A Community Centered Approach to the Development of a Comparative Effectiveness

Research Question

Bryan Gibson, DPT, PhDElisa Amador

Ana Sanchez Birkhead, PhDNancy Allen, APRN, PhD

BackgroundComparative effectiveness research – the direct comparison of existing healthcare interventions

to determine which works best for which patients and which pose the greatest benefits

and harms

Which treatment works best, for whom, under what circumstances

PCORI – Pipeline to proposal

Tier I - seed money to individuals and groups who have healthcare research ideas and who believe

in the promise of patient-centered research-- community-building and engagement projects.

Tier II -develop research capacity, create new partnerships, and build the infrastructure

needed to conduct research.

Tier 1- creation of CABCreation of a community advisory board (CAB)

U of U researchers

community representatives

community members

Tier 1- creation of CABseveral meetings :

What is patient centered outcomes research ?

What is comparative effectiveness research ?

What are the specific goals of this project ?

Development of potential questions

CAB members/community members affected by type 2 diabetes first told their “Diabetes stories”

Group reviewed each story to distill out the problems faced

collaborative brainstorming session of potential solutions

Based on interests/expertise focused on technology to support

Self management

Community SurveyUsed table of problems - potential solutions to

develop conjoint survey (marketing type survey to look at desired features)

Survey completed by 135 community members on iPad delivered by community health workers

Next stepsPilot testing of different technologies

IPad with appsActivity monitorContinuous glucose monitor

What works well? What is missing? What should be integrated together into a comprehensive intervention we can test?

Lessons learnedMeeting time- evenings only for community

members, day for non profit representatives

Education- continuous reorientation to what is PCOR/CER?

Keeping people engaged- combine support meeting with research meeting

Community organizations critical to success

AcknolwedgementsThis project is supported by the patient centered

oucomes research institute Tier I and Tier 2 funding (7737210)