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Using an Immunization Registry to Enhance Immunization Program Core Functions: The New York City Experience NYC Department of Health and Mental Hygiene Bureau of Immunization 2003 National Immunization Registry Conference Atlanta, GA October 28, 2003 Presented by: Sheila L Palevsky, MD MPH

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Page 1: Using an Immunization Registry to Enhance Immunization Program Core Functions: The New York City Experience NYC Department of Health and Mental Hygiene

Using an Immunization Registry to Enhance Immunization Program Core Functions:

The New York City Experience

NYC Department of Health and Mental HygieneBureau of Immunization

2003 National Immunization Registry ConferenceAtlanta, GA

October 28, 2003

Presented by: Sheila L Palevsky, MD MPH

Page 2: Using an Immunization Registry to Enhance Immunization Program Core Functions: The New York City Experience NYC Department of Health and Mental Hygiene

Staten Island

Brooklyn

Queens

Bronx

Manhattan

New York City

Page 3: Using an Immunization Registry to Enhance Immunization Program Core Functions: The New York City Experience NYC Department of Health and Mental Hygiene

New York City -Background

• Population of ~8,000,000

• Annual birth cohort of ~125,000– ~340 births per day

• Large immigrant population

• Mobility of the population within the city

Page 4: Using an Immunization Registry to Enhance Immunization Program Core Functions: The New York City Experience NYC Department of Health and Mental Hygiene

NYC - Child Health Providers

• 1,257 provider sites with over 3,000 clinicians

– 87 public/municipal sites

– 1,170 private sites

Page 5: Using an Immunization Registry to Enhance Immunization Program Core Functions: The New York City Experience NYC Department of Health and Mental Hygiene

Public Sites

• 11 public hospital OPDs

• 6 Diagnostic & Treatment Centers (DTC)

• 23 Community Health Centers (FQHC)

• 41 public child/adolescent health clinics

• 6 DOHMH Bureau of Immunization clinics

Total: 87 sites

Page 6: Using an Immunization Registry to Enhance Immunization Program Core Functions: The New York City Experience NYC Department of Health and Mental Hygiene

Private Sites

• 49 private hospital OPDs

• 24 hospital faculty private practices

• 22 voluntary foster care agencies

• 10 non-public child/adolescent health clinics

• 1,065 private practices (solo and group)

Total: 1,170 sites

Page 7: Using an Immunization Registry to Enhance Immunization Program Core Functions: The New York City Experience NYC Department of Health and Mental Hygiene

New York City - MCOs

• 30 managed care plans

– Of these, 17 include Medicaid managed care plans

Page 8: Using an Immunization Registry to Enhance Immunization Program Core Functions: The New York City Experience NYC Department of Health and Mental Hygiene

NYC DOHMH Bureau of Immunization (BOI)

AssistantCommissioner

Medical Director

Registry (CIR)

Program Operations Director (CDC)

Surveillance

Perinatal Hep B

Imm Clinics

Adult Unit

Provider Liaison

Assessment Unit

Program SupportServices

Vaccine Supply

CommunityOutreach & Education

WIC Schools

Page 9: Using an Immunization Registry to Enhance Immunization Program Core Functions: The New York City Experience NYC Department of Health and Mental Hygiene

The Citywide Immunization Registry (CIR)

• Mandatory reporting of all immunizations administered to children < age 7 since January 1, 1997

• Voluntary reporting of immunizations for children 8-18 years of age

• Birth certificates loaded weekly into the CIR

• All children born in NYC are routinely enrolled

• Currently over 2 million children and over 14 million immunizations entered into the CIR

Page 10: Using an Immunization Registry to Enhance Immunization Program Core Functions: The New York City Experience NYC Department of Health and Mental Hygiene

The Citywide Immunization Registry (CIR)

• High compliance with reporting to CIR, but data is incomplete

– 100% of public providers report (87/87)

– 78% of private providers report (913/1,170)

– 63% of children entered in the CIR have 2 or more immunizations; of these, the average is 11 immunizations per child

Page 11: Using an Immunization Registry to Enhance Immunization Program Core Functions: The New York City Experience NYC Department of Health and Mental Hygiene

CIR Access

• Internal interface for DOHMH staff

– Powerful search capabilities

• External interface for providers based on the web-based on-line registry

– Stricter searching criteria

Page 12: Using an Immunization Registry to Enhance Immunization Program Core Functions: The New York City Experience NYC Department of Health and Mental Hygiene

Volunteering To Be A PROW Demonstration Site

• To focus more attention on the need to integrate CIR functions more fully into the BOI core functions

• To make integration of the CIR with program functions a priority for both the BOI and CIR

Page 13: Using an Immunization Registry to Enhance Immunization Program Core Functions: The New York City Experience NYC Department of Health and Mental Hygiene

PROW Process

• The engagement process– Program operations director was designated to

partner with CIR director

– These two directors met individually with the unit chief of each BOI program unit to assess current relationships and future integration with CIR

– PROW self-assessment tool used by all participants

– Unit chiefs expressed strong interest in integration with CIR

Page 14: Using an Immunization Registry to Enhance Immunization Program Core Functions: The New York City Experience NYC Department of Health and Mental Hygiene

Assessment Findings

• Low to moderate level of integration of CIR into most core program functions

• Partially or fully met PROW standards in Levels I, II and III for each program component

Page 15: Using an Immunization Registry to Enhance Immunization Program Core Functions: The New York City Experience NYC Department of Health and Mental Hygiene

Vaccine Management - 1

• 4/14 total PROW standards partially or fully met–Generate doses administered reports by

provider – these reports are used by VFC staff to adjust quantity of doses of vaccine shipped

–Capture VFC eligibility status– Improve accuracy of VFC eligibility reports by

age group - VFC staff reviews usage reports categorized by age/dose over time for VFC site visits

–Use provider/clinic information for broadcast fax service - used by BOI to regularly send fax alerts to 2,900 providers

Page 16: Using an Immunization Registry to Enhance Immunization Program Core Functions: The New York City Experience NYC Department of Health and Mental Hygiene

Vaccine Management - 2

• Strong support for further integration– High priority for both VFC program and CIR

– Funding allocated for CIR enhancements to link with VACMAN

– Further enhancements, i.e., CIR inventory module, under development

Page 17: Using an Immunization Registry to Enhance Immunization Program Core Functions: The New York City Experience NYC Department of Health and Mental Hygiene

Provider Quality Assurance - 1• 13/17 total PROW standards partially or fully met

– Provide easy links to information - CIR has links to BOI and CDC websites for info for parents, providers

– Use registry data as part of AFIX visits - CIR gives assessment team a list of patients associated with provider, within age range and over time period, and charts are pulled for review based on that list

– Use registry data to highlight practice issues for provider education - use practice/facility data in grand rounds, conferences, and training sessions

– Monitor trends in immunization practice - CIR is a CDC Sentinel Site - quarterly reports reflect immunization coverage and timeliness of data for ~10,000 children

Page 18: Using an Immunization Registry to Enhance Immunization Program Core Functions: The New York City Experience NYC Department of Health and Mental Hygiene

Provider Quality Assurance - 2

– Send recall notices to providers - done only for Medicaid managed care cohort who are not UTD (~42,000 children aged18-30 months - a 1 year birth cohort)

– Send reminder notices to parents - done for Medicaid managed care cohort for those who are not UTD after information is obtained from PCPs

– Enroll birth facilities to capture birth dose of HBV

– In the electronic birth record, include HBV and transfer into CIR - HBIG is not included in our electronic birth record

– Use CIR to track HBV series completion for infants born to HBsAg+ mothers - the Perinatal Hep B unit regularly uses the CIR to review data and in their follow-up

Page 19: Using an Immunization Registry to Enhance Immunization Program Core Functions: The New York City Experience NYC Department of Health and Mental Hygiene

Provider Quality Assurance - 3

– Include grace period in prediction algorithm - CIR immunization calculation engine is in compliance with ACIP guidelines and NYC school regulations

– Highlight invalid doses - based on a forecasting algorithm

– Display the reason a dose is considered invalid

Page 20: Using an Immunization Registry to Enhance Immunization Program Core Functions: The New York City Experience NYC Department of Health and Mental Hygiene

Provider Quality Assurance - 4

• The future – Plans are being considered to include links

to health alerts on NYC DOHMH website

– As registry data becomes more complete calculation of coverage rates will be possible

Page 21: Using an Immunization Registry to Enhance Immunization Program Core Functions: The New York City Experience NYC Department of Health and Mental Hygiene

Service Delivery - 1

• 7/10 total PROW standards partially or fully met–WIC access - WIC sites have telephone/fax

access to CIR for assessing UTD status for WIC clients

–School access - schools have telephone/fax/ Internet access for assessing student compliance

– Identify providers not part of VFC - provider/ facility lists maintained by CIR and VFC are compared and non-participating providers are identified

Page 22: Using an Immunization Registry to Enhance Immunization Program Core Functions: The New York City Experience NYC Department of Health and Mental Hygiene

Service Delivery - 2

– CIR used to identify delayed individuals for outreach - done for the Medicaid managed care cohort

– Identify children without a medical home - done for the Medicaid managed care cohort - ~6,000 children identified by providers as “not my patient”

Page 23: Using an Immunization Registry to Enhance Immunization Program Core Functions: The New York City Experience NYC Department of Health and Mental Hygiene

Service Delivery - 3

– Provide individual immunization reports to WIC based on a WIC supplied roster

– Long-term care facilities participate - pediatric long term care facilities are reporting to the CIR regularly; the CIR is not collecting adult immunization data

Page 24: Using an Immunization Registry to Enhance Immunization Program Core Functions: The New York City Experience NYC Department of Health and Mental Hygiene

Service Delivery - 4

• The unmet standards–Practice-specific reminder-recall system in

development based on provider-specific patient lists; periodic email alerts to be sent to the provider that patients may be due for recall – however requires active participation by provider

–No plan to use day care enrollment rosters to identify children not UTD

Page 25: Using an Immunization Registry to Enhance Immunization Program Core Functions: The New York City Experience NYC Department of Health and Mental Hygiene

Consumer Information - 1

• 4/6 total PROW standards partially or fully met

– Generate official immunization records for families

– Generate or link to variety of consumer educational materials - consumer education materials linked on consumer website pages

– CIR promotional materials to include general immunization information - consumer CIR website has links to immunization information; plans have been discussed to include these links in print materials

Page 26: Using an Immunization Registry to Enhance Immunization Program Core Functions: The New York City Experience NYC Department of Health and Mental Hygiene

Consumer Information - 2

– Disseminate consumer alerts through the registry - the consumer website has links to the BOI web pages where updated immunization information and alerts are available

Page 27: Using an Immunization Registry to Enhance Immunization Program Core Functions: The New York City Experience NYC Department of Health and Mental Hygiene

Consumer Information - 3

• For the future – To develop on-line access for consumers

to the registry in a secure mode

– To be able to send families electronic notices

Page 28: Using an Immunization Registry to Enhance Immunization Program Core Functions: The New York City Experience NYC Department of Health and Mental Hygiene

Surveillance - 1

• 2/7 total PROW standards partially or fully met

– Provide immunization histories to disease investigators - CIR provides immunization histories for disease/outbreak investigation

– Enable updating of immunization history by surveillance staff - staff may add documented immunization histories not in CIR

Page 29: Using an Immunization Registry to Enhance Immunization Program Core Functions: The New York City Experience NYC Department of Health and Mental Hygiene

Surveillance - 2

– Show which provider gave shots and when, in case further medical record follow-up is required by surveillance investigation - CIR records the provider of record for each immunization given to a child

Page 30: Using an Immunization Registry to Enhance Immunization Program Core Functions: The New York City Experience NYC Department of Health and Mental Hygiene

Surveillance - 3

• Plans for the future – There is no plan to track adverse events in

the CIR; there will be a link to VAERS from the CIR

– A link to NEDSS is under development

– A provider portal is under development by the NYC DOHMH MIS department that will link to the CIR on-line application

Page 31: Using an Immunization Registry to Enhance Immunization Program Core Functions: The New York City Experience NYC Department of Health and Mental Hygiene

Assessment - 1

• 5/12 total PROW standards partially or fully met– Use registry data to validate reports for school

assessments - CIR may be used to supplement data gathered for school survey for compliance with immunization regulations

– Assess coverage among WIC participants - CIR data is used to supplement WIC assessments

Page 32: Using an Immunization Registry to Enhance Immunization Program Core Functions: The New York City Experience NYC Department of Health and Mental Hygiene

Assessment - 2

– Registry access to Medicaid and MCOs - CIR supports batch file data exchange with Medicaid and non-Medicaid MCOs on a regular basis; MCO medical directors have on-line access to the CIR

– Tracking vaccine for occupational reasons - a separate CIR database tracks smallpox vaccination by employer

Page 33: Using an Immunization Registry to Enhance Immunization Program Core Functions: The New York City Experience NYC Department of Health and Mental Hygiene

Assessment - 3

• Unmet standards– CIR data is not sufficiently complete for

coverage assessment or to identify pockets-of-need

– CIR data is not sufficiently complete to support geographic analysis

– Administrative decision not to expand the registry to include any adult immunizations at this time

Page 34: Using an Immunization Registry to Enhance Immunization Program Core Functions: The New York City Experience NYC Department of Health and Mental Hygiene

Priorities for Integration - 1

• Least resource intensive– Provide DOHMH front-end access to CIR to BOI staff in

the main office• Installed application on Program Support Service (WIC/Schools)

staff desktop PCs and provided training immediately following PROW assessment

• Provider quality assurance staff already have access

– Provide CIR on-line registry access to BOI staff in the field

• Perinatal Hep B and Surveillance staff already have online access

• Plan to provide access to Immunization Clinic staff by 12/2003

Page 35: Using an Immunization Registry to Enhance Immunization Program Core Functions: The New York City Experience NYC Department of Health and Mental Hygiene

Priorities for Integration - 2

• More resource intensive– Automated link of CIR to VACMAN to

strengthen VFC vaccine management and accountability – target date 12/2003

– Expanding CIR provider and facility tables to support broadcast communications to adult as well as childhood immunization providers

Page 36: Using an Immunization Registry to Enhance Immunization Program Core Functions: The New York City Experience NYC Department of Health and Mental Hygiene

Benefits of Integration - 1

• Reduces the time spent by surveillance staff to locate immunization histories for disease/ outbreak control

• Reduces the time spent by the assessment team in identifying a provider’s patient population for sampling

• Supplements data gathered for WIC assessments; staff gets a more accurate picture of coverage

• Supplements data available for compliance with school immunization requirements

Page 37: Using an Immunization Registry to Enhance Immunization Program Core Functions: The New York City Experience NYC Department of Health and Mental Hygiene

Benefits of Integration - 2

• Assists in accounting for use of VFC vaccine by providers

• Enables VFC program to adjust quantities of vaccine shipped to avoid wastage

• Enables identification of practice-specific patterns for provider education

• Increases staff understanding of the interrelationships of all program components

Page 38: Using an Immunization Registry to Enhance Immunization Program Core Functions: The New York City Experience NYC Department of Health and Mental Hygiene

Challenges

• Clinic staff may not have computers available with Internet access

• Finding time for joint planning and training

• Funding for further enhancements to CIR

• Shifting CIR staff focus from external (providers, MCOs, schools, WIC) to internal (BOI program colleagues)

Page 39: Using an Immunization Registry to Enhance Immunization Program Core Functions: The New York City Experience NYC Department of Health and Mental Hygiene

Now and in the future

• Allows for colleagues to better understand all program components

• Promotes collaboration between and among BOI units

• More effective use of resources• More coordinated and effective services

to the providers and the patients they serve

Page 40: Using an Immunization Registry to Enhance Immunization Program Core Functions: The New York City Experience NYC Department of Health and Mental Hygiene

it doesn’t need to be a perfect registry –

incomplete data are useful

Page 41: Using an Immunization Registry to Enhance Immunization Program Core Functions: The New York City Experience NYC Department of Health and Mental Hygiene

Thanks to all of the staff participating in this project

Stephen FriedmanJane ZuckerFrank RoldanYnolde Andrews-GillanSam Anim-AddoDileep SarechaKarin Seastone-SternKaren FernandezToby KellerJane Tubridy

Amy MetrokaShirley HuieVicky PapadoukaAngel AponteLennon TurnerNicholas GagliotiAlison ChiRenee SimmsEdward WakeStephanie Bershad

Page 42: Using an Immunization Registry to Enhance Immunization Program Core Functions: The New York City Experience NYC Department of Health and Mental Hygiene

Sheila L. Palevsky, MD MPHMedical Specialist – Provider LiaisonBureau of ImmunizationNew York City Department of Health and Mental HygienePhone: 212-676-2264Fax: [email protected]