british congenital cardiac association · mr caner salih - lead congenital surgeon and head of...

Annual Meeting of the British Congenital Cardiac Association

British Congenital Cardiac Association

14th & 15th November 2018 The ACC Liverpool, Kings Dock

Please change the dates to: 19th & 20th November 2019 Please change the Venue to: SAGE GATESHEAD, Newcastle-upon-Tyne

Platinum Sponsor:

Silver Sponsors:

Gold Sponsors:

Charity Sponsors:

The companies below have sponsored the event and may have a stand present. However, they have had no input into or influence over the programme content except where indicated.

Meeting part sponsored by Abbvie

NEW 2019 Sponsors: Platinum Sponsor: BVM, Actelion Gold Sponsors: Abbott, Silver Sponsors: Admedus, Berlin Heart, GE, Medtronic, Occlutech, axial3D Limited, GORE Charity Sponsors: Three Counties School of Nursing and Midwifery, Max Appeal, British Heart Foundation, Little Hearts Matter, The Somerville Foundation, UCLS Virtual Cardiac SurgeryAdd extra part that says: We would like to say a special thank you to the Children’s Heart Unit Fund for their generous supportAdd there logo belowLogos will be attached the email

Welcome:

Welcome to the 2018 Scientific Meeting of the BCCA, PECSIG, CCNA and BACCNA at the ACC in Liverpool. On behalf of the team at Alder Hey and from the North West Congenital Partnership we are pleased to host you for an exciting meeting focussing on innovation. We are excited to be offering a stimulating imaging parallel session utilising 3D printing and augmented reality in collaboration with colleagues from Toronto Sick Kids. This unique venue has also provided the opportunity to invite colleagues from congenital cardiac anaesthesia and paediatric intensive care to participate and enhance this years meeting. We hope the rich and varied programme will showcase some of the world-leading work and research going on in the UK and bring together international leaders in their fields to inspire and share new ideas. We would like to thank our sponsors for supporting this years meeting and wish you all a successful conference.

Best wishesCaroline and Rafael

Organising Committee (BCCA)Mr Rafael Guerrero and Dr Caroline JonesAlder Hey Children’s Hospital NHS Foundation Trust

Parallel Sessions CommitteeAlder Hey Children’s Hospital NHS Foundation Trust:Dr Philip Arnold (Anaesthesia / PICU)

Dr Musa Kaleem (Imaging)

Dr Kent Thorburn (Anaesthesia / PICU)

Helen Walker (CCNA)

Dr Alex Williams (Imaging)

Dr Steven Breary, Countess of Chester NHS Foundation Trust (PECSIG)

Linda Griffiths, Liverpool Heart & Chest Hospital (BACCNA)

Dr Joyce Lim (Imaging)

Dr Sameer Misra, Royal Bolton Hospital (PECSIG)

Dinner Information:Venue: Camp and Furnace, 67 Greenland StreetTime: 20:00Dress code: Smart / cocktailDrinks reception: 19:30 at Camp and FurnaceDinner: Banqueting style

The Madeleine Steel Charitable Trust:Madeleine Louise Steel, universally loved as “Maddy” was born on June 5th 2001 in the Simpson Memorial Pavilion in Edinburgh. She is Andrew and Veronica’s first child and despite having numerous health challenges in her short life, she was mainly cheerful, highly engaging and was cherished by all her family. Maddy died in her mother’s arms on November 24th 2001, following essential heart surgery for her Ebstein’s Anomaly, but her memory and her fight go on in the treasured memories of her family and in the practical form of the Fellowship established in her name.The Trust aims to endow permanent annual scholarships to promote transatlantic sharing of latest research and medical best practices in the field of paediatric cardiology. The Trust also supports related activities, such as visiting professorships and one-off medical research awards.We hope to provide opportunities for specialists to gain and develop better and more effectivetreatments for people with congenital cardiac conditions. Not only will we have a spread of returning trainees across the specialist centres in the UK, but we hope they will be passing on their new expertise to other specialists in the UK.

The Madeleine Steel Charitable Trust is delighted to be sponsoring Dr Wayne Tworetzky, Dr XingQuansheng and Dr Shi-Joon Yoo to speak at this conference.

The Young Investigator Award offering the opportunity to travel to a US conference is also beingmade with the generosity of the supporters and donors of the Madeleine Steel Charitable Trust.The Madeleine Steel Charitable Trust also sponsored 20 bursaries for Nurses with funds raised by Maddy’s aunt – herself a nurse.

A shuttle bus service will be running between 19:15 and 19:45 from the taxi rank at the ACC to the Camp and Furnace

Remove this welcome talk - Waiting for a new one to be sent over by the organisers

Venue: BALTIC, Gateshead, NE8 3BATime: 20:00Dress code: Smart/ cocktail Drinks reception: Dinner: Banqueting style Remove about the sentence shuttle bus services BALTIC is located just a short walk from the SAGE Gatesheads.

Remove this Madeline Steel talk - Waiting for a new one to be sent over by the organisers Keep Logo

DAY 1: Wednesday 14th November

BCCA - Room 11

Anaesthesia and PICU

- Room 4

CCNA Paediatric Nurses

- Drum Lecture Theatre B

08:00

REGISTRATIONREGISTRATION

08:45 WELCOME & INTRODUCTION

09:00 Cardiac visualisation using 3D printing and immersive technologySingle ventricle home monitoring: reducing interstage mortality

09:30The evolution of mechanical circulatory support and its impact on paediatric transplantation in the UK

Non-cardiac surgery and children with congenital heart disease

Play as preparation for the Fontan operation

10:00 New technologies in ICD therapy: has our threshold changed?

From theory to practice: practical management of sever bleeding after surgery in 2018

Challenges of young people with a single ventricle circulation

10:30 REFRESHMENTS, EXHIBITION & POSTERS

11:00 Predicting biventricular repair in the fetus with unbalanced ventricles

Enchanced recovery and paediatric heart surgery

Feeding challenges in infants with CHD

11:30 Assessment of unbalanced ventricles: an imaging toolkit

Nurse led fast track recoveryChildren with Single Ventricle Heart Defects: Considering the Parent Experience

12:00 Biventricular repair following previous univentricular palliation

Techniques to facilitate rapid recovery

Exploring risk and uncertainty in congenital cardiac surgery

12:30 LUNCH, EXHIBITION & POSTERS

12:45 ADMEDUS SPONSORED SYMPOSIUM (12:45 - 12:30)

13:00 POSTER WALK

13:30Fetal interventions for congenital heart defects: lessons learned and future directions

Its not her heart…managingthe ICU patient with multiple co-morbidities

RSV prophylaxis: a nurse led programme

14:00

Abstract presentations

Using the literature to inform treatment decision in CICU...why is it so darned difficult?

Utilising technology to improve anti-coagulation management

14:30 HLH complicarting the post-operative course - a case series

Feeding neonates after surgery


15:30 Aortic stenosis: when should we intervene? The role of cardiac catheterisation in

the struggling CICU patientTeam up: Interactice patient care platform

15:40

15:50 Decision making in neonatal Tetralogy: to the cath lab or early repair?16:00

Patient flow and quality indicators16:10

Late repair of left-right shunts: how late is too late?

16:15 Co-creating game changing innovation16:20

16:30Indications for closure of the pressure restrictive VSD Outcomes following ECMO support

post-congenital heart surgery16:40Questions and close

16:50 Do asymptomatic paediatric WPW patients require EPS?17:00

17:30 BCCA Business Meeting

Change to: Tuesday 19th November

Please look at the word document attached for the updated 2019 - updated programme

Day 2: Thursday 15th November

BCCA - Room 11

PECSIG - Drum Lecture

Theatre 1C

BACCNA Adult Nurses

- Drum Lecture Theatre B

Imaging - Room 4

08:00 REGISTRATION

09:00 Studying the physiology of BCPS and Fontan with MR

Cardiomypopathy and the evolving role of the geneticist

ACHD related PAH - management of the high risk pregnancy

09:30The iFIND project: exploring novel fetal imaging techniques

Echocardiography update and new techniques in assessing heart function

Heart failure in the context of ACHD - a growing epidemic

10:00Minimally Invasive Transthoracic Device Closure of VSD under TOE guidance

Medical management of paediatric heart failure

Treatment - medical/surgical & device related options


11:00 Intraoperative Imaging: who, when and how?

Moving towards early biventricular repair: who does require palliation?

Keeping the heart failure patient active - understanding the benefits

3D modelling and PDA stenting

11:30 LA decompression and interventions on ECMO

The pictures are better on the radio - An introduction to cardiac MRI for congenital heart disease

The Fontan Project: the benefits of exercise

Augemented reality in surgical planning

12:00Transcatheter and hybrid rescue in perioperative heart failure

Perinatal planning for the fetus with CHD? Where, when and how?

What can we learn from traditional heart failure services and standards

Twisted or criss-cross heart and related conditions in your hands

12:30BACCNA AGM Meeting (12:30 - 13:30) - Room 12

LUNCH, EXHIBITION & POSTERSCase based imaging presentation with 3D correlation

12:45

BCCA INTERVENTION BUSINESS MEETING13:00

13:30

Fetal interventions for congenital heart defects: lessons learned and future directions

Echocardiographic assessment of the transitional circulation

Pumping Marvellous - heart failure patient charity

Double outlet right ventricle in your hands

14:00

Interactive cases

FASP fetal screening and the 3VT view: Impact for the PEC

Supporting the team to support the patient

Hands-on session with 3D print models DORV

14:30

Haemodynamically significant PDA in the pre term infant: is ligation necessary

Advanced symptoms in ACHD


15:30Risk stratification and treatment of the pulmonary hypertensive patient

6 x ten minute presentation

Heart transplant versus further risk surgery

Drop in session for cross sectional imaging16:00

Sureveillance and management of LV problems in the ACHD patient with peimary RV pathology

ICD’s - when is the best time to switch it off?

16:30 Structure? Function? ACHD outcomes depend on rhythm

Investigating the paediatric patient with collapse

Role of Palliative Care in Advanced ACHD

17:00 QUESTIONS AND CLOSE

Please look at the word document attached for the updated 2019 - updated programme

08:00 Registration open

Session 1: Innovation and new technologies Chairs: Mr Attilio Lotto, Dr Arjamand Shauq

09:00 Keynote speech: Cardiac visualisation using 3D printing and immersive technology - Mr Rafael Guerrero

09:30 The evolution of mechanical circulatory support and its impact on paediatric transplantation

in the UK - Dr Matthew Fenton

10:00 New technologies in ICD therapy: has our threshold for implantation changed? - Dr Graham Stuart

10:30 Refreshments, Exhibition and Posters

Session 2: Management of the patient with unbalanced ventricles Chairs: Prof John Simpson, Mr Rafael Guerrero

11:00 Predicting biventricular repair in the fetus with unbalanced ventricles - Dr Wayne Tworetzky11:30 Assessment of unbalanced ventricles: an imaging toolkit - Dr Kuberan Pushparajah12:00 Biventricular repair following previous univentricular palliation - Mr Martin Kostolny

12:30 Lunch, exhibition and posters13:00 Poster walk

12:45 - 13:30 Admedus sponsored symposium (Room 11)

ADAPT®- does bio-tissue choice and shape matter? (4 mins) Chair – Mr Caner Salih - Lead Congenital Surgeon and Head of clinical services, Evelina Children’s Unit,

Guy’s and St Thomas’s Hospital

1) Why ADAPT® is superior – preclinical and clinical reports (12 mins) (Speaker TBC)

2) Results of a large multicentre study of Cardiocel in Congenital Heart Surgery (12 mins) Prof Antonio F Corno - Chair in Congenital Cardiac Surgery, University of Leicester

Honorary Consultant, East Midlands Congenital Heart Center, University Hospitals of Leicester

3) Shape Matters – Evidence and evolution of tissue technology (12 mins) Mr Caner Salih - Lead Congenital Surgeon and Head of clinical services, Evelina Children’s Unit,


4) Q&A (5 mins)

BCCA Programme - Day 1Wednesday 14th November 2018Main Plenary Room 11


Change to Tuesday 19th November 2019

Remove room

Session 3: Keynote speech13:30 Fetal interventions for congenital heart defects: lessons learned and future directions - Dr Wayne Tworetzky

Session 4: Abstract presentations Chairs: Dr Joyce Lim, Dr Brian Grant

14:00 Abstract presentations


Session 5: Back to basics: what’s the evidence? Chairs: Dr Dirk Wilson, Mr Phil Botha

15:30 Aortic stenosis: when should we intervene? - Dr Ben Smith15:50 Decision making in neonatal Tetralogy: to the cath lab or early repair? - Dr Chetan Mehta16:10 Late repair of left-right shunts: how late is too late? - Dr John O’Sullivan16:30 Indications for closure of the pressure restrictive VSD - Dr Tara Bharucha16:50 Do asymptomatic paediatric WPW patients require EPS? - Dr Jasveer Mangat

17:30 - 18:30 BCCA Annual General Meeting19:30 Conference dinner at “Camp and Furnace”

BCCA Programme - Day 1Continued British Congenital

Cardiac Association

1) Late Gadolinium Enhancement CMR Predicts Ventricular Tachycardia Inducibility in Repaired Tetralogy of Fallot.Dr Sarah Ghonim1,2, Dr Sabine Ernst1,2, Dr Jenny Keegan1,2, Dr Veronica Spadotto1, Dr Claudia Montanaro1, Dr Archontis Giannakidis1, Dr Inga Voges1, Dr Su Lin Lee2, Dr Gillian C Smith1, Dr Maria Boutsikou1, Dr Wei Li1, Professor Dudley J Pennell1,2, Professor Michael A Gatzoulis1,2, Dr Sonya V Babu-Narayan1,2

1Royal Brompton Hospital, 2National Heart & Lung Institute, Imperial College London 2) Assessment of myocardial deformation parameters and relationships to exercise intolerance in patients with unrepaired Ebstein’s AnomalyDr Victoria Stoll1,2, Dr Ahmed Dardeer1,2,3, Dr Boyang Liu1,2, Dr William Moody1,2, Dr Colin Chue2, Dr Paul Clift1,2, Dr Roman Wesolowski2, Dr Lucy Hudsmith2, Dr Richard Steeds1,2

1Institute of Cardiovascular Sciences, University of Birmingham, Birmingham, UK, 2Department of Cardiology, Queen Elizabeth Hospital Birmingham, 3Department of Cardiology, Faculty of Medicine, Minia University 3) Impact of a Fontan postoperative care protocol on pleural drainage and hospital stayDr Haifa Eltayeb1, Mr William Ries1,2, Mr Nigel Drury1,2, Mr John Stickley1, Mr Simon Laker1, Dr Anandini Arumugam1, Dr Anas Nanaa1, Dr Chetan Mehta1, Mr Timothy Jones1,2, Mr David Barron1, Mr Phil Botha1, Ms Natasha Khan1, Dr Oliver Stumper1

1Birmingham Children’s Hospital, 2University of Birmingham 4) Multimodality image fusion in the Paediatric Cath lab: Use of real-time biplane overlay of pre-segmented 3-Dimensional heart models.Dr Srinivas Ananth Narayan1, Dr Kuberan Pushparajah1, Dr Peter Mountney2, Mr Daniel Toth2, Dr Mazen Alhirshy1, Dr Matthew Jones3, Prof Eric Rosenthal3, Prof Kawal Rhode1, Prof Shakeel Qureshi31Kings College London, 2Siemens Healthineers, 3Evelina London Children’s Hospital 5) Left atrial strain as new proposed index of diastolic dysfunction in pediatric cardiomyopathies.Doctor Jolanda Sabatino1, Doctor Piers Daubeney1, Doctor Alain Fraisse1, Mr Manjit Josen1, Miss Josefa Paredes1, Professor Giovanni Di Salvo1 1Royal Brompton Hospital

08:00 Registration Open

08:45 Introduction & welcome - Helen Walker & President of CCNA

Session 1: Challenges for children and young people with single ventricle physiology Chairs: Helen Walker, Denise Moran

09:00 Single ventricle home monitoring: reducing interstage mortality - Marie Murphy & Vicky Hughes

09:30 Play as preparation for the Fontan operation - Lorna O’Brien

10:00 Challenges of young people with a single ventricle circulation - Amanda Haworth, Patricia

Coyle & Jessica Hart


Session 2: Parental perspectives Chairs: Jayne Peters, Patricia Coyle

11:00 Feeding challenges in infants with CHD - Lynne Latten

11:30 Children with single ventricle congenital heart defects: considering the Parent Experience

- Dr Emma Twigg

12:00 Exploring risk and uncertainty in congenital cardiac surgery - Dr Robyn Lotto

12:30 Lunch, exhibition and posters

12:30 - 13:30 CCNA Council Meeting (Lecture Theatre B)









4) Q&A (5 mins)

CCNA Study Day Programme - Day 1Wednesday 14th November 2018Drum Lecture Theatre B

CCNA Study Day Programme - Day 1Continued

Session 3: Keeping our patients well Chairs: Amanda Haworth, Naomi Warner

13:30 RSV prophylaxis: a nurse led programme - Michelle McLaren14:00 Utilising technology to improve anti-coagulation management - Gillian McBurney14:30 Feeding neonates after surgery - Rebecca Hill


Session 4: Innovation in improving CHD care Chairs: Gillian McBurney, Kerry Watson

15:30 Team up: interactive patient care platform - Dr Gordon Gladman16:15 Co-creating game changing innovation - Sophie Johnson16:45 Questions and close - Helen Walker



09:00 Session 1: Innovation in congenital heart disease practice (JOIN MAIN PLENARY ROOM 11) Chairs: Mr Attilio Lotto, Dr Arjamand Shauq

09:00 Keynote speech: Cardiac visualisation using 3D printing and immersive technology - Mr Rafael Guerrero

Session 1: (Room 4B) Chairs: Dr Tim Murphy, Dr Naveen Raj

09:30 Non-cardiac surgery and children with congenital heart disease: why we worry, when to worry and what is needed from a cardiologist - Dr Dan Taylor

10:00 From theory to practice: practical management of severe bleeding after surgery in 2018 - Dr Philip Arnold


Session 2: Enhanced recovery following CHD surgery Chairs: Dr Philip Arnold, Dr Dan Taylor

11:00 Enhanced recovery and paediatric heart surgery - Dr Tim Murphy11:30 Nurse led fast track recovery - Charlotte Tivy-Jones12:00 Techniques to facilitate rapid recovery - Dr Naveen Raj

12:30 Lunch, exhibition and posters









4) Q&A (5 mins)

Anaesthesia & PICU Programme - Day 1Wednesday 14th November 2018Room 4B

Anaesthesia & PICU Programme - Day 1Continued

Session 3: Managing the complex CICU patient Chairs: Dr Allan Goldman, Dr Marie Horan 13:30 Its not her heart…managing the ICU patient with multiple co-morbidities - Dr Kent Thorburn

14:00 Using the literature to inform treatment decisions in CICU…why is it so darned difficult? - Dr Shane Tibby

14:30 HLH complicating the post-operative course – a case series - Dr Petr Jirasek


Session 4: Paediatric cardiac critical care Chairs: Dr Kent Thorburn, Dr Shane Tibby15:30 The role of cardiac catheterisation in the struggling CICU patient - Dr Atul Kalantre16:00 Patient flow and quality indicators in CICU - Dr Allan Goldman16:30 Outcomes following ECMO support post-congenital heart surgery - Dr Marie Horan


Session 1: Same problems, new solutions Chairs: Dr Anna Seale, Dr Marina Hughes

09:00 Studying the physiology of BCPS and Fontan with MR - Dr Shi-Joon Yoo09:30 The iFind project: exploring novel fetal imaging techniques - Dr David Lloyd10:00 Minimally Invasive Transthoracic Device Closure of VSD under TOE guidance - Dr Xing Quansheng


Session 2: Peri-operative collaboration Chairs: Mr Andrew Parry, Dr Caroline Jones

11:00 Intraoperative Imaging: who, when and how? - Prof John Simpson11:30 LA decompression and interventions on ECMO - Dr David Crossland12:00 Transcatheter and hybrid rescue in perioperative heart failure - Dr Jamie Bentham

12:30 Lunch, exhibition and posters12:30 BCCA Intervention Business Meeting (Room 12)

Session 3: Interactive cases Chairs: Dr Aaron Bell, Dr Dominic Hares13:30 Interactive cases Oscar Nolan (Birmingham)

Colm Breatnach (Dublin)

Katrijn Jansen (Freeman)

Ariana Spanaki (Brompton)

Gemma Penford (Alder Hey)

15:00 – 15:30 Refreshments, exhibition and posters

Session 4: Predicting mortality in adult congenital heart disease Chairs: Dr Natali Chung, Dr John O’Sullivan15:30 Risk stratification and treatment of the pulmonary hypertensive patient - Dr Sarah Bowater16:00 Surveillance and management of LV problems in the ACHD patient with primary RV pathology - Dr Damien Cullington16:30 Structure? Function? ACHD outcomes depend on rhythm - Dr Vivienne Ezzat

17:00 Conference close

BCCA Programme - Day 2Thursday 15th November 2018Main Plenary Room 11



Session 1: Same problems, new solutions (JOIN MAIN PLENARY ROOM 11) Chairs: Dr Anna Seale, Dr Marina Hughes

09:00 Studying the physiology of BCPS and Fontan with MR - Dr Shi-Joon Yoo

09:30 The iFind project: exploring novel fetal imaging techniques - Dr David Lloyd

10:00 Minimally Invasive Transthoracic Device Closure of VSD under TOE guidance - Dr Xing Quansheng

Session 2: Imaging Symposium 1 Chairs: Dr Musa Kaleem, Dr Joyce Lim

11:00 3D modelling and PDA stenting - Dr Arjamand Shauq

11:30 Augmented reality in surgical planning - Mr Rafael Guererro

12:00 Twisted or criss-cross heart and related conditions in your hands - Dr Shi-Joon Yoo

Lunch time Imaging Symposium Chairs: Dr Ram Ramaraj, Dr Jaspal Dua

12:30 Case-based imaging presentation with 3D correlation

Dr Alexandra Williams

Dr Musa Kaleem

Dr Joyce Lim

Session 3: Imaging Symposium 2 Chairs: Dr Alexandra Williams, Dr Joyce Lim

13:30 Double outlet right ventricle in your hands - Dr Shi-Joon Yoo

14:00 Hands-on session with 3D print models DORV - Dr Shi-Joon Yoo

15:00 Refreshments, exhibition and posters

Session 4: Imaging Symposium 315:30 - 17:00 Drop in session for cross sectional imaging

Imaging Programme – Day 2Thursday 15th November 2018Room 4

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Session 1: Heart Failure Chairs: Dr Stephen Breary, Dr Poothirikovil Venugopalan09:00 Cardiomyopathy and the evolving role of the geneticist - Dr Vicky McKay09:30 Echocardiography update and new techniques in assessing heart function - Anna Johnson10:00 Medical management of paediatric heart failure - Dr David Crossland


Session 2: The changing face of CHD practice Chair: Dr Yogen Singh, Dr Michael Bowes 11:00 Moving towards early biventricular repair: who does require palliation? - Mr Ramana Dhannapuneni11:30 The pictures are better on the radio – an introduction to cardiac MRI for congenital heart disease - Dr Rob Johnson12:00 Perinatal planning for the fetus with CHD: where, when and how? - Dr Lindsey Hunter

12:30 Lunch, Exhibition and Posters

Session 3: Fetal and Neonatal Cardiology update Chair: Prof David Mabin, Dr Robert Johnson13:30 Echocardiographic assessment of the transitional circulation - Dr Yogen Singh14:00 FASP fetal screening and the 3VT view: impact for the PEC - Dr Caroline Jones 14:30 Haemodynamically significant PDA in the pre term infant: is ligation necessary - Dr Nim Subhedar


Session 4: Abstract Presentations Chair: Dr Sameer Misra, Dr Rama Ramaraj15:30 6 x 10 minute presentations

16:30 - 17:00 Investigating with paediatric patient with collapse - Dr Michael Bowes

17:00 Conference close

PECSIG Programme - Day 2Thursday 15th November 2018Drum Lecture Theatre 1C

1) A case of a right pulmonary artery originating from innominate artery with no VSDDr David Wright1, Dr Ram Ramaraj2, Dr Shrinivas Tambe1

1East Cheshire Nhs Trust, 2Alder Hey Children’s Hospital 2) Kawasaki Disease, What a DGH can do?Dr Khalid Abdelhafiz, Dr Nicholas Demetriou, Dr Lakshmi Chilukuri, Dr Maysara Abdelaziz1St Helens and Knowsley Teaching Hospitals NHS Trust 3) Bronchiolitis , Reflux or Seizures ? Think beyond the box. A case report of an Unusual presentation of ALCAPADr Khalid Abdelhafiz1, Dr Maysara Abdelaziz1

1St Helens and Knowsley Teaching Hospitals NHS Trust 4) Neonatologist Performed Echocardiography (NPE) improves diagnostic accuracy and cot side careDr Mahmoud Montasser1, Dr Anne-Marie Heuchan1, Dr Lindsey Hunter2

1Neonatal Unit, Royal Hospital For Children, 2Paediatric Cardiology, Royal Hospital for Children 5) A rare presentation of cardiac tumour causing critical RVOT obstruction in a newbornDr. Med. Christine Stratmann1, Dr. Syed Mehdi1, Dr Camilla Snook1, Dr. Alison Hayes1

1Bristol Royal Hospital for Children 6) Patent Ductus Arteriosus in preterm babies can be managed conservatively: the need for surgical ligation is questionableSian Jenkins, Ankita Jain, Manjunath Shetthalli, Orhan Uzun. University of Wales Hospital, Cardiff

08:00 Registration open08:45 Introduction and welcome - Joanna Quirk, President BACCNA

Session 1: Heart failure in the context of ACHD: the challenges ahead Chairs: Linda Griffiths, Jo Birkett

09:00 ACHD related PAH – management of the high risk pregnancy - Dr Robin Condliffe09:30 Heart failure in the context of ACHD – a growing epidemic - Dr Damien Cullington10:00 Treatment – medical/surgical and device related options - Dr Petra Jenkins


Session 2: What can we learn from acquired heart failure services? Chairs: Sheena Vernon, Toni Hardiman

11:00 Keeping the heart failure patient active – understanding the benefits - Eddie Caldow

11:30 The Fontan project: the benefits of exercise - Emma Beaglehole

12:00 What can we learn from acquired heart failure services and standards - Mrs Karen Dickman

12:30 Lunch, exhibition and posters13:00 BACCNA Council Meeting (Lecture Theatre B)

Session 3: Maximising quality of life for the heart failure patient Chairs: Anna Dinsdale, Anna Harrison

13:30 Pumping Marvellous – patient support group - Dr Angela Graves14:00 Psychological aspects of transplantation - Dr Katy Silverman 14:30 Advanced symptoms in ACHD - James Anthony


Session 4: Advanced heart failure treatment options for complex ACHD patients Chairs: Jo Quirk, James Anthony15:30 Living with complex CHD - the patient experience - Amy Smeaton & Alex Bostock

BACCNA Programme - Day 2Thursday 15th November 2018Drum Lecture Theatre B

16:00 ICD’s – when is the best time to switch it off? - Lorraine English

16:30 Role of palliative care in advanced ACHD - Dr Ashique Ahamed

17:00 Closing remarks - Jo Quirk

Organising Committee

Mr Rafael GuerreroConsultant Congenital Cardiac SurgeonAlder Hey Children’s Hospital NHS Foundation Trust, Liverpool

Dr Caroline JonesConsultant Fetal and Paediatric CardiologistAlder Hey Children’s Hospital NHS Foundation Trust, Liverpool

Parallel Sessions Committee

Dr Phil ArnoldConsultant Paediatric Cardiac AnaesthetistAlder Hey Children’s Hospital NHS Foundation Trust, Liverpool

Dr Steven BrearyConsultant Paediatrician and Neonatal LeadCountess of Chester NHS Foundation Trust

Linda GriffithsACHD Nurse SpecialistLiverpool Heart & Chest Hospital

Dr Musa KaleemConsultant Paediatric RadiologistAlder Hey Children’s Hospital NHS Foundation Trust, Liverpool

Dr Joyce LimConsultant Paediatric CardiologistAlder Hey Children’s Hospital NHS Foundation Trust

Dr Sameer MisraConsultantRoyal Bolton Hospital

Dr Kent ThorburnConsultant Paediatric IntensivistAlder Hey Children’s Hospital NHS Foundation Trust, Liverpool

Helen WalkerLead Cardiac Nurse SpecialistAlder Hey Children’s Hospital NHS Foundation Trust, Liverpool

Dr Alex WilliamsConsultant Paediatric RadiologistAlder Hey Children’s Hospital NHS Foundation Trust, Liverpool

International speakers

Dr Wayne TworetzkyProfessor of PediatricsDirector of Fetal Cardiology ProgramBoston Children’s Hospital, Massachusetts

Dr Xing QuanshengConsultant Congenital Cardiac SurgeonQuindao Women and Children’s Hospital, China

Dr Shi-Joon YooProfessor of Medical Imaging & PediatricsHospital for Sick Children University of Toronto

BCCA Faculty

Dr Jamie BenthamConsultant Interventional Congenital CardiologistLeeds Teaching Hospital NHS Trust

Dr Tara BharuchaConsultant Paediatric CardiologistUniversity Hospital, Southampton

Dr Sarah BowaterConsultant CardiologistQueen Elizabeth Hospital, Birmingham

Dr David CrosslandConsultant ACHD and Paediatric CardiologistFreeman Hospital, Newcastle

Dr Damien CullingtonACHD Consultant Leeds General Infirmary

Dr Vivienne EzzatConsultant ElectrophysiologistSt Bartholomew’s Hospital, London

Dr Matthew FentonConsultant Paediatric CardiologistHeart Transplant PhysicianGreat Ormond Street Hospital, London

Mr Martin KostolnyConsultant SurgeonGreat Ormond Street Hospital, London

Dr David LloydRegistrar Evelina London Children’s Hospital

Faculty Lists:

Dr Jasveer MangatPaediatric CardiologistGreat Ormond Street Hospital, London

Dr Chetan MehtaConsultant Paediatric CardiologistBirmingham Women & Children’s Hospital

Dr John O’SullivanConsultant Paediatric and Adult Congenital Car-diologistFreeman Hospital, Newcastle

Dr Kuberan PushparajahConsultant Paediatric CardiologistEvelina London Children’s Hospital

Prof John SimpsonProfessor of Paediatric and Fetal CardiologyEvelina London Children’s Hospital

Dr Ben SmithPaediatric CardiologistThe Royal Hospital for Children, Glasgow

Dr Graham StuartConsultant CardiologistElectrophysiologistBristol Royal Hospital for ChildrenBristol Heart Institute

BCCA Chairs

Dr Aaron BellConsultant Paediatric CardiologistHead of ServiceEvelina London Children’s Hospital

Mr Phil BothaConsultant Cardiac SurgeonBirmingham Children’s Hospital

Dr Natali ChungConsultant ACHDGuy’s & St Thomas’ NHS Foundation Trust, London

Dr Brian GrantConsultant Paediatric CardiologistRoyal Belfast Hospital for Sick Children

Dr Dominic HaresConsultant in Congenital CardiologyLeeds Teaching Hospital

Dr Marina HughesCardiologistRoyal Papworth Hospital, Cambridge

Dr Joyce LimConsultant Paediatric CardiologistAlder Hey Children’s Hospital NHS Foundation Trust

Mr Attilio LottoConsultant Congenital Cardiac SurgeonAlder Hey Children’s Hospital NHS Foundation Trust, Liverpool

Andrew ParryConsultant SurgeonBristol Royal Hospital for Children

Dr Anna SealeConsultant Paediatric CardiologistBirmingham Women & Children’s Hospital

Dr Arjamand ShauqConsultant Paediatric CardiologistAlder Hey Children’s Hospital NHS Foundation Trust, Liverpool

Dr Dirk WilsonConsultant Paediatric CardiologistUniversity Hospital of Wales

PECSIG Faulty

Dr Michael BowesConsultantAlder Hey Children’s Hospital NHS Foundation Trust, Liverpool

Dr Stephen BrearyConsultant PaediatricianCountess of Chester Hospital

Dr David CrosslandConsultant ACHD and Paediatric CardiologistFreeman Hospital, Newcastle

Dr Ramana DhannapuneniCardiac SurgeonAlder Hey Children’s Hospital NHS Foundation Trust, Liverpool

Dr Lindsey HunterConsultant Paediatric & Fetal CardiologistRoyal Hospital for Children, Glasgow

Anna JohnsonHighly Specialist CardiographerFreeman Hospital, Newcastle

Dr Robert JohnsonCardiologistAlder Hey Children’s Hospital NHS Foundation Trust, Liverpool

Dr Caroline JonesConsultant Fetal and Paediatric CardiologistAlder Hey Children’s Hospital NHS Foundation Trust, Liverpool

Prof David MabinConsultant PaediatricianRD & E Foundation Trust

Dr Vicky McKayConsultant Clinical GeneticistLiverpool Women’s NHS Foundation TrustLiverpool Heart & Chest Hospital

Dr Ram RamarajConsultant Paediatric CardiologistAlder Hey Children’s Hospital NHS Foundation Trust, Liverpool

Dr Sameer MisraConsultantRoyal Bolton Hospital

Dr Yogen SinghConsultant NeonatologistExpertise in Paediatrics CardiologyCambridge University Hospital NHS Foundation Trust

Dr Nim SubhedarConsultant NeonatologistLiverpool Women’s Hospital

Dr Poothirikovil VenugopalanConsultant Paediatrician with Cardiology Expertise& Honorary Senior Clinical LecturerBrighton & Sussex University Hospitals NHS Trust

BACCNA Faculty

Dr Ashique AhamedConsultant in Palliative CareManchester Royal Infirmary

James AnthonyClinical Nurse SpecialistUniversity Hospitals Birmingham

Emma BeagleholePhysiotherapistLeeds General Infirmary

Joanna BirkettAdult Congenital Nurse SpecialistLeeds Teaching Hospital

Alex BostockPatient

Mr Eddie CaldowLecturer in Clinical Exercise PhysiologyUniversity of Salford

Dr Robin CondliffeConsultant PhysicianSheffield Pulmonary Vascular Disease Unit

Dr Damien CullingtonACHD Consultant Leeds General Infirmary

Anna DinsdaleClinical Nurse SpecialistBarts Health NHS Trust

Lorraine EnglishCardiac Device and Heart Failure Nurse SpecialistLiverpool Heart & Chest Hospital

Angela Graves MSc BSc RNClinical LeadConsultant Nurse in Heart FailurePumping Marvellous Foundation

Toni HardimanCardiology Specialist NurseNorfolk & Norwich University NHS Trust

Anna HarrisonACHD Nurse SpecialistLiverpool Heart & Chest Hospital

Dr Petra JenkinsConsultant ACHD CardiologistClinical Lead ACHD-PHTNorth West Congenital Heart Disease Partnership

Amy SmeatonPatient

Dr Katy SilvermanClinical Psychologist for Cardiothoracic TransplantWythenshawe Hospital

Jo QuirkLead NurseYorkshire & Humber Congenital Heart Disease Network

Sheena VernonLead Nurse CHD NetworkUnited Hospitals Bristol Trust

PICU Faculty

Dr Philip ArnoldConsultant Paediatric Cardiac AnaesthetistAlder Hey Children’s Hospital NHS Foundation Trust

Dr Allan GoldmanDivisional Co-ChairDivisional DirectorGreat Ormond Street Hospital, London

Dr Marie HoranConsultant in Paediatric Intensive CareAlder Hey Children’s Hospital NHS Foundation Trust

Dr Petr JirasekConsultant in Paediatric Intensive CareAlder Hey Children’s Hospital NHS Foundation Trust

Dr Atul KalantreConsultant Paediatric CardiologistAlder Hey Children’s Hospital NHS Foundation Trust

Dr Tim MurphyConsultant Paediatric Cardiac AnaesthetistUniversity Hospital Bristol

Dr Naveen RajConsultant AnaesthetistAlder Hey Children’s Hospital NHS Foundation Trust

Dr Dan TaylorConsultantEvelina London Children’s Hospital

Dr Kent ThorburnConsultant in Paediatric Intensive CareClinical Director of Critical CareAlder Hey Children’s Hospital NHS Foundation Trust

Dr Shane TibbyConsultant in Paediatric Intensive CareEvelina London Children’s Hospital

Charlotte Tivy-JonesCICU Cardiac Nurse PractitionerGreat Ormond Street Hospital

CCNA Faculty

Patricia CoylePaediatric Cardiac Nurse SpecialistAlder Hey Children’s Hospital NHS Foundation Trust

Dr Gordon GladmanConsultant Paediatric CardiologistRoyal Liverpool Children’s HospitalJessica HartPatient

Amanda HaworthCardiac Nurse SpecialistAlder Hey Children’s Hospital NHS Foundation Trust

Vicky HughesPatient Representative

Rebecca HillAdvanced Nurse Practitioner Paediatric Inten-sive CareAlder Hey Children’s Hospital NHS Foundation Trust

Sophie JohnsonInnovation Project ManagerAlder Hey Children’s Hospital NHS Foundation Trust

Lynne LattenAdvanced Paediatric Dietician – Critical CareAlder Hey Children’s Hospital NHS Foundation Trust

Dr Robyn LottoSenior LecturerLiverpool John Moore’s University

Gillian McBurneyPaediatric Cardiac Nurse SpecialistAlder Hey Children’s Hospital NHS Foundation Trust

Michelle McLarenPaediatric Cardiac Nurse SpecialistAlder Hey Children’s Hospital NHS Foundation Trust

Denise MoranTrainee Advanced Nurse PractitionerAlder Hey Children’s Hospital NHS Foundation Trust

Marie MurphyCardiac Nurse SpecialistAlder Hey Children’s Hospital NHS Foundation Trust

Lorna O’BrienHealth Play SpecialistAlder Hey Children’s Hospital NHS Foundation Trust

Jayne PetersHigh Dependency Unit Ward ManagerAlder Hey Children’s Hospital NHS Foundation Trust

Dr Emma TwiggConsultant Clinical PsychologistAlder Hey Children’s Hospital NHS Foundation Trust

Helen WalkerLead Cardiac Nurse SpecialistAlder Hey Children’s Hospital NHS Foundation Trust, Liverpool

Naomi WarnerLead Pharmacist Cardiac & HDU ServicesAlder Hey Children’s Hospital NHS Foundation Trust

Kerry WatsonAPNP CardiacAlder Hey Children’s Hospital NHS Foundation Trust

Imaging Faculty

Mr Rafael GuererroConsultant Congenital Cardiac SurgeonAlder Hey Children’s Hospital NHS Foundation Trust, Liverpool

Dr Arjamand ShauqConsultant Paediatric CardiologistAlder Hey Children’s Hospital NHS Foundation Trust, Liverpool

Dr Shi-Joon YooProfessor of Medical Imaging & PediatricsHospital for Sick Children University of Toronto

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