year 1 report dementia friendly hampshire

March 2014 End of Year Report

Dementia Friendly Hampshire

Page 1

DEMENTIA FRIENDLY HAMPSHIRE

BACKGROUND

In late 2012, Hampshire County Council invited organisations to bid for the contract to deliver a 12 month project to bring dementia friendly communities to Hampshire. Andover Mind was successful in winning the contract and work started on March 1st 2013. Funding was subsequently secured for a second year for the project.

The project deliverables were:

● To develop a Dementia Action Alliance for Hampshire and establish a membership of 45 in the

first year including traditionally excluded groups such as Learning Disability, Black and Minority

Ethnic, Lesbian, Gay, Bi-sexual, Transgender (LGBT)

To pilot 3 dementia friendly high streets with at least 20 participants in each High Street.

To identify and establish a sustainable network of Dementia Ambassadors, with 10 participants

in the first year and at least 2 from traditionally excluded groups.

To organise and run a minimum of 18 training and awareness-raising sessions to improve

people’s understanding of dementia and how to support people with dementia in the community.

To include at least 4 sessions with traditionally excluded groups.

To map existing peer support groups across Hampshire and support the development of 6 new

groups to plug any gaps.

To put in place a rolling programme of consultation and engagement with people with dementia

and their carers so that their views and experiences were at the heart of Dementia Friendly

Hampshire’s work.

The outcomes expected were:

Groups of empowered people with dementia and their carers who will have a voice and role in

developing services and support that enable them to “live well” with dementia.

An engaged community enthusiastic about, and supportive of, people with dementia that

promotes inclusivity in its universal services such as leisure centres, opticians, shops,

restaurants, hairdressers etc.

External evaluation of the project will demonstrate a positive impact for people with dementia

and their carers in terms of “living well” with dementia.

The project will have built in sustainable mechanisms for continuing developments once the

project has ended.

This is a partnership project, with Hampshire County Council commissioners working alongside

Andover Mind project staff in the implementation of the plan.


Page 2

THE PLAN

It was important for a time-limited project that we were able to get up and running very quickly. We

invested the time to recruit the staff prior to the start of the project and induction and training were

completed very quickly so that the project staff were fully operational by mid-March. Andover Mind

appointed a full-time Project Manager and 6 part-time Local Area Co-ordinators to resource the project.

The PM completed the implementation plan by the end of March and this was approved by the project

stakeholder group. The stakeholder group consists of representatives from Hampshire County Council;

Hampshire Constabulary; Age Concern Hampshire; The Alzheimer’s Society; Hampshire Interfaith

Network; Southern Health and West Hampshire CCG, as well as people with dementia and carers. Key

recommendations from the plan were:

Hampshire Dementia Action Alliance:

Establish terms of Reference – review national and local DAA’s and adopt best practice.

Draw up a target list of members, identifying must-have

Recruit a core group of members who can help with the set up and further recruitment

Use the Hampshire Toolkit and other resources to develop key messages to facilitate the

recruitment of further members

Use Ambassadors to promote the Alliance to potential new recruits

Promote within the DF Hampshire website

Use social media, either as DAA or DFC Hampshire

Use newsletters to get information and updates out

Enlist the help of Hampshire CC Communications dept. to help publicise the Alliance

Work with local media to gain coverage

Hold a high profile launch event to attract new members

Dementia Friendly High Streets:

Review and learn from schemes in other parts of the UK

Hold a series of dementia friendly high streets (dfhs) consultation events for people with

dementia and carers

Liaise and share learning with Safer Places Scheme

Engage with retailers, chambers of commerce and other representative groups to get views on

practical steps they could agree to, in the pursuit of a dementia friendly high street

Agree definition of dfhs and set of criteria participants must agree to

Have a phased programme of launches with 3 high streets in phase one, 2 high streets and 1

market town for phase 2 and 2 high streets in phase 3. Phase 2 and 3 would launch in year 2

but groundwork would start in year 1. This would allow for a representative spread across the

whole of the county and would allow all District Councils to get involved.

Recruit volunteers to support the delivery of this programme


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Capitalise on any commitments made by organisations at a national level to gain local sign-up

Work with local Chambers of Commerce, town centre managers and shopping centre managers

to help sign up participants

Engage with library service, leisure services, arts and museums, transport companies

Work with Hampshire County Council Partnership in Care Training (PaCT) to develop and

implement a training programme for participating organisations

Develop materials in line with findings from information gathering and engagement events

Promote within the DF Hampshire website and use social media

Enlist the help of Hampshire CC communications dept. to help publicise

Work with local media to gain coverage

Work together with local councils, shopping centres and individual participants to promote the

scheme

Ambassadors:

The original service specification called for the development of a sustainable network of Dementia

Champions but the word Champions is already used by Dementia Friends and we received very early

feedback that the term Champion was confusing. This led to the following recommendations.

We recommend using Dementia Ambassadors as a title rather than Champions to avoid

confusion

The fact that we are only aiming to recruit a relatively small number of Ambassadors means that

they need to be the opinion leaders, people who have the ability and opportunity to influence

others. We want to make people think – “… if he/she is talking about dementia, it must be

important and we should be doing something too.” Unfortunately people with influence are often

time-poor so the role and any training to carry it out would need to take that into account

We need to identify who would be our prime targets. Suggestions (Aim high) - Key Councillors

in County and District Councils; Hampshire MP’s; Hampshire business leaders/senior

managers; voluntary sector leaders; Educators; leaders in minority group organisations, etc.

This will complement the work of Dementia Friends

We can link this with the Dementia Action Alliance and consider making it a requirement, if

applicable, that the organisation that the Champion/Ambassador represents should have signed

up to the Action Alliance. Linking this to the DAA would formalise the network of Ambassadors

and help to ensure sustainability

A top line definition of the role for our Ambassadors might be “… all we ask you to do is to

promote the interests of people with dementia and/or dementia friendly communities at every

opportunity…” This would need to be supported by more detailed examples of how they can do

that to greatest effect

Awareness:

We need to work together with Dementia Friends to optimise our collective impact.


Page 4

Our local co-ordinators should be trained as Dementia Friends Champions. They could then

conduct Dementia Friends Information sessions with key target groups in Hampshire e.g.

schools, colleges and universities; volunteers etc. These are awareness-raising sessions and

last about an hour

Peer Support Mapping:

Work with The Alzheimer’s Society, Dementia Advice Service, older persons and carers

organisations, local community service organisations, district councils and others to identify

what support groups there are in each area


Work with local providers and people with dementia and carers to find out what type of local

support group people need and what resources are required to make that happen

Consider the use of social media as a means of support e.g Facebook closed group

Provide support to resource the group e.g. sourcing premises; identifying sources of funding

and assistance with obtaining funding; recruiting volunteers and promoting the groups

Consultation and Engagement:

Work with dementia advice service , The Alzheimer’s Society, carers groups, older persons’

groups and any other groups working with people with dementia and carers to gain views and

facilitate engagement

Arrange visits to individual clients with dementia advisers

Attend support groups, day centres and other events

Get dementia friendly communities on the agenda at relevant fora

Use Hampshire toolkit to guide consultation. Use printed questionnaire from toolkit with

individuals and groups, put link to questionnaire on Andover Mind website and other partner

websites

Local co-ordinators to walk the patch in local neighbourhoods with people with dementia.

Recruit people with dementia and carers to help drive the development of the project

Consider setting up local project implementation groups in each area which could also interact

with the DAA with 2 way communication between them. The implementation groups could also

serve as the monitors for DAA organisations action plans - providing feedback on what is

actually happening on the ground

Conduct training such as confidence building; assertiveness; presentation skills; meeting skills;

recruitment skills to empower individuals



Page 5

WHAT HAVE WE ACHIEVED SO FAR?

Hampshire Dementia Action Alliance (HDAA)

We had originally planned to launch the HDAA in July but due to availability of key stakeholders, this

had to be postponed until September. We modelled our terms of reference and application forms on

those of the National DAA and all of the building blocks were put in place for the launch of the HDAA on

September 3rd. The following membership criteria were set:

Every member of the Hampshire Dementia Action Alliance (HDAA) will be committed to

delivering the National Dementia Declaration.

Every member will have an action plan setting out what the role of their organisation is in

delivering the outcomes described in the declaration. It is not necessary for every organisation

to have actions against every outcome in the Declaration. Not all organisations will have

influence over every outcome

Members’ action plans will be published on the Dementia Friendly Hampshire website

Members will be required to report to the secretariat on progress in delivering their action plans.

The secretariat will share this information via the website and newsletters, as appropriate

A maximum of 3 meetings per year will be held. They will offer members the opportunity to

update on their action plans and to share experiences and learning. One of these meetings may

be an open forum to showcase the work of the HDAA. Member organisations will be required to

attend at least 1 meeting per year


Page 6

We sent out direct invitations to named individuals, as well as using social media to promote the launch

event. More than 100 people came to the launch and a wide variety of Hampshire organisations were

represented, such as:

Fareham Shopping Centre

Boots

Santander

Local Borough and District Councils from across Hampshire

West Hants. Clinical Commissioning Group

Hampshire Constabulary

Age Concern

Aster Living

There were presentations from partner organisations as well as from a person with dementia, who

talked about why he is supporting the HDAA.

Sept 3rd 2014 - HDAA Launch


Page 7

0 20 40 60 80 100 120

Q1

Q2

Q3

Q4

Total

Year 1 HDAA Members

Some of the actions

organisations have committed

to…

Nominating an Ambassador

Providing dementia awareness

training for staff

Hosting awareness sessions

for the public

Consulting with people with

dementia about how they can

become dementia friendly

Consulting with people with

dementia about signage

Improving knowledge in the

dementia care workforce

Improving leadership in

dementia care settings

Campaigning for raising

standards in dementia care

homes

Offering their training resources to DFH

After an initial slow start, the HDAA has gathered real momentum and we have had considerable

success in engaging

organisations across

Hampshire. At the time of

the launch we had 11

members but by the end of

year 1, this had risen to 112.

Membership of the HDAA

was made a requirement for

participants in dementia

friendly high streets. The

high profile high street

launches in Quarter 3 and

Quarter 4 helped us to

recruit new members.

Having an event which they

could get involved in was a

definite incentive for people

to join. The regional split also shows that membership is highest in those areas which have launched

dementia friendly high streets. When we started the project we decided to concentrate on quality

delivery in a selection of areas rather than try to do everything everywhere. In year 2, we will move into

0 20 40 60 80 100 120

Test Valley

Eastleigh

Winchester

Fareham and Gosport

Havant and E Hants

New Forest

Hart Rushmoor

Basingstoke and Alton

Hampshire wide

TOTAL

Year 1 Members by Region


Page 8

“I was approached by a man reporting that his wife

suffers with Alzheimer’s and she had left his side. I got a

full description which I passed onto our control room to

pass to all our other Officers on the Mall. They also

conducted a full CCTV scan to see if they could find

her. I stayed with the husband and kept reassuring him

that everyone was looking for his wife as he was very

upset that she had walk away from him. Police were

also informed and a little while later the lady was found

in Boots; she was very shaken by the ordeal and when

we reunited them it was like piecing a jigsaw together.

The family said that they had chosen Fareham

Shopping Centre as its staff and shops are trained in

recognising the signs of Dementia.”

Fareham Shopping Centre Security guard who had

attended Dementia Awareness session.

This quote clearly

demonstrates the

benefits of the HDAA for

people with dementia

and their carers as well

as the potential business

benefits to be gained by

joining.

those areas which

have received less

coverage in year 1.

This chart shows the

breakdown of members

according to the type of

organisation and we

are encouraged to see

that at the end of year

1, we have a broad

variety of businesses

signed up to the

initiative. This reflects

the level of interest in

dementia in the wider

community. The

services sector

includes, solicitors,

funeral directors,

hairdressers and estate

agents. Health includes

GP surgeries, opticians

and dentists.

0 20 40 60 80 100 120

Banking

Retail

Leisure

Service sector

Travel

Housing

Voluntary sector

Care

Education

Local authority

Health

TOTAL

Year 1 Members by Type of organisation


Page 9

“We have been working hard on our customer service

element of delivery and when we were approached to

get involved in the pilot scheme we could see it

worked for us on a number of levels. While dementia

can affect any age range, it predominantly affects the

older generation and as Fareham Shopping Centre

serves an older demographic, we could see our

involvement would be beneficial from a business

perspective. If our staff are more aware of dementia it

helps our customers to feel more confident when they

shop with us and it is an important part of our customer

service delivery”

Mike Taylor - Fareham Shopping Centre Manager.

Dementia Friendly High Streets

The 3 High Streets for phase 1 launch were agreed as Fareham, Fleet and Lyndhurst. In choosing

locations, we have tried to vary the size and make-up of the town as well as getting a spread of sites

across Hampshire. Fareham was the first to be launched on November 27th 2013. The Lyndhurst

launch took place on February 20th 2014 and Fleet followed on 26th February 2014. There will be further

launches in Year 2 and so far, Romsey has been agreed as the first launch in a market town. All

participants receive a sticker to display on their premises to show their staff have had dementia

awareness training, the sticker uses The Alzheimer’s Society Dementia Friendly Recognition Mark. The

criteria for signing up to the DFHS scheme are:

Participants must join the Hampshire Dementia Action Alliance

Participants must sign up to a minimum action requirement - to provide dementia awareness

training to customer-facing staff.

FAREHAM

The staff at Fareham Shopping Centre

were very keen to establish a dementia

friendly high street in the town and was a

real help in driving the work in Fareham.

The shopping centre was also the first

organisation to complete an HDAA

action plan. The local co-ordinator went

shopping with people with dementia to

identify issues. She worked with the

shopping centre and a group of

volunteers to engage with local

businesses and conducted awareness

raising sessions to generate interest in

the dementia friendly high street

scheme. The shopping centre gave the Dementia Friendly Hampshire project the use of an empty shop

unit to promote dementia friendly communities, which helped to generate awareness in the local

community. A well-attended launch event was held in the shopping centre on 27th November 2013.


Page 10

The launch generated a lot of interest on social media and received coverage in local news media.

Promoting the Fareham launch

THE FOLLOWING BUSINESSES ARE TAKING PART IN THE INITIATIVE IN FAREHAM:

Halifax

Lloyds Bank

Santander

Costa Coffee

Fareham Library

99p store

Bhavi Beauty

Asda

TReds

Bojangles

Boots

Boots Opticians

The Body Shop

BskyB

O2

Carphone Warehouse

Phones4U

Marked and Sparkling

Millets

Maddisons

Imbizo

Leightons

Fareham Shopping Centre

Claire’s Accessories


Page 11

“…supporting initiatives that help improve the lives of

people with dementia is a priority for the council.

“I am delighted to see local shops and businesses

undertake to train their staff and would encourage

others to get involved.”

Cllr. Di Brooks - Cabinet member for Health and Leisure

New Forest District Council.

“A lot more understanding will help a lot of people.”

Jan Brooke - chairman of Lyndhurst Chamber of Trade.

LYNDHURST

Lyndhurst is a small town in the New Forest, described by some as ‘Gateway to the Forest’ as most access roads go through the town. It relies predominantly on tourist trade and most of the shops are independently owned. It has a relatively small number of retailers and services, so it provided a good contrast to Fareham as a pilot site for the dementia friendly high street scheme. We were successful in gaining the support of the local chamber of trade, the local MP, Dr Julian Lewis, New Forest District Council and established a team of volunteers to support the launch. We recruited 24 businesses to take part in the launch event which was held in the Lyndhurst Community Centre on 20th February 2014.


Page 12

The launch was well-attended by the local community and was covered by both BBC TV and radio on the launch day. There was an article in The Southern Daily Echo and the launch also generated a great deal of interest on social media.

Creating a splash for the Lyndhurst Launch

THE FOLLOWING BUSINESSES ARE TAKING PART IN THE INITIATIVE IN LYNDHURST:

Lyndhurst Dental Practice

Lloyds Bank

Budgens

Costa Coffee

Lyndhurst Library

The Fox and Hounds Pub

Lyndhurst Tea House

Tea Total

Sofikas

Steve the Gardner

Down to the Wood

Lyndhurst Community

Centre

World Window

White Rabbit

The Old Apothecary

Sunglasses Gallery

Onomatopoeia

Country Cobbler

Emerald Crafts

Holistic Hideaway

Lyndhurst Gallery

Beckley Joinery

Under the Greenwood Tree

Motto


Page 13

“Being a pharmacy we have had first-hand

experience of customers with dementia, so making

sure staff know how best to help and support

people with the condition is something that I’m

particularly passionate about. We want people with

dementia to be able to carry on with their normal

lives and that is something that Fleet as a

community is now able to help achieve.”

Andy Gascoigne – Manager of Boots in Fleet.

“We want the community in Fleet to be a place

where people with dementia can feel both

supported and independent, so becoming North

Hampshire’s first Dementia Friendly High Street is a

huge part of that and is something we’re very

proud of.”

Cllr. Stephen Gorys - chairman of Hart District

Council.

FLEET

We held a Spotlight on Dementia event in Fleet in May and as a result received a great deal of interest from various community groups and the local council in making Fleet a dementia friendly high street. We held a meeting in early June with Fleet Futures, the District Council, the Town Council, Hart Voluntary Action and a number of local retailers. Fleet Future was set up to shape the future of the Fleet and they are very keen to support dementia friendly communities. We gained early agreement in principle from 10 organisations in the high street to take part in the scheme. We engaged with a gentleman with dementia and his wife who ‘walked the patch’ with our local area co-ordinator to highlight some of the issues when shopping in the town. Twenty eight organisations were signed up for the launch which took place in the Hart Shopping Centre on February 26th 2014.


Page 14

The launch was covered on the local radio stations and by the local print and on-line media. As

with the other 2 launches, there was also a great deal of activity on social media.

Coverage for the Fleet launch

THE FOLLOWING ORGANISATIONS ARE PARTICIPATING IN THE FLEET INITIATIVE:

Nat West Bank

Lloyds Bank

Sainsburys

Costa Coffee

Fleet Library

Waitrose

This n That

More than Coffee

Co-op funeral directors

Gemini Hairdressers

The Harlington Centre

Hart DC

Rocksx

Age UK shop

Boots

Argos

Captured Moments

Hart Shopping Centre

WC Baker

Haart Estate Agents

Kristena Shoes

Livingstones Books

Quaity House Reproductions

Salamander

Sugar Plum

Serendipity

The Sweet Shop

Hart Travel


Page 15

“With around 18,500 people in Hampshire living with

dementia, making communities better places to live

for people with dementia is becoming increasingly

important. We want to help people living with

dementia to retain their independence for as long as

possible and this can mean putting in place support

to help them carry out everyday activities such as

shopping. It is great to see so many organisations in

Hampshire signing up to be part of the Dementia

friendly high streets scheme.”

Cllr. Liz Fairhurst –Executive member for adult social

care and public health, Hampshire County Council.

GENERAL

As a result of our work promoting dementia

friendly communities in Hampshire, a number

of local communities are taking the lead on

working towards creating dementia friendly

high streets. These communities are being

supported by our local area co-ordinators and

include Lymington, Milford, Hartley Wintney

and Alresford.


Page 16

Currently we have the following Ambassadors signed

up…

Michael Mumford – Chair of Andover Mind

Steve Gapper – Home Instead Alresford

Jan Gapper - Home Instead Alresford

Kym Devine – Age Concern Hampshire

Felicity Mitchell – Healthy Living Pharmacies

Andy Gascoigne – Boots Fleet

Chris Cornwell – Hartley Wintney Carers

Lindsay Abbott – The Connaught School, Aldershot

Jackie Pool – Jackie Pool Assoc.

Cllr E Fairhurst - Hants County Council

Cllr T Ward - Test Valley BC

Dementia Ambassadors

A Dementia Ambassador is a person who has the ability and opportunity to influence others and is

willing to use that influence to promote the interests of people with dementia and dementia friendly

communities. The influential people, who we would like to be Ambassadors, are busy people so it’s

important that the Ambassador role is

something which can be done as part of a

person’s work, public or private life, rather

than as an extra piece of work. There are 2

routes to becoming a Hampshire Dementia

Ambassador:

An organisation which joins the Hampshire

Dementia Action Alliance may commit to

fielding an appropriate manager as an

Ambassador as part of their action plan. The

action plan would state what the

Ambassador would do to contribute to the

relevant outcomes in the National Dementia

Declaration.

An individual can put themselves forward as an Ambassador. We encourage people with dementia and

carers to become Ambassadors and can offer support, where necessary to facilitate that. There is a

short form to complete to describe the contribution a person could make to the Dementia Friendly

Communities project. Although it

is not compulsory, we would

encourage individuals who wish

to become Dementia

Ambassadors to join the

Hampshire Dementia Action

Alliance and create their own

action plan.

In addition, we have 5 individuals

who have expressed an interest

in becoming an Ambassador and

10 organisations who have

pledged to appoint an

Ambassador as part of their

HDAA action plan but have yet to

name them.


Page 17

0 20 40 60 80 100 120 140

Q1

Q2

Q3

Q4

Total

Year 1 Awareness Sessions

Dementia Awareness

Improving general awareness and understanding of dementia in the community is essential to the

successful development of dementia friendly communities. There has been a very high demand for

awareness training from the start of the project and we decided to work with the Dementia Friends

programme to enable our local area co-ordinators to quickly start delivering awareness sessions. Our

project staff received the following training:

One day Dementia Awareness training conducted by SITRA. March 2013

One day Dementia Friends Champions Training. April 2013

Four Day Supported Learning Programme in Dementia Care conducted by Dementia UK and

Hants. County Council Partnership in Care Training (PaCT) – completed July 2013.

We have recruited a number of volunteers to support local initiatives and the volunteers are

encouraged to become Dementia Friends Champions so that they can help to deliver awareness

sessions. Some of the care agencies who have signed up to the HDAA have also made one of their

actions to assist with the delivery of training in the local community. HCC workforce development

officers have developed a pilot programme for local care providers who have participated in their

Supported Learning Programme to undertake training which provides them with further QCF

(Qualifications and Credits Framework) credits and, in return, they will deliver tailored awareness

training in their local communities to support the DFH project. Jackie Pool Associates, dementia

consultancy are members of the HDAA and Jackie is a DFH Ambassador. As part of their HDAA action

plan, they have provided us with a tailored training pack for customer facing staff, which will be

particularly helpful in supporting the dementia friendly high street pilots.

AWARENESS SESSIONS

The project started on

March 1st and we started to

deliver awareness sessions

at the beginning of May.

Although our target for the

year was 18 sessions, it

very quickly became clear

that demand was so great,

we would far exceed that

number. By the end of year

1, we had delivered 130

sessions across

Hampshire.


Page 18

0 5 10 15 20 25 30 35

Test Valley

Eastleigh

Winchester

Fareham and Gosport

Havant and E Hants

New Forest

Hart Rushmoor


Year 1 Awareness Sessions by Region

TOT

Q4

Q3

Q2

Q1

“On my usual rounds, I was visiting one of my client’s houses, where

the family told me their mum wouldn’t stay in her room because she

thought there was someone in there. They had looked under the bed,

behind the curtains and tried every way they could think of to show her

no one was there, but she still wouldn’t stay in the room. I thought I

might be able to use the knowledge learnt on the awareness session to

help so I asked if I could look. I looked in the room and I saw a

dressing gown on the back of the door. I remembered about possible

perception problems for people with dementia and thought the

dressing gown might be the problem so I took it down. The lady was

then happy to go into her room. To her, the dressing gown had looked

like a person”

A Wiltshire Farm Foods driver who had attended a Dementia Awareness

session.

Not surprisingly, the number of awareness sessions delivered is highest in those areas where we

have seen a dementia

friendly high street

launch. Awareness

sessions have mostly

been closed sessions

which have been set

up by an organisations

or community group for

their employees or

members. We have

also held some open

sessions for the

general public. We

have had a very

positive response to

the awareness sessions with examples of the learning being put into practice. The audiences for


Page 19

0 200 400 600 800 1000 1200 1400

Q1

Q2

Q3

Q4

TOTAL

Year 1 Numbers Attending Awareness Sessions

I carried out 2 awareness sessions for a GP

surgery in Totton. 38 staff attended, including

5 Doctors. The Doctor’s feedback was

positive, saying it was good to hear about

dementia from a non-clinical perspective.”

“As a result of awareness raising sessions at

Brockenhurst College, the Principle would like

the college to become Dementia Friendly and

is looking at ways to cascade dementia

awareness through the college.”

Debbie Morshead – DFH Local area Co-

ordinator New Forest

our awareness sessions have been very varied,

including Library staff and volunteers, local

council staff and district councillors, customer-

facing staff in retail and service businesses,

church groups, voluntary sector staff and

volunteers, housing association staff, police, GP

surgery staff, teachers and students as well as

the general public. To date, 1305 people across

Hampshire have attended a DFH awareness

session.

We encourage people who attend our awareness

sessions to consider going on to do Dementia

Friends Champions training if they want to take

their learning further.


Page 20

0 20 40 60 80 100 120

Q1

Q2

Q3

Q4

Total

Year 1 Number of Awareness Events

0 5 10 15 20 25 30 35 40

Test Valley

Eastleigh

Winchester

Fareham and Gosport

Havant and E Hants

New Forest

Hart Rushmoor


Year 1 Awareness Events by Region

Total

Q4

Q3

Q2

Q1

OTHER AWARENESS RAISING

Initial plans for spend on marketing and communications were quickly reviewed when additional

funding was secured

and further PR support

has been commissioned

to enhance

implementation. This

has further supported

project staff to capitalise

on all opportunities to

promote dementia

friendly communities

and they have delivered

a number of

presentations, appeared

on local radio and TV

and had stands and

displays at local

community events. We also held a number of Spotlight on Dementia events across the county

which were useful for networking and hearing the views of people with dementia, as well as

promoting the project.


Page 21

A selection of press

articles and social

media posts promoting

dementia friendly

communities.

Some of our promotional activities…

Delivered a presentation at the West Hants. Pharmaceutical group

Presented at Spotlight on Dementia event hosted by New Forest District Council

Had a stand in Basingstoke Mall for Disability Awareness Day

Held events across Hampshire for Dementia Awareness Week

Gave out information at Eastleigh Mela

Presented at a Nepali Group meeting in Aldershot

Presented at Test Valley libraries area meeting

Provided headline speaker at Hampshire Community Association conference

Had a stand at The Connaught School summer fayre and also an article in the school

newsletter

Made a presentation to Aster Housing board

Presented at Odiham over 55’s forum

Presented to management of Traveller’s sites in North Hants.

Attended West Hants CCG Clinical Cabinet

Held a number of Spotlight on Dementia events across Hampshire including Aldershot and

Eastleigh


Page 22

0 5 10 15 20

Dementia Cafes

Singing groups

Social support

Art

Younger persons with dementia

Groups Exclusive to PWD and Carers

Peer Support

In order to map what peer support groups were operating in Hampshire, the project staff gathered data

from their respective areas, meeting with organisations and forging important links with local community

groups. Although it is believed that the groups which are included in the data are a comprehensive

representation of the peer support groups within the area, due to the size off the County, it may not be

an exhaustive list.

The groups were split into 6 categories:

Peer support groups which are exclusively for people with dementia and their carers

Peer groups which are exclusive for people with dementia

Peer support groups which are not exclusively for people with dementia and carers and

currently have no members from this client group

Peer support groups which are not exclusively for people with dementia, but have members

from these client groups attending

Peer support groups which are open but not exclusive to People with Dementia

Carers groups

From these, 3 maps were produced and these will be available on the DFH website which is currently in

development.

We found 59 services exclusive to people with dementia and their carers but only 15 services where a

person with dementia

could go without their

carer. There is a wide

variety of groups

across the

county providing

activities, support and

lunches, which are not

exclusive to people

with dementia and

their carers. These

groups often provide

excellent support in

the early and middle

stages of dementia.


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0 20 40 60

Lunch clubs

Socialsupport

Exercise

Art

Music

Groups not Exclusive to PWD

Hard to Reach Groups

In Fleet, Local Area Co-ordinator Jenny Allcott,

has been talking to the local Nepalese

community to raise awareness of dementia

amongst this minority community. This group is

very hard to reach and the ladies of the

Nepalese community usually only participate

in activities within their own community. In an

effort to get them involved, Jenny asked what

they might like to help with and they suggested

they would like to help serving tea at a support

group. Having identified a need for a new

drop– in group for people with dementia in the

area, Jenny has brought the 2 strands together

and is in the process of setting up a Drop in Tea

session with the support of the Nepalese ladies.

Peer Support Groups in Fareham

Since the beginning of the project we have been

working with all libraries in Hampshire to become

dementia friendly. The library in Fareham provides DFH

with a space, free of charge, for 2 hours every

Wednesday morning to promote Dementia Friendly

Communities. This is run and coordinated by a

volunteer from the Fareham Action Group who has a

great deal of experience of dementia and caring. The

volunteer soon realised there was a need for someone

to offer support to people with dementia and their

carers at these sessions. As a consequence we are

now jointly working with the Alzheimer’s society and

the local Dementia Advisor, who attends every other

week. We also pass on the Dementia Adviser’s details,

together with information on the Alzheimer’s Society

and other support services to people who come to the

Drop in session. These sessions in the library are

reaching out to more people, publicising what is

available for people with dementia and giving them

an opportunity to ask questions and find out more in

an informal atmosphere.

We have mapped 83 non-exclusive

services in total, all of which currently

have members which are either

carers of people with dementia or

people with dementia. Information on

35 carers groups was collated. The

groups are predominantly run by

organisations which are responsible

for more than one group e.g. The

Princess Royal Trust for Carers. In

Basingstoke, Romsey and Alton there

are a good number of carers groups

available but there are fewer groups

in the New Forest, Aldershot and

Fareham.

So far, we have helped to set up 9 new support

groups – 5 in Hart Rushmoor, 2 in East

Hampshire and 2 in Basingstoke. Responding

to what people with dementia and their carers tell us that they want, the groups are mostly drop-ins and

one of the Basingstoke groups is specifically for younger people with dementia.


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0 20 40 60 80 100

Q1

Q2

Q3

Q4

Total

Consultation Events

0 100 200 300 400 500

Q1

Q2

Q3

Q4

Total

People Consulted

“At last, people are beginning to take notice of us!”

Comment from a person living with dementia at a consultation

event.

Consultation and Engagement

Since we started the project in March, over 450 people have been consulted about the project. The

majority of this number has been people with dementia and carers but we have also received input from care and support staff as well as volunteers. We have been interested to hear people’s views on what they consider a dementia friendly community to be. We have

gathered information about the things that help people with dementia to feel included in their communities and help to maintain their independence.

We have also tried to identify the barriers and things that cause difficulties. We have met with individuals, attended groups and organised events where people with dementia have been consulted. We have used the


Page 25

0 1 2 3 4 5 6 7 8

Q1

Q2

Q3

Q4

Total

Consultation with Hard to Reach Groups

“It’s really encouraging to see Dementia Friendly High Streets starting to appear!”

Comment from a person living with dementia at a consultation event.

Some of the things people said about what a dementia

friendly community means to them…

People understanding dementia and knowing how to help

More awareness of dementia in the community at large

People with dementia being able to go out and do the

things they want to do

Patient and understanding staff in shops

Awareness in churches

Helpful neighbours

Helpful bus drivers

Starting dementia awareness early – involve schools

Breaking down the stigma

Better signage

More toilet facilities and better signage

More seating in towns

questionnaire from the Hampshire toolkit as a guide for consultation.

We have made an effort to engage traditionally hard to reach groups and as an example, one of our Local Area Co-ordinators has visited the Nepalese Community to deliver an awareness session via an Interpreter. The session was well-received and further work is happening with the Nepali community through a number of routes including The Connaught

School in Aldershot. We have also had an introduction into the traveller community in North Hampshire.

In talking to people with dementia and their carers about what makes a community dementia friendly, the overwhelming response is more awareness of dementia. When talking about barriers and things that aren’t working well for people with dementia, a common theme is transport. This is either due to a lack of buses in rural areas which restricts people’s ability to get out and about or the lack of understanding amongst bus


Page 26

“I hope that by getting involved I can

help people with dementia and also the

companies who want to support this

initiative.”

Simon, a person living with semantic

dementia.

drivers and transport providers which makes life difficult.

We have actively tried to engage people with dementia and their carers and encourage them to take on

roles in the project. We have 2 people with dementia and a carer who participate in the stakeholder

group meetings:

Simon is a former senior consultant at KPMG and is living with Semantic dementia. Simon also

spoke at the launch of the HDAA and is part of

a local dementia friendly implementation group

in Odiham.

Kim, who cares for her Mum, Doreen, was an

early member of the stakeholder group and

also signed up as a project volunteer. She is

playing a major role in the local implementation

group in Romsey championing sign up to the

HDAA and working towards Romsey becoming another dementia friendly high street.

Some of the barriers people told us about…

Public transport

People in rural communities can’t get to groups

Lack of support in the evening

Segregated male and female changing rooms at local swimming pool makes it difficult for

carers to help with changing so people don’t go swimming

Negative portrayal of dementia in the media makes life even harder

Lack of understanding of dementia in the community and how to communicate with

someone with dementia

Some of the good things people told us about…

Self-service in libraries frees up counter staff to help those who need it, without delaying

other customers

Singing groups are enjoyed by both people with dementia and carers

When services work together it’s better for everyone

Befriending services are invaluable

Awareness sessions useful in helping family members understand their loved one’s

condition and enabling them to understand behaviour and be more supportive

Carers support each other and share experiences and coping tips


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Doreen has dementia and has really enjoyed participating in the project. She says that her

confidence has grown tremendously since she has been involved. She has appeared in a short

film and attends the Stakeholder Group with her daughter, Kim.

We also have people with dementia and carers helping with local implementation groups, for example:

Jane, cared for her Mum who lived with dementia. She has been a key contributor to the

Fareham local implementation group. She has promoted the work with businesses and

organisations in the area, including becoming a Dementia Friends Champion, running

awareness raising sessions and championing sign up to the HDAA.

Terry, a volunteer in Alton, is actively involved in the action group there and keen to develop a

dementia friendly high street in his community. Terry has vascular dementia and often attends

local awareness sessions with our area co-ordinator to talk about his experiences and answer

questions. As chair of Alton Charities Together, Terry is a prominent member of the local

community and is using his extensive list of contacts to promote the DFH project.

Les, a volunteer in the Fareham implementation team is a carer for his wife who has dementia.

Les has been actively involved in the launch of the dementia friendly high street in Fareham.


Page 28

WHAT NEXT?

Additional funding was secured from the South of England Dementia Challenge Fund and Dementia

Friendly Hampshire will now continue for a further year. The co-ordinators will be working hard to reach

out to traditionally excluded groups. We will also be looking to gain coverage in new geographic areas

and will be putting more resource into both Winchester district and Havant and East Hants. We will be

focussing on engaging and empowering people with dementia to find their voice and take on active

roles in the pursuit of dementia friendly communities across Hampshire.

We have a number of specific deliverables for year 2:

To launch 3 more dementia friendly high streets with a minimum of 20 members in each

To recruit a further 100 members to the HDAA, including at least 7 from traditionally excluded

groups

To support the development of at last 5 peer support groups to plug gaps identified by Year 1

mapping

To recruit at least 8 new Ambassador, including 2 from traditionally excluded groups

To deliver at least 60 structured awareness sessions, including at least 8 to traditionally

excluded groups

To continue the programme of consultation and engagement with people with dementia and

carers

To deliver a plan for the sustainability of Dementia Friendly Hampshire when funding ends

A VERY BIG THANK YOU

TO EVERYONE WHO HAS SUPPORTED

DEMENTIA FRIENDLY HAMPSHIRE

IN YEAR 1

Report written by Mandy Moore on behalf of Dementia Friendly Hampshire. March 2014.

year 1 report dementia friendly hampshire

Documents

dementia friendly communities

month project

partnership project

project deliverables

dementia friendly high

dementia action alliance

project stakeholder

andover mind project