the no pain, no strain strategy to move pain-free · • community –private facebook group...

Webinar: The No Pain, No Strain Strategy to

Move Pain-Free

18 September 2019

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The No Pain, No Strain Strategy to Move Pain-Free

18th September 2019

Agenda

• My own EDS journey

• Development of my Integral Movement Method (IMM)

• Why The Zebra Club

• Look inside The Zebra Club

• User Feedback

• Questions


Move Pain-Free

18 September 2019


Bringing Solutions to HSD & EDS • Teaching Pilates and Movement Therapy since 2008

• Polestar Graduate - Studio Certified

• London clinics – SW London & Central London – 15

EDS / HSD clients every week

• Author - Pilates Without Tears and Hypermobility

Without Tears

• Rehab focus – pain management, chronic pain, injury,

hypermobility, EDS

• Developed The Integral Movement Method

• Write Huffington Post, Thrive Global, The Mighty

• Speaker for Ehlers-Danlos Society internationally &

other charities

Chronic pain Aged 12

Digestive issues Aged 12

Teens

Skin issues, migraines, headaches,

TMJ, joint pain, fainting, dizziness

Pregnancy - 2004

Pelvic girdle pain

Postnatal 2006 – chronic fatigue,

mitral value prolapse

2006 – Physio for chronic

pain Pilates

2008 – Teacher

Pneumonia x 3,

asthma, palpitations,

tachycardia

2009 – Physio

* First time hypermobility &

digestion r/ship

2009 - Onwards working

with EDS / hypermobile

clients

2017 – Chronic stress, mast

cell activation disorder

2018 EDS diagnosis


Move Pain-Free

18 September 2019


Client / Patient Outcomes

• No clear pathway for EDS / HSD patients

• Fragmented, single body part care rather than holistic

• Frustration, disbelieved, lack of confidence

• Medical profession displays lack of understanding

• Over cautious or hands off approach

• Misdiagnosis is common (fibromyalgia, osteoarthritis, chronic fatigue syndrome, laziness, fabricated illness, depression, rheumatism)

• Misconceptions – hypermobility does not mean a hypermobility syndrome, low Beighton score does not mean no hypermobility

Ref: Understanding Hypermobility, Claire Smith

“No other disease in the history of modern medicine has been neglected in such a way

as Ehlers-Danlos Syndrome”Professor Rodney Grahame


Move Pain-Free

18 September 2019


Emotional / Psychological Impact

• “Anxiety disorders and other psychological concerns are present to higher degrees in hEDS/HSD than other conditions” Hakim, 2018

• “Co-morbidities may give rise to an anxious state. They may manifest as symptoms akin to anxiety” Hakim, 2018

• Experience of interactions with professionals in Health Care System

Movement Therapy & EDS / HSD Wellbeing

• Unique to the individual.

• Physical symptoms: chronic pain, joint instability, lack of fine motor control,

subluxations/dislocations, stiffness and yet flexibility, headaches, flat feet, impaired

proprioception and body awareness.

• Emotional and psychological: anxiety, tension, stress, fear of movement, lack of

confidence and a feeling of isolation.

• The Integral Movement Method

• Pilates

• Biomechanics

• Neuroscience

• Movement Therapy


Move Pain-Free

18 September 2019


Things I hear from new clients…

• The pain is part of life

• I’ve come to live with my pain now

• I used to be able to do that

• I can’t do that because of my pain

• I don’t like taking pain medication

• I manage

• It’s normal to feel like this

• I’d love to but I can’t

• I’m not sure I can do that anymore

• I was too tired to do my exercises

• I’m scared I’m going to hurt my back / shoulder / hip

… their feedback can become this

“It is my physiotherapy and

it keeps me pain free. If I

miss it for more than a few

weeks the pain cycle starts

up again.” Dena

“It means strength and

togetherness to me with

EDS.” Jen

“It gives me awareness and control.” Emma

“I was scared at first but I

now look forward to it. It

leaves me energised and

optimistic.” Gillian

“It gives me strength and

stability. My body feels

amazing and connected

after class.” Nicole


Move Pain-Free

18 September 2019


Why The Zebra Club

• There is a real need – years of

neglect!

• Filling the gap – post diagnosis /

physio care, what exercise should I

do?

• Appropriate and effective –

researched and proven from

working with hundreds of clients

• Carefully structured – a guided

pathway

Why The Zebra Club (cont.)

• Easily accessible – at home, on

holiday, from any device

• Affordable – cheaper than 2 physio

visits for a year access

• Community – private Facebook

group to ask any questions from

other members


Move Pain-Free

18 September 2019


Henry’s story

“The blend of mindful and focused movement is allowing me to listen to

my body again. In just two sessions, through visualisation, along with

careful use of the body, I am very encouraged by how much I am already

able to release the tension and bracing that has become such a common

daily feature for me”

Henry, hEDS client & Zebra Club Member

Small Steps

• Everything counts

• Progress not perfection

• Not performing an exercise

• Moving with awareness

• Small physical step is a huge emotional step

• Self-awareness, self-belief

• Confidence, inner strength, resilience

• Pacing is essential

• Research: Exercise is good for the body and mind

• The approach to the ‘exercise’ is key


Move Pain-Free

18 September 2019


The Nervous System

• We all have the inbuilt software to move well.

• We all have the inbuilt software to move well.

• We just need to tap into it the right way.

How can Movement help?

“Those with HSD and hEDS need to try to retrain or increase their muscle strength and tone as much as possible in order that their muscles can compensate for the effects of defective connective tissue in other supporting structures such as ligaments”

Understanding hEDs & HSD, Claire Smith

“70% of surveyed adults with EDS or HSD reported having chronic pain before the age of 20”

EDS awareness, 2016 survey results

“The fear of movement should be assessed and managed, and is associated with pain and fatigue”

Celletti et al 2013


Move Pain-Free

18 September 2019


Pain Cycle and Exercise

Pain

Fatigue and stress

No exerciseIncreased pain

Increased fatigue and

stress

Breathing

• Relearn

• Awareness

• Physiological impact

• Breathe first, movement second

• Improved proprioception

• Reduced pain

• Meditation – interrupt pain


Move Pain-Free

18 September 2019


Relaxation

• Integrated to breath

• Release tension

• Recognise holding patterns

• Build sensory awareness

• Promotes good sleep hygiene

Proprioception

• Awareness

• Control

• Explore

• Range

• Reduces pain


Move Pain-Free

18 September 2019


Joint Stability

• Awareness

• Core Control

• Protection

• Fluid movements

• No pain, no strain

Balance

• Essential

• Integration

• Stability

• Strength

• Strong, Integrated Feet

• Everyday Activities


Move Pain-Free

18 September 2019


Posture

• Not taught

• Emerges

• Body and mind organisation

• Healthy alignment

• Whole body awareness and integration

• A forever

What you can find inside


Move Pain-Free

18 September 2019


Guided – Foundations first

Categories to meet your Changing Needs


Move Pain-Free

18 September 2019


Inside the Stability Category

The Zebra Club – User Feedback


Move Pain-Free

18 September 2019





Move Pain-Free

18 September 2019


In Summary

• Filling the gap – what exercise

should I do?

• Appropriate, researched and proven

method from working with

hundreds of clients

• Easily accessible solution – at home,

on holiday, from any device

• Affordable – cheaper than 2 physio

visits for a year access

• Community – private Facebook

group

Benefits for the HSD / EDS Client

• Overall quality of life – energy, vitality, ability

• Strength and control of range of movement

• Improved muscle tone = less pain

• Confident self-management techniques

• Injury prevention / decrease subluxations

• Confidence, mood and stress levels

• Sense of overall wellbeing and calm

• Clearer thoughts and less brain fog

• Improved breathing patterns

• Dynamic posture with stamina


Move Pain-Free

18 September 2019


Thank you for listening.

Thank you for hosting me.

Happy to answer any questions.

Further Info / Contact

• www.jeanniedibon.com

• [email protected]

• https://jeanniedibon.com/products/#zebraclub

• Facebook: Jeannie Di Bon

• Twitter: @jdibon

• Instagram: @Jeannie_di

http://www.jeanniedibon.com/

mailto:[email protected]

https://jeanniedibon.com/products/

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