Transforming Healthcare Delivery Through Communities

HUBbub, April 6, 20113:00 – 3:30 p.m.

A growing field

Healthcare delivery, healthcare engineering, healthcare systems research (etc.)

The challenges we see Right care, right patient, right time Fragmentation, variation

“We need a hub…”

How can we create a better healthcare system? Researchers/universities, professional

organizations, research companies, QIOs, etc.

Enable collaboration: Aligning stakeholders (think vertical

integration) Multi-site trials and validation

Toward a better healthcare system

Online collaboration to transform healthcare delivery.

Develop research and educational tools and materials in healthcare delivery.

Provides a free and open place for researchers to share data sets, develop and pilot tools, and collaborate on projects.

Provides a place for the outcomes of such projects to be disseminated to researchers, practitioners, and patients.

How We Use Communities

Some types of tools are not “owned”• May not be publicly available• Not the source of published work

Tools and data are secured through HUB groups• Some research content is not public-facing

Tools are not the results; they are the method• Results may be in the form of case studies, policy

and practice recommendations, and to a lesser extent, research publications.

Tools and data may have finite lifetimes

How We Use Communities

Data is often shared across institutions• Motivations• User agreements

Community participants are diverseResearchers and practitionersInterplay of RQs and practice, policy“Closing the Loop”

Community Example 1:Preventing Hospital Readmissions

Researchers at multiple universities sharing

Data from several hospital systemsDe-identified data and secured on separate server

Three tools for data exploration and visualization

Technical discussion with tool developers

Data analysis plansManuscripts in progress

Readmissions Community Tools

Challenges

Few HUB resources…the Dropbox problem Work in progress…by multiple parties Not well-suited to HUB resources

“Tools” are not really HUB resources Future HIPAA compliance No “push” of data from groups

Community Example 2:Infusion Pump Informatics

Healthcare systems sharing:Access to a tool that visually presents data

Data from “smart” medication infusion pumpsCompare my data to othersEase of use

Pharmacy medication profilesParticipation in technical discussions

Wish list for tool improvements

Best practices for patient safety

Infusion Pump Informatics Community

IPI Community Resources

Agendas and Minutes

Institution Reports

Development Updates

Technical Documentation

Data Sets

IPI Community Discussions

IPI Community Tool

Hospital 1Hospital 2Hospital 3

Community: Lessons Learned Ease of use is key

Audience is not necessarily technically savvy

Straightforward vocabulary No code

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Community: Lessons Learned Need for compelling reason to access group

Tool access or data access Key documentation Access to tool developers (discussion board)

…And a reason to return Not once-and-done Use feedback, currency, fresh data, new

members, and growth of diversity in membership