upper south west area profile consultation document development plan... · consultation document...

1 │Area profile for comment January 2013

Area profile for comment January 2013

Map based on information provided by and with the permission of the Western Australian

Land Information Authority (Landgate), and the Australian Bureau of Statistics.

Profile—Upper South West area Consultation Document

Profile—Upper South West area

2 │Area profile for comment January 2013 (last updated 11/12/2012)


Consultation document

The Disability Services Commission’s (DSC) vision is that all people live in welcoming

communities that facilitate citizenship, friendship, mutual support and a fair go for everyone.

To achieve this, Western Australia requires a responsive disability service sector to support

people with disability, their families and carers to access more opportunities in the

community.

To meet this goal, the Commission in

partnership with key stakeholders is

creating a Sector Development Plan. Its

purpose is:

to provide further direction and

targeted developmental

opportunities across WA

to ensure the disability services

sector continues to evolve to meet

the needs, goals and preferences

of people with disability.

Fifteen profile area documents have been

created to cover all areas across WA.

They combine existing information to

create a picture of supports and services

that make up the disability sector in each

area. It provides a base of information to

be validated or challenged by

stakeholders.

Feedback will add to our understanding of each area and how well supports and services

match people’s needs. The consultation process will identify strengths and gaps in supports

provided to people with disability in each area.

Guiding strategic documents

Convention on the Rights of

Persons with Disability (United

Nations 2006)

Count Me In: Disability Future

Directions (DSC 2009)

Delivering Community Services in

Partnership Policy (Department of

Premier and Cabinet 2011)

Disability Care and Support Reports

(Productivity Commission 2011)

Disability Services Commission

Strategic Plan 2011–2015

(DSC 2011)

National Disability Agreement

(Commonwealth of Australia 2011)

National Disability Strategy

(Commonwealth of Australia 2009)




This diagram below explains how the plan will be developed:

Have your say

We are seeking feedback from interested stakeholders and have developed a list of questions covering a number of topics for your consideration. A feedback form template has also been provided which may assist you in consolidating your comments. Should you wish to use the template provided you can either complete it electronically or print it and hand write your comments.

Forms can be returned to the Commission by email or post.

email the template to [email protected]

post the template to:

Disability Services Commission Sector Development Plan Feedback PO Box 441 WEST PERTH WA 6872

The template has been supplied as a helpful tool but it is not compulsory that you use it or answer every question to provide your feedback. Any general comments can be provided to the Commission via email or post using the details above, or they can be provided verbally or by attending a focus group.

To provide feedback another way you can:

provide verbal feedback by phoning Sector Development on 9426 9309

attend a focus group that will be hosted in local areas (these will be advertised on the www.dsc.wa.gov.au web site).

The closing date for feedback will be advertised on the www.dsc.wa.gov.au web site. If you have any questions or require further assistance, please email [email protected] or phone 9426 9309.

Phase one

Describing existing supports and services

15 profile area consultation documents

State-wide overview

Phase two

Seeking local feedback

Identifying strengths and gaps

Phase three

Planning and identifying opportunities to improve the sector

Developing solutions to address gaps

mailto:[email protected]

http://www.dsc.wa.gov.au/

http://www.dsc.wa.gov.au/

mailto:[email protected]




Note about information and data

All efforts have been taken to ensure that the data contained in these profiles is as accurate

and contemporary as possible. Specific data limitations are listed throughout the profiles

and in Appendix B and users are encouraged to interpret the information with caution.




Location

The upper south west area profile covers about 6,147 square kilometres (Australian Bureau

of Statistics 2012b) and includes six local government authorities (LGAs): the City of

Bunbury and the Shires of Capel, Collie, Dardanup, Donnybrook-Balingup, and Harvey. The

region stretches from Southampton in the south to Cookernup in the north, and from

Bunbury and Binningup in the west to Bell Brook and Treesville in the east. Of the six

LGAs, the Shires of Collie and Harvey combined cover approximately 56 per cent of the

total area—with each accounting for about 28 per cent of the area (ABS 2012b).

Demographics

According to the 2011 Census (ABS 2012b), there is an estimated 96,073 people living in

the region and about 33 per cent reside in the City of Bunbury. The upper south west area

represents about four per cent of the West Australian population.

Table 1: Upper south west population by LGA area

Total: Upper South West profile area 96,073

City of Bunbury 31,348

Shire of Capel 14,638

Shire of Collie 9,126

Shire of Dardanup 12,404

Shire of Donnybrook-Balingup 5,320

Shire of Harvey 23,237

Source: ABS 2012b.

The age distribution across the population in the upper south west area is similar to that

across Western Australia except for between the ages of 15 to 35—where there is a lower

percentage of people represented in this age range (ABS 2012b).

According to the Survey of Disability, Ageing and Carers (SDAC) 2009, Small area

estimates, an estimated 3,153 (3.7%) (refer to footnote 1) of the private dwelling population

have a severe or profound core activity limitation (ABS 2012c) (refer to footnote 2). In reality

most areas do not deviate hugely from 3.1% because the numbers are so small.

1 Figures from the SDAC are produced from samples which are then generalised to the population—the numbers are referred to as estimates and are to be used as a guide only (see Appendix B). 2 Core activities are tasks related to self-care, mobility and communication. People with severe and profound limitations sometimes or always need help and supervision with a core activity, or have difficulty understanding or being understood by family and friends (ABS 2012b) (see Appendix B).




Population characteristics

About 19 per cent of the population in this area was born overseas, which is

significantly below the WA average of 31 per cent (ABS 2012b).

Six per cent of the population in the upper south west profile area speaks a language

other than English at home (ABS 2012b). This is significantly below the WA average

of 21 per cent.

People who identified as Aboriginal and Torres Strait Islander in the 2011 Census

(ABS 2012b) represent 2.5 per cent of the population the upper south west profile

area. This is similar to the representation across WA, where the figure is three per

cent. The Shires of Dardanup, Donnybrook-Balingup and Harvey were slightly below

the State percentage—with all about two per cent.

In this profile area nearly eight per cent of the population provided unpaid assistance

to a person with disability (ABS 2012b). This is consistent with the percentage

recorded for the State (ABS 2012b).

The median total household weekly incomes across the upper south west area is variable

with some LGAs reporting figures similar to the State figure ($1,415), and others higher or

significantly less (ABS 2012b). Residents in each LGA recorded the following median total

household incomes:

Table 2: Median total household income

State-wide median total household income $1,415

City of Bunbury $1,139

Shire of Capel $1,628

Shire of Collie $1,339

Shire of Dardanup $1,502

Shire of Donnybrook-Balingup $990

Shire of Harvey $1,464

Source: ABS 2012b.




Table 3: Rental and housing prices

Suburb LGA Median weekly

rent (3 b/rm)

Median house

price (3 b/rm)

Bunbury City of Bunbury $300 $532,750

Collie Shire of Collie $250 $250,000

Donnybrook Shire of Donnybrook-Ballingup

$270 $360,000

Perth metropolitan N/A $385 $470,000

Source: Real Estate Institute of WA (REIWA) 2012 (refer to footnote 3).

There are many other sources of information that could be considered with this area

profile document. Information about health services, local government services and

education services will enhance the context in which disability sector development is

considered. For example, Regional Development Australia has developed a regional

plan for South West Western Australia. The plan can be accessed via

rda.gov.au/my-rda/wa.

Tell us what you think

1. What other information would you like to add about the upper south west area that

is not already contained in the profile?

People, families, supports and services

This section describes supports and services people with disability, families and carers

accessed in the upper south west profile area in 2011−2012. It includes information about

networks and support groups, Commission-funded and provided services and other

community services available.

Networks and support groups

People with disability, their families and carers often get practical and moral support from

their wider family, friends, neighbours and other families of people with disability. This

support is important.

Informal and structured community groups also play a valuable role in supporting and

strengthening individuals and families. People and families are often involved within their

3 Rent prices from October–December 2011. House prices based on sales as at 4 May 2012.

http://rda.gov.au/my-rda/wa

http://rda.gov.au/my-rda/wa




community in church groups, sports and recreation activities, community networks,

mothers’ groups, playgroups, self-help and peer support programs, disability-specific

support groups, cultural groups and education and counselling services.

People can access information about local support groups through other community

members, the Commission’s Local Area Coordination (LAC) or through information services

provided by Commonwealth Respite and Carelink Centres (CRCC), Carers WA or local

government authorities (LGAs).

A sample of groups and organisations providing support in the area includes (Support

Groups Association WA 2012):

Bunbury Housing Association: Provides long-term housing for low income

disadvantaged people.

Contact: 9791 5438

Collie Family Centre: Provides support to individuals, families and support groups in the

community to enhance their quality of life. A counselling service is also available. Open on

weekdays from 9am–2.30pm.

Contact: 9734 5343 Web: www.colliefamilycentre.org.au

Family Support Programme—Harvey Health and Community Services: Provides crisis

information, family support, referral, advocacy and general information to families within the

Shire of Harvey excluding Australind. Open Monday to Wednesday 8.30am–4.30pm.

Contact: 9782 4000

Milligan—Bunbury: Provides a family support service through adult education classes,

referral centre, resources, playgroups and children's programs, social activities and

community development.

Contact: 9271 8944 Web: www.milligan.org.au

Waroona Community Centre Inc and Waroona Telecentre: Links members of the

community with appropriate support services, including crisis support, information and

advocacy, referrals to other support networks, employment services, family and youth

support services, activity programs and a toy library. Open Monday to Thursday 9am–4pm

and Fridays 9am–3pm.

Contact: 9733 2545 Web: www.waroonacommunitycentre.org.au

WA Special Families: Is a state wide Facebook support group. It is accessed by invite-only

and the people able to access it must be a parent of or someone caring for, a person with

disability.

http://www.colliefamilycentre.org.au/

http://www.milligan.org.au/

http://www.waroonacommunitycentre.org.au/





2. What other disability or community support groups are available and active in this area?

3. What other informal community support groups would the area benefit from?

People using Commission-funded and provided services

This section describes people with disability and their families who live in the upper south

west area and used Commission-funded and provided supports and services in

2011−2012. It reflects how the Commission defines, organises and funds services at

present. It does not provide detail about how well these services are working.

Local information and support for individuals and families

Local Area Coordination (LAC)

Many people with disability and their families access the Commission’s LAC support. LAC

works at an individual and community level to support people with disability, their families and

carers to participate, contribute and belong in their local communities. It assists people with

disability and their families’ access supports and services designed to help them exercise

choices in their daily lives. This approach helps to foster independence and the development of

skills and abilities that enables them to participate in their community and to pursue a good life.

LAC works directly with individuals and families to provide support that is personalised,

flexible and responsive. The cornerstone of the LAC role is building and maintaining

effective working relationships that help support individuals and families to pursue their

goals and meet their needs. LAC provides local support to children and adults with physical,

sensory, neurological, cognitive and/or intellectual disability who are under 65 at the time

they first apply for support.

In 2011–2012, 604 people in the upper south west area were registered with LAC according

to the Annual Client and Service Data Collection (ACDC) (Disability Services Commission

2012). Of these people:

More than 56 per cent were aged between five and 24 (this is consistent with the

high numbers of young people registered with LAC across WA).

Most lived in Bunbury (324), followed by Harvey (101) and Collie (76).




Directing supports and services—shared management

Most people with an individualised funding allocation from the Commission have their

support managed and provided by a prequalified disability sector organisation. Some

people with Community Living or Family Living manage their funding allocation through an

agreement with their LAC.

Disability service organisations are encouraged to offer shared management which enables

individuals and/or families to have directive control over matters related to their supports

and funding. Some people have their funding allocation transferred to them by the

organisation and they manage the use of these funds and acquittal in accordance with the

shared management agreement.

Where the individual and/or family elect to take on shared management, negotiation occurs

between the individual and/or family and the organisation to achieve a shared agreement.

This enables each party’s requirements, expectations and responsibilities to be clearly

established and subsequently documented in a signed shared management agreement.

Shared management gives those people who want autonomy an opportunity to have

greater control. It requires a good relationship between all parties to ensure the right

balance of support is provided.

Table 4: Organisations that offered shared management in the upper south west area

in 2012

Activ Multiple Sclerosis Society

Baptistcare My Place

Enable Southwest Perth Home Care Services

Source: DSC 2012.

Supported living

Supported living describes a type of support provided to people with disability so they can

live in their home and community. In WA, it is resourced through individual funding

allocated by the Commission. This funding is applied for by the individual (or their family)

and is allocated on the basis of priority of need, through the Combined Application Process

(CAP), or allocated based on need and planning through the Community Living Program.

Increasingly, this support is provided in ways that allow people greater choice and flexibility.

In 2011−12, 123 people in the upper south west area had a Commission allocated

individualised funding package and were supported in shared supported accommodation or

an individualised accommodation arrangement (DSC 2012).




Shared supported accommodation

In 2011−12, 61 people in the upper south west area had an individualised funding package

for accommodation support and lived in one of 15 shared support accommodation

arrangements (group homes) (DSC 2012). This represented about four per cent of all group

homes across the State. Of these 61 people, more than 54 per cent were aged over 60

years-of-age. Other information of note includes:

Most people were living in Bunbury (48), followed by Harvey (8).

Activ provided most of the shared supported accommodation in this profile area.

Individualised community living (ICL)

In the upper south west area in 2011−12, 62 people had an individualised funding package

for accommodation support and utilised individual community living support and services

(DSC 2012). Most of these people live in Bunbury (45).

14 people in this area have a community living package.

Support to pursue meaningful occupation/lifestyle

This section describes services and supports available for people to pursue meaningful

occupation and an active lifestyle. These services tend to be referred to as social

participation, alternatives to employment or post-school options and recreation.

Post School Options (PSO) and Alternatives to Employment (ATE) are Commission funded

programs intended to support people to pursue meaningful activities during their week. Both

programs involve the application and allocation of individualised funding packages to

individuals. The PSO program is for individuals of school-leaving age and allocated based

on eligibility and support needs. ATE funding can be accessed by adults with disability

through the Combined Application Process and is based on eligibility, support needs and

priority of need.

In the upper south west area, 121 people received an ATE or PSO allocation in 2011−2012

(DSC 2012):

More than 69 per cent were aged between 15 and 34.

Most people lived in Bunbury (70), followed by Harvey (16).

There are nine Commission prequalified organisations working with people with ATE

and PSO funding allocations in the upper south west area (see Appendix A).




Recreation

Eligible people with disability may access support to pursue recreational activities. The

Commission contracts and funds organisations to provide recreation support. People

contact organisations to find out about eligibility and access to services.

In 2011–2012, 90 people in the upper south west area used recreation support services

(DSC 2012):

The majority of people who accessed these services lived in Collie and Bunbury (39

and 34 people respectively).

Riding for the Disabled Association of WA was the recreation service used by the

largest number of people in the upper south west region.

Support to families

This section describes services and supports for families when additional support is

required. These supports and services aim to improve family wellbeing. In some cases,

these supports and services are individually funded such as through the Family Living

Initiative (FLI) or Intensive Family Support (IFS). In other cases, service organisations are

funded directly (block-funded) to provide support to eligible people, such as with respite

services. The FLI is a relatively new strategy to support families. It has a strong emphasis on

planning. Families can apply for an individualised funding allocation based on a plan that

complements informal supports provided by families, carers, friends and the wider

community.

When families are under stress or at risk of breakdown people with disability can apply for

IFS funding through the Commission’s Combined Application Process (CAP). Funding is

allocated to people who have been given the highest priority by an independent panel and

is allocated specifically to the person with disability.

In the upper south west area in 2011–2012:

36 people and their families received Intensive Family Support funding (DSC 2012).

Most of these people lived in Bunbury (21).

Nine people have a plan and funding package through the Commissions Family

Living Initiative (DSC 2012).




Breaks for families and carers

To give themselves a break, families and carers can sometimes access services from

Commission-funded disability sector organisations (often called respite or family support

services). The Commonwealth also funds respite services.

Respite programs are generally block-funded (direct contract and funding to organisations)

with individuals and families applying for respite opportunities that are allocated based on

need and vacancies.

These services can be provided in the person’s home and/or community (also known as

flexible or non-residential respite) or in respite houses (also known as out-of-home or

residential respite). Many organisations offer places in school holiday programs.

Access to family support services by a person and their family will vary depending on their

relative need, type of respite accessed and availability of services. It is important to note

Commonwealth Respite and Care Link can provide families with information about

organisations that provide respite in their area. It can also fund short-term or one-off

respite through Commonwealth Department of Health and Ageing funding.

Local Area Coordinators can also help families have a break or access supports. 62 people

received some form of family support package funded through the Commission and

managed through the Commission’s LAC.

In 2011–2012, 113 people in the upper south west profile area accessed Commission-

funded respite support through prequalified organisations (DSC 2012).

Support to optimise independence and wellbeing

Disability professional services

Many people with disability access professional services, including therapy, to contribute to

their wellbeing, independence and positive relationships and to develop skills to participate

in community life.

In regional Western Australia comprehensive professional services are provided through

WA Health’s Country Health Services (WACHS). People may also pay privately for these

types of services, or, in some cases, access Commonwealth funding.

Through comprehensive services, eligible individuals can access therapies (including

speech and occupational therapy), physiotherapy and psychology support. Comprehensive

services respond flexibly to the needs and desired outcomes of individuals and their

families. Services are organised by early childhood, school age and adult intervention

services. People can access disability professional services through several means,

depending on eligibility, availability of services and relative need.




Targeted services are single-focused, highly specified services available State-wide and

across a person’s lifespan. Services include equipment display, specialised equipment

consultancy, interventions for challenging behaviours and State-wide consultancy and

resource teams. These teams work with service providers to better support people with

highly complex needs.


4. What difference are supports and services making?

5. How well are disability-specific supports and services complementing other

community supports?

6. Can you provide details of any partnerships that are working well in this area?

7. Does the mix of services match the needs of people in this area?

8. What supports are working well in this area?

9. Are there services and supports in this area that are not achieving the best

outcomes? What kind of fine-tuning is needed?

10. Are there barriers to accessing services and supports in this area? If so, what are

they?

Other community services

Employment supports and services for people with disability

Some people with disability access employment services to support them to find and keep a

job. People choose (or are assessed and directed by Centrelink) to access Australian

Disability Enterprises (ADE) or Disability Employment Services (DES), depending on their

support requirements. Individuals may be required to undergo formal assessments such as

a job capacity assessment (by Centrelink) to determine their eligibility for support.

Australian Disability Enterprises (ADE)

ADEs (formerly Business Services) provide employment opportunities for people with

disability. These are commercial enterprises funded by the Department of Families, Housing,

Community Services and Indigenous Affairs (FaHCSIA) (Australian Government, FaHCSIA

2011). There are no ADEs operating in the upper south west area.




Disability Employment Services (DES)

Disability Employment Services help people with disability find and keep a job in the open

labour market. DES are funded by the Department of Education, Employment and

Workplace Relations (DEEWR) (Australian Government, DEEWR 2012).

People can access one of two DES programs, depending on their assistance needs:

Disability Management Services (DMS) and Employment Support Services (ESS). DMS

programs provide support to job-seekers with disability, injury or health conditions who do

not require long-term assistance in the workplace. ESS programs provide longer term

support in the workplace to people with disability (Australian Government, DEEWR 2012).

Detailed information about DES available to people in the upper south west profile area can

be found at www.deewr.gov.au/Employment/Programs/DES/Pages/About.aspx.


11. What is required to support people with disability in the area to achieve their

employment aspirations?

12. What are the main three factors that assist people with disability to achieve their

employment aspirations? (list in order of importance—with one being most important).

13. What are the top three barriers to people with disability achieving their employment

aspirations? (list in order—with one being the greatest barrier).

Home and Community Care Services (HACC)

The HACC program provides basic assistance to people who are aged, frail or with

disability, supporting them to continue living independently (Australian Government 2010).

Services include nursing care, allied health care, meals, domestic assistance, personal

care, home maintenance, transport, respite, counselling, information and advocacy, social

supports and assistance with essential activities such as shopping and banking.

In the metropolitan area, individuals may apply for HACC services and be assessed for

eligibility via the Commonwealth Carelink and Respite Centre (CCRC). The HACC program

has limited resources and services are allocated according to relative needs (Australian

Government 2010). HACC is funded by the Commonwealth Department of Health and

Ageing and WA Health. The WA Government is responsible for managing and approving

HACC services. Detailed information about the number and types services provided in the

upper south west profile area can be found at

www.health.wa.gov.au/hacc/docs/mds/HACC_Report_2010_2011.pdf





14. What examples can you provide of Home and Community Care services working

well on the ground for people with disability in this area?

Demand for supports and services

The demand for supports and services (current and future) can be challenging to accurately

quantify. Demand from people wanting support and services continues to grow, as does new

and responsive ways of meeting demand. This includes the use of social media to provide

information and support, flexible delivery of services in the home, school or community and

locally-based solutions such as those proposed through the My Way project. While demand

grows, many people need less support over time as they gain confidence.

Over many years, demand has been quantified in relation to service programs such as the

need for more accommodation or respite services or by considering waiting lists. The

evolution of services to focus on individualised responses provides an opportunity to focus

on new ways of providing more tailored support and services. The focus on more

individualised self-directed supports aims to achieve increased quality and better use of

limited resources. In recent years, there has been a significant increase in demand for

services that allow a tailored, flexible approach. Increasingly, service organisations are

shifting their focus to offer new ways of providing support and services, such as sharing

management. It is expected demand for more tailored services will continue to increase.

Service access

The table below compares the number of people with disability using various service types

in the upper south west area with those across WA using per 1,000 head of population. In

contrast to other programs, there is a significantly higher rate of people using registered

with the Local Area Coordination program (4.98) compared to WA (3.89).

Table 5: Service coverage for upper south west and state-wide per 1,000 head of

population

People accessing LAC

People accessing shared supported accommod.

People accessing individ. community living

People accessing ATE/PSO

People accessing intensive family support

Upper south west

4.98 0.63 0.68 1.26 0.37

State-wide 3.89 0.88 0.51 1.12 0.42

Source: DSC 2012.




Future demand

The data in the upper south west area highlights at least two areas of potential future

demand:

There are around young people registered with LAC in the upper south west area.

This includes nearly 257 young people between the ages of 10 and 19. This may

impact on future demand for supports and services that effectively allow young

people to achieve their employment aspirations. This may also include demand for

support to pursue a meaningful lifestyle following school. Many young people with

disability across Australia are not achieving adequate further education or

employment opportunities (Organisation for Economic Co-operation and

Development 2009). Local collaboration and targeted efforts may be required to

improve this situation.

There are just over 30 people in shared supported accommodation (group homes) in

the upper south west area aged over 60 years of age. This is likely to provide future

demand for supports that allow people with disability to age in place—including

support to maintain optimal health and wellbeing. People with a disability tend to

approach ageing with existing disadvantage. For example people with a disability are

more likely to experience poor health outcomes, social isolation and poverty when

entering the ageing life stage compared to citizens without a disability (Bigby 2004).

Disability may increase the likelihood of early onset ageing (and associated

complications) such as the prevalence of early onset dementia in some people with

Down Syndrome or the life-long impact of significant physical disability and early

onset secondary disabilities or health complications associated with ageing (Lennox

and Edwards 2001).


15. Are you aware of any emerging trends where the changing needs of people with

disability in this area are not fulfilled by current services? If so, what are they?

16. What supports and services are likely to be in demand in this area into the future?

17. What types of supports and services needed by local people are not available now?




Sector development issues

This section considers any existing sector development initiatives and describes what may

be emerging needs for this profile area. Consultations will provide an opportunity to

consider sector development in more detail.

Sector development initiatives

A shared management resource has been developed by West Australia’s Individualised

Services (WAIS) and is available online at www.waindividualisedservices.org.au.

This resource will be regularly updated and WAIS have a shared management advisor

available to support organisations to develop and improve practice in shared management.

Potential areas for sector development

When considering the potential areas for sector development it may be useful to take the

Count Me In: Disability Future Directions into account. Count Me In was developed after

many consultations with people with disability, their families and carers, through these

consultations 13 areas for development were identified. These include ways to support

people with disability to participate and contribute in all areas of life, ensuring people have

economic security, live in accessible communities, and have access to personalised

supports and services (DSC 2009, 7).

An initial review of data included in this profile area suggests the following potential areas

for sector development initiatives:

Healthy and active ageing - Almost 100 people in shared supported accommodation

services (group homes) in this area are over the age of 45. Many people with

disability age prematurely and experience complicating health issues as they age.

There is likely to be a case to work with stakeholders to ensure adequate support for

people who are ageing in shared supported accommodation services.

Optimising employment opportunities—sector development may be required to

ensure adequate career/employment preparation and planning and support

opportunities are developed to help the high numbers of young people registered

with LAC in this area pursue meaningful lifestyles.





18. Can you suggest any ways to improve the effectiveness of disability supports and

services in WA? If so what are they?

19. Can you identify barriers to improving the effectiveness of disability supports and

services in WA?

20. If so, what are the top three barriers? (list in order—with one being the greatest

barrier).

21. Can you suggest any opportunities for developing the disability sector in WA? If so,

what would they be? (list in order—with one being the biggest opportunity).

22. Are there any emerging issues regarding the disability services sector or emerging

issues facing people with disability, their families and carers? What do we need to

take into consideration when planning in this area?

23. To what extent do service providers have the capacity to support people with

disability, families and carers to share decision-making and management of their

supports and services where and when needed?

General comments

24. Do you have any other feedback?




References

Australian Bureau of Statistics (ABS) 2012a, Table Builder Basic 2006, Map Builder,

CData Online, accessed 13 August 2012, www.abs.gov.au/CDataOnline .

Australian Bureau of Statistics (ABS) 2012b, Census of Population and Housing,

Basic Community Profiles, accessed 25 July 2012,

www.abs.gov.au/websitedbs/censushome.nsf/home/communityprofiles?opendocument&na

vpos=230 .

Australian Bureau of Statistics (ABS) 2012c, Survey of Disability Ageing and Carers

(SDAC) 2009, Small Area Estimates.

Australian Government, Department of Families, Housing, Community Services and

Indigenous Affairs 2011, Australian Disability Enterprises, accessed 21 June 2012,

www.australiandisabilityenterprises.com.au/About.aspx .

Australian Government, Department of Education, Employment and Workplace Relations

2012, Disability Employment Services, accessed 21 June 2012,

www.deewr.gov.au/Employment/Programs/DES/Pages/About.aspx .

Australian Government, Department of Health and Ageing, Home-based care 2010, accessed

21 June 2012, www.health.gov.au/internet/main/publishing.nsf/Content/hacc-index.htm .

Australian Government, Department of Regional Australia, Local Government, Arts and

Sport (RDA) 2012, South West Regional Plan 2012–13, accessed 1 December 2012,

www.rdasouthwest.com.au/_content/documents/RP%202012.

Bigby, C 2004, Ageing with a lifelong disability. Jessica Kingsley Publishers: London.

Disability Services Commission (DSC) 2009, Count Me In: Disability Future Directions. Disability Services Commission: Perth, WA, accessed 10 December 2012, www.disability.wa.gov.au . Disability Services Commission (DSC) 2011, Annual Client and Service Data Collection (ACDC) Data Guide: Questions and Definitions. For Western Australian Service Providers 2011–2012, accessed 28 November 2012, www.disability.wa.gov.au .

Disability Services Commission (DSC) 2012, Annual Client Data Collection (ACDC)

2011–2012, Service User Data.

Lennox, N & Edwards, N 2001, Report to Disability Services Queensland. Lessons from the

Labyrinth Views of Residential Care Officers on Barriers to Comprehensive Health Care for

Adults with an Intellectual Disability. Developmental Disability Unit, School of Population

Health, The University of Queensland.

http://www.deewr.gov.au/Employment/Programs/DES/Pages/About.aspx

http://www.health.gov.au/internet/main/publishing.nsf/Content/hacc-index.htm

http://www.rdasouthwest.com.au/_content/documents/RP%202012

http://www.disability.wa.gov.au/

http://www.disability.wa.gov.au/




Organisation for Economic Co-operation and Development (OECD) 2009, Sickness,

Disability and Work: keeping on track in the economic downturn–background paper.

www.oecd.org/employment/employmentpoliciesanddata/42699911.pdf .

Real Estate Institute of Western Australia 2012, Perth Suburb Profiles, Rental price for period

October–December 2011 and house prices for period April 2011–April 2012, accessed 1

August 2012, reiwa.com.au/Research/Pages/Suburb-profile-

results.aspx?suburb_id=121&census_code=SSC51036&geogroup_id=2627&geogroup_pare

nt_id=3 .

Support Groups Association Western Australia 2012, Connect Groups, Directory Search,

accessed 20 August 2012,

www.connectgroups.org.au/modules/directory/search.php?search_term=&location=6126&s

earch=Submit+Search .

Western Australia’s Individualised Services (WAIS) 2012, Shared Management. A guide for

Support Organisations exploring Shared Management, accessed 25 November 2012,

www.waindividualisedservices.org.au/assets/Uploads/SharedmanagementGuide-

FINAL2.pdf .

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http://www.connectgroups.org.au/modules/directory/search.php?search_term=&location=6126&search=Submit+Search

http://www.connectgroups.org.au/modules/directory/search.php?search_term=&location=6126&search=Submit+Search

http://www.waindividualisedservices.org.au/assets/Uploads/SharedmanagementGuide-FINAL2.pdf

http://www.waindividualisedservices.org.au/assets/Uploads/SharedmanagementGuide-FINAL2.pdf




Appendix A—Additional data

Table 6: Percentage of total state-wide population residing in the upper south west

profile area

Upper south west total population

State-wide total population Percentage of state-wide total population

96,073 2,239,170 4.29%

Source: Australian Bureau of Statistics (ABS) 2012b.

Chart 1: Population age distribution upper south west compared to state-wide

Source: ABS 2012b.

0.00

2.00

4.00

6.00

8.00

10.00

12.00

14.00

Percentage of people

Age Ranges

Upper south west population distributon(%) State-wide population distribution(%)




Table 7: General population and population with severe or profound core activity

limitation under 65 years-of-age in upper south west and state-wide

Area Estimated

residential

population

Estimated

population with

severe or

profound activity

limitation

Estimated

percentage of

population with

disability

Upper south west

profile area 84,570 3,153 3.7%

State-wide 1,932,500 60,300 3.1%

Source: ABS 2012c.

Chart 2: Numbers of people registered with Commission’s Local Area Coordination

(LAC) in the upper south west area by age range in 2011–2012

Age ranges 0-4 5-9 10-

14

15-

19

20-

24

25-

29

30-

34

35-

39

40-

44

45-

49

50-

54

55-

59

60-

64

65+

Upper south

west totals 23 83 82 91 84 44 29 25 28 21 29 25 14 26

Source: Disability Services Commission (DSC) 2012 (refer to Appendix B).

0

10

20

30

40

50

60

70

80

90

100

110

120

130

Number of people




Chart 3: Number of people accessing shared supported accommodation and

individualised community living in the upper south west area in 2011–2012

Accommodation

type

Shared supported Individualised community

living

Upper south west

totals 61 65

Source: DSC 2012 (refer to Appendix B).

Table 8: Organisations used by people in the upper south west area for shared

supported accommodation in 2011–2012

Organisation Number of people

rounded to nearest 5

Activ Foundation Inc 55

Baptistcare 5

Multiple Sclerosis Society 5


0

5

10

15

20

25

30

35

40

45

50

55

60

65

Number of people

Shared Supported Individualised Community Living




Table 9: Organisations used by people in the upper south west area for

individualised community living in 2011–2012



Enable South West 20


LAC (self-managing) 10

Life Without Barriers 10

Accessability (formerly Upper Great Southern Family Support

Association)

5

Anglicare WA Inc 5

Baptistcare 5


My Place 5

Perth Home Care Services 5

Strive Warren Blackwood 5

Teem Treasure 5

UnitingCare West 5





Chart 4: Numbers of people accessing Alternatives to Employment (ATE) and/or Post

School Options (PSO) in the upper south west area by age group in 2011–2012

Age ranges 15-

19

20-

24

25-

29

30-

34

35-

39

40-

44

45-

49

50-

54

55-

59

60-

64

65+

Upper south

west totals 16 42 15 11 7 8 7 5 6 5 5


0

5

10

15

20

25

30

35

40

45

50

55

60

65

Number of people




Table 10: Organisations used by people in the upper south west area for ATE/PSO in

2011–2012





Baptistcare 15

Anglicare WA Inc 10



Intework 5


My Place 5

Perth Home Care Services 5

Source: DSC 2012 (refer to Appendix B and footnote 4).

Table 11: Organisations used by people in the upper south west area for recreation

in 2011–2012



Riding for the Disabled Association of WA 60



WA Disabled Sports Association 5

Source: DSC 2012 (refer to Appendix B and footnote 5).

4 These services may not actually be based in this area and some people may travel out of the area to a preferred service.

5 Recreation services are provided by organisations contracted directly by the Commission.

People may travel out of their local area to receive this support. Access to services is

directly through the organisations.




Table 12: Organisations used by people in the east metropolitan area for Intensive

Family Support (IFS) services in 2011–2012






Australian Red Cross (Lady Lawley Cottage) 5

Baptistcare 5



My Place 5


Table 13: Organisations used by people in the upper south west area for out-of-home

(centre-based) respite in 2011–2012

Organisation

Activ Foundation Inc

Australian Red Cross (Lady Lawley Cottage)

Family Support WA

i.d.entity.wa

Source: DSC 2012 (refer to footnote 6).

6 The respite accessed by a person and their family will vary depending on their relative

need, type of respite accessed and availability of services. It is important to note

Commonwealth Respite and Care Link can provide families with information about

organisations that provide respite in their area and can also fund short-term or one-off

respite through Commonwealth Department of Health and Ageing funding. This table only

reflects Commission-funded centre-based services.




Table 14: Organisations used by people in the upper south west area for flexible

respite in 2011–2012

Organisation

Activ Foundation Inc

Baptistcare

Enable South West

Kids' Camps Inc

Lifestyle Solutions (Aust) Ltd

Multiple Sclerosis Society

Wheatbelt Individual and Family Support Association


7 It is important to note Commonwealth Respite and Care Link can provide families with

information about organisations that provide respite in their area and can also fund short-

term or one-off respite through Commonwealth Department of Health and Ageing funding.

This table only reflects Commission-funded flexible services.

Some people manage their family support funding (flexible respite) allocation, directly

through LAC.




Table 15: Organisations used by people in the upper south west area for

Commission-funded disability professional services (DPS) in 2011–2012

Organisation Comprehensive DPS Targeted DPS

ECI SAI AI BSI Other

Association for the Blind of Western Australia (Inc)

DSC - Statewide Specialist Services

Family Planning WA

Independent Living Centre

The Centre for Cerebral Palsy

WA Deaf Society

Source: DSC 2012.

Key:

ECI Early childhood intervention BSI Behaviour specialist intervention

SAI School-aged intervention Other Equipment and other targeted services, relationships

AI Adult intervention




Chart 5: Numbers of people accessing services per 1,000 head of population,

comparing the upper south west area to state-wide in 2011–2012

Registered with LAC

Shared supported accommod.

Individualised community living

ATE/PSO IFS

Upper south

west 4.98 0.63 0.68 1.26 0.37

State-wide 3.89 0.88 0.51 1.12 0.42


8 This chart compares the number of people with disability using various service types in the upper south west area to state-wide by using numbers of people per 1,000 head of population. LAC refers to numbers of people registered for the LAC service. Shared Supported Accommodation refers to people in group home accommodation. Other programs represent people allocated individualised funding packages receiving a service.

0

1

2

3

4

5

6

Number of people per 1,000 head of population

Upper south west State-wide




Appendix B—Data quality All efforts have been taken to ensure that the data contained in these profiles is as accurate

and contemporary as possible. Specific data limitations are listed throughout the profiles

and in this appendix and users are encouraged to interpret the information with caution.

Survey of Disability Ageing and Carers (SDAC) 2009, Small Area

Estimates (Australian Bureau of Statistics 2012c)

The Australian Bureau of Statistics (ABS) conducted the Survey of Disability, Ageing and

Carers (SDAC) and have released data for local government areas. These have been

amalgamated into regions or profile areas for the Sector Development Plan which are

based on the Commission’s Local Area Coordination (LAC) areas.

Important notes about data quality:

Figures from the SDAC are produced from samples which are then generalised to the

population—the numbers are referred to as estimates and are to be used as a guide.

The small area estimates are applicable to private dwellings, with data from special

dwellings excluded from the analysis. Some groups have been excluded from SDAC 2009

and have not been reflected in the small area estimates.

Exclusions:

The following groups are excluded from SDAC 2009 and are therefore not reflected in the

small area estimates:

remote and very remote settled areas

members of the permanent Australian defence forces

non-Australian diplomatic personnel

members of non-Australian defence force personnel (and their dependants)

stationed in Australia.

The small area estimates are applicable to private dwellings in scope of ABS household

collections. Data for the following special dwellings has therefore been excluded from the

analysis:

hostels for the homeless and people with disabilities

night shelters

refuge

hotels and motels

hospitals and homes, including nursing homes and retirement villages which have a

care facility onsite

religious and educational institution

institutions, including psychiatric institutions and corrective institutions




cared accommodation including residents of hospitals, nursing homes, aged care

and disability hostels and other homes such as children’s homes, who had been or

were expected to be living there for at least three months

prisons

boarding houses

indigenous communities

caravan parks and camping grounds.

Annual Client and Service Data Collection (ACDC) 2011–2012, Service

user data (Disability Services Commission 2012)

The ACDC is the Disability Services Commission’s (the Commission’s) system of collecting

and analysing important information concerning people with disabilities and the services

they use. This information is collected on an annual basis by each service provider and is

reported to the Commission.

Organisations are requested to provide information about:

each of the service types they are funded to provide

all service users who received appropriate support over the financial year

the service type(s) the service user received.

For more detailed definitions about ACDC collection refer to Annual Client and Service Data

Collection (ACDC) Data Guide: Questions and Definitions (disability.wa.gov.au) .

Reporting exclusions:

Some service type outlets—particularly those providing advocacy or information/referral

services are not requested to provide any service user details.

Unique count:

Service use data

People recorded in ACDC as using services in this area have been reported as a unique

count, with multiple recordings of people against service types removed.

If a person lives in two profile regions during the same year they may be counted in both

locations.

Provider data

Some people are reported as using services from multiple service providers within a service

type. In this instance multiple records have not been removed as this occurrence could

reflect personal choices in changing their provider (i.e., portability of funding).

http://disability.wa.gov.au/




Rounding of numbers:

In this document all recordings of service use with less than five people have been rounded

to five to prevent identification.

Service type definitions:

The Commission-funded services reported in this document relate to specific ACDC service

type classifications recorded in the ACDC. The following table outlines the various ACDC

categories that fall under the service types detailed in this document:

Table 16: Commission-funded service types and the related ACDC reporting categories

Service type ACDC reporting categories

Alternatives to Employment and Post

School Options

Alternatives to Employment (ATE)

Post School Options (PSO)

Disability Professional Services Behaviour specialist intervention

Comprehensive adult intervention

Comprehensive early childhood

intervention

Comprehensive school aged intervention

Regional and support teams

Family support and respite Centre-based respite

Family Living Initiative (FLI)

Flexible/combination respite

Host family respite

Other respite

Own home respite

Peer support respite

Respite brokerage

Respite for carers

Individualised community living Alternative family

Attendant and personal care

Community Living Initiative (CLI)

In-home accommodation support

Intensive Family Support Intensive Family Support (IFS)

Recreation Holiday programs

Recreation

Shared supported accommodation Group homes or duplex

Hostels

Large and small residential institutions

Shared care arrangements

Source: DSC 2011.




Tell us what you think Below is a list of questions that appear in this document. We welcome your feedback and

response.

Demographics and community

1. What other information would you like to add about the upper south west area that

is not already contained in the profile?

2. What other disability or community support groups are available and active in this area?

3. What other informal community support groups would the area benefit from?

Disability supports and services

4. What difference are supports and services making?

5. How well are disability-specific supports and services complementing other

community supports?

6. Can you provide details of any partnerships that are working well in this area?

7. Does the mix of services match the needs of people in this area?

8. What supports are working well in this area?

9. Are there services and supports in this area that are not achieving the best

outcomes? What kind of fine-tuning is needed?

10. Are there barriers to accessing services and supports in this area? If so, what are

they?

Other community services

11. What is required to support people with disability in the area to achieve their

employment aspirations?

12. What are the main three factors that assist people with disability to achieve their

employment aspirations? (list in order of importance—with one being most important).

13. What are the top three barriers to people with disability achieving their employment

aspirations? (list in order—with one being the greatest barrier).




14. What examples can you provide of Home and Community Care services working

well on the ground for people with disability in this area?

Service demand and coverage

15. Are you aware of any emerging trends where the changing needs of people with

disability in this area are not fulfilled by current services? If so, what are they?

16. What supports and services are likely to be in demand in this area into the future?

17. What types of supports and services needed by local people are not available now?

Service planning

18. Can you suggest any ways to improve the effectiveness of disability supports and

services in WA? If so what are they?

19. Can you identify barriers to improving the effectiveness of disability supports and

services in WA?

20. If so, what are the top three barriers? (list in order—with one being the greatest

barrier).

21. Can you suggest any opportunities for developing the disability sector in WA? If so,

what would they be? (list in order—with one being the biggest opportunity).

22. Are there any emerging issues regarding the disability services sector or emerging

issues facing people with disability, their families and carers? What do we need to

take into consideration when planning in this area?

23. To what extent do service providers have the capacity to support people with

disability, families and carers to share decision-making and management of their

supports and services where and when needed?

General comments

24. Do you have any other feedback?

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