besjana xhani - quality of life of people with hiv
TRANSCRIPT
Quality of life of people with HIV/AIDS receiving antiretroviral therapy in Albania
Prepared and presented by:
Xhani, B.; Naska, J.; Pilaca A.; Harxhi A.; Shkurti K.; Gashi V.; Shehu E.; Dede M.; Kalo, T.; Puca E.; Kurti Sh.; Qyra E.; Kraja Dh.
University Hospital Center of “Mother Teresa” Tirana, Department of Infectious Diseases
Purpose and TimelinePurpose and Timeline
Purpose
To understand how the HIV infection has affected the quality of life of people receiving ART.
Timeline September - December
Number of subjects included in the study:40 out of 130 that receives the ARV.
WHOQOL-HIV, Instrument
The WHOQOL-HIV is based on the WHOQOL-100
These questions respond to the definition of Quality of Life as individuals' perceptions of their position in life in the context of the culture and value systems in which they live and in relation to their goals, expectations, standards and concerns.
Domain I: Physical
Pain and discomfort Energy and fatigue Sleep and rest 50 Symptoms of PLWHA*
Domain II: Psychological
Positive feelings Thinking, learning, memory and concentration Self-esteem Body- image and appearance Negative feelings
Domain III: Level of Independence
Mobility Activities of daily living Dependence on medication or treatments Work capacity
Domain IV Social Relationships
Personal relationships Social support Sexual activity 51 Social Inclusion
Domain V Environment
Physical safety and security Home environment Financial resources Health and social care (accessibility and quality) Opportunities for acquiring new information and skills Participation and opportunities for recreation/ leisure activities Physical environment (pollution/noise/traffic/climate) Transportation
Domain VI Spirituality/Religion/ Personal Beliefs
Education Average age Civil status
Total Primary Secondary Tertiary Average age Married Single Widow
Female 40 20 10 10 15 20 2.5
Man 60 37.5 20 2.5 52.5 10 0
Total 100 57.5 30 12.5 40.5 67.5 30 2.5
Table.1. 2: Data about HIV status/infectionTable.1. 2: Data about HIV status/infection
HIV Serostatus Ways of infection by patients
Total Aids convertedDon’t know Asymptomatic
Sexual relations
Blood Products
No idea
Famale 40 5 32.5 5 27.5 10 2.5
Man 60 5 50 2.5 37.5 7.5 15
Total 100 10 82.5 7.5 65 17.5 17.5
Ways of infection by gender in %
4027.5
102.5
60
37.5
7.515
100
65
17.5 17.5
0
20
40
60
80
100
120
Gender S exual relations B lood P roducts no idea
F emale Male Total
Education Ways of infection by patients
Gender Primary Secondary TertiarySexualrelations
Blood Products
No idea
Female 16 8 4 4 27.5 10 2.5
Male 24 15 8 1 37.5 7.5 15
Total 40 23 12 5 65 17.5 17.5
Dependence of ways of infection by education in %
168
4 4
27.5
102.5
2415
81
37.5
7.515
40
23
125
17.5 17.5
65
0
10
20
30
40
50
60
70
Gender P rimary S econdary Tretiary S exualrelations
B loodP roducts
No idea
F emale Male Total
Results of domain in %Results of domain in %
Domain Domain TotalTotal
Domain 1: Physical 42
Domain 2: Psychological 42
Domain 3: Level of Independence 38
Domain 4: Social Relationship 42
Domain 5: Environment 37
Domain 6: Spiritually, Religion, Personal Beliefs 32
Percentage by domains inc luded in the s tudy
39
32
37
42
38
42
42
Domain 1 P hys ical
Domain 2 P s ychological
Domain 3 Level ofIndipendence
Domain 4 S oc ialR elations hip
Domain 5 E nvironment
Domain 6 S piritually,R eligion, P ers onalB eliefsTotali
HIV Serostatus
Total Aids converted Don’t know Asymptomatic
Female 40 5 32.5 5
Male 60 5 50 2.5
Total 100 10 82.5 7.5
Hiv S erios tatus by gender in %
40
5
32.5
5
60
5
50
2.5
100
10
82.5
7.5
0
20
40
60
80
100
120
Total A ids converted Don’t know As ymptomatic
F emale Male Total
To what extent are you bothered by people blaming you for your HIV status?
50% of them do no tell anyone about their
diseases.
Not at all A little Moderate amount
Very much
An extreme amount
Total in % 15 5 10 20 0
62.5 % of patients interviewed were hopeless about their future according to their quality of life, while 37.5 percent of them expressed negative feelings such as depression and anxiety during the day.
As antiretroviral medications become more available in these areas, community members and care providers can help clients realize the possibility of living well with HIV/AIDS, and can work with clients to improve functional ability and control symptom intensity to make living well a reality.
