11

1. Wales

2. Welsh Assembly Government and the Voluntary Sector- NGO’s

3. All Wales Principles

4. Why Have an Umbrella Body? Role of LDW

5. LDW Mission

6. LDW Aims

7. External Challenges

8. Internal Challenges

9. Features of the LDW Umbrella

10. Building our Profile

11. Case Study 1: Cardiff Supported Living 2007

12. Case Study 2: Disabled Children Matter Wales 2008- Continuing

13. Are we making a difference?

Contents

22

Wales

• Population- 2.9m

• Long Term Illness or disability-

23%

• Poverty- 1 in 4 in low income

• Adults with severe learning

disability; 10,800

33

Welsh Assembly Government & the Voluntary Sector - NGOs

• Voluntary Sector Scheme

• Voluntary Sector Partnership Council

• Compacts between Municipalities and Voluntary

Sector

44

All Wales Principles 1983

• People with learning disabilities have a right to;

• An ordinary pattern of life in the community

• Be treated as an individual

• Additional help and support in achieving their maximum

potential

55

Why Have an Umbrella Body? Role of LDW

• Balance voice of government and of parents

• Voice for NGOs

• Encourage development of NGOs

66

LDW Mission

“Create a Wales that values and includes every child

and adult with a learning disability in Wales”

77

LDW Aims

Strengthen the

• Voice, rights and status of children and young people

• Voice, rights and status of adults

• Ability of parents , carers and families to make a positive contribution

and

• Promote a range of person centred services for children and adults

• Set a good example in the way that it is run

88

External Challenges

• The Cinderella

• Abuse scandals in hospitals; Ely

• Children and young people ‘ineducable’

Plus

• Understanding Welsh social constraints

• Collaboration with Govt versus campaigning

99

Internal Challenges

• ‘Cradle to grave remit’

• Picking priorities

• Picking issues where we can win

• Recruiting and retaining staff

1010

Features of the LDW Umbrella

• Governance and election processes

• Member consultation

• Facilitator and coordinator

1111

Building our profile

• Professionally presented materials and events

• Membership of National Assembly lobbying representative

association; Public Affairs Cymru

• Being useful to govt: win/win

• Attendance at all political party annual conferences

• Using politicians

• Developing contacts in the media

1212

Case Study 1: Cardiff Supported Living 2007

• All services re-tendered

• Partnership formed

• Judicial review

• ‘Won battle but lost war’

• Ethical issues

1313

Case Study 2: Disabled Children Matter Wales 2008- Continuing

• Poor patchy services

• Investment in England

• Partnership formed

• Political activity

• Being ‘sucked in’

• Some achievements

1414

Are we making a difference?