Developing the Availability and Quality of

Diet Consultation for Coeliac Patients

(ROKE Project )

2009 – 4/2012

THE NEED FOR THE PROJECT

Problems with the Availability of Diet Consultation

1/3 newly diagnosed coeliacs do not have access to diet consultation

Variable Quality of Diet Consultation

– Content and methods of consultation

– Customer oriented approach?

Coeliacs want more information about gluten-free cooking, baking, hidden sources of gluten, eating out, travelling,adjustment to the disease ja effect on the life quality

Dietitians long for more information and support for the counselling

AIMS OF THE PROJECT

Influencing every coeliac patient must have access to diet consultation

– Good Treatment Guide: cosultation should be given twice during the first year, then if needed

Developing the Know How of dietitians

- Content, quality and customer oriented approach of the consultation

Reducing the risk for complications

- Preventing and mending poor diet therapy

Prevention of big national diseases

Producing tools to support professionals and coeliacs

- A guide for diet consultation, a brochure of a healthy gluten-free diet

AREA, WAYS AND TIME TABLE OF

IMPLEMENTATION

• A nationwide project for 2009 – 2011

• Influence targeted on the healthcare sector

• 2-day regional training sessions for dietitians

• Production of written and electric material

• Development of Diet Consultation Model together

with dietitians

RESOURCES AND COOPERATION

• Dietitian as a project manager

• Cooperation with regional dietitians, doctors and

psychologists (training days, production of materials)

• Cooperation with other patients’ organisations

(influencing work)

• Project funding from the Slot Machine Association

RESULTS

Developing the quality of consultation:

10 training days to update know how of dietitians and

coeliac nurses around Finland

Diet Consultation Model for the Coeliac Patient, 250 pcs

and 8 implementation sessions for dietitians in 2012

Brochure of healthy gluten-free eating

Similar consultation in all healthcare units

Nutrition Committee guidelines and

recommendations

230 dietitians using the extranet service for

dietitians

Cooperation increased with consulting dietitians

The Impacts of the Project in terms of

Quality

23.4.2012 Henna Kosunen/Finnish Coeliac Society

RESULTS Developing the availability of consultation:

Report on diet counselling of coeliac patients in

healthcare

4 audiences to hospital districts where dietitian’s

services are scarce

Seminar of the importance of diet therapy/counselling

for the decisionmakers

Lecture at the Parliament’s Coeliac Disease Network

Proposal to have diet counselling reimbursed by the

Social Insurance

Media coverage 12 articles in newspapers and

journals

Working Togehter with Patients’ Organisations to Improve

the Availability of Diet Consultation

23.4.2012 Henna Kosunen/Keliakialiitto

P2090588

23.4.2012 Henna Kosunen/Keliakialiitto

http://www.keliakialiitto.fi/liitto/toiminta/projektit/roke/

23.4.2012 Henna Kosunen/Keliakialiitto