to learn more or sign up for the study, contact: central ... · 2) gersh, maron, et al, 2011...
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Principal Investigators
Rachel Lampert, MD; Yale University
Sharlene Day, MD; University of Michigan
Michael Ackerman, MD, PhD; Mayo Clinic; President, SADS Foundation
Yale HIC (IRB) #1411014982NIH: RO1 HL125918-01
To learn more or sign up for the study, contact:
Central Coordinating Center Yale School of Medicine
About the Study
1) Maron, Zipes, et al, 36th Bethesda Conference: Eligibility recommendations for competitive athletes with cardiovascular abnormalities. J Am Coll Cardiol, 20052) Gersh, Maron, et al, 2011 ACCF/AHA Guideline for the diagnosis and treatment of hypertrophic cardiomyopathy. J Am Coll Cardiol, 20113) Reineck, Day, et al, American Journal of Cardiology, 2013
For more information, please contact:Central Coordinating Center Yale School of Medicine 866-207-9813 • [email protected]
The safety of vigorous exercise for those with HCM is unknown, and current guidelines recommend that HCM patients refrain from participation in competitive sports more vigorous than golf or bowling.1, 2 Despite these guidelines, a recent survey has suggested that some patients with HCM do participate in more vigorous sports.3
This study does not endorse competitive sports for HCM patients. Rather, we want to obtain information on the risks and benefits of exercise at all levels, by following individuals over time at whatever level of exercise they are currently engaged in.
The goal of the Lifestyle and Exercise in Hypertrophic Cardiomyopathy Study (LIVE-HCM) is to determine how lifestyle and exercise impact the well-being of individuals with HCM. Whether you like to walk, run, play baseball, or sit and read a book, you can participate in this study and help us learn more about lifestyle factors and HCM. This study is funded by the National Institutes of Health.
Who can participate?• Individuals with HCM or (“HOCM”),
or a gene for HCM• 8 to 50 years old• Any level of activity• With or without an ICD (defibrillator)• Ok to participate in other studies at
the same time
What the study involves:• Interviews and questionnaires by phone
and/or over the internet - No geographic limitations to participate
• Wearing a Fitbit pedometer a few weeks per year – yours to keep