Transition to Independence

Transition to Independence

The Climbto Independence

• Overcoming Barriers • Acquiring Knowledge• Developing Skills• Learning to Advocate

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Transition to Independence

Overcoming Barriers

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Transition to Independence

FEAR LOSS OFCONTROL

LOSS OFIDENTITY

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Transition to Independence

What are your fears? Which are likely, probable and unlikely? Prepare your child to address areas of concerns.

What do you feel you need to control? Educate your child and allow them to gradually take control- as much as they are able.

How do you identify yourself? Work towards turning youridentity from caregiver to coach. Find ways to fill the void as your child takes on more responsibility.

Educate your child and allow them to practice knowledgeand skills with you. Develop trust in their ability to manage self-care.

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Transition to Independence

The more we prepare our children to care for themselves the more empowered they will be and the greater the likelihood they will reach their potential in self-care.

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Transition to Independence

Acquiring Knowledge

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Transition to Independence

What do they need to know?

•Medical condition•Medical history•Medications•Allergies•Medical team•Diagnosis/therapy specific information

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Transition to Independence

• Tell stories

• Read books on medical condition

• Talk about care as it is performed

• Talk about medical condition

• Opportunity to answer questions about their medical condition

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Transition to Independence

• Discuss choices – evaluate pros and cons

• Assess knowledge - fill in missing pieces

• Provide tools - general health and disease/therapy specific

• Involve in the decision process

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Transition to Independence

Developing Skills

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Transition to Independence

Start small

Gradually BuildSkill Set

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Transition to Independence

• Identify skill set needed

• Develop skills Start small and build gradually Maximize potential while recognizing

variability with disease state, cognitive function and motor ability

• Provide “safe” opportunities to practice

• Utilize outside training

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Transition to Independence

Learning to Advocate

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Transition to Independence

• Listening to their body – Reflection

• Empowering - Allow choices and opportunities

• Communicating – being part of the team

• Normalizing - Connect with others

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Transition to Independence

• Reflect - ask how they feel, share what you observe, ask how they think they should handle a situation.

• Empower - Allow them to develop a schedule that works for them, allow choice on how things are done.

• Communicate - Model positive interaction with team, allow them to have a voice in their care.

• Normalize - Recognize children can benefit from support. Provide opportunities to connect at conferences, camps, and meetings.

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Transition to Independence

• Overcome Barriers

• Acquire Knowledge

• Develop Skills

• Learn to Advocate

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Transition to Independence

Tools For

Transition

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