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1 Real Reduction Real Reduction Experiences Experiences Commonwealth of Massachusetts Commonwealth of Massachusetts Department of Mental Health Department of Mental Health Janice LeBel, Ph.D. Janice LeBel, Ph.D. Director of Program Mgmt., Child & Adol. Director of Program Mgmt., Child & Adol. Division Division Nan Stromberg, MSN, APRN,BC Nan Stromberg, MSN, APRN,BC Director of Nursing – Licensing Division Director of Nursing – Licensing Division

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Page 1: 1 Real Reduction Experiences Commonwealth of Massachusetts Department of Mental Health Janice LeBel, Ph.D. Director of Program Mgmt., Child & Adol. Division

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Real Reduction ExperiencesReal Reduction Experiences

Commonwealth of MassachusettsCommonwealth of MassachusettsDepartment of Mental HealthDepartment of Mental Health

Janice LeBel, Ph.D.Janice LeBel, Ph.D.Director of Program Mgmt., Child & Adol. DivisionDirector of Program Mgmt., Child & Adol. Division

Nan Stromberg, MSN, APRN,BCNan Stromberg, MSN, APRN,BC

Director of Nursing – Licensing DivisionDirector of Nursing – Licensing Division

Page 2: 1 Real Reduction Experiences Commonwealth of Massachusetts Department of Mental Health Janice LeBel, Ph.D. Director of Program Mgmt., Child & Adol. Division

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Massachusetts DMH SpecificsMassachusetts DMH Specifics

o State Mental Health Authority• Licensing oversight of acute care system• Contract monitoring of continuing care/state system

o Emphasis of SMHA• Setting standard of low/no R/S utilization• Promoting change

o Statewide Restraint Reduction Initiative• All Child & Adolescent Inpatient Providers (33)• Both acute & continuing care (500 + beds)

Page 3: 1 Real Reduction Experiences Commonwealth of Massachusetts Department of Mental Health Janice LeBel, Ph.D. Director of Program Mgmt., Child & Adol. Division

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How did we know we had a problem?

The Quantitative Perspective

Page 4: 1 Real Reduction Experiences Commonwealth of Massachusetts Department of Mental Health Janice LeBel, Ph.D. Director of Program Mgmt., Child & Adol. Division

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A Review of the DataA Review of the Data

o Restraint use withkids increasingeach year

o Children/Adolescents using more S/R

o Systemicdiscrepancies

66.5

6.9

0

100Rate per

1000 Patient-days

Hospitals A and B

Acute Care Hospital Comparison - 2000

High Utilization

Low Utilization

Restraint Episodes per 100 Admissions (Licensed Facilities)

Pre-Initiative

0

25

50

75

100

125

150

1998 1999 2000

Years

Ep

iso

des p

er

100

Ad

mis

sio

ns

Child (L) Adult (L) Adolescent (L) Mix CA (L)

Page 5: 1 Real Reduction Experiences Commonwealth of Massachusetts Department of Mental Health Janice LeBel, Ph.D. Director of Program Mgmt., Child & Adol. Division

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How else did we know we had a problem?

The Qualitative Perspective

Page 6: 1 Real Reduction Experiences Commonwealth of Massachusetts Department of Mental Health Janice LeBel, Ph.D. Director of Program Mgmt., Child & Adol. Division

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Overburdened with R/S Forms Overburdened with R/S Forms from across the Statefrom across the State

We knew there was too much restraint & seclusion when the We knew there was too much restraint & seclusion when the forms were practically upforms were practically up over over our heads.our heads.

Page 7: 1 Real Reduction Experiences Commonwealth of Massachusetts Department of Mental Health Janice LeBel, Ph.D. Director of Program Mgmt., Child & Adol. Division

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A Painful Pattern & A Painful Pattern & Restraint RecipeRestraint Recipe

Challenging behavior by kid → limits set by staff → kid escalated → staff more restrictive → kid lost control → R/S took place

• Over-reactivity – focus on control • Safety means containment• Lack of early intervention and support• Lack of crisis planning• Staff blamed the kids because they lacked training

and skills

Page 8: 1 Real Reduction Experiences Commonwealth of Massachusetts Department of Mental Health Janice LeBel, Ph.D. Director of Program Mgmt., Child & Adol. Division

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Clinical Review: Clinical Review: Trauma & Behavioral Trauma & Behavioral Distress UnderappreciatedDistress Underappreciated

o We assumed high rates of trauma but we didn’t know how much….o 84% of inpatient children and adolescents had

histories of trauma (point in time medical record review)

o Out-of-control (distressed) behavior reflected prior abuse by adults & lack of trust

o Capacity to self-control & self-soothe severely disruptedo Kids lacked skills

Page 9: 1 Real Reduction Experiences Commonwealth of Massachusetts Department of Mental Health Janice LeBel, Ph.D. Director of Program Mgmt., Child & Adol. Division

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Children were Hurt in RestraintChildren were Hurt in Restraint

Physical injuriesBroken legs

Broken arms

Broken teeth

Bruises

Cuts

Rug burns & abrasions

Page 10: 1 Real Reduction Experiences Commonwealth of Massachusetts Department of Mental Health Janice LeBel, Ph.D. Director of Program Mgmt., Child & Adol. Division

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What Were we Doing?What Were we Doing?

Hippocrates’ Dictum:“First, do no harm”

Federal Law: Diagnosis & treatment

NASMHPD: R/S are not therapeutic& reflect treatment

failure

State Law: The child who has beenhurt is always the victim

The Kids: “It’s not right to grab me. It hurts. Be nice!”

(Kenny, 9)

Page 11: 1 Real Reduction Experiences Commonwealth of Massachusetts Department of Mental Health Janice LeBel, Ph.D. Director of Program Mgmt., Child & Adol. Division

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The Disgraceful RealityThe Disgraceful Reality

Page 12: 1 Real Reduction Experiences Commonwealth of Massachusetts Department of Mental Health Janice LeBel, Ph.D. Director of Program Mgmt., Child & Adol. Division

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Back to the LiteratureBack to the Literature

Data and literature review

found no evidence base

to support R/S use

Cochrane Review2,155 articles but no controlled studiesR/S efficacy not establishedHarm and trauma cited

Page 13: 1 Real Reduction Experiences Commonwealth of Massachusetts Department of Mental Health Janice LeBel, Ph.D. Director of Program Mgmt., Child & Adol. Division

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Strength-Based Care:Strength-Based Care:Essential Features IdentifiedEssential Features Identified

o Prevention orientation

o Nurturing treatment: individualized, age-appropriate, active, skill focused

o Teaching, supporting thru crises & skill development

o Staff = teacher & coach

Page 14: 1 Real Reduction Experiences Commonwealth of Massachusetts Department of Mental Health Janice LeBel, Ph.D. Director of Program Mgmt., Child & Adol. Division

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The Search for Better PracticeThe Search for Better Practice

Where Where to start?to start?

Page 15: 1 Real Reduction Experiences Commonwealth of Massachusetts Department of Mental Health Janice LeBel, Ph.D. Director of Program Mgmt., Child & Adol. Division

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The Search for Better PracticeThe Search for Better Practice

o Researched and visited programs successful in reducing/eliminating R/S

o Identified key promising practices elements (prevention, relationship building, staff & child skill development, leadership & commitment)

o Brought MA hospital staff to NY programs for full cultural immersion – got R/S reduction religion

o Initiated peer-to-peer roundtable discussions

Page 16: 1 Real Reduction Experiences Commonwealth of Massachusetts Department of Mental Health Janice LeBel, Ph.D. Director of Program Mgmt., Child & Adol. Division

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Pediatric Unit: Post-Visit RestraintsPediatric Unit: Post-Visit Restraints (07/00–08/02)(07/00–08/02)

0

20

40

60

80

100

120

Jul-00

Oct-00

Jan-01

Apr-01

Jul-01

Oct-01

Jan-02

Apr-02

Jul-02

NYNY

VisitVisit

Adolescent Unit: Post-Visit Restraints Adolescent Unit: Post-Visit Restraints (07/00-08/02)(07/00-08/02)

0

100

200

300

400

500

600

Jul-00

Oct-00

Jan-01

Apr-01

Jul-01

Oct-01

Jan-02

Apr-02

Jul-02

NYNY VisitVisit

Page 17: 1 Real Reduction Experiences Commonwealth of Massachusetts Department of Mental Health Janice LeBel, Ph.D. Director of Program Mgmt., Child & Adol. Division

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Changing the Paradigm: Changing the Paradigm: Sorting Myth from RealitySorting Myth from Reality

More money More staff New staff Micro-management of

staff Traditional training

Using resources flexibly Core staff New staff attitude & open

to change Valuing & empowering

staff Enhanced training:

coaching, modeling, mentoring & supervision

Does notnot require DoesDoes require

Page 18: 1 Real Reduction Experiences Commonwealth of Massachusetts Department of Mental Health Janice LeBel, Ph.D. Director of Program Mgmt., Child & Adol. Division

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Changing the Paradigm: Changing the Paradigm: Sorting Myth from RealitySorting Myth from Reality

Flexibility with the Environment

Collaboration

Negotiation/Dialogue

Rewarding the Positive

Active use of Data

State of the Art Environment of Care

Control

Confrontation/Limit-setting

Reacting to the Negative

Strict Data Collection

Does notnot require DoesDoes require

Page 19: 1 Real Reduction Experiences Commonwealth of Massachusetts Department of Mental Health Janice LeBel, Ph.D. Director of Program Mgmt., Child & Adol. Division

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Multi-Year PlanningMulti-Year Planning

Fundamental Plan Create a R/S Reduction TeamR/S Reduction Team Consumer & Family Involvement Best Practice Conference Kick-Off & Provider

Strategic Planning Quarterly Statewide Grand Rounds Annual Provider Presentation Forums

The GoalTo change culture, practice & “root” the Initiative by: Communicating & educating Continually reviewing & planning Regulating

Page 20: 1 Real Reduction Experiences Commonwealth of Massachusetts Department of Mental Health Janice LeBel, Ph.D. Director of Program Mgmt., Child & Adol. Division

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Re-wrote the DMH Regulations, Re-wrote the DMH Regulations, Effective April 2006, DMH Regulation 104 CMR 27.12Effective April 2006, DMH Regulation 104 CMR 27.12

Focus on prevention – not just ‘safe application”

o Prevention requirements: o Crisis Prevention Planso Assessment of Trauma and potential for re-

traumatizationo Program Quality Improvement Planso New Policies and Procedureso Increased Education for Staff o Sensory Resourceso Active use of Data

Page 21: 1 Real Reduction Experiences Commonwealth of Massachusetts Department of Mental Health Janice LeBel, Ph.D. Director of Program Mgmt., Child & Adol. Division

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Re-wrote the DMH Regulations, Re-wrote the DMH Regulations, Effective April 2006, DMH Regulation 104 CMR 27.12Effective April 2006, DMH Regulation 104 CMR 27.12

o Restrictions if Used o Shortened renewal time for orders (2 hours)o Prohibition of prone restrainto Clarified and tightened seclusion definitiono Prohibition of mechanical restraint for children

under 13o Intensive “real-time” review of long restraints

by facility director and medical directoro Debriefing Requirements

ConsumerStaffAdministrative Review

Page 22: 1 Real Reduction Experiences Commonwealth of Massachusetts Department of Mental Health Janice LeBel, Ph.D. Director of Program Mgmt., Child & Adol. Division

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For some … For some … a bit of reluctancea bit of reluctance

Page 23: 1 Real Reduction Experiences Commonwealth of Massachusetts Department of Mental Health Janice LeBel, Ph.D. Director of Program Mgmt., Child & Adol. Division

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Broadening the Perspective: Broadening the Perspective: Improving Care for ChildrenImproving Care for Children

o Models of Care o CPS, PEM, DBT, PBS, Holistic, Resiliency,

Relational, Trauma Systems

o Child, Adolescent & Family Perspective

o Public Health Approach

o Crisis Planning

o Understanding Trauma

o Sensory Approaches

Page 24: 1 Real Reduction Experiences Commonwealth of Massachusetts Department of Mental Health Janice LeBel, Ph.D. Director of Program Mgmt., Child & Adol. Division

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Coming to our SensesComing to our Senses

o Sensory Assessment: What’s your diet?What’s your diet?o Sensory Intervention: A universal experienceo Giving children and staff greater array of Giving children and staff greater array of

alternative toolsalternative toolso Broad Application:

Treatment, early intervention & crisis planning

Touch: Renewed consideration

o Touch Assessment Supported by the literature Arm & hand massages, weighted items, pressure

Page 25: 1 Real Reduction Experiences Commonwealth of Massachusetts Department of Mental Health Janice LeBel, Ph.D. Director of Program Mgmt., Child & Adol. Division

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Providers Providers “Model”“Model” Success Success

o Metro WestMetro West - 98%- 98%Holistic Approach

o Cambridge Hospital Cambridge Hospital - 100%- 100%Collaborative Problem-Solving Model

o Westwood Lodge SCU Westwood Lodge SCU - 86%- 86%Resiliency Model

o Boston University IRTPBoston University IRTP - 100%- 100%Trauma Systems Model

Page 26: 1 Real Reduction Experiences Commonwealth of Massachusetts Department of Mental Health Janice LeBel, Ph.D. Director of Program Mgmt., Child & Adol. Division

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Hunt CenterTotal RS Episodes per 1000 Patient Days

0

25

50

75

100

125

150

175

200

Significant Periods

# Ep

isod

es p

er 1

000

Patie

nt D

ays

Hunt Mixed C/A

Unit Type Average

Page 27: 1 Real Reduction Experiences Commonwealth of Massachusetts Department of Mental Health Janice LeBel, Ph.D. Director of Program Mgmt., Child & Adol. Division

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Boston University Intensive Residential Treatment Program

Total Restraint & Injury Episodes09/00 - 01/05

0

10

20

30

40

50

60

70

80

Significant Periods

Restr

ain

t &

In

jury

Ep

iso

des

B U IRTP

Kid Injury

Staff Injury

Page 28: 1 Real Reduction Experiences Commonwealth of Massachusetts Department of Mental Health Janice LeBel, Ph.D. Director of Program Mgmt., Child & Adol. Division

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Top Tips from Providers Top Tips from Providers Encourage flexible “out of the box”

thinking. It is not win or lose. Needs to be a forum for staff to openly

express feelings so they don’t act these out on clients

Instill hope and optimism no matter what If client doesn’t succeed 80% of time

Break expectations into smaller steps until they have achieved goals

Page 29: 1 Real Reduction Experiences Commonwealth of Massachusetts Department of Mental Health Janice LeBel, Ph.D. Director of Program Mgmt., Child & Adol. Division

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Top Tips from Providers Top Tips from Providers

Praise staff & clients for good work. – “Caught in the Act” documents the specific positive behaviors & promotes everyone’s strengths

Keep goals brief and focused Utilize humor Use complementary therapies – massage,

Reiki, yoga, relaxation, visualization, positive affirmations, spiritual needs

Page 30: 1 Real Reduction Experiences Commonwealth of Massachusetts Department of Mental Health Janice LeBel, Ph.D. Director of Program Mgmt., Child & Adol. Division

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Top Tips from Providers Top Tips from Providers

Offer support during difficult transitions “Reframe” behavioral description to be

more strength-based “Wandering” halls is now “grazing for

sensory input” “Needy” is now “understandably in need of

staff attention”

Page 31: 1 Real Reduction Experiences Commonwealth of Massachusetts Department of Mental Health Janice LeBel, Ph.D. Director of Program Mgmt., Child & Adol. Division

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What Have we Learned?What Have we Learned?

o Without leadership, it does not happen!o Plan for incremental advancement &

changeo Systematize the effort and make it part of

the organizational fabrico You must celebrate, reward/award &

appreciate hard worko Culture change takes years – this is

marathon work

Page 32: 1 Real Reduction Experiences Commonwealth of Massachusetts Department of Mental Health Janice LeBel, Ph.D. Director of Program Mgmt., Child & Adol. Division

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S/R Hours Decreased – 49%

C/A DMH Licensed and State FacilitiesTotal RS Hours per Episode

0.59

0.38

2.18

0.550.52

0.34

0.00

0.50

1.00

1.50

2.00

2.50

11/1/99 - 10/31/00 4/1/05 - 3-31-06

Significant Periods

# H

ou

rs p

er

Ep

iso

de

Child

Adolescent

Mixed C/A

Pre-Intervention

Post-Intervention

Page 33: 1 Real Reduction Experiences Commonwealth of Massachusetts Department of Mental Health Janice LeBel, Ph.D. Director of Program Mgmt., Child & Adol. Division

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S/R EpisodesS/R Episodes Decreased – Decreased – 72%72%

C/A DMH Acute and Continuing Care FacilitiesTotal R/S Episodes per 1000 Patient Days

84.0

14.51

72.2

20.87

73.4

27.57

0

10

20

30

40

50

60

70

80

90

100

11/1/99 - 10/31/00 4/1/05 - 3/31/06

Significant Periods

# E

pis

od

es p

er

1000 P

ati

en

t D

ays

Child

Adolescent

Mixed C/A

Pre-Intervention

Post-Intervention

Page 34: 1 Real Reduction Experiences Commonwealth of Massachusetts Department of Mental Health Janice LeBel, Ph.D. Director of Program Mgmt., Child & Adol. Division

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Medication RestraintDecreased -86%

C/A DMH Acute and Continuing Care FacilitiesInvoluntary Administration of Medication

Episodes per 1000 Patient Days

21.3

6.3

15.9

1.9

32.5

0.10

10

20

30

40

11/1/99 - 10/31/00 4/1/05 - 3/31/06

Significant Periods

# Ep

isod

es p

er 1

000

Patie

nt D

ays

Child

Adolescent

Mixed C/A

Pre-Intervention

Post-Intervention

Page 35: 1 Real Reduction Experiences Commonwealth of Massachusetts Department of Mental Health Janice LeBel, Ph.D. Director of Program Mgmt., Child & Adol. Division

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“Good ideas are not adoptedautomatically. They must be

driven into practice withcourageous patience.”

Hyman G. RickoverHyman G. Rickover

Page 36: 1 Real Reduction Experiences Commonwealth of Massachusetts Department of Mental Health Janice LeBel, Ph.D. Director of Program Mgmt., Child & Adol. Division

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Massachusetts DMH Massachusetts DMH Contact InformationContact Information

Janice LeBel, Ph.DJanice LeBel, Ph.D..

Nan Stromberg, MSN, APRN, BCNan Stromberg, MSN, APRN, BC

25 Staniford Street

Boston, Massachusetts 02114

(617) 626-8119 & (617) 626-8085

[email protected]

[email protected]