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Using an ethics of Care to Decrease Harms Associated with: The Increasing Vulnerabilities of Diabetes and Obesity DiAnn Ecret, PhDc, MSN, RN, MA certification Ecret, 2018

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Page 1: Using an ethics of Care to Decrease Harm Associated with · Stigma “The land of the sick and the land of the healthy”: Disability, bureaucracy, and stigma among people living

Using an ethics of Care to

Decrease Harms Associated with:

The Increasing Vulnerabilities of Diabetes and Obesity

DiAnn Ecret, PhDc, MSN, RN, MA certification

Ecret, 2018

Page 2: Using an ethics of Care to Decrease Harm Associated with · Stigma “The land of the sick and the land of the healthy”: Disability, bureaucracy, and stigma among people living

Objectives

• Apply an ethics of care framework in the management of care for patient’s who are diagnosed with diabetes and obesity

• Explain how an ethics of care decreases stigma, decreases escalation of stress states, decreases the escalation of physiological harms

• Identify the importance of developing communities of care

• Describe how communities of care can increase individual flourishing through restorative and transformational actions

• Discuss how an ethics of care can guide relational decision making processes through the application of care elements: attentiveness, responsiveness, responsibility, competency, connectedness, empathy and collective wisdom

Ecret, 2018

Page 3: Using an ethics of Care to Decrease Harm Associated with · Stigma “The land of the sick and the land of the healthy”: Disability, bureaucracy, and stigma among people living

Hastings Report:

Tackling Obesity Disease: The Culprit is Sugar; the Response is

Legal Regulation

sugar sweetened beverages Written by: Lawrence O. Gostin• Advertising Restrictions: Commercial

Speech

• Labeling and Warnings: Compelled by Speech

• Sugar Sweetened Beverages: Politics of Public Health?

• Portion Size: “Nanny Bloomberg”

Ecret, 2018

Page 4: Using an ethics of Care to Decrease Harm Associated with · Stigma “The land of the sick and the land of the healthy”: Disability, bureaucracy, and stigma among people living

Why an Ethics of Care?Milton Mayeroff

Carol Gilligan

Virginia Held

Ruth Groenhout

On caring

In a Different Voice

The Ethics of Care: Personal,

Political, and Global

Connected Lives: Human Nature

and an Ethics of Care

Ecret, 2018

Page 5: Using an ethics of Care to Decrease Harm Associated with · Stigma “The land of the sick and the land of the healthy”: Disability, bureaucracy, and stigma among people living

Comorbidities of Diabetes and Obesity

Ecret, 2018

Page 6: Using an ethics of Care to Decrease Harm Associated with · Stigma “The land of the sick and the land of the healthy”: Disability, bureaucracy, and stigma among people living

Homeostasis and Allostasis

Ecret, 2018

Page 7: Using an ethics of Care to Decrease Harm Associated with · Stigma “The land of the sick and the land of the healthy”: Disability, bureaucracy, and stigma among people living

Stress

• Mental Health Comorbidities of

Diabetes

• Major depressive disorder

• Diabetes distress

• Anxiety disorders

• Neuroimmune/ Inflammatory

Complications

Ecret, 2018

Page 8: Using an ethics of Care to Decrease Harm Associated with · Stigma “The land of the sick and the land of the healthy”: Disability, bureaucracy, and stigma among people living

Taking a Closer Look at Health Disparities

• Racial and ethnic minorities are affected disproportionately

• Higher prevalence rates, decreased diabetic control, increased complications, decreased life expectancy

• Disparities in diabetic quality care received

• IOM Report- ‘Unequal treatment: Confronting Racial and Ethic Disparities’

• Decrease in diagnostic testing and decrease in maintenance management diagnostic testing; such as HbA1c testing, cholesterol testing, hypertension management, dilated ophthalmologic examination

• YET…….disparate populations are at increased risk for targeted marketing strategies

Ecret, 2018

Page 9: Using an ethics of Care to Decrease Harm Associated with · Stigma “The land of the sick and the land of the healthy”: Disability, bureaucracy, and stigma among people living

Commodification/ Market Systems

• Goods and services/ profitable sales placed as a higher priority than human life

• Increasing marketing strategies to those most vulnerable

• Sale of alcohol, sugar sweetened beverages, tobacco, fast food

• Goods and services/ profitable sales

• Health care quality distribution by ‘those’ who can pay

• Lowering quality of service to save costs

• Care --as a set of ‘saleable’ treatments or interventions

Ecret, 2018

Page 10: Using an ethics of Care to Decrease Harm Associated with · Stigma “The land of the sick and the land of the healthy”: Disability, bureaucracy, and stigma among people living

Socio-cultural Relationship with Food:

Why it matters in ‘care’

Ecret, 2018

Page 11: Using an ethics of Care to Decrease Harm Associated with · Stigma “The land of the sick and the land of the healthy”: Disability, bureaucracy, and stigma among people living

Stigma“The land of the sick and the land of the

healthy”: Disability, bureaucracy, and

stigma among people living with poverty

and chronic illness in the United States.

• Stigma - process of labeling, stereotyping, separating, and discriminating against individuals

• Enacted Stigma – acts of hostility or discrimination towards individuals possessing a stigmatized attribute

• Felt/ Anticipated Stigma – anticipated fear after being subjected to stigma

• Internalized Stigma – when one comes to accept the stigmatized attributes, developing negative perceptions/ shame of self

• Structural Stigma – Societal level conditions, cultural norms, institutional policies that constrain opportunities, resources and wellbeing of the stigmatized.

Racialized Rhetoric

Welfare dependence

Underclass

‘Personal Responsibility an Work

Opportunity Reconciliation Act’

Penalty and paternalistic techniques of governance

Market Oriented Economy and State

Ecret, 2018

Page 12: Using an ethics of Care to Decrease Harm Associated with · Stigma “The land of the sick and the land of the healthy”: Disability, bureaucracy, and stigma among people living

Hedonic Signaling Research, Increasing Stigma?

• Mesolimbic dopamine pathway

• Natural rewards, such as food and sex increase responses within the mesolimbic dopamine pathway

• Molecular changes are described with the exposure of highly palatable foods.

• Neurological brain functioning is altered with the alterations in evaluation of food reward, which can result in ‘aberrant motivation to consume.

• Back to homeostatic aspects of food intake…..concerned primarily with regulation of energy balance….

• Back to commodification….

• Back to Hastings Center Report…..

Ecret, 2018

Page 13: Using an ethics of Care to Decrease Harm Associated with · Stigma “The land of the sick and the land of the healthy”: Disability, bureaucracy, and stigma among people living

Bruce Alexander

The Globalization of Addiction: A

Study on Poverty of the Spirit

Rat Park

Healing Addiction Through

Community: A Much Longer Road

Than it Seems?

Ecret, 2018

Page 14: Using an ethics of Care to Decrease Harm Associated with · Stigma “The land of the sick and the land of the healthy”: Disability, bureaucracy, and stigma among people living

Implementing an Ethics of Care

• Connectedness

• Responsiveness

• Responsibility

• Competency

• Wisdom

• Autonomy and Frailty

• Independency and Dependency

• Relational Autonomy of Patients

• Professional Attentiveness and

Treatment with Dignity

• Responsibility and Wise Action

Ecret, 2018

Page 15: Using an ethics of Care to Decrease Harm Associated with · Stigma “The land of the sick and the land of the healthy”: Disability, bureaucracy, and stigma among people living

An Ethics of Care as a

Community of Care

Community: The Structure of Belonging

The Abundant Community Awakening the Power of Families and Neighborhoods

‘Peter Block’

The Nature of Order: An Essay on the Art of Building and the Nature of the Universe

Book one: The Phenomenon of Life

‘Christopher Alexander’

Ecret, 2018

Page 16: Using an ethics of Care to Decrease Harm Associated with · Stigma “The land of the sick and the land of the healthy”: Disability, bureaucracy, and stigma among people living

Decreasing Stigma

• Disseminating a relational education paradigm shift

• Improving quality and extending quality initiatives to society

• Collaboration and shared decision making initiatives

• Implementing professional and societal prevention strategies

• Through policy change and authentic care of the ‘other’

Ecret, 2018

Page 17: Using an ethics of Care to Decrease Harm Associated with · Stigma “The land of the sick and the land of the healthy”: Disability, bureaucracy, and stigma among people living

Narrowing the Health Disparities Gap

• Inquiry is necessary in the development of culturally tailoring diabetic quality improvement

initiatives for Specific racial/ethnic minority populations

• Development of comparison specific interventions for various ethnic/ racial minority

populations

• Education specific interventions

• Provider specific interventions

• Health care organizational interventions

• Improving care coordination and care transitions

Ecret, 2018

Page 18: Using an ethics of Care to Decrease Harm Associated with · Stigma “The land of the sick and the land of the healthy”: Disability, bureaucracy, and stigma among people living

Addressing the Issues: What are our thoughts in relation to:

Commodification

Poverty, Disability, Dependency, and Stigma

Ecret, 2018

Page 19: Using an ethics of Care to Decrease Harm Associated with · Stigma “The land of the sick and the land of the healthy”: Disability, bureaucracy, and stigma among people living

Implementing a Care Paradigm

Decreasing Influential Societal Risks

• Professional self reflection

• What we are doing well and what needs improvement?

• Implementing improvement plans

• Identifying 1-2 goals per year: Implementing a preventative ethics strategy that brings

results.

• Implementing a Preventative Ethics Improvement Plan

Ecret, 2018

Page 20: Using an ethics of Care to Decrease Harm Associated with · Stigma “The land of the sick and the land of the healthy”: Disability, bureaucracy, and stigma among people living

Questions?

Thank- You

Ecret 2017

Page 21: Using an ethics of Care to Decrease Harm Associated with · Stigma “The land of the sick and the land of the healthy”: Disability, bureaucracy, and stigma among people living

References• Ducat, Lee. “The mental health comorbidities of diabetes.” in JAMA. Vol.312. No. 7. (2014). 691-692.

• Gostin, Lawrence. “Tackling obesity and disease: The culprit is sugar: the response is legal regulation.” in Hastings Center Report. (January-February 2018).

• Leys, Colin & Harriss-White, Barbara. “Commodification: The essence of our time.” in Open Democracy UK: Power and Liberty in Britain. Vol. 2. (April 2012).

• Lutter, Michael & Nestler, Eric J. “Homeostatic and hedonic signals interact in the regulation of food intake.” in The journal of Nutrition: Symposium – Food Addiction: Fact or Fiction? (January 2009).

• National Center For Ethics in Health Care. “Preventative ethics ISSUES storyboard worksheet.” Retrieved on March 25, 2018 at https://www.ethics.va.gov/docs/integratedethics/PE_Storyboard_worksheet_blank_20130724.pdf

• Peek, Monica E., Cargill, Algernon & Huang, Elbert, S. ”Diabetes health disparaties: A systematic review of health care interventions.” in Med Care Res Rev. Vol. 64. Suppl. 5(October, 2007). 101S-156S.

• Stumvoli, Michael P., Tataranni, Antonio, Norbert, Stefen, Vozarova, Barbora & Bogardus, Clifton. “Perspectives in diabetes: Glucose allostasis.” in Diabetes. Vol. 52. (April 2003). 903-09.

• Whittle, Henry, J., Palar, Kartika, Ranadive, Nikhil A., Turan, Janet M., Kushel, Margot, & Weiser, Sheri D. “The land of the sick and the land of the healthy: Disability, bureaucracy, and stigma among people living with poverty and chronic illness in the United States.” in Social Science and Medicine. Vol. 109. (2017). 181-189.

Ecret, 2018