timeliness of cancer registry reporting ali johnson, ctr vermont cancer registry vermont explor...
TRANSCRIPT
Timeliness of Cancer Registry Reporting
Ali Johnson, CTRVermont Cancer Registry
Vermont Explor Annual Data MeetingMay 1, 2006
Vermont Department of Health 2
Topics
What is expected? When? Are the expectations being met?
Vermont Department of Health 3
What is reportable to VCR?
Malignancies, except non-melanoma skin cancer
Benign brain tumors Diagnosed 1994 to present
Vermont Department of Health 4
Completeness
Reporting complete on July 1st after the close of each diagnosis year
Completeness estimated based on past 3 or 5 years of reporting
Vermont Department of Health 5
Timeliness
VCR Law 120 days after first contact
American College of Surgeons 180 days after first contact
VDH has been phasing in the 180 day standard since 2004
Vermont Department of Health 6
Is timeliness improving?
December 2002
February 2004
October 2005
% of cases reported within 180 days
[Goal: 90%]
5% 11% 49%
Hospitals meeting goal (90% of cases within 180 days)
[Goal: 13]
0 2 2
(Indicators exclude VA reporting.)
Vermont Department of Health 7
Quality Indicator Report
HOSP A 112 62% 89%
Standard 120 n/a 90%
State Average 203 17% 38%
Number of cases reported this quarter: 87
# of cases % complete # of cases % complete
HOSP A 284 102% 227 81%
Standard n/a 100% n/a 25%
State Average n/a 101% n/a 52%
(Completeness based on average number of cases diagnosed in 2001-2003. HOSP A's average is 280 cases per year.)
Completeness
90%
(Number of months with reports within the last 12 reporting months)
12
10 98%
100%
Median Number of
Days
% Cases Reported 120 Days
% Cases Reported 180 Days
Vermont Cancer Registry Quality Indicator Report
AccuracyMonthly Reporting Days to Report % Cases w/o Edit Failures
2004 2005
Hospital A
Reporting Period: October 2005 - December 2005
Timeliness
12
Vermont Department of Health 8
3rd Quarter 2005
Percentage of Cases Reported in 180 days, 3rd Quarter 2005, by Reporting Hospital
43%
0%
10%
20%
30%
40%
50%
60%
70%
80%
90%
100%
1 2 3 4 5 6 7 8 9 10 11 12 13 14
Hospital
Per
cen
tag
e R
epo
rted
% reported 180 days
State Average
Standard
(Indicators include VA reporting.)
Vermont Department of Health 9
4th Quarter 2005
Percentage of Cases Reported in 180 days, 4th Quarter 2005, by Reporting Hospital
38%
0%
10%
20%
30%
40%
50%
60%
70%
80%
90%
100%
1 2 3 4 5 6 7 8 9 10 11 12 13 14
Hospital
Per
cen
tag
e R
epo
rted
% reported 180 days
State Average
Standard
Vermont Department of Health 10
1st Quarter 2006
Percentage of Cases Reported in 180 days, 1st Quarter 2006, by Reporting Hospital
55%
0%
10%
20%
30%
40%
50%
60%
70%
80%
90%
100%
1 2 3 4 5 6 7 8 9 10 11 12 13 14
Hospital
Pe
rce
nta
ge
Re
po
rte
d
% reported 180 days
State Average
Standard
obtain pathology report
create suspense record(demographic info., path report date)
collect clinic notes, discharge histories, operative reports, and other/subsequent
pathology reports
order medical record(s)
abstract case & set suspense flag to 'complete'
include in monthly data submission to VCR
adequate patient health
info.?
review medical record and/or further research referring physician/hospital at radiation therapy
or physician's office
yes (~80% of cases)
no (~20% of cases)
estimated time after patient is 1st seen
1 week
2 weeks
4 months
5 months
6-12 months
Vermont Department of Health 13
VCR Data Quality
Report on Quality, Completeness and Timeliness of Data
12 Months 2003 80.51 0.00 NDC 0.00 0.12 0.04 0.08 100.002002 94.88 0.53 1.29 0.00 0.06 0.49 0.03 100.002001 98.46 0.07 1.27 0.03 0.00 0.22 0.00 100.002000 97.01 0.07 1.92 0.07 0.00 0.49 0.03 100.001999 105.44 0.07 2.27 0.00 0.00 1.14 0.00 100.001998 97.09 0.07 2.94 0.03 0.00 1.59 0.00 100.00
90.00 N/A N/A N/A N/A N/A N/A 97.0095.00 <=1 <=3 <=2 <=2 <=3 <=2 99.0090.00 N/A <=5 <=3 <=3 <=5 N/A 97.00
24+ Months
NPCR 12 Month StandardNPCR 24 Month Standard
USCS Publication Standard
County
Percent Passing Core Single and Inter-field Edits
Percent Missing or UnknownCore Data Elements
STANDARD
NPCR Standards Grouping
Diagnosis Year Sex Race
Percent Completeness Adjusted for Duplicates
Unresolved Duplicates Rate
(per 1,000)
Percent Death Certificate Only
Cases Age
Vermont Department of Health 14
Rate of breast cancer incidence per 100,000 women age 40+ diagnosed at advanced stage (regional, distant stage or local stage
with tumor size greater than 20mm (2cm), 1998-2002
0
20
40
60
80
100
120
140
160
180
1998 1999 2000 2001 2002
Year
Per
100
,000
US Rate
VT Rate
Distribution of breast cancer by stage at diagnosis, females – Vermont and the U.S., 1998-2002
0%
10%
20%
30%
40%
50%
60%
70%
80%
Localized Regional & Distant Unstaged
Vermont
US SEER White
Breast Cancer Stage
Vermont Department of Health 15
For More Information
Ali Johnson, CTR
Vermont Cancer Registry
(802) 863-7644
http://healthvermont.gov