAC also advocated and

worked with governments, researchers and clinical services. RDNS was a longstanding

domiciliary nursing service which historically cared for marginalised members of the

community. A formal partnership between VAC and RDNS became the framework that

articulated the vital contribution of volunteers, working alongside professional nurses, to

ensure quality care for people living and dying with HIV/AIDS.

Key elements of the partnership include empowerment through engagement of clients and

affected communities, an integrated and collaborative approach to care based on valuing and

respecting each organisation’s skills, and responsiveness to changing needs.

This unique, dynamic and proactive partnership illustrates a successful model of integrated

services for people and their significant others facing life-limiting illness or requiring palliative

care in the community. It can inform service development in other settings.

Page 24: Conference Handbook - w6p3u3w8.stackpathcdn.com€¦ · John Hall, Victorian AIDS Council Elizabeth Crock, Bolton Clark 1.15 –1.30 Advance Care Planning Empowerment by Volunteer

Wednesday 23 May 2018

Breakout Session 3 - Community engagement and capacity building

Carousel Room

1.15pm - 1.30pm

Advance care planning empowerment by Volunteer Community

Ambassadors

Veronica Spillane, Advance Care Planning Australia

Veronica Spillane’s professional training was in social work which led to past and current work

within the community and mental health sectors. She has been a volunteer with Advance Care

Planning Australia for 5 years and is a registered civil celebrant. She is a passionate advocate of

personal empowerment, particularly in decision-making in relation to heath care.

Abstract

Authors: Veronica Spillane; Linda Nolte; Dr Karen Detering

Advance Care Planning Volunteer Community Ambassadors have been a part of the team

since 2012. They lead interactive presentations to encourage uptake of Advance Care Planning

in our community. They help to empower and support people to have a say in their health care

now and in the future. By actively encouraging people to think and talk about what it means to

them to ‘live well’, preferences and values for healthcare matters are clarified, and the

person’s rights are respected.

This volunteer-led model of education broadens the reach into the community within

metropolitan Melbourne. Recipients of the advance care planning education have included

clubs, support groups, community centers and residential aged care facilities. In 2017, advance

care planning ambassadors conducted 35 community education sessions to more than 838

people. These presentations are well received with strong reports of an increased knowledge of

advance care planning and in individuals’ confidence in undertaking the process.

Page 25: Conference Handbook - w6p3u3w8.stackpathcdn.com€¦ · John Hall, Victorian AIDS Council Elizabeth Crock, Bolton Clark 1.15 –1.30 Advance Care Planning Empowerment by Volunteer

Wednesday 23 May 2018

Breakout Session 3 - Community engagement and capacity building

Carousel Room

1.30pm - 1.45pm

De-bunking the Myths - how volunteers can educate the wider

community

Margaret Young, Eastern Palliative Care

Margaret Young lectured in Communication in the Health and Community Services Department of

Box Hill TAFE for 15 years. After retirement, she volunteered at The Smith Family, Vision Australia

and Eastern Palliative Care. Margaret has worked as a volunteer in various areas at Eastern

Palliative Care for 11 years. Currently she is a Home Visitor and is part of the Bereavement

Administration team. For the past 2 years, she has managed Eastern Palliative Care's Ambassador

Program; a team of volunteers with a charter to educate the broader community about palliative

care.

Abstract

Author: Margaret Young

This presentation will discuss the creation of Eastern Palliative Care's Ambassador Program. It

will cover the nuts and bolts of development: creating mailing lists, choosing and training

volunteer Ambassadors, developing the broad content of presentations, including creation of a

Power Point presentation and the development of a system that responds to requests for

speakers. This latter aspect requires personnel to liaise with organizations about the length and

content of presentations. It has been important to stress that the content is informational and

not therapeutic.

The main content of this presentation will be a discussion of the myths about palliative care

that are addressed in presentations and the feedback received from audiences. It is also

important to be prepared for questions regarding the Assisted Dying legislation.

In our experience, audiences are surprised by the breadth of programs offered, the varying

lengths of time in palliative care, the depth of care offered and most importantly, that palliative

care is often about quality of life, rather than death.

Page 26: Conference Handbook - w6p3u3w8.stackpathcdn.com€¦ · John Hall, Victorian AIDS Council Elizabeth Crock, Bolton Clark 1.15 –1.30 Advance Care Planning Empowerment by Volunteer

Wednesday 23 May 2018

Breakout Session 3 - Community engagement and capacity building

Carousel Room

1.45pm - 2.00pm

Anam Cara offers joy and dignity in a peaceful "homelike" setting.

Erika Pickering, Anam Cara Hospice Geelong

My name is Erika and I have been a registered nurse for many years. My passion is good Palliative

Care. I am currently a volunteer at Anam Cara Hospice Geelong, and truly believe in dignity and

comfort for all. I have been involved since the first thought of setting up Anam Cara as a

“Homelike” Hospice, and am proud of what Anam Cara offers the local community of Geelong. I

assist with craft and create our unique personal hand prints for each of our Day Hospice guests.

Working with guests and families with “Life Limiting Illness” is such an honour.

Abstract

Author: Erika Pickering

Care for someone you love with a “Life Limiting Illness” is a challenge and at times you need a

brief break. Anam Cara Hospice was first considered out of a dream, by several committed

Palliative Care people in Geelong. These Hospice staff were doing home visits, and could see a

need for respite for the carer. They worked diligently with the Geelong community and were

successful in starting this beautiful Homelike Hospice in 2007.

Page 27: Conference Handbook - w6p3u3w8.stackpathcdn.com€¦ · John Hall, Victorian AIDS Council Elizabeth Crock, Bolton Clark 1.15 –1.30 Advance Care Planning Empowerment by Volunteer

Wednesday 23 May 2018

Breakout Session 4 - Biography/Life stories/Innovation

Chorus Line Room

1.00pm - 1.15pm

A Patient Centred Approach to the Life Stories Program

Jen Walsh, Barwon Health

Jen Walsh has been the Volunteer Coordinator with Barwon Health Palliative Care for over four

years. She oversees a dynamic team of 75 volunteers who work across the inpatient and

community settings. The volunteers support a wide variety of programs including Companionship,

Respite, Massage, Life Stories, Dignity Therapy, Bereavement Support, Backyard Blitz* and other

practical support roles. Before working in Palliative Care Jen managed volunteers in the field of

disaster response and emergency management. Her volunteer management career spans nearly

15 years. She is passionate about driving a culture of self care within the volunteer team.

*Use of this TM name is authroised by CTC Productions Ltd

Abstract

Author: Jen Walsh

The Life Stories program has grown greatly at Barwon Health over the last few years. It started

as a traditional biography program and has morphed to include a variety of “outside the

square” approaches and results. Some examples include stories captured by bereaved carers

after the death of the patient, stories about beloved pets, letters to grandchildren, and picture

books.

As a volunteer program, it has become embedded with the staff team and it is common

practice for a volunteer to do a joint visit with a clinical staff member to introduce the program.

Additionally, the Life Stories Program has been expanded to provide opportunities for

companionship, respite, and bereavement support. Volunteers place equal value in the process

of storytelling and the production of a final product. By keeping the patient at the centre of the

decision making we believe there are high quality outcomes for the patient and their family.

Page 28: Conference Handbook - w6p3u3w8.stackpathcdn.com€¦ · John Hall, Victorian AIDS Council Elizabeth Crock, Bolton Clark 1.15 –1.30 Advance Care Planning Empowerment by Volunteer

Wednesday 23 May 2018

Breakout Session 4 - Biography/Life stories/Innovation

Chorus Line Room

1.15pm - 1.30pm

Your Story Matters

Jolene Hill, Your Life Talks

Jolene is motivated to inspire families to have conversations about what really matters in life. She

was a full time carer for her husband when he was diagnosed with terminal cancer, and with this

knowledge and her background as a Funeral Director, she was inspired to create 'Your Life Talks'.

She is passionate about the importance of creating a record of our life journey for future

generations, and having conversations about our end of life wishes.

Abstract

Author: Jolene Hill

Research has revealed around 70% of terminally ill patients reported higher quality of life and

a greater will to live after participating in 'dignity therapy' – a conversation about their life,

feelings, memories and hopes, resulting in a lasting memento they could share with their

families.

The power of telling your own story cannot be underestimated, and the empathy that develops

through listening to a person’s story can only serve us better to truly respect that person as an

individual, to be cherished and cared for, connecting the human spirit of a life well lived.

An innovative and new tool to encourage these conversations is ‘Your Life Talks’ Conversation

Starter Cards. There are 50 questions in each of the Conversation Starter card decks, so they

can be used on an individual basis or at group sessions over a period of time. They provide an

easy conversation style format, that can break down barriers and stimulate ongoing

discussions.

By actually having a card in their hands, it gives the card holder the (psychological) ‘permission

to speak’ – to both vocalise the question, and to add their thoughts in response as well. The

simple subconscious ‘power’ of this cannot be overstated.

Page 29: Conference Handbook - w6p3u3w8.stackpathcdn.com€¦ · John Hall, Victorian AIDS Council Elizabeth Crock, Bolton Clark 1.15 –1.30 Advance Care Planning Empowerment by Volunteer

Wednesday 23 May 2018

Breakout Session 4 - Biography/Life stories/Innovation

Chorus Line Room

1.30pm - 1.45pm

Biography- The Gift of a Lifetime

Tanya Murphy, Eastern Palliative Care

Tanya Murphy has been volunteering with Eastern Palliative care for just over 12 months in the

area of Biography. She has just completed working with her fourth Biography client. Tanya finds

the process of assisting a client with their biography to be extremely rewarding and has found it to

be so much more than she first expected.

Abstract

Author: Tanya Murphy

Biography is a beautiful way to give those with a life limiting illness the space and time to

reflect on their lives and leave the gift of their life to their loved ones. The power of simply

recording events that are important to them can take the client away from their present

situation.

There is an amazing honesty in the client sharing their story. They have nothing to lose and so

they are open to sharing all aspects of their lives. These are not always the ‘pretty’ sides of life

but they are important and in some ways it can be cathartic for the client to divulge things that

they have not been able to speak about before. It is also a wonderfully sentimental time for

both clients and carers if they are involved. To see wonderful memories shared and to be

witness to these intimate moments is an honour for the biographer and one of the most

rewarding parts of the process for the volunteer.

To have these wonderful stories there for those close to them to read and treasure helps the

client to know that they will live on in the hearts of those most dear.

Page 30: Conference Handbook - w6p3u3w8.stackpathcdn.com€¦ · John Hall, Victorian AIDS Council Elizabeth Crock, Bolton Clark 1.15 –1.30 Advance Care Planning Empowerment by Volunteer

Wednesday 23 May 2018

Breakout Session 4 - Biography/Life stories/Innovation

Chorus Line Room

1.45pm - 2.00pm

Reconciling with Destiny

Michele Hutchins, Eastern Palliative Care

I am a volunteer biographer for EPC and have also facilitated workshops which draw on my

training as an Art Therapist. My interest in working in palliative care came about as a

consequence of the death of my own child at six and a half years of age in 1999. EPC were able to

provide in-home support to enable my daughter to die, with dignity, in her own home. With the

help of EPC and after three and a half years of traumatic oncology treatment, we were able to

meet this incredibly painful and sacred passage on our own terms.

Abstract

Author: Michele Hutchins

My daughter was diagnosed with cancer shortly after her third birthday in 1995. The

following three and a half years took us on an intense and traumatic journey through the

rough terrain of medical intervention and oncology treatment, culminating in a very bumpy

descent down the slippery slope of hope and loss.

Ultimately it was three and a half weeks from the final relapse to her death. Not long to face

a reality we had kept at the far reaches of consciousness for so long. We faced destiny with

extraordinary courage and dignity and did all we could to make Jessica's passing as peaceful

and as compassionate as we could. Having services in our community to support her dying at

home, on her own terms, and not in the hospital she hated and dreaded, meant more than I

can say.

The work of EPC and the professional management and holding of the fragility and messiness

of the human journey is extraordinary. The compassion and courage of the volunteers sits at

the very heart of what it is to be a humane society.

'Healing' goes far beyond the issue of life or death and far beyond considerations of the body

alone.

Page 31: Conference Handbook - w6p3u3w8.stackpathcdn.com€¦ · John Hall, Victorian AIDS Council Elizabeth Crock, Bolton Clark 1.15 –1.30 Advance Care Planning Empowerment by Volunteer

Wednesday 23 May 2018

Breakout Session 5 - Supporting volunteers/service development

Phantom Room

1.00pm - 1.15pm

The Power of Positive Peering: peer-to-peer support groups

Lee Ewing, Eastern Palliative Care

I have been an addicted volunteer Biographer with Eastern Palliative Care for 10 years.

Four years ago, I was involved when EPC initially trialled Network Support groups for six months as

a means of establishing peer-to-peer support on a smaller, more personal scale. Following the

success of this trial, Network Groups were then made available to all volunteers.

Currently I am the Facilitator of my Network Support group.

Abstract

Author: Lee Ewing

Working alone as palliative care volunteers is very isolating. Who cares for the volunteer?

Eastern Palliative Care Coordinators are now overseeing more than 150 part-time volunteers

working in diverse roles, and supporting such a large group is a challenge. To better manage

this, four years ago it was decided to establish small peer-to-peer Network Groups to meet

monthly and to help the volunteers to support and learn from each other. Each group

nominates a Facilitator to help improve the two-way communication between groups and the

organisation. The role of the Group Facilitators and the structure of the monthly meetings will

be described.

We believe this is a new volunteer application of a process commonly used in professional

workplaces.

The success of this initiative is considered to have been due to the small group size (up to 8

people) which enables us to share experiences, discuss emotional, technical and practical

issues in a safe environment amongst friends, whilst benefitting from their support and

learning from one another.

Network group participants enjoy these meetings, emotional well-being is enhanced and this is

reflected in our volunteer satisfaction surveys and retention of volunteers.

Page 32: Conference Handbook - w6p3u3w8.stackpathcdn.com€¦ · John Hall, Victorian AIDS Council Elizabeth Crock, Bolton Clark 1.15 –1.30 Advance Care Planning Empowerment by Volunteer

Wednesday 23 May 2018

Breakout Session 5 - Supporting volunteers/service development

Phantom Room

1.15pm - 1.30pm

Wrapped in community: Developing palliative care volunteering in

New South Wales

Alex Huntir, Palliative Care NSW

Alex Huntir heads up the Volunteer Support Services Programme at Palliative Care NSW. He has

previously held diverse roles in education, policy, advocacy, nursing, community support and

management including 10 years as CEO in not-for-profit health and disability support

organisations and 4 years on the Board of the Australian Council of Social Service.

Abstract

Author: Alex Huntir

Since 2014 the Palliative Care Volunteer Support Services Programme in NSW has championed

and supported the role of palliative care volunteers in NSW. In this presentation Alex Huntir

will talk about their recent work including: the publication of a new palliative care volunteer

training guidance manual; insights into a recently released statewide study of palliative care

volunteers active in bereavement support; and a look at the success of a touring workshop on

Spirituality and Reflective Practice.

The Programme looks at innovative ways to invigorate support for volunteers including through

the use of published studies, site visits and workshops and maintaining an active online

presence. In addition to the useful contribution that these three initiatives have made to

volunteering in NSW, the presentation will look at these initiatives as part of a deliberate

strategy to address system dynamics that have been found to hamper the success of volunteer

services.

Using initiatives like this, the Volunteer Support Services Programme has worked to plant new

services and to expand existing services in metro, regional and rural NSW including two area-

wide volunteering initiatives, and published a number of papers relating to the experience of

the 1,600 or so palliative care volunteers in NSW.

Page 33: Conference Handbook - w6p3u3w8.stackpathcdn.com€¦ · John Hall, Victorian AIDS Council Elizabeth Crock, Bolton Clark 1.15 –1.30 Advance Care Planning Empowerment by Volunteer

Wednesday 23 May 2018

Breakout Session 5 - Supporting volunteers/service development

Phantom Room

1.30pm - 1.45pm

The impact of networking, collaborating and sharing

Sharon Walsh, Bendigo Health

Sharon Walsh is the Director of Volunteer Services at Bendigo Health and is responsible for

supporting approximately 300 volunteers across the health service. Sharon is the founding and

current Chair of the Leaders of Health Volunteer Engagement (LOHVE) network. Established to

support volunteer managers and coordinators, this work has grown to include more than 110

members from health organisations across Australia and New Zealand. Sharon played a lead role

preparing, undertaking and reporting on benchmarking of health volunteer programs across

Australia and New Zealand for the past six years – this ongoing benchmark is the first of its kind.

Abstract

Author: Sharon Walsh

A brief overview of the LOHVE Network and its Terms of Reference. An overview of the LOHVE

Benchmarking exercise. This benchmarking will tie into shaping volunteer managers and

coordinators as leaders and allows for growth and development of volunteers who are

providing direct patient and family care.

Page 34: Conference Handbook - w6p3u3w8.stackpathcdn.com€¦ · John Hall, Victorian AIDS Council Elizabeth Crock, Bolton Clark 1.15 –1.30 Advance Care Planning Empowerment by Volunteer

Wednesday 23 May 2018

Breakout Session 5 - Supporting volunteers/service development

Phantom Room

1.45pm - 2.00pm

Connecting our caring

Andrea Janes, South West Healthcare

For the past 17 years Andrea has been employed at SWH. Clinically, she worked for 10 years in

the Medical/Palliative Care Inpatient Unit. In 2010 she became Assistant Director of Nursing.

Andrea became the South West Healthcare (SWH) Nurse Consultant Coordinator of our South

Western Regional Palliative Care Team in February 2015. Since then, Andrea has been responsible

for strengthening both the palliative care team and the palliative care services provided

throughout rural Victoria’s southwest region to enhance patient and carer engagement, and

further develop partnerships with consumers and key stakeholders.

Abstract

Author: Andrea Janes

Identifying that rural patients and carers are often more isolated than those in regional areas,

SWH embarked on an expansion of the already proven and successful volunteer service model.

Utilising the power of social media, local newspaper and radio, SWH reached out to the local

communities within the three LGAs to expand the service. Incredibly, over 60 people contacted

the service to express an interest in volunteering with the service.

Traditionally, volunteers only provided home support to patients residing in Warrnambool City

(approximately 45% of patients at any one time). This expansion now allows any patient

registered with SWH’s Palliative Care Team to have access to volunteer support, regardless of

patient location (100% of patients).

Not only does every patient have access to the volunteer program, but also the recruitment has

provided the opportunity for the service to expand its frequency of visits within the home

environment. Traditionally, patients were allocated only one volunteer for support weekly.

However patients and carers now have access to multiple volunteers and increased frequency

of support. Not only does this provide more support for rural patients and carers, but also the

volunteers of the palliative care program have peer support.

Page 35: Conference Handbook - w6p3u3w8.stackpathcdn.com€¦ · John Hall, Victorian AIDS Council Elizabeth Crock, Bolton Clark 1.15 –1.30 Advance Care Planning Empowerment by Volunteer

Wednesday 23 May 2018

Plenary

Broadway Room

3.00pm - 3.15pm

Backyard Blitz* - A Fresh Approach to Practical Support

Jen Walsh, Barwon Health

Jen Walsh has been the Volunteer Coordinator with Barwon Health Palliative Care for over 4

years. She oversees a dynamic team of 75 volunteers who work across the inpatient and

community settings. The volunteers support a wide variety of programs including Companionship,

Respite, Massage, Life Stories, Dignity Therapy, Bereavement Support, Backyard Blitz* and other

practical support roles. Before working in Palliative Care Jen managed volunteers in the field of

disaster response and emergency management. Her volunteer management career spans nearly

15 years. She is passionate about driving a culture of self care within the volunteer team.

Abstract

Author: Jen Walsh

This volunteer team provides a unique service that is otherwise unavailable for patients.

Patients often mention to the clinical team that they find it stressful to be “stuck in their bed”

and unable to get outside and take care of their beloved gardens and yards. The concept of

the Backyard Blitz* program was designed to alleviate this distress. By offering it as a

volunteer program it also removes the financial burden of hiring someone to do the work and

provides an opportunity for a chat with a caring volunteer team. Volunteers carry out a wide

variety of tasks, including but not limited to: mowing, hedge trimming, and weeding.

The volunteers are equipped with specialised Palliative Care training and have the

opportunity to provide non-clinical support to the patient and their family through empathetic

listening, sharing a cuppa, etc.

This innovative volunteer service fills a gap and also provides peace of mind for patients that

their beloved gardens are being well maintained.

Finally, volunteers are trained in Bereavement Support, and when appropriate work with

carers after the death of their loved one. This is especially important for carers who have

never done yard work and benefit from some extra support.

*Use of this ™ name is authorised by CTC Productions Pty Ltd

Page 36: Conference Handbook - w6p3u3w8.stackpathcdn.com€¦ · John Hall, Victorian AIDS Council Elizabeth Crock, Bolton Clark 1.15 –1.30 Advance Care Planning Empowerment by Volunteer

Wednesday 23 May 2018

Plenary

Broadway Room

3.15pm - 3.30pm

Partnering with a palliative care service

Megan Nutbean, Lyndal Ritchie, Lort Smith

Megan has held various community development and volunteer coordination roles since

commencing at Lort Smith in 2013. She currently coordinates the Pet Therapy program, which

involves partnerships with 50 external organisations, each of which is expected to work with Lort

Smith to support and supervise visiting volunteers (and their dogs). Prior to Lort Smith Megan

worked at the Centre for Multicultural Youth, the Asylum Seeker Welcome Centre and The East

West Foundation of India – each role involved establishing and managing partnerships with other

volunteer-involving organisations.

Lyndal is a Pet Therapy Volunteer (Lort Smith) and Patient Support Volunteer (Olivia-Newton John

Cancer and Wellness Centre). She has an honours degree in Science and experience in the

laboratory, scientific sales, technical support and communication. Lyndal completed Lort Smith’s

Pet Therapy Assessment and Training with her Greyhound Maggie in 2016 and was then

connected with the volunteer program at ONJ. After completing further training, Lyndal started her

pet therapy visits to palliative care patients with Maggie and later become an ONJ Patient Support

Volunteer too. Maggie and Lyndal love visiting Palliative Care, providing joy and support to

patients, family and staff.

Abstract

Authors: Megan Nutbean; Lyndal Ritchie;

Lort Smith and the ONJCWC began discussions in 2016 to explore how they might work

together to enable Lort Smith volunteers to bring their dogs to visit patients in the hospital. The

presentation will outline the steps that were involved in reaching a formal agreement between

the two organisations and the training that was undertaken by the volunteers, and the

outcomes for both organisations since the agreement was signed.

While broader resource constraints mean that Lort Smith is not able to replicate this model with

other palliative care services at the present time, the lessons each organisation learned will be

useful as palliative care services consider partnerships with a range of organisations from other

sectors they may not have worked with before.

Page 37: Conference Handbook - w6p3u3w8.stackpathcdn.com€¦ · John Hall, Victorian AIDS Council Elizabeth Crock, Bolton Clark 1.15 –1.30 Advance Care Planning Empowerment by Volunteer

Wednesday 23 May 2018

Plenary

Broadway Room

3.30pm - 3.45pm

Why we volunteer in palliative care …..

Meshel Laurie

Meshel Laurie is a radio and television broadcaster, writer and corporate speaker of over 20

years’ experience.

Meshel is currently a regular panellist on Channel Ten’s The Project, and pops up quite a bit on

TV, with numerous appearances throughout her career. In addition to being an established radio

personality in Brisbane and Melbourne, Meshel regularly writes columns and articles for The Age

and Sydney Morning Herald and presents two podcasts, the Nitty Gritty Committee podcast, and

(with Emily Webb) the Australian True Crime podcast.

In 2013 Meshel released her first book titled The Fence-Painting Fortnight of Destiny. She

followed it up in February 2017 with Buddhism for Breakups. Meshel’s third book and second in

the ‘Buddhism For…’ series, Buddhism for the Unbelievably Busy, was released in November

2017 and explores how to juggle the demands of modern life, using her own experiences and

drawing on her long and varied career.

Buddhism is Meshel’s key to contentment, she puts her heart and soul into being a better

Buddhist every day. She embraces her spiritualism by giving back to communities around the

world. Meshel is proudly a board member of His Holiness the 14th Dalai Lama in Australia, and

for Reconciliation Australia. Meshel volunteers with Mercy Palliative Care.

Abstract

Author: Meshel Laurie

Meshel is often ask why she chooses to volunteer in palliative care. This is how she answers

that question . . .

Page 38: Conference Handbook - w6p3u3w8.stackpathcdn.com€¦ · John Hall, Victorian AIDS Council Elizabeth Crock, Bolton Clark 1.15 –1.30 Advance Care Planning Empowerment by Volunteer

U

se t

his

pa

ge

to

write

no

tes a

nd

id

ea

s a

bo

ut

tod

ay’s

co

nfe

ren

ce

se

ssio

ns

Spea

ker:

___

____

____

____

_

.

......

......

......

......

......

.....

......

...

.

......

......

......

......

......

.....

......

...

.

......

......

......

......

......

.....

......

...

.

......

......

......

......

......

.....

......

...

.

......

......

......

......

......

.....

......

...

.

......

......

......

......

......

.....

......

...

Spea

ker:

__

____

____

__

__

__

.

......

......

......

......

......

.....

......

...

.

......

......

......

......

......

.....

......

...

.

......

......

......

......

......

.....

......

...

.

......

......

......

......

......

.....

......

...

.

......

......

......

......

......

.....

......

...

.

......

......

......

......

......

.....

......

...

Spea

ker:

__

__

__

__

__

__

__

__

.

......

......

......

......

......

.....

......

...

.

......

......

......

......

......

.....

......

...

.

......

......

......

......

......

.....

......

...

.

......

......

......

......

......

.....

......

...

.

......

......

......

......

......

.....

......

...

.

......

......

......

......

......

.....

......

...

Spea

ker:

__

__

__

__

__

__

__

__

_

.

......

.....

....

....

....

....

.....

....

....

....

.

......

.....

....

....

....

....

.....

....

....

....

.

......

.....

....

....

....

....

.....

....

....

....

.

......

.....

....

....

....

....

.....

....

....

....

.

......

.....

....

....

....

....

.....

....

....

....

.

......

.....

....

....

....

....

.....

....

....

....

Spea

ker:

__

__

__

__

__

__

__

__

_

.

....

....

....

....

....

....

....

.....

....

....

...

.

....

....

....

....

....

....

....

.....

....

....

...

.

....

....

....

....

....

....

....

.....

....

....

...

.

....

....

....

....

....

....

....

.....

....

....

...

.

....

....

....

....

....

....

....

.....

....

....

...

.

....

....

....

....

....

....

....

.....

....

....

...

Spea

ker:

___

____

____

____

_

.

......

......

......

......

......

.....

......

...

.

......

......

......

......

......

.....

......

...

.

......

......

......

......

......

.....

......

...

.

......

......

......

......

......

.....

......

...

.

......

......

......

......

......

.....

......

...

.

......

......

......

......

......

.....

......

...

Spea

ker:

___

____

___

___

__

__

.

......

......

......

......

......

.....

......

...

.

......

......

......

......

......

.....

......

...

.

......

......

......

......

......

.....

......

...

.

......

......

......

......

......

.....

......

...

.

......

......

......

......

......

.....

......

...

.

......

......

......

......

......

.....

......

...

Spea

ker:

__

__

__

__

__

__

__

__

.

......

......

......

......

......

.....

......

...

.

......

......

......

......

......

.....

......

...

.

......

......

......

......

......

.....

......

...

.

......

......

......

......

......

.....

......

...

.

......

......

......

......

......

.....

......

...

.

......

......

......

......

......

.....

......

...

Spea

ker:

__

__

__

__

__

__

__

__

_

.

......

.....

....

....

....

....

.....

....

....

....

.

......

.....

....

....

....

....

.....

....

....

....

.

......

.....

....

....

....

....

.....

....

....

....

.

......

.....

....

....

....

....

.....

....

....

....

.

......

.....

....

....

....

....

.....

....

....

....

.

......

.....

....

....

....

....

.....

....

....

....

Spea

ker:

__

__

__

__

__

__

__

__

.

....

....

....

....

....

....

....

.....

....

....

...

.

....

....

....

....

....

....

....

.....

....

....

...

.

....

....

....

....

....

....

....

.....

....

....

...

.

....

....

....

....

....

....

....

.....

....

....

...

.

....

....

....

....

....

....

....

.....

....

....

...

.

....

....

....

....

....

....

....

.....

....

....

...

G

REA

T ID

EAS

TO T

AK

E B

AC

K T

O W

OR

K

.....

......

......

......

......

......

......

......

......

......

.....

......

......

.

.....

......

......

......

......

......

......

......

......

......

.....

......

......

.

.....

......

......

......

......

......

......

......

......

......

......

......

......

CH

ECK

OU

T –

WA

NT

TO K

NO

W M

OR

E A

BO

UT

√ ..

......

......

......

......

......

......

......

......

......

......

.....

......

..

√ ..

......

......

......

......

......

......

......

......

......

......

.....

......

..

√ ..

......

......

......

......

......

......

......

......

......

......

.....

......

..

NEW

to

ME

TO F

OLL

OW

UP

...

....

....

....

....

....

....

....

....

....

....

....

....

....

....

....

.....

....

....

....

.

② ..

....

....

....

....

....

....

....

....

....

....

....

....

....

....

....

.....

....

....

....

...

③ .

......

......

......

......

......

.....

......

......

......

......

......

......

......

...

Peo

ple

to

kee

p in

co

nta

ct w

ith

...

....

....

....

....

....

....

....

....

....

....

....

....

....

....

....

.....

....

....

....

....

....

....

....

....

....

....

....

....

....

....

....

....

....

....

.....

....

....

....

....

....

....

....

....

....

....

....

....

....

....

....

....

....

....

....

.....

....

....

....

....

Page 39: Conference Handbook - w6p3u3w8.stackpathcdn.com€¦ · John Hall, Victorian AIDS Council Elizabeth Crock, Bolton Clark 1.15 –1.30 Advance Care Planning Empowerment by Volunteer

Palliative Care Victoria Incorporated

Level 2, 182 Victoria Parade, East Melbourne Victoria 3002

T 03 9662 9644 F 03 9662 9644

E [email protected] W www.pallcarevic.asn.au