sleep hygiene for children with developmental disabilities julie sutton. rnld 3 year phd research...
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Sleep Hygiene for Children with Developmental Disabilities
Julie Sutton. RNLD3 Year PHD research project
Research Aim:
To develop an evidence based sleep hygiene education intervention for parents of primary school aged (3-10 years) children with DD’s experiencing behavioural sleep problems
To develop the evidence base for sleep hygiene education in treating behavioural sleep problems in primary school aged (3-10 years) children with developmental disabilities
• Research sponsored by RCBC Wales. Supervisors – Professor Jane Noyes and Professor Richard Hastings
What is sleep hygiene?
Good sleep hygiene is not….
Sleep hygiene definition
To develop an “a set of sleep-related behaviours that expose persons to activities and cues that prepare them for and promote appropriately timed and effective sleep” (Meltzer and Mindell 2004)evidence based sleep hygiene education intervention for parents of primary school aged (3-10 years) children with DD’s experiencing behavioural sleep problems
“A set of sleep-related behaviours that expose persons to activities and cues that prepare them for and promote appropriately timed and effective sleep”
Meltzer and Mindell (2004)
To develop an “a set of sleep-related behaviours that expose persons to activities and cues that prepare them for and promote appropriately timed and effective sleep” (Meltzer and Mindell 2004)evidence based sleep hygiene education intervention for parents of primary school aged (3-10 years) children with DD’s experiencing behavioural sleep problems
The research project
• Pre clinical Phase: Mixed method systematic review
• Phase 1: Semi-structured interviews with stakeholders and intervention development work
• Phase 2: Small scale exploratory trial• Phase 3: Development of protocol
for main RCT
To develop an “a set of sleep-related behaviours that expose persons to activities and cues that prepare them for and promote appropriately timed and effective sleep” (Meltzer and Mindell 2004)evidence based sleep hygiene education intervention for parents of primary school aged (3-10 years) children with DD’s experiencing behavioural sleep problems
The sytematic review.
The review questions:
1. Definition of behavioural sleep problems
2. Supporting theory3. Sleep assessment processes4. Components of SHE5. Effectiveness of SHE6. Outcomes and outcome measures7. Experiences of families and
professionals
To develop an “a set of sleep-related behaviours that expose persons to activities and cues that prepare them for and promote appropriately timed and effective sleep” (Meltzer and Mindell 2004)evidence based sleep hygiene education intervention for parents of primary school aged (3-10 years) children with DD’s experiencing behavioural sleep problems
The systematic review
• Systematically searching databases• Reviewing currently available SHE
tools and service evaluations• Streaming the evidence by type to
answer the review questions• Using a combination of synthesis
methods to analyse the data and draw conclusions
Some preliminary findings: Some preliminary findings: Some preliminary findings:
Observational studies
Literature reviews
Professional opinion
Before & after studies
RCT’s
Systematic reviews
Qualitative studies
84 24
20
19
6
4
3
Sleep hygiene education
How well might the evidence answer review questions?
assessm
ent
definition
theory
effective
ness
components
outcomes
experie
nces
0
20
40
60
80
100
120
140
Sleep hygiene education“So what?”
To improve sleep outcomes for children with DD’s
The scale of the problem:• Sleep problems affect around 80% of
children with DD’s• Likely to be severe and enduring; problems
occurring between 3 and 4 times a week and can last into adulthood
• Significant impact on their already compromised cognitive development
• Significant impact on behaviour and mood
To develop an “a set of sleep-related behaviours that expose persons to activities and cues that prepare them for and promote appropriately timed and effective sleep” (Meltzer and Mindell 2004)evidence based sleep hygiene education intervention for parents of primary school aged (3-10 years) children with DD’s experiencing behavioural sleep problems
Sleep hygiene education
An under-used intervention?
To develop an “a set of sleep-related behaviours that expose persons to activities and cues that prepare them for and promote appropriately timed and effective sleep” (Meltzer and Mindell 2004)evidence based sleep hygiene education intervention for parents of primary school aged (3-10 years) children with DD’s experiencing behavioural sleep problems [email protected]
Please get in touch….