Role of Parents In The Development OF PwIDDs

Jhnasi Lakshmi BSai Prema Parent Association

Vijayawada

What is an Intellectual Disability?

What Causes an Intellectual Disability?

• Genetic conditions. • Problems during pregnancy. • Problems at birth. • Health problems. 

How Common are Intellectual Disabilities?

What are the Signs of Intellectual Disability?

1. There are many signs of an intellectual disability. For example, children with an intellectual disability may:

2. sit up, crawl, or walk later than other children;3. learn to talk later, or have trouble speaking,4. find it hard to remember things,5. not understand how to pay for things,6. have trouble understanding social rules,7. have trouble seeing the consequences of their

actions,8. have trouble solving problems, and/or9. have trouble thinking logically.

How are Intellectual Disabilities Diagnosed?

Intellectual disabilities are diagnosed by looking at two main things.

1. Intellectual functioning2. Adaptive behavior

Parent need to ..1. Learn about intellectual disability. 2. Be patient, be hopeful. 3. Encourage independence 4. Give your child chores. 5. Give your child frequent feedback. 6. Find out what skills your child is learning at school. 7. Find opportunities in your community for social

activities, 8. Talk to other parents9. Meet with the school and develop an IEP to address

your child’s needs. 10.Take pleasure in your beautiful one. 

“parents can have a significant impact on their children's values and expectations in terms of

independence and social integration”Benz & Halpern (1987)

 Babies and Toddlers• Early intervention 

Parent as selector and coach

School-Aged ChildrenParent As a Negotiator and Supporter

• Individualized Education Program • Educational Considerations• General education • Supplementary aids and services • Adaptive skills • Transition planning

Transition from school to work

Parent as a Mentor and Transformers

Disabled child is able to make concerning academic, social and vocational skills.

• Yet very few programs directly address the needs of the parents of disabled youth.

• vocational evaluation• developing employment skills• independent living skills• social skills training• community work experiences• inclusion with non-disabled adults

1.Parivaar members, professionals, and other parents continue to lobby hard for National legislation for children with disabilities. Result:

2.1995 PwD Act3.1999 National Trust Act4.Now Rights of Persons with Disabilities Bill2014

Networking

conclusion• Parents play an integral part in the lives of their disabled

children. Transitional success is less likely without their participation.

• Parents continue to have an influence on their disabled children even after the child's transition to adulthood.

• Parents have a significant role to play in assuring that the rights mandated by law are provided to their children.

….... Next….?• How can families support the relationship

of siblings in the future? • Is it future planning important to adult

siblings of people with disabilities? • How can families include siblings in future

planning? • Preparing for the future caregivers

Thank You