Technology for PWN

Narcolepsy Network Conference — Oct 2016

Advances in research

Wide range of symptoms

PWN need help

Embrace technology!

Areas of TechnologyApps to Get Organized

Voice Assistants

Physical Products

Social Media

Autonomous Vehicles

•

•

•

•

•

Apps to Get Organized

OutlookShared by Chris (Ossining, NY)

Calendar apps are great for lots of people. As a PWN, I am often cloudy and forgetful and prone to missing deadlines.

www.microsoftstore.com/Outlook-2016

I schedule time for what matters most:

• Meetings with key employees & partners

• Reminders to do basic tasks

• Out-of-office time

• “Do not disturb” blocks of time

What feature(s) do you find most helpful?

• Multiple events at same time (juggling work)

• Reminders (important to hit deadlines)

• Color Coding – Presenting, Prep Required

Is there any aspect of this product that could use improvement?

I wish there was an emoji icon you could tap at different times in the day to note alertness, that is NOT easily visible if someone else sees your screen.

Apple iCalShared by Tracy

I can add any important event to the calendar and set it to pop a reminder to my phone twice. I also have it linked to my outlook calendar at work, so I never miss an important deadline or meeting.

http://www.apple.com/iphone/

What feature(s) do you find most helpful?

The reminders. It makes it possible to keep up with the small details even when I'm having a rough day.

LivescribeWorks on virtually any device with Bluetooth

A smart pen that records your written words and sketches into digital form.

https://www.livescribe.com

EvernoteOne of the best apps for keeping track of your ideas and work.

Write down your thoughts, ideas, notes, etc on virtually any device and sync them to the big cloud in the sky.

https://evernote.com/

TrelloMy go-to app for organizing my life.

A great tool for keeping track of all the things you need to do.

https://evernote.com/

Relax MelodiesShared by Chris (Ossining, NY)

It is a noise app for both relaxation and for concentration. I mostly use the “concentration” isochronic tone, to help stay alert and focused.

http://www.ipnossoft.com/app/relax-melodies/

What feature(s) do you find most helpful?The isochronic tones, and the fact that it is free. It's amazing - I am easily 20 % more likely to get things done when using this app.

Anything else?I am writing this while my daughter is napping. I put on the “concentrate” isochronic tone while I was looking up the details, and now she is awake. It has the same effect on me—I use it when I am on the verge of passing out, and it usually makes me more conscious.

Wearables

FitBitShared by Tim (Greenfield, MA)

Measures sleep, heart rate, and has a silent vibrating alarm.

http://www.fitbit.com

What feature(s) do you find most helpful?The alarm.

Is there any aspect of this product that could use improvement?Stronger alarm and better integration with other apps.

Anything else?It's a shame there's not an app for narcolepsy symptom tracking.

Misfit Ray

Automatically tracks steps, distance, calories, and light and restful sleep.

https://misfit.com/products/misfit-ray/

Withings Aura

Collects data about the environment you sleep in, has alarms and music playback built in.

https://www.withings.com/us/en/products/aura

Hello Sense

Sense's Smart Alarm analyzes your sleep cycle to know when you're sleeping lightly, & wakes you up at the optimal time to start your day off right.

https://hello.is

S+ by ResMed

The world’s first non-contact sleep tracking system that helps you analyze and improve your sleep from the very first night.

http://splus.resmed.com/see-splus-in-action/

Delivery Apps

Amazon FreshShared by Katie (Upstate NY)

Home delivery for groceries.

https://www.amazon.com/b?node=10329849011

PeapodShared by Katie (Upstate NY)

Different home delivery for groceries.

https://www.peapod.com/index.jhtml

FreshDirectShared by Katie (Upstate NY)

Moar home delivery for groceries.

http://www.freshdirect.com

Voice Assistants

Google Now + RemindersShared by Amanda Goldman (Deer Park, NY)

Easily set reminders, timers, or search the web using your voice or shortcuts on Android, iOS, or the web browser.

http://www.google.com/landing/now/

What feature(s) do you find most helpful?Quick reminders

Is there any aspect of this product that could use improvement?Probably voice recognition

Anything else?I use this as my to do list and for reminders. Links to Google Calendar, Gmail (Inbox which now is Reminder driven) and Keep. Decreases the amount you need to keep in your head.

SiriAvailable on Apple iOS + macOS

Easily set reminders, timers, or search the web using your voice or shortcuts on Android, iOS, or the web browser.

www.apple.com/ios/siri/

Siri

AlexaAvailable on Amazon Echo devices + FireTV

Easily set reminders, timers, or search the web using your voice or shortcuts on Android, iOS, or the web browser.

https://www.amazon.com/dp/B00X4WHP5E/

Physical Products

Alarms

Sonic Bomb Alarm ClockShared by Sarah Frisch and Jenn (Tukwila WA)

Vibrating alarm for middle of the night medication.

https://www.amazon.com/Sonic-Alert-SBB500SS-Alarm-Shaker/dp/B000OOWZUK?th=1

What feature(s) do you find most helpful?Separate vibrating alarm for middle of the night plus super loud regular alarms.

Is there any aspect of this product that could use improvement?Nope. It's perfect.

Anything else?This product literally gave me the ability to continue to be able to go back to work. Can't imagine not having this alarm. Also another thing – it shows an area for batteries, however it didn't work when I tried to put batteries in to take with us when we went camping. So the ability for it to function with batteries would be great!

GPS Alarm ClockShared by James McBennett (Nashville, TN)

When I used time-based alarms on buses, I would wake too early before my stop and then fall back asleep or the alarm would be too late as there wasn't enough traffic.

Download on Google Play

What feature(s) do you find most helpful?GPS alarms are fantastic, as you can set alarm for 100m-500m from bus stop on Google maps. I never stay away on public transit, so being woken up at exactly the right time is important.

Anything else?I always thought about wearing a sign saying wake me up at my stop, but never wanted to do that as I don't like drawing even more attention to my sleep.

ClockyStarted as a Kickstarter project.

A mobile alarm clock that you literally have to hunt down to turn off.

http://www.nandahome.com

Social Media

Facebook GroupsPublic, Closed, and Secret groups

Connect with other PWN at various levels of privacy… dozens of groups, with thousands of members.

https://www.facebook.com/groups/narcolepsynetwork

Twitter #NchatRun by Cat Thoma, Heather Bertics, and Mike Hunt

A monthly discussion on Twitter about all things narcolepsy (public).

https://twitter.com/hashtag/Nchat

@catthomaCat Thoma

@therealmikehuntMike Hell

@stridesagainstNHeather Bertics

Twitter #Nchat

MeetupFind your local support group

Connect with other PWN at various levels of privacy… dozens of groups with thousands of members.

http://www.meetup.com/pro/NarcolepsyNtwrk/

More Support GroupsFind additional groups that are not running on Meetup here:

http://narcolepsynetwork.org/resources/support-groups/

Autonomous Vehicles

Thank you!Keith Harper

@keith_harper