the challengenges of collecting disability statisitics in a large scale exercise, in uganda by helen...

THE CHALLENGENGES OF THE CHALLENGENGES OF COLLECTING DISABILITY COLLECTING DISABILITY

STATISITICS IN A LARGE SCALE STATISITICS IN A LARGE SCALE EXERCISE, IN UGANDAEXERCISE, IN UGANDA

byby

Helen NviiriHelen Nviiri Uganda Bureau of StatisticsUganda Bureau of Statistics

IntroductionIntroduction

Censuses have remained the largest Censuses have remained the largest sources of Demographic & Socio sources of Demographic & Socio economic data in Uganda economic data in Uganda (1911, 1921, (1911, 1921, 1931, 1948, 1959, 1969, 1980, 1991, 1931, 1948, 1959, 1969, 1980, 1991, 2002)2002)

Other sources includeOther sources include SurveysSurveys

Administrative recordsAdministrative records

Existing Policies for Existing Policies for Collecting Collecting Disability DataDisability Data

The 1998 Statistics ActThe 1998 Statistics Act The Draft Disability PolicyThe Draft Disability Policy

Existing Sources of Existing Sources of Large ScaleLarge Scale Disability DataDisability Data

The 1991 Population and Housing The 1991 Population and Housing

CensusCensus The 2002 The 2002 Population and Housing Population and Housing

CensusCensus The 2004 Northern Uganda Baseline The 2004 Northern Uganda Baseline

SurveySurvey The 2005/6 Uganda National Household The 2005/6 Uganda National Household

SurveySurvey The Annual School Census - The Annual School Census - by Min of by Min of

EducationEducation

The proposed 2006 Uganda DHSThe proposed 2006 Uganda DHS

Existing Sources of Existing Sources of AdministrativeAdministrativeDisability DataDisability Data

The Health Management Information The Health Management Information

systemsystem

The Pilot Disability MIS - Tororo District, The Pilot Disability MIS - Tororo District,

Eastern UgandaEastern Uganda

Existing Programs to Existing Programs to addressaddressthe concerns of PWD’sthe concerns of PWD’s

The draft Disability PolicyThe draft Disability Policy The CBR Programme The CBR Programme NGO’s NGO’s

Uganda society for the deafUganda society for the deaf COMBRACOMBRA The National OVC Strategic The National OVC Strategic

FrameworkFramework etcetc

What are the challenges?What are the challenges?

Definitional ProblemsDefinitional Problems The definitions and concepts used to The definitions and concepts used to

collect disability datacollect disability data Lack of harmonised conceptsLack of harmonised concepts The reference period for the The reference period for the

disability type may not be taken disability type may not be taken into considerationinto consideration

Challenges cont….Challenges cont….

Methodological/Coverage IssuesMethodological/Coverage Issues In censuses, do we cover all In censuses, do we cover all

institutions, households, and hotels?institutions, households, and hotels? In household surveys, do we cover the In household surveys, do we cover the

institutions, refugee camps or institutions, refugee camps or Internally Displaced People’s camps Internally Displaced People’s camps (IDP’s)?(IDP’s)?

Are administrative records nationally Are administrative records nationally representative?representative?


Training of Field Staff Training of Field Staff Unlike large-scale surveys, for Unlike large-scale surveys, for

censuses, a large number of censuses, a large number of interviewers is required interviewers is required (about 35,000 - the (about 35,000 - the

2002 census)2002 census)

Training is usually conducted at 3 Training is usually conducted at 3 levelslevels

Trainers may lack the capacity for Trainers may lack the capacity for special needs training – special needs training – team compositionteam composition

At all training levels, Special Needs At all training levels, Special Needs Trainers are required which is not the Trainers are required which is not the casecase


Type of respondentType of respondent In censuses and surveys, all questions In censuses and surveys, all questions

target the Household Head target the Household Head Important though for children Important though for children

especially those aged less than 10 especially those aged less than 10 yrsyrs

What happens in case What happens in case institutional/hotel population, institutional/hotel population, especially those institutions for especially those institutions for PWD’s – PWD’s – are guidelines given?are guidelines given?


Field TestingField Testing No field testing is done during the field No field testing is done during the field

data collection. We take the responses data collection. We take the responses as given by the respondentas given by the respondent

It is important especially for young It is important especially for young children, those aged less than 10 yearschildren, those aged less than 10 years

This requires specially trained This requires specially trained personnel and maybe time consumingpersonnel and maybe time consuming

It is proved to be expensiveIt is proved to be expensive


Field SupervisionField Supervision The large number of enumerators The large number of enumerators

complicates the supervision of data complicates the supervision of data collection collection This increases the demand for This increases the demand for

supervisors and technical staff supervisors and technical staff ((disability assessment)disability assessment)


Field SupervisionField Supervision In case of HH Surveys, the problems In case of HH Surveys, the problems

maybe limited, if the number of teams maybe limited, if the number of teams is small and when the teams are is small and when the teams are centrally controlledcentrally controlled

Conclusions & RecommendationsConclusions & Recommendations

Include NGO’s CBO’s for the PWDs at Include NGO’s CBO’s for the PWDs at all levels/stages of the Census/survey. all levels/stages of the Census/survey.

Decide on the levels of analysis before Decide on the levels of analysis before the data is collected. Should the hotel the data is collected. Should the hotel census questionnaire include disability census questionnaire include disability questions? questions?

THE ENDTHE END

THANK YOU THANK YOU

the challengenges of collecting disability statisitics in a large scale exercise, in uganda by helen...

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