voice of the patient: epatient 2009

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Voice of the Patient ePatient2009 Conference Kerri Morrone Sparling www.sixuntilme.com

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Post on 07-May-2015

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A presentation given at the ePatient 2009 conference in Philadelphia, talking about patient opinion leaders and how patient blogging affects the greater health community.

TRANSCRIPT

Page 1: Voice of the Patient:  ePatient 2009

Voice of the PatientePatient2009 Conference

Kerri Morrone Sparlingwww.sixuntilme.com

Page 2: Voice of the Patient:  ePatient 2009

Before I was an ePatient, I was e-Impatient. Where were the other people living “real lives” with chronic illnesses, like me?

Was the only information online of the “horror story” variety?

Page 3: Voice of the Patient:  ePatient 2009

I couldn’t find what I wanted, so I had to create it for myself.

Page 4: Voice of the Patient:  ePatient 2009

I Wasn’t Alone.

• SixUntilMe started in May 2005, one of the very first diabetes blogs.

• Now there are more than 350 sites dedicated to diabetes lifestyle and management.

• The diabetes community has stepped outside of the Internet and has in-person meet-ups.

Page 5: Voice of the Patient:  ePatient 2009
Page 6: Voice of the Patient:  ePatient 2009

• Patient opinion leaders (POLs) are patient bloggers who have risen to become voices for their communities.

• Connecting with the POL links you to their vast community of like-minded people who trust them to provide quality information with integrity.

Why Do the “POLs” Matter?

Page 7: Voice of the Patient:  ePatient 2009

We don’t blog because we HAVE to – we blog because it helps us heal.

Page 8: Voice of the Patient:  ePatient 2009

Until there is a cure, there will be a blog. And while life with diabetes isn’t easy, sharing our collective stories and finding support in one another makes the burden so much lighter.