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1 Washington State Department of Social & Health Services – We Transform Lives Bill Moss, Chair Aging and Long Term Services Administration July 9, 2015 Alzheimer’s Disease Working Group Session 6 – Finalizing the AD Plan Recommendations Vision People with Alzheimer’s disease and their families will receive the support and care they need through early detection and diagnosis, high quality health and long term supports and services, and communities that are prepared to meet their needs.

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Page 1: Alzheimer’s Disease Working Group · Today’s Meeting Goals 1. Finalize and vote on the recommendations. 2. Review implementation proposal. 3. Discuss timeline for public input

1 Washington State Department of Social & Health Services – We Transform Lives

Bill Moss, Chair Aging and Long Term Services Administration July 9, 2015

Alzheimer’s Disease Working Group Session 6 – Finalizing the AD Plan Recommendations

Vision People with Alzheimer’s disease and their families will receive the support and care they need through early detection and diagnosis, high quality health and long term supports and services, and communities that are prepared to meet their needs.

Page 2: Alzheimer’s Disease Working Group · Today’s Meeting Goals 1. Finalize and vote on the recommendations. 2. Review implementation proposal. 3. Discuss timeline for public input

2 Washington State Department of Social & Health Services – We Transform Lives

Welcome

Page 3: Alzheimer’s Disease Working Group · Today’s Meeting Goals 1. Finalize and vote on the recommendations. 2. Review implementation proposal. 3. Discuss timeline for public input

3 Washington State Department of Social & Health Services – We Transform Lives

Today’s Meeting Goals

1. Finalize and vote on the recommendations. 2. Review implementation proposal. 3. Discuss timeline for public input and final

release of our State Plan. 4. Provide input on other sections of the plan,

including adding suggested resources. 5. Review our achievement to date.

Page 4: Alzheimer’s Disease Working Group · Today’s Meeting Goals 1. Finalize and vote on the recommendations. 2. Review implementation proposal. 3. Discuss timeline for public input

4 Washington State Department of Social & Health Services – We Transform Lives

Agenda Overview

10:00 – 10:15 a.m. Welcome

10:15 – 10:50 a.m. Palliative/Hospice Care and Dementia

10:50 – 1:30 p.m. Review Goals, Strategies and Recommendations

12:00 – 12:30 p.m. Working Lunch

12:30 – 1:30 p.m. Continue work on Goals, Strategies and Recommendations

1:30 – 1:45 p.m. Break

1:45 – 2:45 p.m. What Happens Next? Finalizing and Implementing the Plan

2:45 – 3:00 p.m. Public Comment Period

3:00 – 3:30 p.m. Wrap Up and Celebration

Page 5: Alzheimer’s Disease Working Group · Today’s Meeting Goals 1. Finalize and vote on the recommendations. 2. Review implementation proposal. 3. Discuss timeline for public input

5 Washington State Department of Social & Health Services – We Transform Lives

Palliative/Hospice Care and Dementia: Best Practices and Next Steps

Lee Burnside, MD Mimi Pattison, MD

Page 6: Alzheimer’s Disease Working Group · Today’s Meeting Goals 1. Finalize and vote on the recommendations. 2. Review implementation proposal. 3. Discuss timeline for public input

6 Washington State Department of Social & Health Services – We Transform Lives

Palliative/Hospice Care and Dementia

Table discussions: 1. End of life care is an emotional topic.

What are your reactions to what you heard today?

2. What does a good day look like, for a person with end-stage dementia?

3. Can you think of ways to continue the conversation, at both a personal and a systems level?

Page 7: Alzheimer’s Disease Working Group · Today’s Meeting Goals 1. Finalize and vote on the recommendations. 2. Review implementation proposal. 3. Discuss timeline for public input

7 Washington State Department of Social & Health Services – We Transform Lives

Review and Vote on Strategies and Recommendations

Increase public awareness, engagement

and education about dementia.

Prepare communities for significant growth in

dementia population.

Ensure well-being and safety of people living

with dementia and their family caregivers.

Ensure access to comprehensive supports

for family caregivers.

Identify dementia early, and provide dementia-

capable, evidenced based health care.

Ensure affordable, high quality, coordinated long-term services and

supports (LTSS) available in the setting of choice.

Promote research and innovation into the causes and effective

interventions for dementia.

1 2 3

4 5 6

7

Page 8: Alzheimer’s Disease Working Group · Today’s Meeting Goals 1. Finalize and vote on the recommendations. 2. Review implementation proposal. 3. Discuss timeline for public input

8 Washington State Department of Social & Health Services – We Transform Lives

Review and Vote on Strategies and Recommendations

Increase public awareness, engagement

and education about dementia.

Prepare communities for significant growth in

dementia population.

Ensure well-being and safety of people living

with dementia and their family caregivers.

Ensure access to comprehensive supports

for family caregivers.

Identify dementia early, and provide dementia-

capable, evidenced based health care.

Ensure affordable, high quality, coordinated long-term services and

supports (LTSS) available in the setting of choice.

Promote research and innovation into the causes and effective

interventions for dementia.

1 2 3

4 5 6

7

Page 9: Alzheimer’s Disease Working Group · Today’s Meeting Goals 1. Finalize and vote on the recommendations. 2. Review implementation proposal. 3. Discuss timeline for public input

9 Washington State Department of Social & Health Services – We Transform Lives

Review and Vote on Strategies and Recommendations

Increase public awareness, engagement

and education about dementia.

Prepare communities for significant growth in

dementia population.

Ensure well-being and safety of people living

with dementia and their family caregivers.

Ensure access to comprehensive supports

for family caregivers.

Identify dementia early, and provide dementia-

capable, evidenced based health care.

Ensure affordable, high quality, coordinated long-term services and

supports (LTSS) available in the setting of choice.

Promote research and innovation into the causes and effective

interventions for dementia.

1 2 3

4 5 6

7

Page 10: Alzheimer’s Disease Working Group · Today’s Meeting Goals 1. Finalize and vote on the recommendations. 2. Review implementation proposal. 3. Discuss timeline for public input

10 Washington State Department of Social & Health Services – We Transform Lives

Review and Vote on Strategies and Recommendations

Increase public awareness, engagement

and education about dementia.

Prepare communities for significant growth in

dementia population.

Ensure well-being and safety of people living

with dementia and their family caregivers.

Ensure access to comprehensive supports

for family caregivers.

Identify dementia early, and provide dementia-

capable, evidenced based health care.

Ensure affordable, high quality, coordinated long-term services and

supports (LTSS) available in the setting of choice.

Promote research and innovation into the causes and effective

interventions for dementia.

1 2 3

4 5 6

7

Page 11: Alzheimer’s Disease Working Group · Today’s Meeting Goals 1. Finalize and vote on the recommendations. 2. Review implementation proposal. 3. Discuss timeline for public input

11 Washington State Department of Social & Health Services – We Transform Lives

Review and Vote on Strategies and Recommendations

Increase public awareness, engagement

and education about dementia.

Prepare communities for significant growth in

dementia population.

Ensure well-being and safety of people living

with dementia and their family caregivers.

Ensure access to comprehensive supports

for family caregivers.

Identify dementia early, and provide dementia-

capable, evidenced based health care.

Ensure affordable, high quality, coordinated long-term services and

supports (LTSS) available in the setting of choice.

Promote research and innovation into the causes and effective

interventions for dementia.

1 2 3

4 5 6

7

Page 12: Alzheimer’s Disease Working Group · Today’s Meeting Goals 1. Finalize and vote on the recommendations. 2. Review implementation proposal. 3. Discuss timeline for public input

12 Washington State Department of Social & Health Services – We Transform Lives

Review and Vote on Strategies and Recommendations

Increase public awareness, engagement

and education about dementia.

Prepare communities for significant growth in

dementia population.

Ensure well-being and safety of people living

with dementia and their family caregivers.

Ensure access to comprehensive supports

for family caregivers.

Identify dementia early, and provide dementia-

capable, evidenced based health care.

Ensure affordable, high quality, coordinated long-term services and

supports (LTSS) available in the setting of choice.

Promote research and innovation into the causes and effective

interventions for dementia.

1 2 3

4 5 6

7

Page 13: Alzheimer’s Disease Working Group · Today’s Meeting Goals 1. Finalize and vote on the recommendations. 2. Review implementation proposal. 3. Discuss timeline for public input

13 Washington State Department of Social & Health Services – We Transform Lives

Review and Vote on Strategies and Recommendations

Increase public awareness, engagement

and education about dementia.

Prepare communities for significant growth in

dementia population.

Ensure well-being and safety of people living

with dementia and their family caregivers.

Ensure access to comprehensive supports

for family caregivers.

Identify dementia early, and provide dementia-

capable, evidenced based health care.

Ensure affordable, high quality, coordinated long-term services and

supports (LTSS) available in the setting of choice.

Promote research and innovation into the causes and effective

interventions for dementia.

1 2 3

4 5 6

7

Page 14: Alzheimer’s Disease Working Group · Today’s Meeting Goals 1. Finalize and vote on the recommendations. 2. Review implementation proposal. 3. Discuss timeline for public input

14 Washington State Department of Social & Health Services – We Transform Lives

Review and Vote on Strategies and Recommendations

Increase public awareness, engagement

and education about dementia.

Prepare communities for significant growth in

dementia population.

Ensure well-being and safety of people living

with dementia and their family caregivers.

Ensure access to comprehensive supports

for family caregivers.

Identify dementia early, and provide dementia-

capable, evidenced based health care.

Ensure affordable, high quality, coordinated long-term services and

supports (LTSS) available in the setting of choice.

Promote research and innovation into the causes and effective

interventions for dementia.

1 2 3

4 5 6

7

Page 15: Alzheimer’s Disease Working Group · Today’s Meeting Goals 1. Finalize and vote on the recommendations. 2. Review implementation proposal. 3. Discuss timeline for public input

15 Washington State Department of Social & Health Services – We Transform Lives

Strategies and Recommendations – What’s Next?

Please complete your votes. Ensure your name is on the handout. Turn in today, or send to Lynne Korte by Wednesday, July 15th. [email protected] OR via fax: 360.438.8633 OR, if needed, by mail: Lynne Korte, Aging and Long-Term Support Administration Department of Social & Health Services PO Box 45600 Olympia, WA 98504-5600

Page 16: Alzheimer’s Disease Working Group · Today’s Meeting Goals 1. Finalize and vote on the recommendations. 2. Review implementation proposal. 3. Discuss timeline for public input

16 Washington State Department of Social & Health Services – We Transform Lives

Break

Page 17: Alzheimer’s Disease Working Group · Today’s Meeting Goals 1. Finalize and vote on the recommendations. 2. Review implementation proposal. 3. Discuss timeline for public input

17 Washington State Department of Social & Health Services – We Transform Lives

Timeline

Today’s Task

Page 18: Alzheimer’s Disease Working Group · Today’s Meeting Goals 1. Finalize and vote on the recommendations. 2. Review implementation proposal. 3. Discuss timeline for public input

18 Washington State Department of Social & Health Services – We Transform Lives

Finalize Draft PlanJuly - August

Seek Public Comment

Sept 4 – 26, 2015

Edits as NeededSept 27 – Oct 9

Review by ADWGSubmit Final Plan to OFM on November

1, 2015

Timeline – Future Work

Today’s Task

Date TBD

Page 19: Alzheimer’s Disease Working Group · Today’s Meeting Goals 1. Finalize and vote on the recommendations. 2. Review implementation proposal. 3. Discuss timeline for public input

19 Washington State Department of Social & Health Services – We Transform Lives

Implementation Plan Highlights

1. Proposal to establish a 2nd generation ADWG advisory group

2. Create a Steering Committee (DSHS, DOH, HCA, Alzheimer’s Association, Alzheimer’s Society, ElderCare Alliance, Governor’s Office), administratively housed at DSHS

3. Submit progress report to legislature annually

4. Create and maintain a network of advocates and experts to help implement and support the plan

Page 20: Alzheimer’s Disease Working Group · Today’s Meeting Goals 1. Finalize and vote on the recommendations. 2. Review implementation proposal. 3. Discuss timeline for public input

20 Washington State Department of Social & Health Services – We Transform Lives

Implementation Plan Advice

• Do you have any additional advice on the current draft of the Implementation Plan?

• Do you support the development of a Steering Committee for 2016 comprised of committee chairs and other members?

• Have we correctly identified the recommendations we should start working on right away?

• Are you personally interested in continuing this work?

Page 21: Alzheimer’s Disease Working Group · Today’s Meeting Goals 1. Finalize and vote on the recommendations. 2. Review implementation proposal. 3. Discuss timeline for public input

21 Washington State Department of Social & Health Services – We Transform Lives

Public Comment Period

Page 22: Alzheimer’s Disease Working Group · Today’s Meeting Goals 1. Finalize and vote on the recommendations. 2. Review implementation proposal. 3. Discuss timeline for public input

22 Washington State Department of Social & Health Services – We Transform Lives

Action Items

• Next ADWG Meeting: • TBD, October

• WA Alzheimer’s State Plan Kickoff

• TBD, possible event in November • TBD, January or February • Capitol Rotunda, Olympia

• Please complete and turn in your recommendations

tally sheets, brief questionnaire and session evaluation

Page 23: Alzheimer’s Disease Working Group · Today’s Meeting Goals 1. Finalize and vote on the recommendations. 2. Review implementation proposal. 3. Discuss timeline for public input

23 Washington State Department of Social & Health Services – We Transform Lives

Session Evaluation

Page 24: Alzheimer’s Disease Working Group · Today’s Meeting Goals 1. Finalize and vote on the recommendations. 2. Review implementation proposal. 3. Discuss timeline for public input

24 Washington State Department of Social & Health Services – We Transform Lives

Wrap-Up & Celebration