coeliac disease in croatia zrinjka mišak sanja kolaček referral center for paediatric...
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Coeliac disease in Croatia
Zrinjka MišakSanja Kolaček
Referral Center for Paediatric Gastroenterology and NutritionChildren’s Hospital Zagreb, Croatia
The national picture of coeliac disease in Croatia
Incidence of clinically recognized CD pts 1:519 (Matek, Kolacek et al, Coll Antropol 1999)
Screening: 1:461 (Jungvirth, Kolacek et al, Acta Med Croat 2001)
Population 4 000 000 Estimation
40 000 CD pts
- number of patients in general is decresing
0
5
10
15
20
25
3019
91
1993
1995
1997
1999
2001
2003
2005
2007
2009
2011
>2y
<2y
The National task Force in Croatia
Zrinjka Mišak, Sanja Kolaček – paediatric gastroenterologists, representatives from the Referral Centre for Paediatric Gastroenterology and Nutrition
Ruzica Lah – the president of the National coeliac disease society
Dunja Skoko-Poljak - representative from the Ministry of Health
Society for Paediatric Gastroenterology
The diagnostic guidelines in Croatia
Children <2y of age classic ESPGHAN criteria - 3 biopsies
Children >2y of age revised ESPGHAN criteria - 1 biopsy
Training and dissemination in Croatia
4 university centers
Serology testing, biopsies, HLA genotyping – easily accesible for everyone, expenses covered by obligatory health insurance
ZagrebOsijekRijeka
Split
Coeliac disease societies in Croatia
4 patient societies one National coeliac society (member of
AOECS) with 3 subsidiaries three regional Celiac organizations that act
autonomously and are not under the umbrella of the National society
CD in Croatia – after the diagnosis
After the diagnosis a patient gets written instructions on gluten free diet with
some recepies dietetic consult 10 kg of gluten free flour per month free of
charges (covered by the health insurance) recommendation to join the patients’
society
CD in Croatia - Problems
There is no registry - the exact number of diagnosed pts unknown
Several societies - not collaborating well Awarenes of the problem is low