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Overview on Participation of Disease-related Biobanks Thomas Meitinger, Erich Wichmann Helmholtz Zentrum München BBMRI Stakeholder‘s Forum Brussels 16th September 2009

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Page 1: Thomas Meitinger

Overview on Participation of Disease-related Biobanks

Thomas Meitinger, Erich Wichmann

Helmholtz Zentrum München

BBMRI Stakeholder‘s Forum Brussels 16th September 2009

Page 2: Thomas Meitinger

Disease related biobanks

Fam. historyLab. param.

Treatm. outcomeLifestyle

PBMC

Serum

FFPEtissues

Frozentissues

Cells

Sample storage

Human biological samples and data

Patients

Data storage

DNA

Clinicaldatasets

past future

isolated networked

no formal elaborateconsent consent

non-standard standardsamples samples

limited sample large samplenumbers and numbers andtypes types

little substantialinstitutional institutionalsupport support

http://images.google.at/imgres?imgurl=http://www.tu-darmstadt.de/hrz/hhlr/images/hhlr-kl.jpg&imgrefurl=http://www.tu-darmstadt.de/hrz/hhlr/index-test.en.html&h=280&w=340&sz=22&hl=de&start=1&tbnid=QPCxUNVZugGd-M:&tbnh=98&tbnw=119&prev=/images%3Fq%3Dcomputer%2Bcluster%2Bibm%26gbv%3D2%26ndsp%3D20%26svnum%3D10%26hl%3Dde%26sa%3DN
Page 3: Thomas Meitinger

Disease related biosamples in Europe

Example: Genome-wide Assocation Studies

Amish419

10779

7096817863

1000

7644

Europe:14535

1275

1475

576642024

432

2016

Mexican Americans6081

Indian community/USA3240

Sardinia:10453

1782

Ashkenazi Jews:1284

April 2008

total USA/Canada24,618

total Europe207,115

Northern~190 000

Page 4: Thomas Meitinger

BBMRI catalogue disease-related biobanks

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Thank you


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