the unmet needs and interests of uk hcps in type 1 diabetes

CREATIONPinpoint|HCPSocialMediaStudy|Type1DiabetesEnglish|201501101-20161031| 2

WhatcanwelearnaboutunmetneedsorinterestsamongHCPswhotalkaboutT1Donline?

HowdoHCPsengageonline?

HowdopatientsfeatureintheHCPonlineconversation?

WhatareHCPs’ thoughtsonthelatesttechnologiesandadvancementsinDiabetesaswellastheestablishedtreatments?

Tophealthcareprofessionals

Healthcare professionalonlineprofiles:top-3HCPs

Glossaryofterms

Tableofcontents

WhatcanwelearnaboutunmetneedsorinterestsamongHCPswhotalkaboutType1Diabetesonline?


Questionsummary


WhatcanwelearnaboutunmetneedsorinterestsamongHCPswhotalkaboutT1Donline?Patientconcern:HCPs’ primarytopicofdiscussionregardingT1Dispatientconcern.ThereisadesirefromHCPstopatients,seeespeciallyyoungpatients,haveopportunitiestoimprovelifestyleorconnectwithoneanothercreatingpatientcommunities.

NHS:A numberofstoriessurroundingtheNHSwerediscussedbyHCPsincludingDiabetesandtheprescribingbudget,andwhethercontinuousglucosemonitors(CGMs)wouldbeavailabletoType1DiabetespatientsfundedbytheNHS.

Awareness:SomeHCPsfeelthelackofdifferentiationbetweenType1and2Diabetesisnotacceptable.Theyuseemotivelanguage,arenotafraidtosharetheiropinionandwillquestionothers’viewsdirectlytotrytoraisethisawareness.HCPsalsosharelinkstowebsites,blogsandresourceswhichhelppatientsandHCPsalikeunderstandType1Diabetes.

TADTalk2016:InordertoraisetheprofileofType1Diabetes,2016sawthefirstType1DiabetesconferenceintheUK:TADTalk2016.This conferencewasahighpointofdiscussionfortheyearamongHCPstalkingaboutT1Donline.Theprimarytopicssharedonlineweretorelatedtosuccessfullymanagingdiabeticlifestyle.


CREATIONPinpoint|HCPSocialMediaStudy|Type1DiabetesEnglish|201501101-20161031|

PatientConcern

6

WhatHCPssayregardingT1Dpatients


Observations:

WhenspeakingaboutpatientsHCPsfocusonyoungpeople,connectingpatientsandprovidingresourcesforpatientssuchasthecomicbookType1:Origins.

7

youngpeoplewith T1comic

connecting peoplewith T1resource ted style talks

awareness

stop insulinconferenceblog

KeytopicsofinteresttoHCPsregardingT1Dpatients

Resource

YoungpeoplewithT1

ConnectingpeoplewithT1

Comic



NHS

9

PositivesentimenttowardstheNHSrelatingtoDiabetes


ThankingNHS61%Goodresources

19%

NHSimproving3%

General7%

NHSsavesoninsulin10%

Observations:HCPssharesuccessstoriesandhighlightthegoodtheNHSdoes,particularlyamongindividualpatientswhichisseenastheyretweetpatientmessagesthankingtheNHS.

HCP

n=31

NegativesentimenttowardstheNHSrelatingtoType1Diabetes


General8%

NHSpatientcare19%

DKAinNHShopsitals50%

NHSpatientinteraction11%

Missedtargets12%

Insight:ManyHCPswereconcernedbythehighstatisticconnectedtogettingadiabeticketoacidosis(DKA)inNHShospitals.GenerallytherearesomeconcernsoverNHScareoftypeonediabeticpatients.

n=26

OthertopicsdiscussedinrelationtoNHSbyHCPs


Insight:TheNHStopicthatreceivedthemostmentionsbyHCPswasapetitionforcontinuousglucosemonitors(CGM)tobemadeavailableontheNHS.

26%

3%

11%

9%

2%

13%

6% 10%

6%

2%

12%

PetitionforCGM

T1Dservicereview

Awareness

Other

Funding

Resources

Education

NHSprescribingbudget

BypassingNHSpolitics

Questions

Patientcare

n=95

HCPconcernsrelatingtotheNHSandT1D


ContinuousGlucoseMonitors:AnumberofHCPsjoinedanonlinepetitiontomakeContinuousGlucoseMonitorsavailableontheNHS.Thepetitiondonotreachitstarget.

“- VariousHCPs

Petition: Make Continuous Glucose Monitors available

on the NHS for Type 1 Diabetics

““- Partha Kar,Endocrinologist

11March2016

Much much to be done on patient

engagement in NHS. Scaring people does

NOT work.

““

- DanielMcGuiness,Renal&GIMSpR3Aug2016

Diabetes drugs cost NHS nearly £1bn a year. That's 10% of cost of all #NHS primary care

prescribing.

“Patientinteraction:AfewHCPsfeltthattheNHSusesscaretacticsasamethodofencouragingT1Dpatientstolivethebestlifestylefortheirhealth.

NHSprescribingbudget:ManyHCPsusedsocialmediatorelaytheinformationregardingtheNHS’prescribingbudget.Statisticslike‘10.6%ofbudgetspentonDiabetes’and‘nearly£1billion/year’werebeingtweetedwidely.TheprimarysourcethatHCPsweresharingrelatingtothisconcernwasanarticlepostedontheGuardianwebsite.

13



Awareness

HCPsraisingawarenessofType1Diabetes


0

20

40

60

80

100

120

140

160

Numbe

rofH

CPawaren

esstweets

Weeks

OctobersawthereleaseofacomicbookdesignedtoeducatethepublicaboutType1Diabetes.NewsofthepublicationwassharedmanytimesbyHCPs.

AwarenesscampaignssharedbyHCPs


Legend:ThesearethefivemostsharedType1Diabetesawarenesscampaignsandinformationalresources.

8%

30%

26%

19%

17%

BeyondType1 OriginsComic JDRF NinjabeticBlog T1Resources

n=574

ReasonsHCPraiseawareness


Insight:HCPsengageindiscussionwithHCPsandnon-HCPsonTwittertoshareknowledgeaboutthedifferencesbetweenType1andType2Diabetes.TheyarekeenthatType1andType2arenotseenasonedisease.

LackofunderstandingofT1DandthedifferencesbetweenType1andType2Diabetes

ReasonsHCPraiseawareness


AsugartaxMAYhelptoreduce

TYPE2DIABETES.ItwillnotREDUCEtype1DIABETES.

Justincaseyoudidn’tknow.Cheers.@DiabetesUK

@JDRFUK

- Partha Kar,Endocrinologist16th March2016

Diabetes:‘T1patientsreportedexperiencingagreaterstigmathanpeoplewithT2.ParentsofchildrenwithT1reportedmoststigmaofall’

- AnneCooper,Nurse,16th March2016

Insight:HealthcareprofessionalsarenothappyforthestigmaassociatedwithT2DtoalsobegiventothosewithT1D.CertainHCPsarewillingtospeakuppubliclyagainstthis.

“ ““

“ToremovethestigmafromT1D

HCPviewsontherolesofdietandexerciseinT1D


Observations:Dietandexercisemakeasmallportionoftheoverallconversation.DietismuchmoreprominentintheType2conversationwhileexerciseissimilarinboth.

Type1conversation Type2conversation

4%

3%

93%

Diet

Exercise

Other

n=6156

13%

3%

84%

Diet

Exercise

Other

n=6248

HCPviewsontherolesofdietandexerciseinT1D


Observations:IntheconversationrelatingtodietwithinType1Diabetestherearemanyappearancesofwordsthatwouldbeexpectedsuchaseating,drinks,sugaryandfood.TheTwitteraccount‘@brickabetes’isoftenmentioned.@brickabetes documentsaspectsoflivingwithDiabetes(mostlyType1)byusingLegoandotherbricksandpieces.Thewords‘research’and‘study’aremostnotableintheType1Diabetesspecificexerciseconversation.‘Run’isthelargestthemeappearingintheexerciseconversation:possiblypointingtoapreferableapproachtofitness?

Diet Exercise



TADTalk2016

23

Type1Diabetesdiscussionovertime


0

50

100

150

200

250

300

350Mentio

nvolume

InauguralTalkingAboutDiabetes(TADTalk)conference12th March2016

"Type 1:Origins"a comic forpeoplewith Diabetesislaunched

9%

7%

5%

5%

17%

10%

17%

2%

15%

13%

LivingwithT1 EducationStigma ChrisAldred'stalkAnneCooper'stalk JamieReed'stalkJoeEldridge'stalk JustinWebb'stalkLisWarren'stalk LauraCleverly'stalk

Type1DiabetestopicsdiscussedonlineduringTADTalk2016

CREATIONPinpoint |HCPSocial MediaStudy | Type 1 DiabetesEnglish | 201501101-20161031 | 25

Livingwithresilience

T1Dsgeta“rawdeal”inUK

UnderstandingT1Dfrompatient’spointofview

LivingwithDiabetesforover50yrs

Pursueyourdreams

ReallifestrugglesandchampioningT1D

Insight:

ThevarioustalksatTADTalk2016weretheprimarypointofdiscussionsurroundingtheevent.

TalksbyAnneCooperandJoeEldridgeweremostdiscussedbyHCPsonline.

n=101

26

Ifyouwouldlikeaccesstothefullfreereportpleasefollowthelinkhere:http://creation.co/diabetes-hcp-talking-points/

Moreinformation

http://creation.co/diabetes-hcp-talking-points/

http://creation.co/diabetes-hcp-talking-points/