This presentation was supported by Cooperative Agreement number U48DP005006 from the Centers for Disease Control and Prevention, Prevention Research Centers program. The findings and conclusions in this presentations are those of the authors and do not necessarily represent the official position of the Centers for Disease Control and Prevention.

OPPORTUNITIES TO PREVENT CANCER & IMPROVE CANCER SURVIVORSHIPKerri Winters-Stone Jackilen Shannon

OHSU School of Nursing OHSU Department of

Public Health & Preventive Medicine

Thank You

Northwest Portland Area Indian Health Board

Chairman Andy Joseph

Executive Committee

Delegates

Our Collaborating Partners:• Kerri Lopez• Eric Vinson• Northwest Tribal Comprehensive Cancer Control Project

OVERVIEW

Building on successful accomplishments

We recognize the successful, ongoing work aimed at addressing cancer prevention and education in tribal people.

Our goal is to collaborate and see how those efforts could be expanded given newly available resources and opportunities.

Collaborating partners:

• Kerri Lopez & Eric Vinson• Northwest Tribal Comprehensive Cancer

Control Project

CDC-funded Prevention Research

Center

-called-

OHSU Center for Healthy Communities

(Tom Becker’s center)

Cancer Prevention and Control

Research Network

(CPCRN)

We, as representatives of this National Cancer Prevention & Control Network:

Are committed to:

1. Building long-standing relationships

2. Gauging interest in cancer-related efforts

3. Identifying available resources that may support tribal community needs

4. Linking tribal communities to programmatic opportunities for addressing cancer-related concerns

What is the Cancer Prevention and Control Research Network?The CPCRN is a national network of academic, public health, and community partners who work together to reduce the burden of cancer.

Its members conduct community-based participatory interventions across its ten network centers, crossing academic affiliations and geographic boundaries.

__________

CDC PRC (CDC’s flagship program for preventing and controlling chronic diseases)

Under the PRC umbrella sits CPCRNs.

The efforts behind Cancer Prevention and Control encompass the full, broad spectrum of the topic, needs and demands on communities

Cancer Prevention;

Healthy communities

Cancer Screening

Cancer Treatment;

Care delivery

SurvivorshipEnd of life

New Opportunities to address Cancer Prevention & Control in Tribal Communities

• National resources; Cancer Prevention and Control Research Network

• Local resources; OHSU Knight Cancer Institute

• Integration of both with Tom’s OHSU Center for Healthy Communities (PRC)

We call ourselves the Oregon Cancer Community Research Collaborative (OR-CCRC)

• Our primary mission is to address prevention, early detection, and cancer survivorship while emphasizing dietary and physical activity interventions for primary and tertiary prevention.

• Guiding principle: assure proposed projects are culturally appropriate and valuable to community participants

Involved OR-CCRC Faculty • Tom Becker – health promotion in tribal communities;

provider training programs• Jackilen Shannon – diet & cancer prevention; community

research; education programs for youth• Kerri Winters-Stone – cancer survivorship--exercise and

long-term/late effects; bringing evidence-based into the community

• Cynthia Perry – physical activity in communities, with a focus on youth

• Nancy Findholt – nutrition in rural schools; school policy; engaging with communities around healthy eating

• Frances Lee-Lin – breast and colorectal cancer screening and creating education programs for communities

OR-CCRC Tribal & Rural Advisory Board

Kerri Lopez helped identify interested tribal members willing to join the board.

• Judy Charley• Twila Teeman• Kerri Lopez

First meeting = February 2, 2015

Goal: To discover commonalities between tribal and rural community needs in order to match OR-CCRC expertise, national and local resources.

Building upon established & successful programs designed to address the cancer-related needs of tribal communities

• The OR-CCRC provides an opportunity to offer resources that could expand or build upon current successes.

• In particular, OR-CCRC faculty have expertise in physical activity and nutrition programs to reduce the risk of cancer and improve outcomes for cancer survivors and their families.

• The Knight Community Partnership program may provide additional support to actualize plans to reduce the burden of cancer in tribal communities.

Example Projects: Cancer Screening• At the national CPCRN level, several “cross-center”

(nationwide) projects are under development and consideration for implementation across multiple sites.

• Current areas of discussion around screening:• Cervical cancer screening• Colorectal cancer screening• Lung cancer screening

• Other areas• HPV vaccination• Training programs to guide communities toward implementation of

evidence-based interventions

Example projects: Community Cancer Prevention & Education

oScience, education and outreach tool designed for use in communities

Tool can be used to promote awareness, educate and/or collect data on large #’s of people - ANONYMOUSLY Health-fair style community education and engagement program Teacher professional development and integrated lesson plans

for student engagement Multiple, engaging health-related stations, including cancer risk

and prevention

Cancer RiskSkin cancer, lung cancer, and breast cancer risk assessment

Blood Pressure and Chemistry

Blood pressure. For adults: Fingerstick test for glucose, cholesterol, HDL, LDL,

triglycerides, other lipids

DietComputerized assessment with tailored

feedback. Bitter taste sensitivity

SleepComputerized assessment of sleep quality, morningness / eveningness, and daytime

sleepiness with tailored feedback

GeneticsSalivary sample for anonymous DNA

Body CompositionHeight, weight, waist

circumference, body mass index, body fat percentage

CommunitiesSchools

Data linked anonymously to each participant by scanning their random

wristband barcode

Automatically added to database at OHSU

Researchers

MemoryComputerized assessment

of short-term visuospatial memory

Example projects: Cancer SurvivorshipEvidence-based exercise programs (Winters-Stone; Perry):

• Community exercise programs to reduce symptoms and side effects of cancer treatment• Effective programs that are

medically appropriate• Tested in community setting;

Instructor training model

• Exercising Together – partnered strength training for couples coping with cancer• Improves health and well being of

patient and spouse/caregiver• Couples stick with the program

long term.

Other areas in cancer survivorship Understanding the impact of cancer

treatment on patients and families Helping families address decisions,

particularly around end of life

Supporting Communities in their Fight Against Cancer; The OHSU Knight Cancer Institute

The Knight Community Partnership Program; designed to build sustainable collaborations with Oregon communities by:

• providing grants, links to academic partners and other resources to foster development of cancer prevention, early detection, treatment and survivorship projects based on community-identified needs.

The OHSU Knight Cancer Institute has made a decade-long commitment to Oregonians to invest $1 million dollars through this program every year.

• Early Stage grants of up to $10,000• Developmental grants of up to $25,000• Program Advancement grants of up to $50,000.

Questions? Comments?

PRC-related:• Tom Becker – beckert@ohsu.edu • Tosha Zaback – zabackt@ohsu.edu (program director)

503-494-1330

CPCRN/ OR-CCRC/ Knight Ca Institute-related:• Jackie Shannon – shannoja@ohsu.edu • Kerri Winters-Stone – wintersk@ohsu.edu • Paige Farris – farrisp@ohsu.edu (program manager)

541-706-6861

Thank you.

We greatly appreciate your time.