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SYLLABUS CURRICULUM and ANNUAL SEMINAR & ACTIVITIES SCHEDULE

Tucson Location: U of A, AHSC, Room 3230 Tuesdays, 9:30-11:30 AM Unless Noted Below

MCH Competencies: 1) MCH Knowledge Base; 2) Self-Reflection; 3) Ethics and Professionalism 4) Critical Thinking 5) Communications; 6) Negotiation and Conflict Resolution 7) Cultural Competency 8) Family-Centered Care, 9) Developing Others Through Teaching and Mentoring 10) Interprofessional Team Building 11) Working with Communities and Systems 12) Policy and Advocacy

Fall Semester 2018 Due August 6, 2018:

• HRSA Welcome from the Director / Trainee Toolkit o https://mchb.hrsa.gov/training/tr_toolkit.asp

• Sign up for the MCH Trainee Listserv o https://public.govdelivery.com/accounts/USHHSHRSA/subscriber/new?qsp=HRS

A-subscribe MCH Leadership Skills Self-Assessment #1 (Pre-Leadership Training)

o https://mchb.hrsa.gov/training/leadership-00.asp • Visit MCH Navigator https://www.mchnavigator.org/

o MCH 101 • Visit PPC National Website https://ppc.mchtraining.net/resources/curricula/index.html

o History of the Pediatric Pulmonary Leadership Training Center • Attitudes and Beliefs Survey (Pre-Leadership Training)

August 8 – 10, 2018 Three-Day Leadership Intensive Workshops

Hacienda Del Sol Guest Ranch and Resort; 5501 N Hacienda del Sol Road, Tucson, AZ; 8:00 AM to 5:00 PM

August 10, 2018 UAPPC / Arizona LEND “Meet and Greet” Networking Event

Hacienda Del Sol Guest Ranch & Resort; 5501 N Hacienda del Sol Road, Tucson, AZ 5:00 – 7:30 PM

Orientation to the UAPPC MCH Training Program Discipline Faculty Member UAPPC Pedagogy / Curriculum / Program Requirements and Activities Projects/Activities/Clinical Requirements

Clinical • Required

Ø Interdisciplinary/ Interprofessional o CF Pediatric Clinics, 2nd and 4th Monday of each Month

Ø Severe Asthma

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§ Once a month-Observation (Check with Faculty Mentor)

Ø Clinic Observations o Neuromuscular Disease o Sleep Clinic o Allergy Clinic o PANDS/PANDA o CRS/Vent Clinic o Indian Health Services / Border or Hopi, Navajo Experience

• Discipline Specific

Didactics • PPC Fall and Spring Lectures • Books

Ø Leadership Book Ø Resource eBook: Cystic Fibrosis & Nutrition Text Ø Optional Reading: The Power of Two: A Twin Triumph over Cystic Fibrosis”

by Isabel Stenzel Byrnes Leadership Project

• Leadership Capstone Options

Research • CITI Training • IRB Presentation and Process

Trainee Evaluations for Leadership and Didactic Components

• Leadership Intensive Workshops • Team Building and Conflict Resolution Workshop (TBCR) • School Healthcare Training Event • Cystic Fibrosis Education Day • Didactic Sessions • Learn and Learn Opportunities (2) • Leadership Project

§ Project Presentations

Assessments • Attitudes and Beliefs Surveys • MCH Leadership Skills Assessment • Individual Learning Contract • Individualized Training and Activity Plan • Self Reflection Journal • Leadership Capstone • Family-Centered Interprofessional Case Study • Cultural Competency On-Line Modules • Life Course Testimonials • PPC Experience Testimonial

Required Meetings with Faculty Member and Associate Director to Review Progress

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• October / November • February / March

Fellow and Faculty Use of the UAPPC website and D2L

• Website: D2L Login; Recording of hours • D2L: Calendar and Complete Overview of Site • Trainee Discussion on D2L • Assignment submissions on D2L

WEEK 1 August 21, 2018 Cystic Fibrosis & the Role of New Born Screening Website Cori Daines, MD

• What is Cystic Fibrosis? • Genetics of CF • Overview of CF • New Born Screening

Videos: Family Perspective Video Readings:

• CF Lancet Disease Review 2016.pdf • Cystic Fibrosis and Nutrition Text.pdf

PHARMACY Specific: PSAP 2017-2017_Cystic Fibrosis.pdf Activities: Self Reflection Questions and Journal. Identify MCH Competencies Addressed. Attend Cystic Fibrosis Clinics. Family Case Study to present in January. Due August 28, 2018:

• Human Subjects online Training for Responsible Conduct of Research through the Collaborative Institutional Training Initiative (CITI) Training: http://orcr.arizona.edu/hspp/training

• Email Associate Director with the DATE you COMPLETED the CITI Training.

WEEK 2

August 28, 2018 IRB & QI Website Hanna Phan, PharmD, FCCP

• Introduction to IRB • Tips and Process to submitting proposals • Introduction to Quality Improvement • Quality Improvement Panel Presentation and Questions

Readings: • Action Guide for Accelerating Improvement in CF Care (PDF) • Resource on publishing quality improvement: SQUIRE 2.0 guidelines: http://squire-

statement.org/index.cfm?fuseaction=Page.ViewPage&PageID=471

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• Research Fundamentals (American Society of Health System Pharmacists Foundation): http://www.ashpfoundation.org/ajhpresearchseries

Project Resources: UA IRB website: https://rgw.arizona.edu/compliance/human-subjects-protection-program Activities: Complete IRB Application for Capstone Project when ready. Self Reflection Questions and Journal. Identify MCH Competencies Addressed.

August 31, 2018 Critical Thinking Friday 1:00-4:15 Craig LeCroy Room 3230 or On-Line

• Introduction to critical thinking • Impediments to critical thinking • How to exercise critical thinking • Small group exercise: Complete the culture of thoughtfulness scale • Examples of common mistakes made in thinking • Class discussion: How to use critical thinking

Readings: 1) Halpern, D. Thinking critically about critical thinking: Lessons from cognitive psychology 2) Elder, L., & Paul, R. Learning the art of critical thinking. This article was adapted from

the book, Critical Thinking: Tools for Taking Charge of Your Learning and Your Life, by Richard Paul and Linda Elder.

3) Strategy list: 35 dimensions of critical thought. From www.criticalthinkning.org Activities: Article Review; Class Discussion. Self Reflection Questions and Journal. Identify MCH Competencies. WEEK 3 September 11, 2018 Life Course Website or Kelly Jackson, MS, RD Arrange With Mentor

• Introduction to Life Course Theory • Life Course Influences on Health Status • The Life Course Game

Readings: Life Course Approach in MCH https://mchb.hrsa.gov/training/lifecourse.asp Activities: Life Course Game. Self Reflection Questions and Journal. Construct Personal Life Course narrative. Develop a Life Course Narrative on a Chronic Illness Patient. Identify MCH Competencies Addressed.

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WEEK 4 September 17, 2018 Community Needs Assessment Monday Elizabeth Hall-Lipsy, JD, MPH 2:30-3:30 PM Room 3230

Upon completion of this activity, students should be able to: 1. Understand the key concepts in defining community 2. Evaluate the rationale and need for conducting a community

assessment 3. Compare and contrast between the use of primary and secondary

data sources to conduct a community health assessment Readings: Activities: Begin development of Capstone Needs Assessment. Interdisciplinary discussion. Self Reflection Questions and Journal. Identify MCH Competencies Addressed. September 18, 2018 Nutrition and Cystic Fibrosis Website Kayle Skorupski, MS, RDN-AP, CSG, CNSC

Nutrition and Cystic Fibrosis • The importance of Nutrition with Cystic Fibrosis

Videos: Family Perspective Videos Readings: Activities: Self Reflection Questions and Journal. Identify MCH Competencies Addressed. WEEK 5 September 25, 2018 Transition to Adult Care Tuesday Mary McGuire, LMSW 9:30 – 10:30 AM Room 3230

Transition to Adult Care • Overview of Transition Process • Steps to help with transition • Transition Website and Support • Transition Passport

Videos: Family Perspective Videos Readings: Transition Guide on the PPC Website: https://uappc.peds.arizona.edu/transition

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Activities: Self Reflection Questions and Journal. Identify MCH Competencies Addressed. September 25, 2018 Child Life Tuesday Serena Rivera, ME, CCLS 10:30 – 11:30 AM Room 3230 Videos: Family Perspective Video Readings: Activities: Self Reflection and Journal. Identify MCH Competencies Addressed. September 28, 2018 Life Course Theory Friday 1:00-4:00 Eileen McGrath Room 3230 or On-Line

• Introduction to the Life Course Perspective/Theory – Influences on Health Status • Small Group Discussion of Social Stressors and Life Course Case Studies • The Johnson and Martin families: Overview of Case Studies • The Life Course Game

Readings: 1) Life Course Theory (LCT) and Social Determinants of Health (SDOH) Assignment: Read

the definitions of LCT /SDOH and respond in three to four sentences to the following question: How does Life Course Theory/Social Determinants of Health apply to the work you do with and on behalf of children with disabilities and their families?

2) Case Studies: Read Life Course Case Studies and Review descriptions of the Johnson and Martin families

Supplemental Readings:

1) Russ, S. A., Larson, K., Tullis, E. and Halfon, N. (2014). A lifecourse approach to health development: Implications for the Maternal Child Health research agenda. Maternal and Child Health Journal, (2014) 18:497-510. DOI 10.1007/s10995-013-1284-z

2) Braveman & Barclay (2009). Health Disparities Beginning in Childhood: A Life-Course Perspective.

3) Lu, M. C., & Halfon, N. (2003). Racial and Ethnic Disparities in Birth Outcomes: A Life Course Perspective

Activities: Small Group Activity; Self Reflection Questions and Journal; Interdisciplinary Discussions; Life Course Game. Identify MCH Competencies.

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WEEK 6 October 1, 2018 Advocacy & Policy Change Monday Lynn Gerald, PhD, MSPH 2:30 – 3:30 PM Room 3230

Readings: Arizona’s School Stock Inhaler Program Knowledge and Implementation on the UAPPC Website, Former Trainee Erika Miller, MSW Activities: Self Reflection Questions and Journal. Identify MCH Competencies Addressed. October 5, 2018 Leadership Theory Friday 1:00-4:15 PM Cristina Castañeda Room 3230 or On-Line Leadership:

• Leadership Theory and Practice – Prep for Professionals • Are you a leader? What type of Leader? • Leaders on a Team, Effective Communication • Professionalism & Being Memorable: Private Meetings, In-Person, In-Writing,

On-line and Social Media • Public Speaking • Individual and Small Group Practice Session

Policy Development and Advocacy

(Eileen McGrath, Fadyeh Barakat and Jim Dean)

• How a Bill Becomes Law • Autism CARES Re-Authorization • Current legislative actions of importance

Readings/Video for Leadership Portion of Seminar:

1) Drew Dudley: Everyday Leadership: http://www.ted.com/talks/drew_dudley_everyday_leadership.html

2) Susan Cain: The Power of Introverts: http://www.ted.com/talks/susan_cain_the_power_of _Introverts

Activities: In-Class Video; Self Reflection Questions and Journal; Interdisciplinary Discussions; . Identify MCH Competencies. WEEK 7 October 9, 2018 Chronic Illness & Support Systems Website Amanda Sharpe, BS

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• Families and Support Groups • Social Media and Support: CysticLife • Reaching Children and Families

Videos: Family Perspective Video Readings: Activities: Interdisciplinary discussion. Self Reflection Questions and Journal. Register for CysticLife Membership. Identify MCH Competencies Addressed. October 12, 2018 11:00 – 12:15 Searching Library Databases AHSL Room 2102 Carol Howe, MD, MLS October 13, 2018 Team Building & Conflict Resolution Seminar (Required) Children’s Clinics; 8:00 AM – 4:00 PM (Last day of Leadership Intensive Workshop) WEEK 8 October 15, 2018 Pulmonary Function Testing Monday Nasim Khattab, MD 2:30-3:30PM Room 3230

Pulmonary Function Testing • Overview of Pulmonary Function Testing • View a Pulmonary Function Test

Videos: Family Perspective Videos Readings: Activities: Self Reflection and Journal. Observe a PFT. Identify MCH Competencies Addressed. WEEK 9 October 23, 2018 Severe Asthma Website Michael Daines, MD Videos: Family Perspective Video Readings: Management of Severe Asthma Before Ref Specialists.pdf Severe Asthma in Children.pdf

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Activities: Individual Reflections; Interdisciplinary Discussions & Self Reflection Journal. Observe clinic. October 26, 2018 Brain Development, Zika Virus, Children’s Friday 1:00-4:15 PM Postinfectious Autoimmune Encephalopathy (CPAE); Room 3230 or On-line Screening Tools and the Science of Surveillance and

Screening Sydney Rice, MD

• Basic Brain Development • Zika Virus: Historical timeline, Symptoms, Clinical Features,

Transmission, Potential Impact • Children’s Postinfectious Autoimmune Encephalopathy

(CPAE): Symptoms, Clinical Features, Potential Impact • Screening Tools and the Science of Surveillance and

Screening o Screening Vs. Evaluation o Sensitivity and Specification

Videos:

1) Normal Brain Functional Anatomy: https://www.youtube.com/watch?t=381&v=9UukcdU258A

2) Sensitive and critical periods of development: https://www.youtube.com/watch?v=ytRC15vIA24

3) The Teenage Brain http://www.pbs.org/wgbh/pages/frontline/shows/teenbrain/

Readings:

1) 2006, AAP Guidelines. Identifying Infants and Young Children with Developmental Disorders in the Medical Home: An Algorithm for Developmental Surveillance and Screening. Council on Children with Disabilities, Section on Developmental Behavioral Pediatrics, Bright Futures Steering Committee, and Medical Home Initiatives for Children with Special Needs, Project Advisory Committee.

Activities: Self Reflection Questions and Journal; Interdisciplinary Discussions; Observe a clinic. Identify MCH Competencies. WEEK 10 October 30, 2018 Neuromuscular Disease Website Cori Daines, MD Videos: Family Perspective Video Readings: Activities: Self Reflection and Journal. Observe clinic. Identify MCH Competencies Addressed.

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October 30, 2018 Nutrition Modules Tuesday Kelly Jackson, MD, RD 10:30 – 11:30 AM Room 3230

• Nutrition and CF: Patient-centered Behavior Interventions Videos: Family Perspective Video Readings:

• Nutrition in Cystic Fibrosis, Yen and Radmer Leonard – Chapter 17 • Cystic Fibrosis Foundation – www.cff.org • Borowitz et al. - Using Nutrition to Stay Healthy with CF presentation • Nutrition – How to Encourage Healthy Eating • Terry RD. Needed: A new appreciation of culture and food behavior. J Am Diet

Assoc. 1994;94(5):501-503. (attached file: “cultural issues with RDs”) Activities: Self Reflections Questions and Journal. Review Nutrition Modules on PPC Website. Identify MCH Competencies Addressed. WEEK 11 November 5, 2018 Pediatric Diabetes and CFRD Monday Jeanne Fenn, RN, BC, MEd, CDE 2:30 – 3:30 PM Room 3230 Videos: Family Perspective Video Readings: Activities: Self Reflection Questions and Journal. Identify MCH Competencies Addressed. November 6, 2018 Pharmacotherapy in Treatment of Cystic Fibrosis Website Hanna Phan, PharmD, FCCP Readings: Activities: Self Reflection Questions and Journal. Identify MCH Competencies Addressed. November 22nd and 23rd THANKSGIVING RECESS

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WEEK 12 November 13, 2018 Clinical Research Website Wayne Morgan, MD

• Clinical Research Overview

Videos: Family Perspective Video Readings: Activities: Self Reflection Questions and Journal. Identify MCH Competencies Addressed. November 16, 2018 Families in Crisis Friday 1:00-4:15 PM Craig LeCroy Room 3230 or On-Line

• Families in Crisis • Anxiety and Depression Among Caregivers • Sibling Perspectives

Readings: 1) Pisula, E., & Kossakowska, Z. (2010). Sense of Coherence and Coping with Stress

among Mothers and Fathers of Children with Autism. 2) Pottie, C. G., & Ingram, K. M. (2008). Daily Stress, Coping and Well-Being in Parents

with Autism: A Multi-level Modeling Approach. Activities: Self Reflection Questions and Journal. Identify MCH Competencies. WEEK 13 November 19, 2018 Death & Dying & End of Life Issues Monday Tani Bahti, RN, CT, CHPN 2:30 – 3:30 PM Room 3230 Videos: Family Perspective Video Readings: Activities: Self Reflection Questions and Journal. Identify MCH Competencies Addressed. WEEK 14 November 27, 2018 Leadership Capstone Methodology Tuesday Trainees Present 9:30 – 11:30 AM

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Room 3230 Leadership Capstone • Community Need Identified • Needs Assessment • Educational Objective

November 30, 2018 Medical Ethics Friday 1:00-4:15 Bill Madden, Sydney Pettygrove and John Meaney Room 3230 or On-Line

• Ethical Principles • How and Why Surveillance Programs get Started • Epidemiologic Perspective

History of Exceptionality and Special Education (Eileen McGrath)

• History of Exceptionality and Special Education • Ethical Treatment of Individuals with Developmental Disabilities • Current Policies Effecting Ethical Treatment of Individuals with

Disabilities •

Readings: Activities: Self Reflection Questions and Journal. Identify MCH Competencies. December 1, 2018 Leadership and Culture Saturday Cristina Castañeda, Darold Joseph and Todd Fletcher, PhD 9:00 AM – 3:00 PM Children’s Clinic WEEK 15 December 4, 2018 Leadership Tuesday Cori Daines, MD 9:30 – 11:30 AM Room 3230

• Leadership Readings: Activities: Self Reflection Questions and Journal. Identify MCH Competencies Addressed.

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University of Arizona READING DAY December 6, 2018

FINALS December 7 - 13, 2018 WINTER BREAK December 14, 2018 through January 8, 2019 Due by January 11, 2019: Individualized Training & Activity Plan (Mid-Year)

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Spring Semester 2019

MCH Competencies: 1) MCH Knowledge Base; 2) Self-Reflection; 3) Ethics and Professionalism 4) Critical Thinking 5) Communications; 6) Negotiation and Conflict Resolution 7) Cultural Competency 8) Family-Centered Care, 9) Developing Others Through Teaching and Mentoring 10) Interprofessional Team Building 11) Working with Communities and Systems 12) Policy and Advocacy WEEK 1 (2) January 15, 2019 Vent & Aerodigestive Tuesday Cori Daines, MD 9:30 – 11:30 AM Room 3230

• Vent Videos: Family Perspective Video Readings: Activities: Self Reflection Questions and Journal. Observe Clinic. Identify MCH Competencies. WEEK 2 (2) January 22, 2019 Case Studies Tuesday Trainees Present 9:30 – 11:30 AM Room 3230 January 25, 2019 Leadership and Family-Centered, Culturally Effective Care Friday, 1:00-4:15 Cristina Castañeda and Andrew Gardner Room 3230 or On-Line Leadership:

• Civil Rights, Ethics and Work Practices http://www.ted.com/talks/sheryl_sandberg_why_we_have_too_few_women_leaders

• Medical Interpretation: A Bridge for Communicating • • Small Group Discussion/Practice

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Readings for Leadership Portion: 1) Title VI: Civil Rights Act: LEP FAQ at:

http://www.lep.gov/faqs/faqs.html#Four_title_VI_Regs_FAQ Readings for Family-Centered Culturally Effective Care Portion:

1) Committee on Pediatric Workforce (2004). Ensuring Culturally Effective Pediatric Care: Implications for Education and Health Policy.

2) CLAS Standards: Culturally and Linguistically Appropriate Care: A Toolkit for MDwise Providers.

Resources:

1) Simply Put: A guide to creating easy-to-understand materials 2) Enhanced National CLAS Standards

Activities: Self Reflection Questions and Journal; Identify MCH Competencies.

WEEK 3 (2) January 29, 2019 Clinical Ethics Tuesday Wayne Morgan, MD 9:30 – 11:30 AM Room 3230

• Clinical Assessment • Clinical Ethics

Readings: Activities: Self Reflection Questions and Journal. Identify MCH Competencies Addressed. January 30, 2019 Family Collaborative – All National PPCs Wednesday PPC Trainees 10:00 AM – 12:00 PM **Located in Biomed Saturday, February 2, 2019 Parent / Professional Partnerships Workshop 8:00 AM – 2:00 PM McCafferty Kemon, Angela Rosenberg and Kim Children’s Clinic Brossart

• Understand the power of inclusion and exclusion in forming parent-professional partnerships

• Enhance reflective listening skills • Understand the importance of the narrative in creating a parent-professional

understanding as well as in achieving patient satisfaction • Review concepts of how to facilitate optimal understanding in delivering

health care messages • Explore health theory and the concepts of health beliefs in facilitating patient

trust, understanding and optimal outcomes

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Suggested Readings: 1) Doctors and Nurses, Not Learning Together, New York Times, April, 2014

http://nyti.ms/1HTNsAs 2) Why Doctors Need Stories, New York Times Opinion; October, 2014

http://nyti.ms/1qQ9Mj6 3) Implications of Childhood Autism for Parental Employment and Earnings; Pediatrics,

2012. April 129(4): 617 – 623 http://pediatrics.aappublications.org/content/129/4/617.full

WEEK 4 (2) February 4, 2019 – February 6, 2019 National PPC Meeting Embassy Suites, Tucson, AZ **Agenda To Come WEEK 5 (2) February 12, 2019 Medication Adherence Website Hanna Phan, PharmD, FCCP

• Medication Adherence influences and barriers Video: Family Perspective Video Readings: Activities: Self Reflection Questions and Journal. Identify MCH Competencies Addressed. February 15, 2019 Understanding Rural Health Services and Transitions Friday 1:00-4:15 Mary Blair, MD and Karen Applequist, PhD Room 3230 or On-Line

Rural Community Health Services, Mississippi Mary Blair

• Innovative Practice Models that Enhance Cultural Effectiveness, Partnerships

among Disciplines, and Family-Centered Approaches to Care • Fostering a Community-based Partnership of Health Resources &

Community Leadership • Access to Care, Insurance Coverage and Issues with Wait Time

Readings: 1) The Health and Well-Being of Children in Rural Areas: A Portrait of the Nation 2007.

Activities: Self Reflection Questions and Journal; Interdisciplinary Presentations;

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WEEK 6 (2) Work on Capstone Project with Mentor WEEK 7 (2) February 26, 2019 Inpatient side of Interprofessional Care Website Gabby Jurecky, RN, BSN, MSN/ED

• Considerations

Readings: Activities: Self Reflection Questions and Journal. Identify MCH Competencies Addressed. February 27, 2019 Family Collaborative – All National PPCs Wednesday PPC Trainees 10:00 AM – 12:00 PM **Located in Biomed Spring Break: U of A: March 2 through March 10, 2019 ASU: March 3 through March 10, 2019 March 9 – 12, 2019 AMCHP 2019 San Antonio, Texas WEEK 8 (2) March 12, 2019 Asthma Pharmacology Website Catherine Hobart, PharmD Video: Family Perspective Video Readings: Activities: Self Reflection Questions and Journal. Identify MCH Competencies Addressed. WEEK 9 (2) March 19, 2019 Pediatric Allergies Website Michael Daines, MD

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Video: Family Perspective Video Readings: Activities: Self Reflection Questions and Journal. Identify MCH Competencies Addressed. WEEK 10 (2) March 26, 2019 Pediatric Sleep Website Dan Combs, MD

Pediatric Sleep • Importance of Sleep • Sleep Modules

Readings: Activities: Self Reflection Questions and Journal. Identify MCH Competencies Addressed. Review the Sleep Modules on the PPC Website. Observe a clinic. March 26, 2019 Palliative Care Website Rachel Cramton, MD

Palliative Care • Palliative Care Overview

Readings: Activities: Self Reflection Questions and Journal. Identify MCH Competencies Addressed. WEEK 11 (2) April 5, 2019 “LUNCH and LEARN” Peds Board Room 11:00 AM to 12:30 PM “Policy Development & Advocacy at the National, State and Local Levels” Possible speakers may include the following individuals or representatives from their respective offices: Congressman Raul Grijalva (District Director, Ruben Reyes); Senator Jeff Flake; Arizona State Senator David Bradley; AZ State Representative Rosanna Gabaldon; Tucson Mayor Jonathan Rothschild WEEK 12 (2) Work on Leadership Capstone Project April 7 - 9, 2019 Disability Policy Seminar Washington, DC

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April 12, 2019 Transition from Adolescence to Adulthood for Youth with Friday 1:00-4:15 Disabilities Room 3230 or Karen Applequist and Kathy Sweeney On-Line

• Differences in childhood and adult systems of services and supports (health care, education, vocational)

• Transition from High School to: Higher Education, Training, Employment and Independent Living

• Person-Centered Planning

Operating a Multi-Specialty Community Medical Clinic & Medical Home Experiences in Transitioning Adolescents to Adult Healthcare (Dr. Tammy Bassford, Ana Chavez, and Yesika Martinez)

• Pre-Seminar Homework on Medical Home • Medical Home Principles and Policy Development • Clinical Observations with Patient and Family Perspectives • Experiences in the Transition Process

Readings:

1) Solotaroff, P. Luke’s Best Chance. Rolling Stone Magazine. August 11, 2016. 2) Sharma, O’Hare et al. Transition Care: Future Directions in Education, Health Policy,

and Outcomes Research, http://www.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pubmed&retmode=ref&cmd=prlinks&id=24602574

3) AUCD Report - A Collaborative Interagency, Interdisciplinary Approach to Transition from Adolescence to adulthood (2012) http://www.aucd.org/template/news.cfm?news_id=8881&parent=16&parent_title=Home&url=/template/index.cfm? ( Pages 1 – 33)

4) AAP (2005). Care Coordination in the Medical Home: Integrating Heath and Related Care for Children with Special Health Care Needs.

Activities: Self Reflection Questions and Journal, Class Discussion, Team Work, Team Exercise. Identify MCH Competencies. Supplemental Readings:

1) Kelly, A. M., Kratz, B., Bielski, M., Rinehart, P. M. (2002). Implementing Transitions for Youth with Complex Chronic Conditions Using the Medical Home Model.

2) 2) Samantha Crane, Autistic Self Advocacy Network, The transition to adulthood for youth with ID/DD: A review of research, policy and next steps (2013)

3) A Guide for Parent and Practice “Partners” Working to Build Medical Homes for Children with Special Health Care Needs. (2001). Center for Medical Home Improvement.

4) Strickland, B. B., et al (2009). Access to the Medical Home: New Findings from the 2005-2006 National Survey of Children with Special Health Care Needs.

Activities: Self Reflection Questions and Journal; Interdisciplinary Presentations; Observation; Media; Communication and Management. Identify MCH Competenices.

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WEEK 13 (2) Due April 16, 2019: 2nd MCH Leadership Skills Self-Assessment submitted

through D2L Final Completed ITAP Due to Faculty Mentor PPC Experience Testimonial Due to Associate Director WEEK 14 (2) April 23, 2019 Leadership Capstone Projects Tuesday PPC Trainees 9:30 – 11:30 AM Room 3230

Ø Structured Lecture to PPC Faculty Ø Poster Presented