the importance of college students joining the nmdp
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The Importance of College Students Joining the NMDP
Meagan Rudy
Outline of PresentationWhat is the NMDP and Be the Match?
How important are these drives in general?
How important is it for college students to join the NMDP at
these drives?
Examples of drives
Other ways that college students
can help
National Marrow Donor Program◦Founded in 1987◦9 million donors on the registry
Most ethnically and racial diverse registry in the world
◦Have facilitated 43,000+ transplants◦5,200+ transplants per year
What is the NMDP?
Be the Match Registry◦New name for the NMDP Registry◦Created in 2009◦Combined with other registries, more than
16.5 million donors (About Be the Match)
What is the NMDP?
Kids Beating Cancer◦Founded in 1992◦NMDP donor recruiter for
Florida◦Has funded more than
2,000 drives◦Have helped 5,400 children
and their families 31 marrow and blood stem cell
donation requests in 2010◦$8 million raised since its
founding
What is the NMDP?
“Fund the Match”◦Kids Beating Cancer’s source of funds◦Funds all out-of-pocket expenses that
the family of the sick child and Medicaid cannot cover, including: Lab testing on family members Donor search and procurement Patient pre-workup costs Transplant procedure
What is the NMDP?
What is the NMDP? Hats & Heroes Ball
◦ Annual gala held to raise funds for “Fund the Match” program Started in 2004 Seventh year
◦ Silent auction, live auction, and main raffle prize
◦ Expected revenue to be generated = $250,000
◦ 400 guests expected to attend
Very important to get marrow/stem cell donors◦ 70% of patients will not find a match in family (Who We Are)◦ 75% of sick children will not find a match in family (Kids
Beating Cancer – Step by Step Diagnosis to Transplant) Very important to get financial donors
◦ Total cost for one child depends on many factors, including: If he/she needs a bone marrow, a PBSC, or an umbilical cord
blood transplant; If his/her insurance or Medicaid will cover any of the costs; and If the donor is related to him/her
Very important to get the word out (and have the word spread around)
How important are these drives in general?
Education◦ Reminding people that they could
save a life◦ Explaining that more minorities
are needed on the registry◦ Enlightening people that more
than one procedure exists PBSC versus Bone Marrow
donation◦ Informing people about our
organization Internship and volunteering
opportunities
How important are these drives in general?
PBSC Donation◦ More common than bone marrow
donation◦ Non-surgical◦ Steps:
1. Injected with fligrastim 5 days prior to donation
2. Blood will be removed through one IV on one arm with a machine similar to one used for dialysis
3. Stem cells will be filtered out while blood is given back to donor through the other IV in the other arm
◦ (Possible) side effects: Headache Bone aches Muscle aches
How important are these drives in general?
Bone Marrow Donation◦ Less common than
PBSC donation “Last resort” transplant
for recipient
◦ Outpatient surgery◦ Needle will be used to
extract bone marrow from pelvic bone
◦ Side effects: Minor soreness in lower
back
How important are these drives in general?
How important is it for college students to join the NMDP at these drives?
Number of Deaths in 2009, both genders and all races (Kochanek, Xu, Murphy, Miniño, & Kung, 2010, p. 33)
21,2874%
42,443 8%
74,548 15%
187,26737%
181,86136%
18-2425-3435-4445-5455-60
How important is it for college students to join the NMDP at these drives?
Top 3 Causes of Death by Age Group (Kochanek, Xu, Murphy, Miniño, & Kung, 2010, pp. 53-54)
18-24 25-44 45-60
Number 1 cause of death
Death rate per 100,000
Accidents (Motor vehicle + all other)
8,646
Accidents (Motor vehicle + all other)
28,844
Any cancer
126,035
Number 2 cause of death
Death rate per 100,000
Assault (Homicide)
3,374
Any cancer
16,236
Any heart disease
82,963
Number 3 cause of death
Death rate per 100,000
Intentional self-harm (Suicide)
3,039
Any heart disease
14,053
All other causes
3,039
How important is it for college students to join the NMDP at these drives?
Percentage of individuals 18 and older with certain chronic conditions (Pleis, Ward, & Lucas, 2010, p. 157)
Diabetes Ulcers Kidney disease Liver disease Arthritis Chronic joint symptoms0.00%
5.00%
10.00%
15.00%
20.00%
25.00%
30.00%
35.00%
0.78% 1.24%0.26% 0.21%
2.10%
4.36%
2.22%3.56%
0.74% 0.59%
6.00%
12.44%
10.16%
7.76%
1.60% 1.84%
24.16%
29.52%
18-24 25-44 45-60
How important is it for college students to join the NMDP at these drives?
Percentage of individuals 18 and older who are limited in doing daily activities due to at least one chronic condition (Adams, Martinez, &
Vickerie, 2010, p. 84)
18-24 25-44 45-600.00%
10.00%
20.00%
30.00%
40.00%
50.00%
60.00%
70.00%
24.27%
69.33%65.92%
1.66%4.74%
14.08%
1.58%4.52%
13.68%
Not limited Limited
Limited due to 1+ chronic conditions
How important is it for college students to join the NMDP at these drives?
Percentage of individuals 18 and older who have difficulty doing certain physical tasks (Pleis, Ward, & Lucas, 2010, p. 172)
Any physicial difficulty
Walk 1/4 of a mile
Climb up 10 steps without
rest
Stand and sit for 2 hours (combined)
Stoop, bend, or kneel & reach
over head (combined)
Grasp or handle small objects
Lift or carry 10 pounds
Push or pull large objects
18-24 0.0156 0.0052 0.00340000000000001
0.0127 0.00980000000000005
0.00160000000000001
0.00340000000000001
0.00570000000000001
25-44 0.0444000000000001
0.0148 0.0096 0.0363 0.0282 0.0024 0.0096 0.0163
45-60 0.150400000000001
0.0624000000000001
0.0456 0.132 0.116 0.0168 0.0392 0.0608
1.00%
3.00%
5.00%
7.00%
9.00%
11.00%
13.00%
15.00%
How important is it for college students to join the NMDP at these drives?
Percentage of individuals 18 and older with certain heart diseases (Pleis, Ward, & Lucas, 2010, p. 148)
All Types Coronary Disease Hypertension Stroke0.00%
5.00%
10.00%
15.00%
20.00%
25.00%
1.14%0.28%
2.26%
0.16%
3.26%
0.82%
6.44%
0.44%
10.48%
5.76%
26.08%
2.00%
18-24 25-44 45-60
How important is it for college students to join the NMDP at these drives?
Percentage of individuals 18 and older with certain respiratory diseases (Pleis, Ward, & Lucas, 2010, p. 151)
Emphysema Had asthma Still has asthma Hay fever Chronic bronchitis0.00%
2.00%
4.00%
6.00%
8.00%
10.00%
12.00%
0.08%
3.71%
1.97%1.66%
0.72%0.22%
10.59%
5.63%
4.74%
1.88%2.08%
9.84%
6.24%
8.00%
4.48%
18-24 25-44 45-60
How important is it for college students to join the NMDP at these drives?
Percentage of individuals 18 and older with cancer (Pleis, Ward, & Lucas, 2010, p. 154)
Any cancer Breast cancer Cervical cancer Prostate cancer0.00%
1.00%
2.00%
3.00%
4.00%
5.00%
6.00%
7.00%
8.00%
0.44%0.05% 0.21%
0.00%
1.26%
0.15%
0.59%
0.00%
7.52%
1.44%1.20% 1.12%
18-24 25-44 45-60
Valencia College◦ Occurred on 7/5 and 7/6◦ Obtained 50 donors (38 at Valencia East & 12 at
Valencia West)
Examples of Drives
Examples of Drives
Examples of Drives
Examples of Drives
Examples of Drives
Donate money
Volunteer
Host a bone marrow/stem cell donor drive
Help spread the word through Facebook and Twitter
Other ways that college students can help
About Be the Match. (n.d.). Retrieved July 8, 2011, from http://www.marrow.org/ABOUT/About_Be_The_Match/index.html
Advances in Transplant. (n.d.). Retrieved July 13, 2011, from http://www.marrow.org/PATIENT/Undrstnd_Disease_Treat/Undrstnd_Treat_Opt/Lrn_BMT_Cord/Advances_in_Tx/
Adams, P., Martinez, M., & Vickerie, J. (2010). Summary health statistics for the U.S. population: National Health Interview Survey, 2009 [Electronic version]. National Center for Health Statistics: Vital and Health Statistics, 10(248), 84. Retrieved June 27, 2011, from http://www.cdc.gov/nchs/data/series/sr_10/sr10_248.pdf
Grow the Registry. (n.d.). Retrieved June 30, 2011, from http://www.marrow.org/HELP/Recruit_Donors/index.html
Kids Beating Cancer – About Us. (n.d.). Retrieved July 18, 2011, from http://www.kidsbeatingcancer.com/aboutus.html
Kids Beating Cancer – Message from our Founder. (n.d.). Retrieved July 19, 2011, from http://www.kidsbeatingcancer.com/aboutus/foundermessage.html
Kids Beating Cancer – Step by Step Diagnosis to Transplant. (n.d.). Retrieved July 20, 2011, from http://www.kidsbeatingcancer.com/medicalresources/step-by-step-diagnosis-to-transplant.html
Kochanek, K., Xu, J., Murphy, S., Miniño, A., & Kung, H. (2010). Death: Preliminary Data for 2009 [Electronic version]. National Vital Statistic Reports, 59(4), 33, 53-54. Retrieved June 30, 2011, from http://www.cdc.gov/nchs/data/nvsr/nvsr59/nvsr59_04.pdf
Pleis, J., Ward, B., & Lucas, J. (2010). Summary health statistics for U.S. adults: National Health Interview Survey, 2009 [Electronic version]. National Center for Health Statistics: Vital and Health Statistics, 10(249), 148-157, 172. Retrieved June 27, 2011, from http://www.cdc.gov/nchs/data/series/sr_10/sr10_249.pdf
Steps of Bone Marrow & PBSC Donation. (n.d.). Retrieved July 27, 2011, from http://www.marrow.org/DONOR/When_You_re_Asked_to_Donate_fo/Steps_of_Donation/index.html
The Need for Donors. (n.d.). Retrieved July 9, 2011, from http://www.marrow.org/HELP/Recruit_Donors/Need_for_Donors/index.html
Who We Are. (n.d.). Retrieved July 3, 2011, from http://www.marrow.org/ABOUT/Who_We_Are/index.html
Works Cited
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