vanessa carrion rn, cpn july 9, 2017thalassemia.org/boduw/wp-content/uploads/2017/08/... ·...
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COMMUNICATION STRATEGIES FOR
PATIENTS AND NURSES
Vanessa Carrion RN, CPN
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July 9, 2017
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NOT TOO SCIENTIFIC…
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COMMUNICATION IS A TWO WAY STREET
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COMMUNICATION STRATEGIES FOR PATIENTS
Bring your questions and concerns to clinic
Request records in advance
Organize medical information (use binder or keep
electronic copies)
Have an emergency plan
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EMERGENCY PLAN
Grab and go records (especially helpful for 2 am fevers)
Keep a travel letter
Identify a local center
Inform your thalassemia provider!
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TAKE CHARGE OF YOUR CARE
Always have an appointment scheduled
Be persistent (especially with insurance)
Know your resources
Identify someone you can talk to
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SHARE YOUR GOALS
Trying to get caught up routine testing completed?
Want to improve chelation compliance?
Working on a college degree or for a promotion at work?
Are you interested in having a family soon?
Are you moving?
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COMMUNICATION STRATEGIES FOR NURSES
Introduce yourself and share your role
Be prepared
Sit down with the patient/family
Listen and don’t rush
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COMMUNICATION STRATEGIES FOR NURSES (CONTINUED)
Develop a rapport (this is my favorite)
Be mindful of non-verbal communication
Keep a non-judgemental attitude
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COMMUNICATION STRATEGIES FOR NURSES
Assess understanding of medical terminology
Investigate need for interpreter in advance
Be culturally aware and of your own beliefs
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DIG IN…
How are you taking your medicine?
Describe your daily routine?
When do you get chelation deliveries?
Are you having trouble with insurance?
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DIG IN MORE.
Use visuals such as ferritin graph or ferriscan
Ask what’s going on in their life
If we don’t know, we can’t help
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SOMETIMES IT TAKES A VILLAGE
Involve team members in care coordination Physician
Social work
Child life
Teacher
Transfusion NP
Pediatrician/PCP
Specialty providers
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COMMUNICATION IN DIFFERENT STAGES
New family/patient
Established family/patient
The adult patient
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EFFECTIVE COMMUNICATION ON BOTH ENDS IS ESSENTIAL FOR GOOD
THALASSEMIA CARE
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