tya moving forward - susan mehta
DESCRIPTION
TYA moving forward at UCLH treatment summaries and care plans Susan Mehta Lead CNS Late Effects of Cancer Presentation from an event held in London on Wednesday 9 October with the Teenage and Young Adult (TYA) Centre Champions and our Clinical Leads to share learning, good practice examples, the successes, challenges and barriers to implementing: Treatment summaries End of treatment care plans Increased self-management for TYAs after cancer treatment The output from the meeting will be to define what support NHS IQ can provide locally to assist TYA teams in order to make progress with their implementation plans.TRANSCRIPT
TYA : moving forward at UCLH
Treatment Summaries and Care Plans
Susan Mehta Lead CNS Late Effects of Cancer October 9th 2013
Long-term follow-up: service evaluation December 2012 to February 2013
•Audit tool adapted and developed
•Collaboration with Bristol late effects team
•Questions adapted to collect data required for service development at UCLH.
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Long-term follow-up: service evaluation December 2012 to February 2013
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Plan for improvement
Improving and developing long-term follow-up services
Treatment summaries and Care Plans
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Service development
Treatment summaries and care plans are in the plan
Implement pathways which include individualised treatment summaries and care plans
Nurse led clinics at defined transition points on the pathway
Treatment summaries and Care Plans
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Discuss the clinical value of treatment summaries and care plans
Survivorship education for medical and nursing colleagues
Create easy to use templates
Involve administrative staff and secretarial support
The price young people and adults face if they don’t have a treatment summary and care plan
The GP says I am too young to have a heart problem
The GP says I am too young to have a heart problem
A young man later diagnosed with cardiomyopathy after referral to a cardiologist by the long-term follow-up team
The price young people and adults face if they don’t have a treatment summary and care plan
My employer did not believe I could survive cancer.
My employer did not believe I could survive cancer.
You don’t look like you have had cancer You don’t look like you have had cancer
A young man asking his employerfor time off work to attend hospital appointments
The price young people and adults face if they don’t have a treatment summary and care plan
Someone who seems to suffer frequent ill health with no clear medical explanation
Someone who seems to suffer frequent ill health with no clear medical explanation
Comment on a GP referral letter to long-term follow-up.
Referral requested by a 45 year old treated age 15yrs for Hodgkins disease with mantle radiotherapy
The value of providing individualised treatment summaries and care plans
Identifying treatment-related needs of each young person and adult to provide the necessary clinical support and empower the individual to seek timely and appropriate interventions throughout life