suzanne grimshaw and jane ahern whilst waiting to sort out our future were missing out on life

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Suzanne Grimshaw and Jane Ahern Whilst waiting to sort out our future were missing out on life

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Page 1: Suzanne Grimshaw and Jane Ahern Whilst waiting to sort out our future were missing out on life

Suzanne Grimshaw and

Jane Ahern

Whilst waiting to sort out our future were missing out on life

Page 2: Suzanne Grimshaw and Jane Ahern Whilst waiting to sort out our future were missing out on life

OUR PASTOut of sight, out of mind

Lost in the system

A passive recipient of care, a dependant on the welfare state

Page 3: Suzanne Grimshaw and Jane Ahern Whilst waiting to sort out our future were missing out on life

Personalisation, self directed support, it’s much more than being about personal or individual budgets.

It is about a different relationship between the citizen and the state, its about being...............

Page 4: Suzanne Grimshaw and Jane Ahern Whilst waiting to sort out our future were missing out on life

But the question still exists Who will look after my loved on when

I’m no longer here?

• If you love something enough you will keep it safe for ever.

• A sustainable life with people who know your story.

• A good life with friends and family.

• Sorting things out then you can truly have Peace of Mind.

Page 5: Suzanne Grimshaw and Jane Ahern Whilst waiting to sort out our future were missing out on life

BUTWhere and when do I start?

How can we make the impossible possible?

It takes energy.

Who is really interested?

My child will die first or I will live for ever?

We have no choice but to aim high!!!

Page 6: Suzanne Grimshaw and Jane Ahern Whilst waiting to sort out our future were missing out on life

£

We knew the concept of circles of support could work, but they were few and far between in the UK.

Participation

£ £

Exchange

Page 7: Suzanne Grimshaw and Jane Ahern Whilst waiting to sort out our future were missing out on life

Then we heard of a new way which seemed to

be working in Canada

Established for over 20 years

Page 8: Suzanne Grimshaw and Jane Ahern Whilst waiting to sort out our future were missing out on life

It’s mission• To support families to

have peace of mind, and people with disabilities to attain ‘a good life’

• By doing as much as is needed and no more than is necessary

It was simple yet seemed effective•Working to family priorities•Hospitality•Belonging•Support and understanding•Getting the best out of life

Page 9: Suzanne Grimshaw and Jane Ahern Whilst waiting to sort out our future were missing out on life

The core values• Family leadership• Safety and security

through relationships

• Self sufficiency• Contribution equals

citizenship

Page 10: Suzanne Grimshaw and Jane Ahern Whilst waiting to sort out our future were missing out on life

The PLAN ModelFuture Planning

Wills, trusts, guardianship, agreements

Family support and advocacyIndividual, group and movement

Personal network development Intentional networks of support. Friends not paid support. Community connectors.

Lifetime commitment

Page 11: Suzanne Grimshaw and Jane Ahern Whilst waiting to sort out our future were missing out on life

• Planning for Plan programme in five areas – supporting families to plan for the future and develop circles of support encouraging mutual peer support.• One provider training staff to become connectors – to support isolated people who they work with. • Ask the family – influencing local authority practice.

So what have we done so far?

• Hereford• Worcestershire• Birmingham• Bradford • Wigan• Monmouthshire in the pipeline.

Page 12: Suzanne Grimshaw and Jane Ahern Whilst waiting to sort out our future were missing out on life

• Families to commit to each other.

• A local organisation to host that group or not.

• Families ready to do the hard stuff first - future planning.

• Skilled input to train connectors.

• Back room work done for rather than by members.

How do our local groups work?

Page 13: Suzanne Grimshaw and Jane Ahern Whilst waiting to sort out our future were missing out on life

What we haveA skilled team able to :

• train connectors, • Support families through the future planning process• Develop family leadership• Seek funding • Resources to support group development • A resource in www.shop4support.com

Page 14: Suzanne Grimshaw and Jane Ahern Whilst waiting to sort out our future were missing out on life

If you want something different you have to do something different.

Page 15: Suzanne Grimshaw and Jane Ahern Whilst waiting to sort out our future were missing out on life

Plan or be planned for!

The choice is yours....

Page 16: Suzanne Grimshaw and Jane Ahern Whilst waiting to sort out our future were missing out on life

Thank you for sharing your time with us today

For more information contact:- Suzanne Grimshaw on 01942 513053 or [email protected] www.shop4support.com