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Shristi Special Academy

Vision, Goals, CharterAsha’s Involvement

Tracking, Monitoring, EvaluationFuture Plans and Possibilities

Budget 2011-12

Contents• About Shristi Special Academy• Vision of the organization• Activities of the organization• Registration etc.• Audit reports• Asha’s involvement over the years• Site visits, videos, etc.• Evaluation metrics• Tracking/Monitoring/Evaluation over 3 years• Budget 2011-12

Acronyms• SSA: Shristi Special Academy• CP: Celebral Palsy

– Cerebral palsy (CP) is an umbrella term encompassing a group of non-progressive,non-contagious motor conditions that cause physical disability in human development, chiefly in the various areas of body movement (wikipedia)

• ADHD: Attention deficit hyperactivity disorder – Development disorder, primarily characterized by "the co-existence of attention

problems and hyperactivity, with each behavior occurring infrequently alone" and symptoms starting before seven years of age (wikipedia)

• MR: Mental Reterdation• MSW: Masters in Social Work• TISS: Tata Institute of Social Sciences (Mumbai)• NIMH: National Institute of Mental Health (Hyderabad)• FCRA: Foreign Contribution Regulation Act (1976)

– http://www.ashanet.org/munich/fcra.html


Problem , Vision, Goals and Objectives

Invisible handicap = Invisible people• Mentally disabled are over about 15% of all

disabled folks in India (by census data)– 40 lakh mentally disabled in India– Seeing, Hearing, Speech, Movement, & Mental– Mentally disabled are further discriminated

• Society does not accept them easily• Parents hide it until there is a physical manifestation• Treated as stigma instead of disability

• By extrapolation data– 1 in 150 people are autistic (> 2million in India)– Over 50 lakh people with Cerebral Palsy (CP)– 30% of all early birth or low-weight at birth children have CP

Invisible handicap = Invisible people• Not much recognition or knowledge about mental

impairments in general public domain– Inadequate awareness of abilities and services

• Divide is further more in rural areas• Majority of institutions working with the mentally

disabled have stipulations:– Refuse services to children who are not toilet trained– Refuse to admit children with severe retardation or

seizure disorders– Don’t necessarily have vocational training programs for

those above 16yrs of age• Ensures children don’t realize their potential and

live a life of neglect

Shristi: Objectives• Render technically designed intervention

programs to train special needs children to become self-reliant

• Irrespective of belonging to any economic strata, any special needs child is able to avail all the facilitating services at the Academy, i.e., Medical, Therapeutic and Educational Intervention

• Provide individualized, personalized intervention to every child at a very nominal fee, and in certain deserving cases, free of charge, without any difference in the quality of services rendered

Shristi: Aim and Vision• To provide personalized intervention to every

child under our care and mould to understand his or her own abilities and boundaries

• "Believing that all children are entitled for maximum development of their potential, to help themselves find a place in the society, to be accepted and to be integrated into the community for their future life" -Meena Jain, founder of SSA


Program Overview

Shristi: program overview• Structured intervention programs for children with

– Mental retardation– Autism– ADHD– Down’s syndrome– any other intellectual impairment

• Rehabilitation includes– Therapeutic intervention– Special education– Sensory stimulation– Physiotherapy– Language stimulation– Occupational therapy

Shristi: program overview

• Individualized child-focused programs• Child centric end-to-end argument

– Enable children with developmental delays to go to normal or integrated schools

– Enable others to gain employment, or be gainfully employed within Shristi’s sheltered workshop

• Special Educators– Are the core of the program– Well trained (continued training)– Hard to find, harder to sustain– Asha’s focus – in Autism and Respite Care units


SSA

SaathiEarly intervention Unit

PrakrutiAutism Unit

PrayathnaRespite Care Unit

DhrutiVocational Training Unit

BalwadiNormal children and

early screening

Other ServicesAwareness, education, Support and screening


• Saathi (early intervention unit)– For children under the age of 5 with delayed

development or psycho-motor retardation– Specific emphasis on sensory motor training– Train skills which are delayed or wont happen naturally

• Prakruti (autism unit)– Intensive, focused therapy to autistic children– Find a way to communicate with each child– Adapt to their mode of communication, integrate well in

social settings• Prayathna (respite care unit)

– For those with severe retardation or multiple disabilities– Care-giver programs and respite for parents


• Dhruthi (vocational training)– Pre-vocational training to identify skills– After children are 14– Internship at sheltered workshop or outside– Integrate socially and place them in gainful

employment– Full scale production at the workshop

• Balwadi– For children under 6 (normal children)– Early screening for autism and other disorders– Some success in early intervention– Children are more sensitive as they go on in life


• Redefined Curriculum– Specially designed (and honed for each child)– Family centric catering to holistic development– Self-care, socialization, appropriate-behavior,

language skills, physical ability, cognitive development – in that order

– Pet therapy• Infrastructure

– Rural campus in Channenhalli – all units except Autism, and vocational unit workshop

– Construction complete, organic garden– In-town Autism center in Nagarbhavi


• Training– Two teachers every month are trained on special

teaching methods at the NIMH at Hyderabad– Training involves

• skill building• special education• psychology• physiotherapy• speech therapy• upgrading skills emphasis

Shristi: Vocational Unit

• Vocational Training/ Production Unit– The ultimate aim of special education is employability

and independent living– This involves age appropriate skill training and a

systematic procedure leading students gradually from school to vocational training and employment

– This programme is targeted at intellectually impaired individuals with associative disorders of age above 16 years

Shristi: Vocational Unit

• Vocational Training/ Production Unit– Currently, training is provided in

• Tailoring • Screen printing• Candle making• Manufacture of phenyl and soap oil• Manufacture of paper products and accessories• Horticulture

– Shristi is enabling economic independence by giving 15 mentally challenged individuals who have achieved trade mastery a stipend

Shristi: Vocational Unit• Vocational Training/ Production Unit

– An important feature of Shristi’s Vocational training programme is workplace behavior

– This was incorporated after a survey revealed that there is a high dropout rate after job placement

– In all cases, the fullest attempt is made to identify and develop the inborn potential of the individuals

– And, to help them assimilate into normal society

Shristi: Other Services

• Comprehensive screening and assessment of children with specific learning disability and other developmental disabilities

• Psychological evaluation, IQ assessment and psychotherapy

• Counseling in specific areas for children and adolescents with anxiety or stress problems

• Career counseling and aptitude testing for teenagers

Shristi: Other Services• Parental guidance for better child management

at home and counseling to parents in anxiety management

• Occupational therapy

• Supportive services to families with terminally ill children

• Assisting other NGO in working for the welfare of children

• Organizing and conducting seminars and workshops on issues related to children and adolescents

Shristi: Other Services• Visiting other schools/ institutions as faculty for

training programs

• Propagating awareness on child/ adolescent/ parent related issues

• Publishing a quarterly newsletter to promote awareness about special education


TISS Evaluation 2007-08 (based on 2006 data)

Shristi: Vision (TISS study)• TISS helped Shristi do a self-evaluation and

come up with a Vision document– Vision 2011– Primary aim was to understand strengths and

weaknesses, and what to aim for– Key outcome was to step up fundraising – And, increase corpus fund

• Corpus fund was aimed to be increased from 3 lakhs in 2006 to 700 lakhs in 2011– 700 lakhs is what they need to be self-sustained on the

interest amount– Successfully raised it to about 25 lakhs today– Not easy to grow corpus

[The next set of 8 slides are from TISS Vision document and Shristi’s presentations based on that study]

ResourcesResources

Value PropositionValue Proposition

DifferentiatorDifferentiator

VisionVisionExecutionExecution

Foster independence andacceptance in the communitythrough volunteers and likeminded individuals andcorporations

Foster independence andacceptance in the communitythrough volunteers and likeminded individuals andcorporations

StrategyStrategy

Provide holistic treatment to special children irrespective of their social and religious status

Provide holistic treatment to special children irrespective of their social and religious status

Habilitation training,transportation, nutritionalsupplement, medicalscreening, consultation,treatment andpractical exposure

Habilitation training,transportation, nutritionalsupplement, medicalscreening, consultation,treatment andpractical exposure

Vision and Value Proposition

Vision 2011 - Distribution pie of Shristi’s children

Distribution in 2006 - Total 140 students11; 8%

13; 9%

14; 10%

16; 11%

14; 10%17; 12%

18; 13%

37; 27%

Early Intervention

Primary unit

Autism

Respite care

Pre-Vocational

Vocational unit

Sheltered Workshop

Chigaru pre-school

Distribution in 2011 - Total 425 students

25; 6%25; 6%

25; 6%

25; 6%

25; 6%

50; 12%

100; 23%

50; 12%

100; 23%

Early Intervention

Primary unit

Autism

Respite care

Pre-Vocational

Vocational unit

Sheltered Workshop

Chigaru pre-school

Inclusive Prim -1st-4th std

2006

2011

Reach-out to 3 times the current size

From

To

• Networking with Govt Agencies, Hospitals & NGOs• Internships for trainees in early childhood Edn, MSW, Dip in Spl Edn , OT, PT, Speech & Medical fraternity• Research & Dev in MR• Man Power Training• Access to built environments & Public Transport• Accessible school environment

• Website publication• News letters –Sparsh• Psycho Social activities• Picnics• Field trips• Celebration of birthdays, National Festivals• Sports & Games• Cultural Activities• Recreation & Leisure activities

Intent is to blend / integrate the MR population back into mainstream society

• Community based Rehab• Community living• Prevention of disability• Formation of self help groups• Access to Communication & Assistive technologies• Parent EmpowermentHealth Service• Advocate Rights based approach• Information DisseminationSeminar, workshops• Carefully handcrafted Creative products

• Special Edn• Physio- speech occupational, Family therapies• Psychological evaluations• Psycho-social Edn• Counselling• Home Visits• Transport• Medical • Nutrition• Home based

Program• Recreational Centre• Itinerant Services• Accessible School Environment• Computer Literacy

• Special Education• Infant Simulation –0 to 2yrs• Pre school 3-6 yrs • Primary : 7-12 yrs• Pre–Voc : 13-15yrs • Vocation :15-18yrs• Autism Spectrum Disorder• Multiple Disability• Inclusive Educn in Preschool, Primary• Flexible Curriculum

2006 - What we are - Empowerment; Enablement; Inclusion

Vision 2011 - Extend; Explore; Experiment; Evolve

2011 - Transition toExtend; Explore; Experiment; Evolve

Partner Orgs Extracurricular Education Facilities Community

Shristi Special Academy& Value Add to all its Stakeholders

Shristi Team• Enriched Professional Growth• Pursue higher professional excellence – Phds, trainings…. • Research & Development• Fostering Leadership• Become Institution builders

Families• Get the Special needs child back into their family structure

• Higher quality of life• Gaining back social structure

• Empowered Families

Patrons• Feel Good factor• Sense of giving back• Become Ambassadors

Society• Trained Personnel• Papers / Books / Publication• Prevention & Early intervention techniques• Transition from myths• Increase Literacy rate• MR / Autism / Social Awareness• Special Products produced by our special kids

Vision 2011 – Value Add back to all Stakeholders

Our Special Children• Opportunity to integrate back• Access to state of art facilities• Better quality of life• Enriched environment• Employment• Community living

Other NGOs

Patrons

Markets

CompetentPeople

MoreFunds

Increased Increased ReachReach

Training Training Centre for Centre for therapiststherapists

Contribution to Contribution to Research Research

GreaterAwareness

StreamlinedInternal Processes

Shristi’s Growth

Training and Training and Counseling for Counseling for parentsparents

Community

Legend:

Shristi –surging with the 4 Pillar Strategy

Shristi’s stakeholders

Shristi’s greater goals

Diagram showing how awareness can influence the 4 Pillar strategy leading to an infinite cycle of growth in the context of:

1. Shristi’s stakeholders 2. The greater goals that Shristi aims for

4 Pillar Strategy

Vision 2011 – Grow Corpus fund

3

420

720

0100200300400500600700800

Rs in Lakhs

2006 Available 2006 Need 2011projection

Corpus Fund status / Projection

• Get liberated into becoming a “ Strategic thinking Institution ” from the current status of “ Do everything to survive this month ”

• To make Shristi Self sufficient - Challenge is to grow the Corpus from current 3 lakh Corpus to 720 lakhs in 5 years (recurring expense of 42 lakhs Per Annum to projected recurring exp need of 72 lakhs PA)

“CAN WE RELY ON THE SHRISTI FAMILY HERE TO MAKE IT HAPPEN”

• Foundations – 25%• Individuals – 15%• Events - 35%• Corporates – 15%

• Foundations - 30% • Individuals – 15%• SSA Fund - 55%

2006 – Status3 lakhs

2011 – Target720 lakhs


Registration, Audit and Financial Statements

Shristi: Registration etc.• Shristi was started 15 years ago• Registered under 80(G) of the Societies

Registration Act• Has had permanent FCRA clearance to receive

foreign funds• Shristi’s board of directors currently are:

– Mrs. Subhadra, President– Mr. Venkatesan, Vice President– Mrs. Suchitha Somashekariah, Secretary– Ms. Sharon Watts, Treasurer– Mrs. Parvathy, committee member– Mrs. Sunila Kamat, committee member– Mrs. Jayashree

Shristi: Registration etc.• Mrs. Parvathy is the principal of ASM school

(associated with Rajajinagar Vidyodaya Education Society)

• She has been very instrumental in admitting children from Shristi into her regular school, promoting inclusive education

• Mrs. Sunila Kamat has a background in Montessori education and has been instrumental in providing inputs on structuring individualized curriculum

Financials (Registration Doc)

Financials (Audit stmt)

Financials Summary

• A lot of donations in the past have been for infrastructure– As infrastructure needs come down, it is possible to

divert some of that funding towards recurring expenses– Although, nearly 70% of such funding will stop

because companies are interested in funding once, where they can be also be recognized

• Asha is a major funding organization for Shristi


Asha for Education’s involvement

Shristi: Asha’s involvement

• First visited in 2003• Much debate over SAC, what to support etc.• Decided on Teachers salaries of the Autism unit

– Started 2005• Some initial one-time support from UIUC

– Some equipment, and towards maintenance of a bus• Steady support from Austin (except 2010-11)• SV support started in 2008-09• Extended to therapists of Autism unit• Included entire Respite Care unit

– Care givers, therapists, special educators

Shristi: Asha’s site visits• Rajeev and Kavita’s site visit [Sep 2004]

– Report: http://www.ashanet.org/projects-new/documents/602/Rajeev_site_visit.doc

• Gaurav’s site visit [Jan 2006]– Report: http://www.ashanet.org/projects-new/documents/602/gagarwal_site_visit.doc– Photos: http://data.ashanet.org/datastore/data/Chapters/Austin/projects/gagarwal_site_visit_photos.doc

• Vinod’s site visit [Jan 2007]– Report: http://www.ashanet.org/projects/document-view.php?id=7092– Photos: http://picasaweb.google.com/vinod.2v/Shristi_special_academy_jan24_2007#

• Anita and Santhosh’s site visit [Mar 2008]– Report: http://www.ashanet.org/projects-new/documents/602/shristi_sitevisit_ani_santhosh.doc– Photos: http://picasaweb.google.com/vinod.2v/AniSanthosh_sitevisit_Mar2008#

• Nagarbhavi Autism unit [Dec 2008]– Photos: http://picasaweb.google.com/vinod.2v/Nagarbhavi_autism_unit#

• Vinod’s site visit [Jan 2009]– Report: http://www.ashanet.org/projects-new/documents/602/Shristi_sitevisit_Vinod09.doc– Photos: http://picasaweb.google.com/vinod.2v/ShristiSpecialAcademySiteVisit13Jan2009#

• Meena’s site visit [Jan 2010]– Report: http://www.ashanet.org/projects-new/documents/602/shristi_sitevisit_meena_jan2010.pdf

• Venki, Meena and Chakri’s site visit [Jan 2011]– Report: http://www.ashanet.org/projects-new/documents/602/2011jan_siteivisit_meenavenkichakri.pdf– Photos: http://www.ashanet.org/projects-new/documents/602/Jan11svVenkiPics.pdf


SV Evaluation Metrics

Shristi: Asha SV Evaluation

• Asha SV Evaluation Document 2009• Eval Matrix broken down by 5 meta-level tasks

– Training• Teachers, educators, care-givers, parents, etc.

– Outreach• Awareness, early intervention, social impact, acceptance, etc.

– Methodology• Pedagogy, documentation, innovation, communication, etc.

– Staff• Attrition, quality of interaction, staff-evals

– Vocational Unit• Number of orders etc. in the workshop• Children graduating into gainful employment• Stipends, streams of training, increased skill, etc.

Shristi: Asha SV Evaluation


Budget

Shristi: Asha’s involvement

36001431

3600 4094

18795

9978

14300

11750

37405

3960

13456

0

5000

10000

15000

20000

25000

30000

35000

40000

45000

50000

2005 2006 2007 2008 2009 2010Year

Dis

burs

emen

t (U

SD)

WAH+UIUCSVAustin

Note: Austin Project Specific Donations of $630 in 2009, $10590 in 2010Carry over from 2010 + disbursement amount from first half of 2011 to be considered

Autism and Respite Care Unit Budget 2011-12

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