Stepping Up for those You Love: Walk MS Details inside

A Daughter’s Make-a-Mark

thank You

Rehab YourMobility

Wisconsin Chapter Board of Trustees

If you or someone you know has MS: Studies show that early and ongoing treatment with an FDA-approved therapy can reduce future disease activity and improve quality of life for many people with multiple sclerosis. Talk to your health care professional or contact the National MS Society at nationalmssociety.org or 1-800-344-4867 to learn about ways to help manage multiple sclerosis and about current research that may one day reveal a cure. The National MS Society does not endorse products, services or manufacturers. Such names appear here solely because they are considered valuable information. The National MS Society assumes no liability for the use of contents of any product or service mentioned. Information provided by the Society is based upon professional advice, published, experience and expert opinion. Information provided in response to questions does not constitute therapeutic recommendations or prescriptions. The National MS Society recommends that all questions and information be discussed with a personal physician. The National MS Society is committed to seeing a world free of MS.

©2012 National Multiple Sclerosis Society-Wisconsin Chapter MS Connection is a quarterly publication of the National Multiple Sclerosis Society-Wisconsin Chapter.Editor: Maureen Waslicki | Assistant Editor: Amanda Gasper | Art Director: Amy MaloTo comment or share a story idea, call 262-369-4421.

Kenneth Minor, ChairSonic Foundry, Inc.

David Rodgers, Vice ChairBriggs & Stratton Corporation

Michael Lutze, Vice ChairErnst & Young

tom golden, Vice ChairM3 Insurance Solutions for Business

James Rose, treasurerBaker Tilly Virchow Krause, LLP

Robert Sowinski, SecretaryDiversified Insurance Services, Inc.

Alyson Zierdt, past ChairAttorney, Retired

Colleen Kalt, president & CeONational MS Society- Wisconsin Chapter

Anne BrouwerMcMillian Doolittle, LLP

Robert Buhler Open Pantry Food Marts of Wisconsin, Inc.

Dennis ChristiansenCommunity Advocate Robert engelRetired, M&I Bank

pamela evasonWindermere Wealth Advisors LLC

paul JonesHarley-Davidson, Inc.

Wayne LarsenATI Ladish LLC

Martin McLaughlinReinhart Boerner Van Deuren, S.C.

Bruce OlsonThe Marcus Corporation Shelley peterman SchwarzMeeting Life’s Challenges, LLC

David RaysichPlunkett Raysich Architects

patricia RaysichCommunity Advocate

Jeffrey SterenSteren Management/McDonald’s

Robyn turtenwaldCommunity Advocate

Molly WalshWaisman Center

MS Connection | 2

Wisconsin Chapter: Where Does the Money go?

Source: 2011 Audited Financial Statement

82.6Mission Fundraising Management & general

10.7 6.7% % %

We Can’t Do It Without You.

Call 800-242-3358 or visit walkMSwisconsin.org to register.

ou’re about to make a huge difference.

Those of you who are planning on taking part in this year’s Walk MS are going to make a difference. Last year’s 12,000 participants raised $1.5 million – money that, right now, is funding cutting edge research in treating and curing the disease; money that is supporting services and programs for Wisconsinites affected by the disease; money that will be paying dividends

for years to come for everyone whose life is touched by MS.

This year is no exception. The awareness you raise and the donations you gather will be put to work. You will help STOP disease progression. You will help RESTORE function that has been lost. You will help END this disease forever. None of it is possible without you.

If you’ve already signed up, thank you. If you haven’t

yet, please do so today. Then recruit your friends. Tell your family. Invite the neighbors. Get everyone involved. Ask them to support the mission – your mission – of creating a world free of MS.

Step by step, dollar by dollar, you’re going to make a difference.

Colleen G. KaltPresident & CEO

Grant AwardsThe Wisconsin Chapter thanks the following organizations for grants recently awarded in support of research, programs and services that are critical to people affected by MS.

In total, nearly $86,000 was received in gifts and grants from October to December 2011. If you are connected to a foundation that you would like to suggest for a grant opportunity, or for more information on how you can help, call Cindy Yomantas at 262-369-4431 or cindy.yomantas@nmss.org.

• $20,000fromtheLadishCompany Foundation for research, patient care and scholarships• $15,000fromtheM&IFoundationforresearch• $10,000fromtheBriggs&Stratton Corporation Foundation Inc. • $10,000fromtheMaeE.DemmerCharitable Trust for research• $5,000fromthePuelicherFoundationInc. for research• $5,000fromtheLuxFoundation• $5,000fromtheDavidV.UihleinFoundation• $2,500fromBiogenIdecforPrograms• $2,400fromtheMayerFamilyFoundation• $2,000fromtheGreaterMilwaukee Foundation• $2,000fromtheBarrowMedicalFoundation

• $1,500fromtheHinrichsFoundationInc.• $1,500fromtheWaukeshaCo.Community Foundation Megal Fund • $1,070fromtheGreaterMilwaukee Foundation-David C. Scott Foundation Fund for research• $1,000fromtheKnierFamilyFoundation• $750fromAvanirPharmaceuticalsfor professional training• $500fromtheSub-ZeroFoundationInc.• $300fromtheGreaterMilwaukeeFoundation - Colton Charitable Fund• $250 from the Shomos Family Foundation LTD• $100fromtheBarrowMedicalFoundation• $100fromtheMadisonCommunity Foundation-Ragatz Fund, Thomas & Karen

Y

MS Connection | 3

MS Connection | 4

research investigator starts a new study in

pursuit of an answer to a question.

“Basically,everybiological question we ask in the laboratory revolves around

multiplesclerosis,”BonnieDittel, PhD, said. “I’m very dedicated to research in MS.”

Dittel is a senior investigator at theBloodResearchInstitute,partof theBloodCenterof Wisconsin, located in Milwaukee.BorninWisconsin,Dittel completed her under-graduate work at the Universityof Wisconsin-

Madison before getting her PhD in Pathobiology and Immunology attheUniversityof Minnesota.

Shewasawardeda$440,724grant to study the role of cannabinoidreceptor2(CB2)

inregulatinginflamma-tion in the central nervous system in EAE, the animal model of MS. Dittel is studying how synthetic and plant-derived cannabinoids – the chemical compounds thatbindtoCB2–affectimmune system cell activity.

Previously, Dittel and her colleagues had found that mice with EAE that did nothaveCB2onsomeof their immune cells, developed severe disease.

That would seem to suggest that cannabinoids might be able to regulate the immune response in EAE throughCB2.

“As sometimes happens in science, you ask the right question and you get a very dramatic result,” she said.

With the grant award, Dittel and her team are trying to

determine which cannabinoids suppress EAE the most. “We want to know to what extent we can regulate central nervoussysteminflammationthroughCB2,”Dittelsaid.“That’s the question I wanted to ask.”

Dittel received grant awards previously from the Society and is currently serving on one of several grant application review committees for the National Multiple Sclerosis Society.

“I see the types of grants that are funded,” she explained. “We try really hard to pick out those that are not only good science, but that will impact or have the potential to impact treatment of MS or give us a better understanding of the disease, which hopefully leads to better treatments.”

A“Basically, every biological question we ask in the laboratory revolves around multiple sclerosis”

Researcher Bonnie Dittel: In Pursuit of Answers

Researcher Bonnie Dittel, pictured with Wisconsin Board of Trustees Secretary Robert Sowinski, attended the Wisconsin Chapter’s Annual Meeting in December.

8th Annual MS Summit & getaway, May 18-19, Kalahari ResortCome together with others who are living with MS. Learn more about living with the disease,

hear from special keynote speakers, and enjoy time with family and new friends.

For details or to register: Visit wisMS.org or call 1-800-242-3358 and select option 1.

ophie Nelson remembers the day during the summer

of 2011 when she received a call from her mother, Theresa Johnson. She sounded more excited than she had been in quite a while.

Theresa was diagnosed with primary progressive multiple sclerosis in the fall of 2008. As her mobility and hand functions began to decrease, she started looking into resources offered by the National Multiple Sclerosis Society. She wrote to the Wisconsin Chapter for assistance with a portion of the cost of a new wheelchair. The exciting phone call Sophie received that day was in response to news that the Wisconsin Chapter would pay for a motorized wheelchair in full through the wheelchair reclamation program, made possible through donations to the Make a Mark for MS Tax Check-off program.

“It was really amazing to hear such good news,” Sophie said. “Good news isn’t always

plentiful when you have a family member with MS, so it was a really good day.”

According to Sophie the new wheelchair has given Theresa an element of independence that she didn’t have in her life before. Going on walks with her husband, Paul, and having the mobility to go on the porch to overlook her garden have been blessings to Theresa and her family.

The family has been participating in Walk MS and BikeMS:BestDamBikeRide since Theresa’s diagnosis. They also always “make a mark for MS” through the Wisconsin MS Tax Check-off program. The funds generated help improve the quality of life and ensure continued independence for those affected by multiple sclerosis and living in Wisconsin. MS is not only a complicated and unpredictable disease, but it is

also expensive – the annual cost of living with MS is estimated atnearly$70,000peryear.

Sophie is glad to know there is hope and inspiration for her family and she wants other people to know there is help out there for them too. Sophie encourages others to check the box for the National MS Society in the “donations” section on their tax forms. She said, “Even a small amount of money to the Society could be what gives someone who has very little independence or mobility a chance at connecting with the world again.”

Written by Sarah Otten, a marketing and communications intern for the Wisconsin Chapter and recent UW-Madison graduate.

MS Connection | 5

S

On YOUR tAx RetURn …Make a Mark to Help those Affected by MS

Funds generated by the MS Tax Check-off program improve the quality of life and ensure continued independence for those affected by MS. You can help. Locate the “Donations” heading on your Wisconsin

state income tax form and write in the amount you want to contribute. Even $10 will make a big difference.

Sophie Nelson (right) with her parents. Her mom received a motorized wheelchair from funds generated through the MS Tax Check -off program.

Make a Mark suCCess

MS Connection | 6

he National Multiple Sclerosis Society-Wisconsin Chapter has added three new

MS support groups serving the Marinette, Rhinelander and Chippewa County areas. This brings the total number of Wisconsin support groups to 41.

Wisconsin Chapter support groups are made up of people diagnosed with MS and are led by trained peer facilitators. Meetings offer participants a chance to discuss issues, share information and feelings, provide mutual support, socialize and listen to educational presentations by professionals. The support groups usually meet once a month and are open to spouses, family and friends.

Support groups give those with MS and their families an opportunity to stay current on what’s happening with MS research and other MS-related topics, plus the chance to receive support in a welcoming environment. Members share a belief that positive personal change can happen through individual effort with the support of others. Some groups are geared

towards common interests, such as the MS Mom’s group and the Newly Diagnosed group.

• TheMarinette-areasupportgroupmeets at the Aurora Medical Group, Marinette Clinic on the second Thursday of every month at noon. Call Jean at 715-735-3433formoreinformation.

• TheRhinelander-areasupportgroup will meet at Grace Foursquare Church on the third Tuesday of each month at noon, beginning March 20. Contact Brianat715-369-9837withquestions.

• TheChippewaCounty-areasupportgroup will meet at Alberta May’s Restaurant in Stanley on the third Wednesday of each month at 5 p.m., starting April 18. Contact Mariaat715-577-1455formoreinformation.

For more information on support groups, contact Meghan Schnabl at meghan.schnabl@nmss.org, 262-369-4420 or 800-242-3358.

Written by Diane Gillan, a marketing and communications intern for the Wisconsin Chapter and a Marquette University graduate.

Tself-Help Groups: New Locations Added

STOPPING DISEASE PROGRESSION RESTORING WHAT’SBEEN LOST ENDING MS FOREVER STOPPING DISEASEPROGRESSION RESTORING WHAT’S BEEN LOST ENDINGMS FOREVER STOPPING DISEASE PROGRESSION RESTORINGWHAT’S BEEN LOST ENDING MS FOREVER STOPPING DISEASE PROGRESSION RESTORING WHAT’S BEEN LOST ENDINGMS FOREVER STOPPING DISEASE PROGRESSION RESTORING WHAT’S

For sponsorship or ticket information, contact Jamie Baker at 262-369-4435 or jamie.baker@nmss.org, or call 1-800-242-3358.

Featuring Keynote Speaker Dr. John Fleming

Learn the latest about cutting edge research.

MilwaukeeWednesday, June 27

The Pfister Hotel

MadisonThursday, June 28

Madison Marriott West

riends new and old gathered together for the 29th Annual MSSnowmobileTour.HeadquarteredatthePotawatomi

CarterCasinoHotel,130individualsrodesnowmobilesin northern Wisconsin.

They raised $260,000 for research, programs and services.

The riders, volunteers and friends demonstrated their generosity throughout the weekend. Split into nine “color groups” of riders, the group that turned in the most donations between December 16 and January 22 won a $100 card to a gas station for their efforts. In true philanthropic form, the winning “white group” decided to auction the card, raising another $150 for the cause!

TheWisconsinChapterwelcomedridersfromMinnesotaforthefirsttimethisyearandrecognized them for their hard work and dedication to a world free of MS with the Fox Award,namedinmemoryof tourfounderWarrenFox.Additionally,BobSchmidtandtheAssociationof WisconsinSnowmobileClubs(AWSC)weretheco-winnersof theGarlandAward, which was named after former trail-masters Ralph and Joyce Garland and is given to participants who have been an integral part of the planning process and enthusiastic promoters of the Tour. Doug Johnson accepted the award on behalf of the AWSC.

Registration has already begun for the 30th Anniversary MS Snowmobile Tour, scheduled for January 24-26, 2013. Make sure you’re part of the reunion! Register online at MSsnowmobiletour.org or by calling 800-242-3358.

MS Connection | 7

FBlazing the Trail: snowmobilers Raise $260,00

Thank You Sponsors

Riders in the “green group” showed their Las Vegas spirit (the theme of this year’s Trail Games) during group photos.

Snowmobilers took a moment for a photo before heading to the trails.

30 YEARS1983-2013

MS Connection | 8

People with multiple sclerosis know when they are not doing well. Some may be concerned about tripping or falling, some may experience difficulties doing daily activities or job functions. But, not everyone knows where to turn for help. This is where Physical Medicine and Rehabilitation can help. Because the primary goal of PM&R is function.

hortly after receiving her MS diagnosis, Loren

noticed that she would sometimes stumble and fall. These problems, in addition to her existing walking problems were frustrating and discouraging. She began to rely on others to be close by to help her stand and steady herself. She was determined not to use a cane or walker. Loren also cut back her hours at work so she could better deal with her fatigue and mobility issues. Butherdoctorhadanothercourse of action to explore; he sent her for a therapy evaluation. After several months of therapy and medi-cation adjustments, Loren was able to walk without holding on to anything and – best of

all – she was able to return to her full time job. Today, Loren stays in touch with her physical therapist and together they adjust her exercise regimen to stayontopof herfluctuatingMS symptoms.

ReHABiLitAtiOn FOR MS It would be great if we could wave a magic wand or take a magic pill to help control the ups and downs of MS. Unfortunately,there is no magic pill. Buttherearethings you can do to change the course of many of your MS symptoms andflare-ups.Rehabilitation is one of those things. Research and patient experience show that the introduction of physical, occupational and speech therapy, often in combination

with medi-cations and assistive devices, can be surprisingly

effective. Research also shows that the sooner you integrate these therapies into your treatment regimen, the better.

When you begin rehabilitation for MS, a program of

stretching, aerobic exercise, and gait training will be designedspecificallyforyourneeds. Your program will

begin with a thorough assessment of your functional mobility by looking at how you move as you perform your normal daily activities. Once your evaluations are completed, your program will usually include a combination of therapy, education, and instruction in home exercises and activities.

As you progress through your rehabilitation, your rehab team will also assess your need for assistive devices and medications. These devices can include such things as canes,

S

Restoring or Maintaining Mobility With Rehabilitation

When you begin rehabilitation for MS, a program of stretching, aerobic

exercise, and gait training will be designed specifically for your needs.

The therapists at the Sacred Heart Rehabilitation Institute fits a client with a new walk aide device.

MS Connection | 9

crutches, walkers or braces to stabilize weakened muscles, joints or extremities. Rehab professionals will also consider the use of active devices such as functional electronic stimulation to stimulate nerves and muscles or to correct foot drop. You may also use a special treadmill that supports your body and allows you to do more intensive walking without compromising your safety. In some instances training in the use of a wheelchair or a scooter may be used in order to make the most of your functional movement.With MS, fatigue and mobility often go hand-in-hand.

Basically,themoreimpairedyour mobility, the more energy you put out. You become tired more quickly. In rehabilitation, your energy output and fatigue issues are noted and addressed. This is usually done by prescribing a customized fitnessplanthatpromotesanactive lifestyle while helping you avoid excessive fatigue.

Overall, rehabilitation for MS focuses on problem-solving with each individual and his/her family to determine what interventions will work best. The focus and ultimate goal in rehab will always be to en-hance the quality of your life.

Information provided by Columbia St. Mary’s/Sacred Heart Rehabilitation Institute (SHRI). SHRI is a licensed 31 bed acute rehabilitation hospital providing expert care for individuals with medical and comprehensive therapy needs. Specialized inpatient and outpatient programs are available for neuro-rehabilitation (including multiple sclerosis). For more information please contact us at 414-298-6735.

This is the first in a series of articles submitted by CSM/SHRI providing information on the role of rehabilitation in the management of multiple sclerosis.

PAIDADVERTISEMENT

MS Connection | 10

How We Move itRegISTRATIon IS oPen! Register online for the Wisconsin Chapter’s fundraising events – WalkMS,BikeMS:BestDamBikeRide, Challenge Walk MS and the MS Snowmobile Tour.VisitwisMS.org.

MS AWAReneSS MonTH 2012 March is MSAwarenessMonth.Howareyouinspiringothers to help create a world free of MS? Share your ideas on the National MS Society-Wisconsin Chapter’s Facebook page! And don’t forget: World MS Day is coming in May.

SeLL MS PIn-UPS Order National MS SocietyPin-Upsby contacting the Wisconsin Chapter at 800-242-3358 or info.wisMS@nmss.org. SellingPin-Upstoyourfriends, co-workers or customers is a fun, easy way to fundraise, or visit

your local Open Pantry now through May 5 andbuyaPin-Upfor$1.

MILWAUkee BIke exPo Information about BikeMS:BestDamBikeRidewillbeon displayatWheel&Sprocket’sBikeExpo and Sale in Milwaukee, April 6 - 8.

SIgn UP FoR ACTIon ALeRTS And ReAd THe BLog Sign up today to receive Action Alert e-mails. These updates will keep you connected to the issues that matter most to individuals with MS. E-mail jeremy.otte@nmss.org or call 800-242-3358 for details. You can also keep up with news on federal-level issues with the MS Activist blog at MSactivist.blogspot.com.

PeeR TeLePHone SUPPoRT Connect by phone with others who are living with MS. The MS Friends peer support program is staffed by volunteers from 6 a.m. to 11 p.m. every day of theweek.CallMSFriendsat866-673-7436.

JUMPSTART YoUR LIFe Can Do Multiple SclerosisisholdingafreeJUMPSTART program in Milwaukee on Saturday, April 21. Keynote presentations include “Mobility & Fall Risk,” “Maintaining Motivation for Physical Activity,” and “Exercise, It’s Not Just for Fitness Anymore” by Dr. Alexander Ng. Details available at wisms.org.

Wisconsin Chapter News and Notes

Dancing the Morning AwayAlexander Ng, PhD, and professional dance instructor Pamela Landin, MS, ATC, led a free Saturday-morning lesson on Feb. 11 for adults with MS. The event was designed to promote the benefits of dance-related exercise as related to stability, balance and mobility for those living with MS. Nearly 40 people attended, including some who hadn’t danced in years.

Walk Tall

The Mighty Millers

MS Connection | 11

ames. We use them all the time. They identify

who we are, distinguish usfrom the crowd and determine how we’re perceived.

Team names do the same thing on a much larger scale. They bring individuals together, forge group identities and make people feel they belong to something bigger than themselves. And at Wisconsin Chapter events like Walk MS, BikeMSandChallengeWalkMS, there’s no shortage of symbolic, inspirational and unique names for the hundreds of teams that participate each year.

Some are personal. There’s no doubt who teams like Walking forAndy,Shauna’sHopeandTeam Wendy were created for. Some are inspirational. Names such as Walk Tall, Endure to Cure and Stomp MS remind people of the big picture. Others prefer labels of pride: TheMightyMillers,Blazing

SaddlesandSpokeBustersrepresent the heart and soul of their team efforts. Corporate-aligned names such as Great Wolf Walkers, Sonic Streamers, MG&E Power Peddlers and Sprocket Rockets showcase companies that are committed to giving back. Then there are those with stories begging to be told: Soggy Phlebotomist, SquirrelFighters,RonnyBigBeard,SlowCookedBeef.

ZeeRockinatorsfallsin betweenthefirstandlast categories. Named mainly for SueHawkin’ssister-in-law,Roxy, it also gives a nod to Hawkin’sfather.“Heliked to add ‘zee’ to some of his sayings,” she explained.

The team (or should we say “zeeteam”?)beganwithfourpeople and has grown to more than 25 family members and friends who take part in each

year’s Wausau Walk MS. “The MS Walk is really the only time all of us take a walk together!”Hawkinssaid.They

walk to show their support of the National MS Society mission, to raise awareness and to raise funds, she explained, “but also to support my sister-in-law. I have learned that MS is a family issue, not just an individualone.”Hawkinscontinued, “It will always be important to take part in Walk MS and also to have Roxy know she is loved and supported.”

Tell us about your team name and the inspiration behind it. Email info.wisMS@nmss.org, subject line “What’s in a Name?”

Whether on the field, in business or at MS-related events, no two teams are alike. How they’re named shows exactly that, and says a lot about the members who belong to them.

N

Why Are Teams Important?On average, people who fundraise as part of a team raise more than those who participate on their own. More than 70% of funds raised through last year’s Walk MS came from teams, and Challenge Walk and Bike MS saw nearly 75% and more than 80% respectively. That translated to almost $2,275,000 raised to fund research into treatments and a cure. If you’d like to join a team or start one of your own, call 262-369-4400 or 800-242-3358.

Teaming With Personality

Sonic StreamersEndure to CureZee Rockinators

Shauna’sHope

Soggy Phlebotomist

Spoke Busters

WALK MS: 2012Walk MS is a time to come together to raise awareness, raise funds, and celebrate how much closer we are to a world free of MS.

Sign up. Start a team. Volunteer. Donate. Details at walkMSwisconsin.org.

Ag

Ain

St MS

Brown County - Sunday, April 22 Fond du Lac - Saturday, April 28 La Crosse - Saturday, April 28 Lake Country - Saturday, April 28 Menomonee Falls - Saturday, April 28 Wausau - Saturday, April 28 eau Claire-Chippewa Valley - Sunday, April 29 Fox Cities - Sunday, April 29 kenosha-Racine - Sunday, April 29

Waukesha - Sunday, April 29 grafton - Saturday, May 5 Manitowoc-Two Rivers - Saturday, May 5 Platteville - Saturday, May 5 Janesville-Rock River - Sunday, May 6 Madison - Sunday, May 6 Marshfield - Sunday, May 6 Milwaukee - Sunday, May 6 Sheboygan - Sunday, May 6

neW!

neW!

MS Connection | 14

elicoptering in to kick off an event is usually

reserved for rock stars and visiting dignitaries, but when it’s the Croal Open and you’re the Croal brothers, you use just such an opportunity to make a

very clear statement: “We will gotoanyextenttofightMS.”

The brothers – Tim, Mike and Dan–wereflowninalongwith their dad, Jim, to land

on the 1st fairway to mark theofficialstartof the22ndCroal Open last July. Since a one-hour helicopter ride was a featured auction item for the annual golf outing fundraiser,

their entrance generated a lot of...well…“buzz” – leading to two winning bids of $400 each.

It’s just the latest in a long list of antics and exploits that

have added to the brothers’ notoriety over the years. As fun loving as they are passionate for creating a world free of MS, they have grown what started as a reason to get together with theirbuddiesintoafive-figure,200-plus person, annual golf tournament with a dinner and silent auction. It’s something their whole family gets involved with in one way or another, including siblings Kathy and Mary, step-siblings Tere, Colleen and Tommy, all the respective spouses and an ever-growing number ofchildren, nieces and nephews. Their reason? Dorothy(Berghaus)Croal.

“I remember the pain she had to go through,” said Mike of his mom. Affectionately known as Dotty to friends, she passed away at age of 35 from complications of living with MS for years. Mike was about

7yearsoldatthetime.Dan, who was about 5 when his mom died, knows her mostly through the stories he’s been told about what an incredible woman she was.

“You feel like some-thing was stolen from you because of this dreadful disease,” he said.

As their father noted, more than any physical pain was the mental anguish of lost mobility andactivity.“However,Dottynever complained; ’till the end she made self-deprecating cracks about her lost abilities, always with her wry, knowing smile,” said Jim.

In 2002, Mike ran into childhood friend Chuck Scherwinski and learned he had been diagnosed with MS.

H

“We will go to any extent to fight MS.”

The brothers, known for their hijinks, got the crowd buzzing with their entrance at last year’s Croal Open.

Dotty Croal is at the heart of all the family’s MS fundraising efforts.

MS Connection | 15

That’s when the brothers decided to turn their golf outing – which was entering its thirteenth year – into a fundraiser for MS research and services. More than $3,000 was raised that year and it has grown exponentially ever since; nearly $40,000 was raised in 2012.

The funds go toward the totalfortheirBikeMSteam,Chuck’s Athletic Supporters, which is led by Scherwinski, a 2011 National MS SocietyVolunteerHallof Fame inductee.

“OurOpenandBikeMS are two events of the summer that I look forward to as much if not more than anything else,” Dan said. “We now have a lot of friends impacted by MS and want to make a difference for those people since we can’t do that for our mother,” Mike added.Of course, now that the planning for the 23rd annual Croal Open is underway, the brothers are faced with findingawaytooutdolastyear’s entrance.

Joked Dan, “Maybe it’ll be something with an F-18.”

Wh

at do th

ey attribute th

eir success to?

“It’s a party disguised as a golf outing disguised as a fundraiser, and we’re pretty successful in all three categories,” say the brothers

of the Croal Open, which will mark its 23rd consecutive year in 2012. A fundraiser to benefit MS research and related services since 2002, it has raised more than $200,000 to date. The event itself includes a day-long golf competition with a few on-course fundraising opportunities for participants to improve their scores. There are also door prizes and raffles, along with a dinner and silent auction in the evening.

ParTnEr WITh a gooD LoCaTIon. Don’t underestimate the value of the venue, especially when it comes to the staff’s expertise and willingness to help. “Mike Lehman and the people at Ironwood Golf Course are so incredible to us,” Dan said. “They make us look like we know what we’re doing.”

TaP InTo Your nETWork. “Have a lot of friends with money,” Mike joked. “You’ve got to want to do it and have the passion to want to make it successful,” he added. “We go right to our friends and look for sponsorships and dollar donations. That’s a big percentage of the numbers we raise.”

ThInk abouT groWTh. In their first fundraising year, the Croals asked for donations and gave out door prizes. In the years since, they’ve added a raffle, on-course events (e.g. selling “Boomer Balloons” that allow groups to move up from the T box to attempt to improve their score), a dinner, and silent and live auctions.

havE Fun WITh IT. “If it’s not fun for you to do, you’re not going to be successful at it,” Dan said. “If you put the energy in, good things will happen.”

To learn more about the Croal Open for Multiple Sclerosis, visit www.tournevents.com/23rdCroalOpen.

Dan, Mike, Tom and Tim Croal

MS Connection | 16

JAnUARYFacebook Birthday Wish, EventOrganizer:HaydenJohnston

6th Annual Help Find a Cure for MS Dance, Event Organizer: Rick Romenesko,Raised$18,700

Mood Swings-Swing Music, Event Organizer: Scott Smith

Culver’s Give Back, Event Organizer: Cindy Koffman

Melissa’s MS Fundraiser, Event Organizer: Melissa Caira

Columbus Snow Club White Elephant Chili & Gift Exchange, Event Organizer: Steven Smith, Raised: $2,225

1st Annual Monona Bay MS Fisheree, Event Organizer: Ryan Kirsting

Neighborhood Bar & Grill Silent Auction and Fundraiser, Event Organizer: Paul Stoltman

Campbell Construction, Event Organizer: Chase Campbell

FeBRUARYMS 8 Pin Tap Bowling Tournament, Event Organizer: Jim Kowal

Carnation Sale, Event Organizer:BeckyHall

Candy Bar Sales for Walk MS Fox Cities, Event Organizer: Patricia Moehn

Candy Bar Sales for Walk MS Eau Claire-Chippewa Valley, Event Organizer: Renee Goodell

9th Annual Bell Family Rabbit Hunt, Event Organizer:DonBell, Raised $22,025

Heart of Harmony Barbershop Quartet Singing Valentine, Event Organizer: Jack Ryback, Raised $243

Spin Event at the Mall, Event Organizer: John Bartow

MARCH6th Annual Pinnacle Health & Fitness 2 Hour Spin, Event Organizer: DennisHilsenhoff

Capital Brewery Anniversary Charity Campaign,Raised$1,790

very year, individuals join the movement through Do It Yourself fundraisers,benefitingthe National Multiple Sclerosis Society. These events raise awareness and funds for research,

programs and services for everyone affected by MS. Nearly 200 events were registered with the Wisconsin Chapter in 2011, including golf outings, dances, craft sales and more. There were 12 Mission Drivers, highlighted in orange, that raised more than $10,000 each at their events. Thanks to everyone who organized events or took part in them. Your participation makes a difference.

For more information about holding your own DIY fundraiser or if you currently host a fundraiser that is not included on this list, contact the Wisconsin Chapter at 262-369-4400 or email dawn.thaves@nmss.org.

E

Laps for MS, organzied by Anthony Hall, featured a relay event at Arrowhead High School and a raffle.

3rd Annual shout Out to Wisconsin’s Amazing

MS Connection | 17

Milwaukee Street Traders-Mention Hoops for Hope, Event Organizer: Jenna Wolfsohn

Pampered Chef Party, Event Organizer: Kimberly Link,Raised$700

Milwaukee Qdoba Fundraiser, Event Organizer: Megan Johnson

Schenck SC Denim Day, Event Organizer: Frank Windt, Raised $225

Blarney Bash for MS, Event Organizer: Mary Topp, Raised $24,883

Pizza Ranch, Event Organizer: Cindy Koffman

Shop for a Cure, Event Organizer: Michelle Ibsen

29 Days of Giving-Author Cami Walker Book Signing

Iron Cupcake Madison at High Noon Saloon, Event Organizer: Nancy Sorensen

Sheboygan Pig Roast, Event Organizer: Joni Schubert

3rd Annual Music Can Beat MS, Event Organizer: Steve and Jane Schmieding, Raised$2,700

Weary Traveler’s MS Awareness Night, Event Organizer: Carrie Dainty

Texas Hold ’em, Event Organizer: Connie Plier, Raised: $15,000

Mary Kay Sales, Event Organizer: Lori Kolosowsky

TriBeta Bake Sale for MS, Event Organizer: Michelle Ibsen

Zumba Fundraiser for MS, Event Organizer: BarbaraLabish

Devine Consign Clothing Sale, Event Organizer: Lorraine Lahdenpera

Dodge for a Cure Dublin Schools Dodge Ball Tournament, Event Organizer: Dan DeNoble

APRILCasual for a Cause Day-Johnson Bank, Event Organizer: Mari Suokko, Raised$271

St. Matthias Dress Down Day, Event Organizer: Mary Topp

Bake Sale, Event Organizer: AngelaZimmerman

Sargento Dress Down Day, Event Organizer: JoanButters,Raised$685

Easter Egg Pin-Up Sale, Event Organizer: Jennifer Nunn

Madhatters Music Sale, EventOrganizer:BeckyHall

Associated Bank- Associated Advisory Committee Drawing & Casual Day, Raised $1,169

4th Annual We’re Egan to Cure MS Fundraiser, Event Organizer: Jennifer Egan

Quarter Auction and Bowling, Event Organizer: Renee Goodell

Bowl to Strike out MS, Event Organizer: Kate Bertram,Raised$10,843

Culvers Gives Back, Event Organizer: Cindy Koffman

National MS Society Raffle-US Bank, Event Organizer:HeidiGrinker

Hoops for Hope Basket-ball Tournament, Event Organizer: Jenna Wolfsohn

Mr. De Pere Male Talent/Beauty Pageant, Event Organizer:KerriHerrild

Cindy Koffman organized a Culvers Gives Back day for a tasty way to fundraise.

MS Connection | 18

Mike Bruesewitz Hair Cut, Event Organizer: Chad Wutke, Raised: $5,100

Family Fun Day, Event Organizer: Luann Schreiber

Buffalo Wild Wings Eat Wings Raise Funds Day in Wausau, Event Organizer: Carole Kober

Hill Yeah! Hot Dog Sale, Event Organizer: Maggie Sonnemann

Michael’s Birthday Fundraiser Facebook Cause, Event Organizer: Melinda and Michael Edwards, Raised $36

Kappa Beta Gamma MS Benefit 2011, Event Organizer: Michelle Maher, Raised $1,969

Musical Satisfaction Night-Beloit College MS Club, Event Organizer: Canberk Dayan, Raised $140

Fond du Lac Qdoba Fundraiser, Event Organizer: Cindy Koffman

UW Whitewater 5K Run/Walk, Event Organizer: Amy Edmonds, Raised $350

Tosca Limited Health Fair, Event Organizer: Martha Mineau, Raised $2,337

Waunakee Intermediate School Bake Sale, Event Organizer: Angela Zimmerman

Ultimate Frisbee-Beloit College MS Club, Event Organizer: Canberk Dayan

The Cornerstone Sports Pub-Eatery Percentage Sales, Event Organizer: JodyBroom

Walk with Strength –Wey-wauwega Walk, Event Organizer: ZachMielke,Raised: $6,900

Salon Event, Event Organizer: Stephanie Pacey

Bake Sale & Flower Sale, Event Organizer: Cindy Koffman

Ripon Medical Center Bake Sale, Event Organizer: Cindy Koffman

MCT Sales, Event Organizer: Michelle Wright

MAYYoga for Good, Event Organizer: Megan Wambach, Raised: $190

Packaging Corporation of America-Corporate Summer Cookouts, Raised: $500

Cinco de Mayo Event-Premier Bank,Raised:$79

Texas Roadhouse 10% Back Night, Raised: $584

Boo Boo’s 9 Pin Tap and Raffle, Event Organizer: Julie Madden

Wausau Applebee’s, Event Organizer: Stephanie Pacey

Half Marathon, Event Organizer: Amy Jacobs, Raised: $250

Pizza Ranch Donation Night, Event Organizer: Laurie Anderson

Wells Fargo Jean Day,Raised:$370

Beach Blast out MS, Event Organizer: Sara Geszvain

Rummage Sale, Event Organizer: Lori Kolosowsky

Fox Valley Road & Track Classic XI-Di Renzo & Bomier, Event Organizer: Roy Fine, Raised: $2,226

Sister Bay Morovian Church Concert, Event Organizer:SueRayeHughes,Raised:$714

Quaker Steak & Lube Make a Difference, Event Organizer: Maggie Sonnemann

Instructors donated their time for a Zumbathon fundraiser.

MS Connection | 19

Laps for MS Relay Event, Event Organizer: AnthonyHall

Franciscan Sisters of Perpetual Adoration Denim Day

Fat Old White Guys Concert, Event Organizer: Paul Joski, Raised: $500

Minor’s Open House, Event Organizer: Ken and Karen Minor

Kicking it on the Quad for MS, Event Organizer: BeckyHall

RW Baird Denim Day, Raised: $153

Trig’s Grocery Store Brat Fry, Event Organizer: Lori Rousseau

Team Hill Yeah! Hotdog Sale, Event Organizer: Maggie Sonnemann

Online Music Sale, Event Organizer: David Daniels

Madison Marathon Volunteering-Madison Festivals, Event Participants:BeckyHallandJill Nondorf

JUneAmerican Legion Poker Run, Event Organizer: Mary Carraux

Brew at the Barn II, Event Organizer:ChristinHarding

Eau Claire Noodles & Company Discount to Dine, Event Organizer: Laurie Anderson

Teed Off at MS Golf Outing, Event Organizer: DavidBlavat

Dogleg Open, Event Organizer: Dylan Guendert

7th Annual Neipert MS Golf Outing, Event Organizer: Alan Neipert, Raised: $2,095

Avon Sale Online, Event Organizer: Connie Bendickson,Raised:$739

Support Live Music Festival 2011, Event Organizer:NickHadaway

Madison Mallards MS Community Spotlight Game, Event Organizer: BrianSather

BAMS Ride, Event Organizer: Ron Sweeney

Damn Yankees Duck Race, Event Organizer: Ron Scherwinski

United Healthcare Dress Down Casual Day, Raised: $90

Eggs & Bacon Wagon, Event Organizer: Joyce David

JULYNorthwestern Bank- Chippewa Falls and Lafayette Jeans Day, Event Organizer: Michele Koch, Raised $62

DORO Inc Donation Buckets, Event Organizer: Dan Cole, Raised $5,260

FIS Dress Down Day, Event Organizer: Michael Jahnke,Raised$2,573

Birdy’s Scramble for a Cure, Event Organizer: PatrickHaak,Raised$18,720

Lynn Ann’s Family Woods and Water Fest, Event Organizer: Wayne Newby, Raised$370

Marie’s Miles for MS-Annual Motorcycle Rides across US, Event Organizer: Marie Sarnowski

Transportation Services Brat Roast, Event Organizer:KenBare

Apple Hollar “put some bite into the fight against MS” with the 7th Annual Orchard Walk, raising nearly $15,000.

MS Connection | 20

Jon Lancaster Toyota MS Fundraiser, Event Organizer: Sam Lancaster

Wasabi Mike & Fresh Ground Pepper Concert to Benefit MS, Event Organizer:MichaelVanDeKamp

Rock for the Ride, Event Organizer: Stephanie Swinney

Pig Skin Inn Poker Run and Book Sale, Event Organizer: Lisa Forbes, Raised: $169

Triple C Social and Raffle Night to Benefit the MS Society, Event Organizer: Jacob Maguigad

5th Annual Fighting MS Golf Scramble, Event Organizer: Karen Pagel, Raised $10,500

POPA Training Camp-Children Fundraiser and Competition, Event Organizer: Dale Schulz, Raised:$729

Rockin Red Hatters Luncheon, Event Organizers: Ladies with Hattitudes,Raised:$124

Michael’s Cycles Bike Auction, Event Organizer: Ryan Williams

Wausau Noodles & Company Dine in Night, Raised $104

22nd Annual Croal Open for MS, Event Organizers: Dan, Mike and Tim Croal,Raised $35,486

Keeping up with Curtis, Event Organizer: Curtis Momsen

Giselle Schultz Memorial Ride & MS Benefit, Event Organizer: Stacy Rogne, Raised: $1,219

Reel Brothers Harley- Davidson (Castle Rock HOG Chapter) Benefit Ride and Roast, Event Organizer: Robyn Reel, Raised: $315

Pedal and Party in Pardeeville with a Purpose, Event Organizer: HarryandKayLum

Minoqua Antique Boat Show and Parade, Event Organizer: Gordon Moore, Raised:$6,711

Packers 5K at Lambeau Field, Raised: $3,000

Spartans v. Blue Devils Home Game-Raffle and Half Time Contest, Event Organizer: Philip Cockroft

Dunk Tank, Event Organizer: Stacy Remington

AUgUSTKohl’s Cares: Associates in Action Bake Sale, Event Organizer: Jeanne Ketterhagen

9th Annual Drive for MS/Bogey Bare MS Scramble, Event Organizer: Ken and KarenBare,Raised:$8,634

Madison’s Premiere Antique and Classic Boat Show, Event Organizer: Andy McCormick, Raised: $4,000

Brass Monkey Fundraiser, Event Organizer: Ann Schram

ISM Golf Outing, Event Organizer: Peggy Mat-Siewert

Challenge Walk MS Car Wash, Event Organizer: Patricia Winkler

Brat Fry-Germantown Pick N Save, Event Organizer: Amy Mangan-Fischer

11th Annual Pat’s Par Tee Golf Outing, Event Organizer: Pat Klotz

Walworth County Annual Poker Run & Car Show, Event Organizer: Jeff Green, Raised: $1,000

Volunteers helped at the Packers 5K Run/Walk by handing out water to thirsty participants.

MS Connection | 21

Dine In at Dairy Queen, Event Organizer: Amy Mangan-Fischer

Pin Up Sales-Lieno’s Gas & Goods, Event Organizer: TerriBahe,Raised:$72

Aldrich-Farrell Wedding, Event Organizer: Lisa Aldrich

5th Annual JMO: A Drive for MS Golf Outing, Event Organizer:HeidiErdman,Raised: $2,900

MS SkyDive Fundraiser, Event Organizer: Debra Gorman, Raised: $635

7th Annual Apple Holler Orchard Walk, Event Organizer: Sheri Gavin, Raised: $14,561

Auto Paint & Supply Car Show for MS, Event Organizer: John Scherwinski

Golf MS – Wausau Golf Outing, Event Organizer: Wendy McCarthy, Raised: $3,133

Milton Mad Challenge Mud Run, Event Organizer: HeidiCrull

Chicago Triathlon, Event Organizer: Jennifer Thorpe, Raised:$487

Party Like an ’80s Rock Star, Event Organizer: Fran McLaughlin

SePTeMBeRRummage Sale for MS, Event Organizer: Connie Plier

Zumbathon Fundraiser, Event Organizer: Kirsten Quam, Raised: $30

2nd Annual MS Golf for a Cure, Event Organizer: Marty and June Hillert,Raised:$21,391

Brat Fry & Raffle, Event Organizer:TinaBonikowske

Party on the Porch Wine & Cheese Tasting, Event Organizer: Kelly Malucha

Zumba for MS, Event Organizer: Amy Oechsner

6th Annual Ken Fest, Event Organizer: Tomken’s Bar&Grill

Client Appreciation BBQ, EventOrganizer:EWH Accounting, Raised: $626

Mukwonago High School Walk/Run, Event Organizer:BruceLammers,Raised: $150

Rocktoberfest Beer Tapping, Event Organizer: RockBottomRestaurantandBrewery,Raised:$845

Driving Towards a Cure Golf Outing, Event Organizer: Mellisa Johnson, Raised:$5,719

Quaker Steak & Lube Make a Difference Monday, Event Organizer: Amy Mangan-Fischer

Community First Fox Cities Marathon Run, Event Organizer: Laura Fadrowski, Raised: $616

oCToBeRBrewing to Make a Difference Coffee Sales, Event Organizer: Macayla Quinn, Raised: $123

Fox Communities Credit Union Golf Outing, Raised:$387

The Lawrence Charity Golf Outing, Event Organizer: Tony Lawrence and Mike O’Keefe, Raised: $1,041

Stafford Rosenbaum Casual for a Cause, Event Organizer: Stafford Rosenbaum, Raised: $90

UW-Madison basketball player Mike Bruesewitz shed his famous hair, raising more than $5,100 for Walk MS.

MS Connection | 22

Silpada Jewelry Sale, Event Organizer: Mary Karsten

MS Palooza Concert for a Cure, Event Organizer: Travis Kluewer

Y-Not MS Fundraiser, Event Organizer: Shaleigh Fitzpatrick, Raised: $200

Chilly Willy Open Horse Show, Event Organizer: BeckyPerron,Raised:$1,631

Chili’s Pepper Partner Program, Event Organizer: Lori Rousseau

Generation Optimistic-MillerCoors Brewery, Event Organizer: Kim Muszynski, Raised: $4,168

2012 MS Snowmobile Tour Golf Benefit, Event Organizer:BeckyBlauert

Night at the Nitty, Event Organizer:BeckyHall

Freedom Elementary School Orange Fundraiser, Event Organizer: Freedom Elementary School, Raised: $250

Spookwalk Haunted House, Event Organizer: Wayne Newby, Raised: $1,100

4th Annual American Cancer Society and National MS Society Benefit Rummage, Event Organizer: Lorraine Lahdenpera

Climbing for Causes Coin Toss, Event

Organizer: Nick Comande, Raised: $409

Halloween Costume Ball for the Cure, Event Organizer: Debra Forbes, Raised: $2,300

noVeMBeRSoiree for Success: A Fundraiser to Fight MS, Event Organizer: Shayla Rosen and Katie Walsh, Raised: $25,108

Marching for Mia Raffle & Birthday Party, Event Organizer: Maria Phelps

Bon Ton Community Day, EventOrganizer:BonTon,Raised: $360

Schwann Walk MS Fond du Lac Fundraiser, Event Organizer: Cindy Koffman

Loopy’s Ladies Day: Supporting MS Research, Event Organizer: Chad Janssen, Raised: $240

Our Lady of Lourdes Catholic School De Pere Wisconsin, Event Organizer: Our Lady of Lourdes Catholic School

deCeMBeRNEWD’s Five Year Anniversary Party, Event Organizer: Robert Kessler

Volleyball Tournament and Raffle, Event Organizer: Scott and Linda Wittmann; Raised; $1,600

Shop for a MS Cure at Lillian’s, Event Organizer: Trudy DeRemer

Walk MS Fond du Lac MS Night at Northwinds Supper Club, Event Organizer: Cindy Koffman

Ugly Sweater Party, Event Organizer: Jesse Juedes

Recipe for a MS Cure, Event Organizer: Sharon McNeiley

Debra Gorman took fundraising to new heights by collecting donations for her first skydiving jump.

MS Connection | 23

TeLeConFeRenCe Physical therapyApril 9

MS ReSeARCH noW SPeAkeR SeRIeS Madison April 14

geneRATIon oPTIMISTICVinoCappuccino,BrookfieldApril 19

TeLeConFeRenCe BeingyourowncarepartnerMay 14

MS SUMMIT Wisconsin DellsMay 18 - 19

MS WoRLd dAY May 30

TeLeConFeRenCe Tools for Everday LifeJune 11

geneRATIon oPTIMISTICMilwaukee Public Market June 21

on THe MoVe LUnCHeon MilwaukeeJune27

on THe MoVe LUnCHeon MadisonJune 28

TeLeConFeRenCe MS symptoms on bowel and bladderJuly 9

BIke MS: BeST dAM BIke RIde August 4 - 5

TeLeConFeRenCe SpasticityAugust 13

geneRATIon oPTIMISTICAlterra at the Lake MilwaukeeAugust 16

MS ReSeARCH noW SPeAkeR SeRIeS Milwaukee September 8

TeLeConFeRenCe“MS What a Pain”September 10

MS ReSeARCH noW SPeAkeR SeRIeS GreenBay/DePere September 15

CHALLenge WALk MS September 21 - 23

Please visit wisMS.orgfor the latest listing of Chapter activities and Community Events.

Wisconsin Chapter Calendar of upcoming events

Brown County Sunday, April 22

Fond du Lac Saturday, April 28

La Crosse Saturday, April 28

Lake CountrySaturday, April 28

Menomonee Falls Saturday, April 28

Wausau Saturday, April 28

Eau Claire- Chippewa Valley Sunday, April 29

Fox Cities Sunday, April 29

Kenosha-Racine Sunday, April 29

Waukesha Sunday, April 29

Grafton Saturday, May 5

Manitowoc- Two Rivers Saturday, May 5

Platteville Saturday, May 5

Janesville-Rock River Sunday, May 6

Madison Sunday, May 6

MarshfieldSunday, May 6

Milwaukee Sunday, May 6

Sheboygan Sunday, May 6

Walk Ms

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wisMS.org • toll Free 1 800 242 3358 • 262 369 4400

NoN-Profit orgaNizatioN

U.S. PoStage

MilwaUkee, wiPerMit No. 2868

PAID1120 James Drive Suite a hartland, WI 53029

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WALK MS iS A COMMUnitY CeLeBRAtiOn.RegiSteR & inVite OtHeRS tO JOin YOU.

walkMSwisconsin.org or 1-800-242-3358

Brown County - Sunday, April 22 Fond du Lac - Saturday, April 28 La Crosse - Saturday, April 28 Lake Country - Saturday, April 28 Menomonee Falls - Saturday, April 28 Wausau - Saturday, April 28

Eau Claire-Chippewa Valley - Sunday, April 29 Fox Cities - Sunday, April 29 Kenosha-Racine - Sunday, April 29 Waukesha - Sunday, April 29 Grafton - Saturday, May 5 Manitowoc-Two Rivers - Saturday, May 5

Platteville - Saturday, May 5 Janesville-Rock River - Sunday, May 6 Madison - Sunday, May 6 Marshfield - Sunday, May 6 Milwaukee - Sunday, May 6 Sheboygan - Sunday, May 6

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A Publication of the National Multiple Sclerosis Society-Wisconsin ChapterA Publication of the National Multiple Sclerosis Society-Wisconsin Chapter