sailing after stroke
TRANSCRIPT
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Carry on cruising
Sailing after a stroke
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Carry on Cruising, 1962
“Now then. I am going to be very blunt and make some cutting remarks.”
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“Now then. I am going to be very blunt and make some cutting remarks.”
• Our experience– Before Sam’s stroke– After Sam’s stroke– What we can do
• Keep on cruising– Do you need to give up?
• Stay healthy– Stroke is more likely than you think
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OUR EXPERIENCE
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Sailing as a family
• When Sam & I moved in together in 1986, the first thing we bought was a cafetiere…
• ...and the second thing we bought was a Miracle dinghy
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• Several flotilla holidays & charters
• A Peanut• A Topper• A Winkle Brig• A Sadler 29, Magewind• And in 2005 our current
boat, a Westerly Storm – Kalessin of Orwell
Over the years we’ve added…
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And we have sailed…
River Medway
The Broads
BelgiumNetherlands
France
Spain
PortugalBalearics
Baltic Germany
Denmark
Holidays in Greece & Turkey
French canals
East Coast
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In May 2012…
• Kalessin was in a shed in Augustenborg, Denmark
• Camilla was working in London
• Sam was due to go out for the start of the season but was diagnosed with atrial fibrillation…
• ...and three days later he suffered a massive stroke
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Here he is a few days after the stroke
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When Sam came home
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Getting back to sailing
• October 2012 – we managed one sail at the very end of the season, with thanks to the Nancy Oldfield trust
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But what about Kalessin?
• Sell her and take up Broads boating
• Keep her but leave Sam at home
• Carry on cruising… even when it’s hard work– We decided to give it a
try
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Looking for help
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Thank you Rob
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This is the method we evolved
• Sam wears a lifejacket and a climbing harness. The main halyard is attached to the harness
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How we do it
• Step 1. Sam uses his wheelchair to get down the jetty (dependent on tides). The halyard is attached to the climbing harness and he walks down the finger pontoon
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How we do it
• Step 2. We drop the guardrails and Sam sits on the side-deck. I swing his legs aft so that he is half-lying down and start winching
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How we do it
• Step 3. Once he is lifted enough to clear the gunwale I swing him inboard. The cockpit tent was designed to zip back so we can do this
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How we do it
• Step 4. I manoeuvre him over the cockpit seat, and lower him gently on to a cushion.
• Time for a G&T
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Getting over the bow is trickier
• We use the main halyard to get Sam as far as the mast, then change to the spinnaker halyard
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Getting over the bow is trickier
• There is a loop in the spinnaker halyard with a rope attached to it. We need at least one additional crew member to haul this rope which is attached either to a cleat…
• …or to a passer-by
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What Sam can do on board
• Get around in the cockpit• Get around below (unless it’s very rough)• Get in and out of the heads• Wash up • Sleep in the forepeak – with a bit of help• Relax & enjoy sailing• Tell us when we’re doing
something wrong
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What Sam can’t do on board
• Helm for extended periods• Navigation• Engine or other repairs• Foredeck work• Jump off to attach mooring lines• Get on or off a dinghy… as far as we know• Feel independent
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And that means….
• Frustration• 44% of stroke
survivors break up with their partner or consider doing so
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What this means for me• I’m ok with navigation, sailing,
helming, mooring & domestics• YM Offshore to boost confidence• I have learned more about the
engine and other systems (especially the loo) – RYA marine diesel, plumbing & electrics courses
• Frustrating lack of physical strength
• Making life easier & outsourcing work
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Where can we get to?
Denmark & Germany, 2013
Up the Thames, 2014Belgium & Dutch
Delta, 2015
Southern Brittany, 2016
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Also…
Canaries to Madeira, 2016
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KEEP ON CRUISING
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Keeping on cruising
• Any degree of disability may be enough for people to give up sailing – often with regret
• CA membership drops off sharply after the age of 75
• Sometimes one partner is ready to give up and the other one is not
• Many people sail into their 80s and beyond
Joan Heywood was 98 when this picture was taken
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Keeping on cruising: some options
• Take on extra crew• Cruises in company• Adapt your boat & home berth• Moderate your sailing ambitions• Ask for help• Charter more accessible boats• Change to a boat that’s easier to manage• Sail with a charity
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• Take on extra crew– Ask family and friends– Use the CA crewing
service– Use fitter friends or a
yacht delivery service to get the boat to a cruising ground
– Make sure you will get on, and agree the ground rules
Keeping on cruising: some options
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Keeping on cruising: some options
• Cruises in company– Someone else
does a lot of the planning and booking
– There are always others around to help
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Keeping on cruising: some options
• Moderate your sailing ambitions– Is now the right time to tackle the Northwest
Passage?• Stay closer to home
– Coastal rather than open sea– Inland rather than coastal
• Stay in Europe
• Ask for help– Phone ahead to book a berth
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• Consider an area with modest tides, or none
• Plan ahead!
• Ask for help– Phone ahead to
book a berth
Keeping on cruising: some options
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Keeping on cruising: a better boat?
• Charter before buying if you can• Act now, not when you can no longer
manage your existing boat• Sadly, almost no boats are designed to be
accessible • Motor may be better than sail
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Keeping on cruising: a better boat?
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STAY HEALTHY
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Stroke: the facts• In the UK, on average, someone suffers a stroke every
three and a half minutes. Worldwide, it’s every two seconds
• There are 1.2 million stroke survivors in the UK• Stroke is one of the largest causes of complex disability
in the world – half of all stroke survivors have a disability• More than a third of stroke survivors in the UK are
dependent on others• By the age of 75, 1 in 5 women and 1 in 6 men will have
had a stroke
• 80% of strokes are preventable
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Risk Factors
Obesity
Family history orethnicity
Previous stroke & TIA
Age
Binge drinking & substance misuse
Inactivity Heart
disease & AF
High blood pressureHormonal contraception & HRT
Smoking
High cholesterol
Diabetes
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Act FAST
Other symptoms include:•Sudden weakness or numbness on one side of the body•Sudden confusion•Sudden dizziness or unsteadiness •Sudden visual problem•Severe headache
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