case study title: measuring the quality of life of children suffering from cerebral palsy country:...
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Case study
Title: Measuring the quality of life of children suffering from cerebral palsy
Country: Sub-Saharan Africa
Specific theme: Measuring impact
By: Cécile Rolland, Technical Adviser – Occupational Therapy, CBR
Impact Assessment Seminar, 2-6 December Phnom Penh
Project description
• A kit for measuring the quality of life of children suffering from Cerebral Palsy (CP), designed to be used in programmes to support children suffering from CP in their living arrangement
Impact Assessment Seminar, 2-6 December Phnom Penh
Study description
• Research stages: – Desk study (2012) : welfare vs satisfying basic needs ?– Field study (2013) : contextualisation
• Features:– A means of measuring – Contextualised – Aimed at children – Children suffering from CP
Impact Assessment Seminar, 2-6 December Phnom Penh
Description of tool?
Impact Assessment Seminar, 2-6 December Phnom Penh
Society
Individual
Conceptual framework
Fig. 1: The four levels in the life of a child in Sub-
Saharan Africa
Description of the tool?
Impact Assessment Seminar, 2-6 December Phnom Penh
Equipment and procedures
• A subjective and objective data set
• A discussion
Description of the tool?
Impact Assessment Seminar, 2-6 December Phnom Penh
Pre/Post survey
• Preparations for implementation– Contextualised
equipment– Training
• Interpreting the replies
• A contextualised/adaptable tool for the countries where we work
• A tool constructed for and with children (+5 years old) and adolescents suffering from CP
• A tool to be tested
• A tool for change
Summary points:
Impact Assessment Seminar, 2-6 December Phnom Penh
Implementation
Impact Assessment Seminar, 2-6 December Phnom Penh
Activity Tools Who Time span
Definition of a contextualised conceptual framework
Handbook of recommendations Team with technical support (senior level)
Adapting the tools Handbook of recommendations (definitions, indicators/questions, training and user guide, changing database structure)
Team with senior-level support and a technical coordinator
Questionnaire trial / Team
3 -6 weeks
Appointment/training of researchers and supervisors
Handbook of recommendations
Training tools
Project manager with technical support
2-4 weeks
Survey User guide, scale guide Researchers and supervisors, reporting to the team
Dependent on the number of children and organisation
Compiling database Use Excel to compile the data Team 1-2 children/hour
Key points: success factors
• A contextualised tool
• An identified target
• A piloted tool
• Selected, trained and supervised researchers
• A contextual analysis for each new series of surveys
• Take your time
Impact Assessment Seminar, 2-6 December Phnom Penh
Key points: constraints
• Selection of researchers
• No contextual analysis chart
• Does not currently apply to children under 5 years of age
• Limit: suitability for certain situations? (refugee camps)
• Not available in Spanish
Impact Assessment Seminar, 2-6 December Phnom Penh
The next steps: discussion
At Head Office• Developing the tool to cover 0-5 year olds • Translation into Spanish
In the field •Researching pilot projects (2 years)
testing the tool in French developing an appropriate reference tool for Asian and
Spanish-speaking contexts
Impact Assessment Seminar, 2-6 December Phnom Penh