service introduction of hkec cancer patient resource centre

Ms. Rebecca WONG 24 Feb 2017

Service Introduction of HKEC Cancer Patient Resource Centre

Community & Patient Resource Department

Patient Resource

Center

Nethersole PRC Cancer PRC

2 Social Worker 2 supporting staff

Mental Health PRC GOPC Prc

Volunteer Service

Rehab shop

Community Service

Cancer Patient Resource Center PYNEH HKEC

Patient Empowerment

Community Engagement

Patient Journey with PRC Patient Service + Volunteer Service + Community Service

Newly-diagnosed Treatment & Rehabilitation Relapse, Terminal & Bereavement

Continuum for psychosocial care & community integration

Endorsement of PRC Core at HAHO 1) Committee on Patient Support and Volunteer Development (22 Oct 2014)

2) 病人支援及義工發展督導委員會會議 (9 Jan 2015)

4

Empowerment & support for

Patient & carer Support to patient

groups

Volunteer service & development

Community engagement &

partnership

Patient & Carer

4

Cancer PRC service mission & model

Case counseling & Referral out

Psychosocial group

Community networking & integration

Patient empowerment & education

Resource & self management

Holistic Care Clinical Referral Psychosocial Care Equity of access

Cancer PRCs service at a glance

Psychosocial Care Continuum

New Patient Orientation & Empowerment

Program

- 14 OPAS program with multi-discplany approach (Doctors, Nurse, Dietitian, CP, Occup, Social Worker)

Psychosocial Groups & Therapy

- Meditation, Laughter Yoga, Narrative, Aromatherapy, Art therapy, Music therapy, Horticultural therapy, Dance therapy

Rehabilitation & community

interface - Overcome fear of recurrence - Community open support group - Community interfacing with CLC

新症階段治療階段

社區復康

復發及善终

Empowerment & Engagement of New Patient & carers

1. Out patient:

Out-patient Appointment System (OPAS)

2. In patient:

Generic Clinical Receiving System (GCRS)

Refer for Allied Health Service

Referral:

(Med/Onc/Surg/ O& G/AH/Self)

There are 106 sessions with 3900 attendance of Empowerment & New Patient Orientation program in 2016.

Listen Share Support Growth Transform

2012 2013 2014 2015 2016 Growth %

Empowerment

Program(New

Patient Program &

Community

Interfacing Progarm

1709 2984 3401 3750 3880 Steady

Patient Empowerment & Orientation

Service Profile: Cancer PRC Emotional Support & Brief Counseling

2012 2013 2014 2015 2016 Growth %

Center Service 5794 6860 7725 7925 8165 Steady

Tel support &

enquiry 1258 1300 1939 2215 2423 Steady

Rehab Resource 637 900 1405 1300 1213 Steady

0

1000

2000

3000

4000

5000

6000

7000

8000

9000

2012 2013 2014 2015 2016

0

500

1000

1500

2000

2500

3000

3500

4000

4500

2012 2013 2014 2015 2016

Patient navigation project for new cancer patients & carers


4%

16%

32% 36%

12%

我對於腫瘤科不同的治療區有足夠認識

非常同意同意一般不同意非常不同意

36%

53%

7% 0%

4% 我對於腫瘤科不同的治療區有足夠認識


8%

20%

32%

36%

4% 我對於相關醫院不同部門有足夠的認識


43% 50%

3% 4%

0% 我對於相關醫院不同部門有足夠的認識


4%

21%

33%

29%

13%

我對於病人資源中心服務有足夠的認識


32%

50%

14%

0% 4% 我對於病人資源中心服務有足夠的認識


21%

38%

33%

4% 4% 我能有足夠信心去面對癌症治療


35%

46%

19%

0% 0%

我能有足夠信心去面對癌症治療


12%

48% 24%

8% 8%

我能夠於有需要時尋找相關的服務或朋輩協

助


35%

46%

19%

0% 0%

我能夠於有需要時尋找相關的服務或朋輩協

助



Questions Pre-test Average score

Post-test Average score

1.我對於腫瘤科不同的治療區有足夠的認識 (電療區﹑日間化療中心﹑正電子掃瞄等)

1.64/4 3.18/4

2我對於相關醫院不同的部門有足夠的認識 (營養部﹑醫務社工部﹑藥房﹑入院登記處等)

1.92/4 3.32/4

3我對於病人資源中心服務有足夠的認識 (不同科類講座﹑治療小組﹑朋輩義工分享﹑復康店等)

1.75/4 3.07/4

4我能夠有信心去面對癌症治療 2.67/4 3.15/4

5.我能夠於有需要時尋找相關的服務或朋輩協助 2.48/4 3.29/4

4-非常同意 3-同意 2-一般 1-不同意 0-非常不同意

Nurturing of Mutual help Network Annual Review & contracting with 9 mutual help network

Mutual Support Network (Service Contract & review annually)

互心軒病房探訪

同路人分享

熱線支援新症支援資訊分享合辨活動

Breast 展晴社每週 (隔週)

NPC 東日社每週 (雙月)

Blood 心血會每週 (每6個月)

Larynx 新聲會 *經GCRS轉介 (每年)

Colorectal 造口會每週 (每年)

Non-specified 創域會 *經GCRS轉介 (每年)

Colorectal 祥康之友* *經GCRS轉介

Gynae 蕙蘭社* *經GCRS轉介

Non-specified 復康大使 (癌協服務中心) *經GCRS轉介 (每年)

Stomach GSIT 胃腸道基質腫瘤小組

(每年)

Prostate 華樂會

(每季)

Station(ONC OPD) & Kiosk

• Promote mutual network and information resources sharing • 7 sessions by CancerLink (CLC) & Cancer PRCs ambassador • 2 sessions by Brightening Asso • 1 sessions by Rising Sun Asso.

Peers Volunteer Risk management-Rainbow Project Training

Elements Training Date

No. Patient Association

No. Peer volunteer

Resilience 9 Jan 15 23 60

Skills 10 Apr 15 19 47

Positive 15 Aug 15 20 68

Resilience II 9 Jan 16 17 60

Best Practice

21 Apr 16 18 51

Mission 22 Jul 16 20 70

Active Listening

15 Oct 16 18 72

What if 6 Jan 17 20 57

To echo the quality assurance of peer volunteers and facilitate risk management In daily peers concern services. The Peer volunteer training booklet : • To set a standard of Peers Volunteer Regarding training & recognition among PRCs • To echo the training model suggested By HAHO

Joint Patient Associations Training 2016 organized by PY PRC, TWEH PRC & RHTSK HRC

Hospital Number of Patient Associations participated

Number of Peer volunteers attended

PYNEH 13 (Chronic disease – 8,

Cancer – 4, Mental Health – 1)

42 (93%)

RTSKH 3 10 (77%)

TWEH 3 16 (73%)

Total 19 68 (83%)

Pamela Youde Nethersole Eastern Hospital Community & Patient Resource Department

Health Information & Rehab Resource

健康資訊站(書本及DVD借閱) 新症病人復康包復康用品借用 (Red Cross)

假髮借用癌症病人資源錦囊復康店

相約在資源中心… 聆聽、關懷、支持、昇華、成長

癌症病人資源中心

http://www.healthyhkec.org/prc/py/cancer/

CLINICAL AUDIT 臨床審核

Models of Cancer PRC Psychosocial Empowerment Program

Ca Prostate

1.Nursing education 2. Preop Doctors’ Talk

3. Dietitian 4. Peer Sharing

5. Community Resource

Ca Breast 1. Peer Sharing

2. Nursing Education 3. Dietitian

4. Doctors’ talk 5. Community Resource

Ca Colon 1. Dietitian

2. Peer Sharing 3. Community Resources

Diagnosis

Preop Workup

Operation

RT /Chemotherapy

Rehabilitation

Patient’s Journey

Survey Content

Patient Background

Satisfaction Rate on i. Service at Cancer PRC

ii. Seminar for new patients, eg referral, waiting time &

service content

Pre & Post Stress Level

Quality of Life (EQ-5D-5L & EQ VAS)

172 questionnaires received

∗ Over 85% patient satisfied with the psychosocial education program and cancer patient enhance their skills and knowledge for disease management during treatment period.

∗ The first model (1) had the highest satisfaction rate and very positive feedbacks were received.

∗ It is recommended that 3 element early engagement, cross department and community interfacing is important in the patients’ journey for better enhance of self disease management.

Result & follow up

Adapt the survey to all routine patient empowerment programs in 2015-16

∗ Rehab bags for new patient (provided by Cancer Fund) ∗ New patient resource kit for various cancer: ∗ Distribution Proposed

- Doctor (SOPC, OPD) - WM, APN (Ward, Nurse clinic) - MSW - HRC

∗ Poster board with QR code for cancer patient navigation ∗ Referral through OPAS/GCRS for early engagement ∗ Service introduction for RH staff

Proposed Services to be delivery

Lung

New in 2015/16 Joint symposium & patient empowerment program with PWH & QEH

Empowerment Program

CAE (Diet & Peer sharing)

CAE (Occup & SW & ONC Dr.)

Psychosocial groups

Mutual Help Network

Support Group (創域會)

Peer sharing

Community Interface

Resource kits

Joint program with (PMSA)

Ca Breast

Peer support for Newly Diagnosis (Breast Clinic)

Peer sharing in Empowerment Program

Peer Hotline Patient Support station

Ward visit for new & recurrence patient

Community interfacing

program

Bereavement support

New in 2015/16 - Review service flow with Surg & Onc by enhance peer sharing to EBR1-3 - Community breast awareness talk (HKBRG, CancerFund, Cancer PRCs)

Colo-rectal & Stoma

New in 2015/16 Pre & Post operation dietitian talk Stoma care support group enhancement with peer support bi-monthly Monthly open support group (茗閒情)

Empowerment Program

ECOL (Dietitian)

ECOL 1 (Peer Sharing for Stoma pt)

Psychosocial groups

Mutual Help Network

Support Group (造口會 & 茗閒情)

Peer sharing

Community Interface

Resource kits

Joint program with Stoma Asso.

service introduction of hkec cancer patient resource centre

Documents