2019 SPRING FASHION SOIRÉE

VOLUNTEER INFORMATION AND

EVENT DETAILS

THE MISSION: Runway to Hope’s mission is to support families primarily in Central Florida fighting Pediatric Cancer while seeking a cure.

THE VISION: Through relationships with children’s hospitals, Runway to Hope fosters collaborative efforts among corporations, local businesses, and philanthropists to not only raise funds and awareness, but also bring new programs and initiatives to the pediatric cancer community, while providing direct support and aid primarily to Central Florida children and their families impacted by pediatric cancer.

DIRECT FINANCIAL SUPPORT: Through the Runway to Hope Family Assistance Program, direct aid is provided to families who are in desperate need of financial support. Runway to Hope covers expenses such as gas and groceries, water, electricity, mortgage and rent, car payments, and sadly, at times, funeral and end-of-life expenses.

RECOGNITION:Runway to Hope has received recognition from the Central Florida’s Association of Fundraising Professionals on National Philanthropy Day in the following categories: Orlando Magic Youth Foundation Creating Change Honoree (2017), Excellence in Fundraising by a Non-Profit Organization (2014), and “Outstanding Philanthropists” honoring Runway’s co-founders Mark and Josie NeJame (2014). Runway to Hope’s Spring Fashion Soiree has been named “Best Charity Event” a combined total of fourteen times in its eight year existence by the Orlando Business Journal, Orlando Magazine, and Orlando Style in addition to being featured in People Magazine and Marie Claire. Runway to Hope was featured on CNN’s segment Champions for Change in June 2017 as Don Lemon’s charity.

RUNWAY TO HOPE’S 9TH ANNUAL

SPRING FASHION SOIRÉE

The Runway to Hope Spring Fashion Soiree is the organization’s signature fundraising event of the year! The highlight of the evening is an inspiring and heartwarming fashion show featuring more than 175 incredible and brave children, all of whom are currently battling or have overcome their pediatric cancer. Modeling much more than clothing, these inspiring children walk the runway hand-in-hand with one of our national and local celebrity escorts. The models who take the stage are all between the ages of 2 and 18. It is an incredible experience to watch these kids show off their strength and unwavering spirits as they strut and smile down the runway! The Runway to Hope Spring Fashion Soiree is a celebration of these children and their

incomparable courage. The annual Spring Fashion Soiree is also a true testament to the support and passion the Central Florida community has shown towards this inspiring cause. Since Runway to Hope’s inception in 2010, the Soiree has soared in attendance as well as the amount of dollars raised. In May 2018, the event hosted approximately 2,300 guests and an outstanding amount of $1.2 million was pledged during this single, spectacular evening! As one of the most highly anticipated evenings of the year, the Runway to Hope Spring Fashion Soiree takes place at the luxurious Rosen Shingle Creek Resort, one of our most valued corporate sponsors.

WHEN & WHERE: May 18, 2019

Rosen Shingle Creek

9939 Universal Boulevard

Orlando, FL 32819

OUR HOSPITAL PROMISE

The funds raised by Runway to Hope’s Spring Fashion Soiree benefit the pediatric oncology programs at our

local children’s hospitals as well as Runway to Hope’s Family Assistance Program.

FLORIDA HOSPITAL FOR CHILDREN: Runway to Hope’s initial $1 million pledge funded the Pediatric Palliative Care Program at Florida Hospital for Children. This program provides physical, emotional, and spiritual support to children and their families who are suffering from a pediatric cancer diagnosis. In 2017, Runway to Hope completed their $1 million pledge and started a new promise to the hospital of $500,000. This new pledge will fund a portion of the pediatric oncology floor renovation which was completed in December of 2017. The new floor grew to include 12 large patient rooms, a family lounge, and a play room. This renovation of the hospital wing has already provided much needed comfort and top of line equipment to serve the families living and battling pediatric cancer in this unit. In 2018, an additional $10,000 was pledged toward the pediatric oncology division of CAR T-cell immunotherapy that will be offered by Florida Hospital in 2019. Florida Hospital will be one of the first pediatric hospitals in Central Florida at which patients will be able to receive the CD19-CAR T-cell product, and this breakthrough treatment will assist our common goal to advance cures for our patients. They are working to develop cell-based immunotherapies to improve outcomes for children with

cancer who currently cannot be cured.

NEMOURS CHILDREN’S HOSPITAL:

At Nemours Children’s Hospital, Runway to Hope’s initial $1 million pledge funded the Community Children’s Oncology Program, which is a database that improves access to leading-edge therapies, research, and resources for pediatric cancer patients throughout Northern and Central Florida. Additionally, funding supported the Pediatric Interventional Radiology Program, which serves cancer patients directly by utilizing rare and advanced imaging technologies for localized treatment. Runway to Hope completed their $1 million pledge in 2018 and started a new promise to the hospital of $500,000. In 2019, funding will continue to support the Pediatric Interventional Radiology Program by purchasing new equipment and training for Microwave Ablation technology used in treating soft tissue tumors. This technology will reduce the children’s side effects and offer the opportunity to have potentially life-saving care. A brand new Survivorship Program is also being funded, which will give physicians access to a database containing information on how patients reacted to their treatments so doctors can better treat all of the children diagnosed with pediatric cancer.

ARNOLD PALMER HOSPITAL FOR CHILDREN:

Runway to Hope’s contribution supported Central Florida’s first ever comprehensive Pediatric Neuro-Oncology Program, which is comprised of a team that provides the full range of medical and emotional support specific to pediatric brain tumor patients during and after their treatment. Runway to Hope has

completed their $1 million pledge to Arnold Palmer Hospital for Children.

FAMILY ASSISTANCE PROGRAM

In addition to the combined hospital pledge to the children’s hospitals, Runway to Hope provides desperately needed direct financial assistance to children and their families affected by childhood cancer. When a child is diagnosed with cancer, the entire family is put to the test and faces incomprehensible, life-altering situations. Families of childhood cancer patients often experience a dramatic decrease in income when caring for their sick child. Often times one parent has to quit work to become a full time caregiver for their child. Their entire schedule is often quickly devoted to being bedside in a hospital setting or dedicating all of their time and resources to their child’s care. Added to this is the additional stress

and inability to afford the bills and expenses related to medical treatment, which can be very overwhelming.

The financial gifts made to Runway to Hope assist with many necessities including: transportation to and from the child’s life-saving treatments, mortgage and rent payments, car payments and repairs, as well as frequent requests to maintain the essentials in a home such as electricity and water. Tragically, end of life and funeral costs are sometimes a reality for these families who have been both emotionally and financially devastated. The needs are endless and solely funded by philanthropy. Childhood cancer is not a battle these families can or should fight alone.

Runway to Hope’s Family Assistance Program continues its mission to provide direct financial aid and assistance to families in need who are being treated at all three of Central Florida’s children’s hospitals.

Moreover, funds from the Family Assistance Program are utilized

to provide the children and their families a spectacular night at

our annual Spring Fashion Soiree. Our beautiful warriors and their

families are treated to a night and experience of a lifetime. With

most families struggling financially as they care for their child with

cancer, there are usually far too few funds, energy, or time to break

away from the daily tasks and struggles. Runway to Hope helps to

change all of that. Providing a new outfit to each model, picked out

by the child and one of our wonderful volunteers, at the Boys and

Girls Bash held weeks before, the night is one for them to dress up along with their families and shine. In addition to

their new outfits, the meals, drinks, and special needs that may be required are all paid for by Runway to Hope’s Family

Assistance Program. Countless children and their families have told us how the night was truly the best of their lives,

as the experience was truly an unforgettable one for them. At least one third of the attendees at the annual gala are

actually the children and their families. After all, it’s all about them!

RUNWAY TO HOPE VOLUNTEER RESPONSIBILITIES

9TH ANNUAL SPRING FASHION SOIREE M AY 18TH, 2019

All volunteers are expected to arrive at Rosen Shingle Creek promptly at their designated time. Please visit www.runwaytohope.org to submit your volunteer form as well as a copy of your photo identification. Runway to Hope’s Volunteer Manager is Renee Smith and she may be reached at renee@runwaytohope.org or 407-802-1544 for any questions or concerns.

CHECK-IN VOLUNTEERS: 30 Volunteers: Arrive at 4:00pm

Volunteers will be stationed at the check-in locations equipped with guest names and table assignments. Upon guest arrival, volunteers will assist them with any questions they may have, as well as be prepared to share their ticketing and/or seating information with them. Not all guests will need to check-in. If they have their printed entry ticket or access to the barcode on their mobile device, they may proceed directly to the ticket scan entry line. A small group from this volunteer section will scan tickets for guest entry into the pre-function area. There will also be volunteers from this group stationed as floaters throughout the ballroom and pre-function area to help direct guests and assist with any questions that may arise. All check-in volunteers will encourage guests to register with Qtego. This is the auction bidding service used for our Spring Fashion Soiree. There will be a brief training session on how to register guests prior to guest arrival.

AUCTION VOLUNTEERS: 25 Volunteers: Arrive at 4:00pm

Volunteers will meet with Qtego Representatives in order to explain frequently asked questions in regard to this auction bidding service. This will allow all of the volunteers in this group to answer the majority of the questions the guests may pose. Volunteers will be stationed throughout the silent auction tables in front of the ballroom. The volunteers will be responsible for watching over the silent auction items as well as encouraging guests to register and bid on items. Once the silent auction closes for bidding, these volunteers will assist in the breakdown of the auction items, which includes the following: moving all items swiftly and efficiently from the silent auction table to the guest check-out, clearing the decorations off of the tables, and directing guests to the auction check-out location.

CHILDREN & FAMILY VOLUNTEERS: 100 Volunteers: Arrive at 4:15pm (Nurses, Social Workers, and Hospital Personnel Only) Children will arrive in increments beginning at 5:30pm. Children and Family volunteers will arrive at 4:15pm and attend a training session promptly at 4:30pm. This session will provide volunteers with comprehensive information needed for the evening, as well as the groups of children they will be responsible for. All children and family volunteers will be provided with a map and outline of the backstage area. At 5:15pm, all children and family volunteers will need to be stationed at their first positions for the evening. The first group of models will arrive at 5:30pm. Children will have a pre-determined arrival, group, and check-in time based on their age. Each volunteer will have an information sheet with their child’s name and age. This will include the model’s schedule for the evening. The packet recieved during training will include a map and outline of the backstage model area to help guide all parties throughout the evening. Models will have a pre-determined order to walk the runway via a group number. Before walking backstage, volunteers will check to make sure each child has their informational card to give to their celebrity escort. Every model will have their card in their name badge lanyard. Volunteers will remove the model’s lanyard once the child is paired with a celebrity and give the informational card to the celebrity to hold until they go onstage. All models are invited to walk the runway for a “Final Walk” at the end of the show. Models are not required to stay and can be released to their parent(s) should they chose not to wait for the Final Walk. At the end of the evening, we ask that volunteers remain backstage to be sure each child finds their parent. Once all of your assigned children have been returned to their parent(s), you are dismissed for the evening. Please check out at the volunteer desk located at Sebastian Registration.

RUNWAY TO HOPE VOLUNTEER RESPONSIBILITIES

9TH ANNUAL SPRING FASHION SOIREE M AY 18TH, 2019

SEATING & LIVE AUCTION VOLUNTEERS: 75 Volunteers: Arrive at 6:00pm

Volunteers will assist guests in finding their ticketed table once doors to the ballroom have opened. Guests will have their ticketing information printed out or available on their mobile device. Volunteers will be provided a seating map of table numbers prior to doors opening. Volunteers will remain in the ballroom once the seating process is completed and the show has started. Volunteers will assist with the cash call by collecting cash, checks, and pledge cards into provided boxes. It is very important to move swiftly in order to make it to all of the guests offering a contribution. Each volunteer will be responsible for a section of tables. All of the boxes will be returned to Security Personnel at the entrance doors to the ballroom. Volunteers should not leave the ballroom with the cash call boxes. Volunteers will also assist with the Live Auction in the ballroom by pointing out bidders to the auctioneer(s) onstage. Several Qtego Representatives will be present in the ballroom to collect information from the auction item winners. Assist with traffic flow in the ballroom and be available to answer questions throughout the evening.

ADDITIONAL VOLUNTEER INFOR M ATION:

Rosen Shingle Creek Self-Parking will be complimentary.

A room will be available for volunteers to safely and securely store their personal items. Runway to Hope is not responsible for any lost or stolen items and we do strongly encourage leaving valuable items at home.

Upon arrival, please report to the volunteer check-in desk. This information will be provided by email the week of the event.

It is requested that all volunteers dress in all-black professional business attire. Please come dressed appropriately at your designated time. We encourage comfortable shoes as there will be quite a bit of walking throughout the evening.

All Runway to Hope volunteers must be 16 years of age or older. Volunteers under the age of 18 will not be able to come in direct contact with our participating children, due to medical restrictions. Photo Identification must be

submitted for identity and age verification. Runway to Hope provides a drug-free, healthy, and safe environment. While attending and conducting Runway to Hope related activities, a volunteer may not use, possess, distribute, sell or be

under the influence of alcohol or illegal drugs. Runway to Hope Volunteers are not permitted to consume or be under the influence of alcohol at the Bloomingdale’s Bash Weekend or at the Spring Fashion Soiree. Each volunteer must

act in all matters in a manner that will safeguard the reputation and integrity of Runway to Hope and will preserve and strengthen public confidence in Runway to Hope activities.

RUNWAY TO HOPE VOLUNTEER RESPONSIBILITIES

9TH ANNUAL SPRING FASHION SOIREE M AY 18TH, 2019

BLOOMINGDALE’S BASH WEEKEND

By participating in the 2019 Runway to Hope Spring Fashion Soiree, our models will enjoy a sparkling moment in the spotlight as they walk the runway on May 18th, 2019! They will have the unique opportunity to share a day of absolute indulgence at the Runway to Hope Bloomingdale’s Bash Weekend. This event was created to give our models impacted by pediatric cancer a much needed break from hospitals, doctors, treatments, medicines, and other challenges they endure every day! This day creates a moment where cancer does not have to take center stage in their lives. Our Runway to Hope models have the opportunity to choose a brand new outfit for their walk of fame on the runway in May as well as meet new friends, make awesome memories, and receive the full red carpet treatment!

M ARCH 9TH & 10TH, 2019 BLOOMINGDALE’S ORLANDO

THE M ALL AT MILLENIA 4152 CONROY ROAD, ORLANDO, FL 32839

Please visit www.runwaytohope.org to submit your volunteer forms to sign up for the 2019 Spring Fashion Soiree as well as our Bloomingdale’s Bash Weekend. As for our Bash Weekend, volunteers are needed in the following areas: Model Buddies, Cross Walk Directions, Directional Assistance, as well as help at our check-in and registration desks.

CENTRAL FLORIDA TESTIMONIALS

“This event showcases youngsters who so bravely fight this dreaded disease, who can at least for a moment put their struggle aside and enjoy a celebratory atmosphere.” — Harris Rosen, President and COO, Rosen Hotels & Resorts

“When our son was hospitalized for several weeks, some parents at Florida Hospital told us about Runway to Hope and all of the fabulous work they do for pediatric cancer patients and their families. They provide financial assistance, which is a tremendous help, as well as highlight the children in their amazing gala. As Grayson walked the runway with Don Lemon, the smiles on their faces were priceless. Runway to Hope highlights how special these

children are and brings a much needed awareness to childhood cancer. Our family will forever be grateful. ” —Michelle Zrelak, Mother of Grayson Zrelak

“Runway To Hope is truly inspirational in their dedication and compassion for ending childhood cancer. Having the opportunity to meet these extraordinary young people and their families has been incredibly rewarding and a blessing to me. I hope to be involved in their fight for a cure for many years to come.” — Howie Dorough, Backstreet Boy Member

I met Rudy at Runway to Hope one night – but she made an impact that still moves me today. As much as anything, Rudy taught me about grace. She knew she didn’t have long, but she was determined to let her light shine as long as possible. Special kids

like that deserve all the help - and love - we can give them. — Scott Maxwell, Orlando Seintinel Columnist

“I was so moved to learn the story of Runway to Hope and their fight against pediatric cancer. This incredible organization has offered not only support, but also much needed hope for the many families fighting the disease.” — Frank Santos, CFO Rosen Hotels & Resorts

“It was an amazing experience to be able to walk on stage with two young children that had just recovered from major illnesses. I could see in their faces the excitement & thrill of being part of something special. This was their chance to shine and to be recognized as famous stars. To me, they are much more than stars and celebrities. They are truly deserving of our admiration!” Dr. Andre Hebra, Chief Medical Officer, Nemours Children’s Hospital

LETS HOLD HANDS.LETS WALK TOGETHER.

LETS END CHILDHOOD CANCER.

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