Shared Support, IncShared Support, Inc..

Dream, Reach, Contribute

Shared Support, Inc.

Family

Community

Supporters

executive

operations

clinical

Specialists

House supers

Health care pros

Area directors

Friends

a person centered organization

Our Ultimate Measure of Success

“…our ultimate measure of success… we succeed when people reach their outcomes.  This keeps us working and making continuous changes in our practices to achieve our mission.”

Christine Martin, Shared Support, Inc., COO

Introductions

• Who we are …• Who is here?

Melina Fatsiou-Cowan

The Question Exercise

Why Did We Do This?

• Listening is modeled– Did you feel listened to?

• Facilitation is modeled• Being purposeful and planful about organizing

about gathering information about what is important to people – is essential

• Point out that “these” are outcomes – it’s not so hard

Committed to People in Reaching their Dreams is Our Mission

• All of us dream and have own personal vision for a good life.

• One person or system cannot adequately support a person with a disability.

• Self Determination - A person with his or her circle chooses, controls, creates and makes positive change.

• Choice, authority, control, responsibility and advocacy are the values and rights of all citizens.

• People may need support to exercise these rights – we can assist in that development for people.

The Alignment

Outcome

Goal Goal Goal

service support service servicesupportsupport

The Outcome determines the goals, supports and services – not the other way around!!

Outcomes Do:

Provide “Tangible results of goals that reflect the desired quality of life as identified by the person.” Code of Maryland Regulations (COMAR)

Provide opportunities for people to achieve valued social roles

Describe future direction and plans

Describe dreams

Describe/define what individuals want in their lives

Outcomes Do Not…

Have services and/or supports in the statement

Describe behavior management plans

Reflect ONLY the family or service provider’s values

State action steps to something more

Talk about skill building,

What is Reflected in Your Personal Outcomes?

Your Values

Expression of Your Fundamental Rights

Your own Determination

A comparison of your present life to what you really want

Specific Information about “Who” you are and what you want that helps to clarify your necessary supports and plans

Values Search

• What is the most important thing in your life….• We get our values from our family and our

experiences• What we know to be true for us• Planning with important people in our lives and

in special places to us helps us be true to our own values

• Planning and assessment tools help us clarify what we know about ourselves and our values

Fundamental Rights

• What do state regs and the constitution have in common?

• Life, Liberty and the Pursuit of Happiness• What are the fundamental rights all American’s

are privileged to?• Planning helps people with disability related

barriers express and enjoy these rights that are often denied to them

Self-Determination Principles• Freedom: To exercise the same rights as all

citizens and to make decisions about their own lives.

• Authority: To have control over the funds needed for support.

• Support: The organization of resources for support, as determined by the person.

• Responsibility: The wise use of funds. The usual obligations of all American citizens.

• Confirmation - Of the important leadership that self advocates must hold in a newly designed system

» Center for Self Determination

Nothing About Me

Without Me!

Not Being Able to Speak is Not the Same as Having Nothing to Say!

Communication is Many Things

• Words, tone of voice, gesture, posture, facial expression = you don’t have to “intend” to communicate.

• Communication is typically judged by behavior not intent.

Body language 60%

Words 10%

Tone of Voice 30%

Donnel King, 2002

FIRST SEEK TO UNDERSTAND AND THEN BE UNDERSTOOD..(Covey,1990)

• Listen first, you will hear the concerns and values

that you share with the other person • SEEK WIN:WIN:

– Can we invite the person who is opposing our view to join us to seek a solution where they win and we win?

– What are the other options? Win:lose? I will not come if I am going to lose. Lose:win? They will not come is they are going to lose. Lose:lose? No deal is still an option after we have sought win:win. What’s a compromise?

TOOLBOX

People With or Without Disabilities How Do We All Communicate?

• How do our outcomes, dreams, hopes, likes, dislikes, etc differ?

• How does our approach differ?• Do people have a means of

communication?• How do we help people

communicate?– Maps– Boards– Assistive Technology– Facilitated Communication…

Listening to Families, Their Critical Role, Family Dynamics

• The family is the most influential group of people in the person’s life.

• The family usually knows the person the best. • They share history and current challenges.• You may find that everyone wants to meet the

needs of their family member – people may need support in doing so.

• They are motivated only by what is best for the person

“When you drink the water, remember the spring”

Chinese Proverb

Good Listening Guidelines

• Stop talking. You cannot be listening if you are talking (even to yourself!).

• Be open; put the talker at ease.• Remove distractions. Don’t doodle or watch T.V.• Concentrate on what is being said. Listen to

understand• Empathize with the talker. Try to put yourself in

his/her place so that you see his/her point of view.

• Avoid the temptation to interrupt.• Ask questions that stimulate the person to talk.• Don’t over-react to highly charged or emotional

words. Look for the meaning behind those words.

• Stop talking. This is the first and last because all other guidelines depend on it.

TOOLBOX

Meeting Ground Rules• Respect everyone’s ideas• Everyone has a voice but the focus person’s is the loudest• Brainstorming is essential• Creativity is a must• No 3rd party conversations• If hidden agendas are discovered – you will be

asked to leave

TOOLBOX

Bad Listening Habits – Why Do Things Go Wrong?

Agendas (hidden and not so)

Judging

Avoiding the person’s concerns

Solving problems

Foster, 2000

People First Language = Action!

• To ensure Inclusion, Freedom & Respect for all people, we must use

People First Language

• People first language puts the person before the disability & it

describes what a person has, not what a person is.

• Attitudes are the biggest barrier Kathie Snow, 2004

People First Language – Try This!

• People with disabilities (or disability labels).

• He has a cognitive disability (label).

• She has autism (or an autism label).

• She uses a wheelchair/mobility chair.

• Communicates with her eyes/device/etc.

• Person

• The handicapped or disabled.

• He's mentally retarded.

• She's autistic.

• She's wheelchair bound/ in a / confined to a wheelchair.

• Is non-verbal.

• ClientKathie Snow, 2004

GOOD BAD

Listening and Learning about the person you support

The following series of slides explain how we want to listen and learn about the people we support!

Why is the person doing what he or she is doing, when he or she is doing it, to get the outcome he or she gets? Or, What’s working or not? And Why??

Listen Ask Questions, and listen some more!

The BIG Question

What Do We Think S/he Means?S/he does this…

We think it means…

We react by… Then s/he…

When Susan bangs her head

She has a headache

We ask her if she has a headache and if she looks at us we give her tylenol

She should stop banging her head within one hour

When Susan bangs her head

She doesn’t want to go where we have suggested

We ask her if she doesn’t want to go. If she says no, we ask her if she wants to go somewhere else and offer her choices from her list of places she likes.

She should stop banging her head immediately. If she doesn’t something else is wrong. Keep asking

What Do We Think S/he Means?S/he does this…

We think it means…

We react by… Then s/he…

TOOLBOX

We Value Everyone’s GiftsA Person Centered Plan

• Everyone has something great about them:• A Skill• A Talent• A Personality Trait• A Person Directed Plan should describe a capacity

description of every person we support. Focus on what people CAN DO. Take the time to learn about WHO the person is and develop supports to help them contribute what’s great about them in the community where they live. Developing a capacity description is the first step in the person centered planning process- Positive Reputation-tool box

Who Is Sean?

• Sean is an artist. • Sean takes enormous pride in his physical

capabilities.• Sean is intelligent.• Sean is proud, he earns and saves money.• Sean is a teacher – he teaches sign language to

people he knows.• People love Sean and care for him.

More…

• Sean signs his name Simmons, Sean Edward or Edward. If it’s extremely important that it be first and last name then mention it – otherwise, no need to correct it.

• Sean likes to teach people how to sign. Ask Sean how to sign certain things – he has more to teach about himself and his perspective than anyone and any class. He likes to have “The Word of the Day”. Learn it and teach someone you know.

• Sean is extremely proud of his earnings through his work at the hospital and savings. We are having difficulty getting money from his rep payee that is owed him. Sean will be his own rep payee.

Who IS…?

TOOLBOX

GeorgieEd, Cindy, AllenStudentsJames, brotherJuan

Social/Community PeopleUDSShared Support

First Baptist, Deaf communityValley GreenLakesideSummit QuestBarnstormers

D

Paid Support People

ean

David – support staffJoAnne – support staffWilmer – roommate Angie – service coord.Frank – DirectorHeather – EARSJohn - psychologist

Sean’s RelationshipsSean is a Teacher

Friends and Family

Relationship Map

Beth Mount, 2003Family

Community Life

Service Providers & Health Professionals

Friends

Social / Civic

Paid Staff

TOOLBOX

Places Sean Goes

Human Services World

Community

EARS, 2 days a week

Umbrella Works – my apartment is there

Lancaster base ball stadium-Season pass holder – 22 games!ST. Peters, Catholic Church

AT least 5 community teaching opps.Nursing HomesShoolsCamps, Churches

Café Aroma Borealis – hang out, 1st Fridays

UDS, board member

Places I Go

Human Services World

Community

TOOLBOX

What are Sean’s Favorite Things?

• Baseball• Meeting new people• Hanging out with

people that are deaf• Teaching people the

word of the day

• Oranges – allergic!• Diets• Not having any work

at workshop

What Things Doesn’t Sean Like?

What are Your Favorite Things?

What Things Don’t You Like?

TOOLBOX

What Makes Your Best Day?

• Your Best Day?

• Your Best Week?

• Your Best Month?

• Your Best Year?

TOOLBOX

Sean-Social Roles &/or Paid Employment

Interest Capacity What social role is possible?

What can the person do to get paid?

Being Busy

Being Helpful

Likes to tidy and clean up

Great Hellos

Always moving

Good Gross Motor, Strong

Volunteer to clean up at community places

Help People at the grocery store

Get tips at the grocery store

Start a delivery service

Interest Capacity What social role is possible?

What can you do to get paid?

Social Roles &/or Paid Employment

TOOLBOX

10 Things to Do to Support Someone with Challenging Behavior

1) Get to know the person – spend time with the person

2) Remember ALL behavior is meaningful3) Help the person to develop a support plan4) Develop a support plan for the person’s

supports5) Don’t assume anything

10 Things to Do to Support Someone with Challenging Behavior

6) Relationships make all the difference

7) Help the person develop a positive identity

8) Instead of ultimatums give choices

9) Help the person have more fun

10) Establish a good working relationship with the person’s health care physician

Choices Sean Makes for Himself

• Who his staff are• Who his roommate is• Where he lives• Where he works• When to do what he

wants to do

• Work schedule• When to go into work

(this is in the process of changing)

• Social schedule - sometimes

Choices People Make for Him

Choice and Control Map

Choices I Make for Myself

• •

Choices People Make for Me

Choice and Control Map

TOOLBOX

What Make Sense to Sean

• When Sean is upset he uses sign language to communicate his feelings – supporters must know sign language.

• Being involved in things that he likes to do: artwork, researching, reading, using the computer. Sean does not like to be bored.

• Being involved with people. Sean enjoys people around him and doing things with others. Sean is interested in meeting people.

• Not knowing sign language• Bothering Sean in his room

when he goes there to relax when he is upset

• Not helping Sean keep his printed calendar in order

• Changing the schedule in anyway without Sean’s input, ok or knowledge

• Speaking other languages in front of Sean and not explaining what you are talking about

What Doesn’t Make Sense to Sean

What Make Sense

What Doesn’t Make Sense

TOOLBOX

Help People Direct their Lives• Listen to Who they are• Help them lead their meetings• Understand their behavior, Be Positive• Don’t Ignore people. You wouldn’t be here

without them!

Develop Your Agenda for Your Planning Meeting

• Choose the outcomes you want to discuss

• Think about what resources you may need to get there

• Think about who you want to come – look at your relationship map

• Think about where you want it and when you want to hold your meeting

• Do you have questions you want to ask your team?

TOOLBOX

Is Your Plan Self-Directed?

If your plan is self -directed it should include: • Information about what is really important TO you and your family? The things you like to

do, what you like, the people you care about? • Information about what is and what is not working in your life • Great Things About You, what you are good at, what you are proud of, what you like about

yourself • An action page that explains clearly how you are going to get the life you want, and who is

going to do what to help you get there. • People who are willing to work with you as partners in making your plan happen. If your plan is not self-directed - it may include: • Information that Other People think is important FOR you or your family that you do not

agree with • It is filled with information about all the things you do wrong or cannot do

Which Part of Your Planning Do You Direct #1?

Choose the people who comes to plan with you

Where will you have your meeting

What time will you have your meeting

Who will facilitate your meeting

What is your meeting agenda

What are the things you don’t want to talk about

What questions you want to ask

TOOLBOX

YES/NO

Do you want to?

Which Part of Your Planning Do You Direct #2?

Do people ask questions about you?

Do you give people guidelines about the meeting?

Do you feel like you are understood at your meeting?

Do you feel respected?

Are you able to discuss YOUR outcomes

Are you able to discuss what is bothering you?

Do you feel GOOD when you leave YOUR meeting?

TOOLBOX

YES/NODo you want to?