using person-centered tools for engagement · • what are person-centered discovery tools? • how...

Getting to Know You: Using Person-Centered Tools for Engagement

MARYLAND DEPARTMENT OF HEALTH

Anastasia Edmonston MS CRC, Maryland TBI Partner ProjectNASHIA SOS 2019

Who is here?Introductions

Warm-Up

• Write three goals/areas of meaning you have for yourself on a piece of paper

• Hand that paper to the person sitting next to you• Listen for the rest of the instructions

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Using Person-Centered Tools for Engagement

This material may only used with written permission of the author, Diane Grieder: [email protected]

Debrief

• How did it feel to analyze another person’s goals?• What knowledge, skills and experience did you apply when making your

decision? How comfortable were you in providing feedback regarding how you arrived at your decision?

• Once your partner returned your “edited” goals back to you, how did you feel? Angry? Annoyed? Foolish for overreaching? Disappointed? Not understood? All of the above?

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Debrief

• Do you think individuals living with brain injury get this kind of response to their hopes and dreams? If you are a family member/supporter/care giver, have you been on the receiving end of this type of often well meaning but paternalistic approach?

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Today’s Session

• What are Person-Centered Discovery Tools?• How to use Person-Centered Discovery Tools • Creating a Person Centered Profile that can be used to highlight a person’s

interests, what is important to them, and how others can best support them at home, work and in the community

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What Do These Tools Do?

• Provide an opportunity for the individual living with a traumatic brain injury (TBI) and their supporters to think through what is important to and important for them

• Offer simple and concrete ways to communicate this information to anyone who comes into that individual’s life without the individual and their supporters needing to tell their story yet another time

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What Do These Tools Do?

• Offer a way to communicate essential, important information to potential caregivers and service providers if the individual’s primary supporters are no longer able to advocate for/support them

• Make it easier for the individual with a brain injury to convey information about themselves to new people who come into their lives

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Important To

What is important to a person includes those things in life which help us to be satisfied, content, comforted, fulfilled and happy, including:

• People to be with/in relationships• Things to do and places to go • Rituals or routines• Rhythm or pace of life • Status and control • Things to have

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Source: Support Development Associates, LLC

Important To

Include what matters most to the person; their own definition of quality of life.

What is important to a person includes only what people “say” with:• Their words• Their behavior

When words and behavior are in conflict, pay attention to the behavior and ask “why?”

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Important ForIssues of health: • Prevention of illness • Treatment of illness/medical conditions • Promotion of wellness (e.g.: diet and exercise)

What others see as necessary to help the person:• Be valued • Be a contributing member of their community

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Issues of safety:• Environment • Well-being — physical and emotional • Free from fear

To and For ConnectionImportant to and important for influence:

• No one does anything that is important for them (willingly) unless a piece of it is important to them

Balance is dynamic (changing) and always involves tradeoffs:• Among the things that are important to• Between important to and for

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Finding BalanceHealth and safety dictate lifestyle.

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Source: Support Development Associates, LLC, TLC-PCP 2012 www.learningcommunity.us

Finding BalanceAll choice, no responsibility.

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Example

For a young adult with a TBI:• “It is important for me not to have any more seizures” (won’t be able to

drive, work, my medications might be increased and they make me sleepy enough already, my parents won’t support my goal of living in my own apartment again)

• “It is important to me to do the kind of things I did before my accident” (hang out with friends, go to bars, meet new people)

• Finding balance between for and to may mean drinking nonalcoholic beer

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Using Person Centered Discovery ToolsPull out your packet of handouts and pair up with someone, ideally someone you don’t know very well

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Discovery ToolsFirst discovery skill: The Relationship Map

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People who are paid to provide support to me

People who support mewithout being paid

Family

Source: Support Development Associates with The Learning Community for Person Centered Practices 2015

Step One

• Put your name in the center of the map

• Put the names of at least three to four people (non-people count, so pets,

your higher power, etc. are all fine to include) in your life who support

you/close to you/with whom you have a close relationship

• Switch maps with your partner

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Step Two“If someone was doing a plan with me or helping me make a decision, who should they be sure they talk to?”

Working with a partner, ask:

• What do you like about the person?

• What do you admire about the person?

• When is the last time you had fun together and what did you do?

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Morning Ritual

Stasia’s Morning Ritual• 5:15 a.m. — Wake up, alarm also wakes up the cats and dog (not the husband). Let the animals in, one of the cats (usually Squeakers) jumps on

the bed for head butts and kisses. Dog rests his head on the bed for pets and kisses and the cat gets irritated and jumps off. Read any messages on phone.

• 5:30 a.m. — Go down to kitchen, turn on coffee machine (prepared the night before), fill cat and dog bowls with water and food

• 5:45 a.m. — Every other day do a weights or yoga video before walking the dog. If it is a work from home day, may go to the barre studio for a 6 a.m. class

• 6:15 to 6:45 a.m. — Walk/jog the dog around the neighborhood while listening to a podcast: Mark Maron, Rich Roll, Main Street Vegan and Pod Save America are favorites.

• 6:45 a.m. — Get back into the house, give the dog a Dentastick, fill coffee cup and take shower. If washing hair, use a nice shampoo from the salon, the conditioner is a Moroccan oil based one from the Giant. On the mornings I wash my hair, drink first cup of coffee while drying hair. Get dressed (clothes placed in the bathroom the night before)

• 7 a.m. — Apply make-up while continuing to listen to Podcast

• 7:30 a.m. ish — BREAKFAST! Usually prepared the night before. Rolled oatmeal, walnuts, chopped dates, flax or hemp seeds, frozen berries (usually blue, wild from Maine), ¼ teaspoon of turmeric and a grind of black pepper with soy milk. Put in a “grab it bowl” and put a lid on it, will eat once I get to the office. Keep topping off coffee till I am out the door. Get lunch out, usually leftovers that were packed the night before.8 a.m. ~ Say goodbye to the husband and animals, everyone gets a smooch if they are nearby. Grab all the bags, laptop, lunch, tote and purse and leave for work travel mug of coffee and cereal bowl in hand.21


Your Morning Ritual• Write down your morning ritual

• Start with how you wake up and end with leaving or when you feel your morning routine is completed

• Include favorite products you use. For example: Shaving cream? Soap? Hair products? Tea? Coffee? Soda? Quiet time?

• Include as much detail as you are comfortable with — include enough details so that you can learn how to collect sufficient information

• Tell us how long it takes — indicate what time it starts/ends

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Your Morning Ritual

Switch morning routines with your partner.

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Good Day/Bad Day

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Good Day Bad Day I am able to take a 2-mile walk with my dog, Desmond

Google maps prediction of the best route to work is CORRECT

My office-mate (who I really like) is working out of our (small) office

Opportunity to engage with others outside of training responsibilities, such as conference planning committee meetings

If I am training, the participants are engaged and engaging, and we make a connection while sharing information

Did not sleep well the night before

Husband does not go to the gym and I don’t have 15 minutes to listen/watch CBS morning show while putting on my makeup

Despite Google’s best efforts and mine, traffic is bad (essentiallyany time it rains)

My office-mate and I are both in the office and she is on the phone most of the day while I am trying to put together a new presentation

Doing anything that has to do with money or budgets

Get pulled from my regular duties to do something I may not enjoy or I feel is out of my skill set

Stasia’s Good Day/Bad Day-At work

Good Day/Bad Day

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Your turn!

• Pull out your Good Day/Bad Day Form — give it to your partner

• Ask your partner to describe a Good Day and a Bad Day

• Once you have finished Good Day/Bad Day, give your partner your relationship map and morning routine

• Pull information together for what is “Important To” and “Important For”

Source: TLC-PCP 2013 www.learningcommunity.us

Discovery and Listening

Interview your partner. Using their relationship map and Good Day/Bad Day, you want to generate one or two “Important To” and “Important For” items. Before you write them down:

Guess: Look at what is written and guess in your head

Ask/Try: Ask your partner if your guess is correct and have a conversation

Write: Write down what you learn

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Discovery and ListeningSorting important “to” from important “for” (and finding a better way to balance them):

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Important To Important For

Pulling It All Together

The one page description is a great way to introduce someone to a new direct care staff person, to the staff of a new program, it can be placed in the front of a person’s medical record.

If they are in an institution, assisted living setting or group home, the one page description, with the person’s permission, can be placed on the door to their room or apartment or on the wall of their room or other central location.

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Pulling It All Together

Very useful in environments where there are multiple shifts/staff who may be per diem, or work evenings, when they may not have the opportunity to communicate with the team:

• For those who have limited language/communication ability, it can serve as a quick, holistic picture of a person and a way for supporters to engage in a Person-Centered way

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One-Page Description

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For a specific purpose: put examples of new situations — like a new job or meeting new people — at the front of the person’s records.

An “at a glance” positive way to share key information about:• What people like and admire• What is most important • How to best support

All one page descriptions have these three sections at minimum.

Source: http://learningcommunity.us/onepageprofiles.htm

http://learningcommunity.us/onepageprofiles.htm


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What people like and admire about John:• Dependable• Honest• Friendly• Takes care of his mom

Supports John needs to stay happy, healthy and safe in the community and on the job:

• Know what to expect for the work week, schedule, who the shift supervisors will be, etc.

• Know that his mother is well taken care of when he is at work

• Be able to run situations by his employment specialist so he can think before he acts

What is important to John:• Family and Friends• Being a valued (and long standing employee)• Time playing games on his devices• Attending church• Being independent in his community (learning

new bus routes as needed)

For a good match, characteristics needed to be present or absent:

• Patient• Really takes the time to get to know me and

my mother• Nice• Honest — I don’t understand why I am

feeling/acting angry sometimes• Reliable for the long-term (it is hard to “break

in “ new staff)


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Jean loves:• Getting her nails done and picking

out earrings and bracelets to wear• Her hair cut in a short style• Cats, chocolate and her

grandchildren

People love Jean because:• She cares about others• Is a good friend• Well respected oncology nurse, always a

resource to others

Jean’s storyShe grew up in Malden, MA. She spent her summers in Northern Vermont with her beloved aunts and uncles.

She and her husband of 45 years, Jim, moved to Connecticut as newlyweds. They raised four kids and have four grandchildren.

She is a proud Democrat.

She and Jim are very active in their church.

It is important to Jean that staff:• Honor her nursing career and experience• Give her a heads up so she knows what to expect before

any thing happens in her room or to her in the course of providing care — this helps manage her anxiety


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What people like and admire about Stasia:• Engaging• Excellent trainer• Passionate• Friendly• Resourceful• Persistent (follow-up on email and calls)• Loyal

Supports Stasia needs to stay happy, healthy and safe in the community and on the job:

• Ask me how I am doing• Ask me if I need any help• Encourage me to be honest about what I am

thinking and feeling• Give me time to myself, especially in the morning

What is important to Stasia:• Family and friends• Connecting with training audiences• Time with pets• Singing• Feeling organized• Taking care of my health through

regular exercise

For a good match, characteristics needed to be present or absent:

• Sense of humor• Flexible• Smart• Warm• Honest

Create your own One-Page Description

Pulling together information from all the Discovery Tools we used today.

For today’s purposes we didn’t get to the “Reputations” exercise which gets to what people like and admire about you, just do your best and you can ask your partner and others around the room!

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For Your Reference:The Matching ExerciseUsing Person-Centered Tools for Engagement

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To learn the characteristics that need to be present, ask:

To learn the characteristics that need to be absent, ask:

• Who is closest to the person?

• Who enjoys spending time with the person?

• Who helps make good days happen for the person?

• What characteristics do these people have in common?

• Who does the person avoid?

• Who dislikes spending time with the person?

• Who helps the person have bad days?

• What characteristics to these people have in common?

Learning Personality “Characteristics” that need to be Present or Absent in Supporters

Source: ©TLCPCP 2016 www.tlcpcp.com

Characteristics of peopleI like to work with

Characteristics of peopleI like to hang out with

Characteristics of peopleI don’t like to work with

Characteristics of peopleI don’t like to hang out with


Supports Needed Skills Required

PERSONALITY CHARACTERISTICS Want

Don’t Want

NICE TO HAVE (SHARED INTERESTS)

Matching for____________


Supports Needed Skills RequiredAssistance shopping (grocery,

clothing personal, etc)Some knowledge of cost comparison, budgeting, and savvy shopping

Assistance with personal grooming (advice on clothing, reminders on grooming, assistance with shaving)

Ability to use an electric razor and some knowledge of beard trimming

Assistance with housekeeping chores• Laundry• Cleaning and organizing

personal space

• Basic knowledge of laundry methods and use of high efficiency equipment

• Organizational skills, basic housekeeping skills

Assistance with management of lawn maintenance business• Making phone calls• Maintaining calendar of

appointments• Managing payments and record

keeping• Ensuring quality control on

lawn jobs• Assistance with maintaining

lawn maintenance equipment

• Organizational and record keeping skills

• Attention to detail• Good interpersonal skills (for

working with business customers)

• Basic knowledge of lawn maintenance techniques —mowing, weed eating, blowing, mulching and trimming

PERSONALITY CHARACTERISTICS NEEDED

• Organized, but not in a rigid kind of way• Flexibility, spontaneity• Not afraid of the Texas summer heat!• Good judgment• Sense of humor — the silly, funny kind (as opposed to a dry or sarcastic kind)• Preferably male — but not limited to that

NICE TO HAVE (SHARED INTERESTS)

• Knowledge of and interest in small engine repair• Distance running• Ghost hunting, watching the Ghost hunters show• Experience with lawn maintenance• Riding dirt bikes

Matching Staff for Andrew


Thank you

Anastasia Edmonston [email protected]

A product of the Behavioral Health Administration 2019

“This project was supported, in part by grant number 90TBSG0027-01-00 from the U.S. Administration for Community Living, Department of Health and Human Services, Washington, D.C. 20201. Grantees undertaking projects with government sponsorship are encouraged to express freely their findings and conclusions. Points of view or opinions do not, therefore, necessarily represent official ACL policy.”

mailto:[email protected]

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