ri-cart newsletter · to see some of the academic posters we presented, please click the title to...

1
RI-CART Newsletter Welcome to those of you who have joined the Rhode Island Consortium for Autism Research and Treatment (RI-CART) in the past few months! Cur- rently, more than 1400 individuals and families have enrolled. We want to thank all of you for partnering with us to learn more about autism and to improve the lives of people with ASD. We look forward to continuing to work with you! If you are not part of RI-CART, and are interested in learning more, please call us at 401-432-1200 or visit our website, www.AutismRI.org. The RI-CART Team Welcome! Volume 3, Issue 3, June 2017 Dr. Giulia Righi is a staff psychologist at the Center for Autism and Developmental Disabilities at E. P. Bradley Hospital and an Assistant Professor of Psychiatry and Human Behavior at the Warren Alpert Medical School of Brown University. Dr. Righi is focused on understanding ASD through both research and clinical services, with a primary focus on the assessment and study of those who require significant levels of psychiatric care. Her research interests are in the study of the phenotypic and psychophysiological characteristics of children and adolescents with ASD and co-morbid psychopathologies, as well as on improving diagnostic accuracy and identifying factors relevant to treatment outcomes. Prior to joining RI-CART, Dr. Righi completed a postdoctoral fellowship at Children’s Hospital Boston where she conducted research surrounding early markers of ASD using electroencephalography (EEG) and behavior- al measures. She received her PhD in cognitive sciences from Brown University and completed her clinical in- ternship at the Alpert Medical School of Brown University. Read about one of Dr. Righi’s recent publications here: Study of Kids with Autism Identifies Hospitalization Risk Factors RI-CART Spotlight: Giulia Righi Featured Study Currently Enrolling The goal of this study is to learn more about how the bodies of children with Autism Spectrum Disorders (ASD) react to their social environment. Another goal is to learn more about how children with ASD at- tend to social information. By better understanding physical reactions and attention, we can improve our abilities to diagnosis ASD and we can develop better therapies for those with ASD. To accomplish this goal, this study is exploring potential differences in body responses during different experiences. Partic- ipants will have their physiology (heart and nervous system responses) recorded non-invasively while resting, while playing with toys, and while interacting with an adult. Participants will also have their vis- ual attention recorded while viewing pictures and movies of things like objects and faces. We are enrol- ling children two to six years old with ASD, developmental delays, and typically developing children. Par- ticipants will be compensated for their time in the study. Contact: Carolyn McCormick, PhD. 401-453-7637. [email protected] CLICK HERE to see descriptions of all of our currently enrolling studies. To remove your name from our mailing list, please e-mail [email protected]. Questions or comments? E-mail us at [email protected] or call 401.432.1200. What We’ve Been Up To In March, RI-CART and the Museum of Work and Culture hosted an art opening as part of Brain Week Rhode Island that featured all artists with autism and related neurodevelopmental conditions. The Through Our Eyes art opening was featured in both the Providence Journal and the Pawtucket Times. The exhibit featured 82 pieces created by nearly as many artists, and was curated by Hartford, Connecticut based artist, Matthew Best. We are hoping to host a similar event next year! Through Our Eyes Art Exhibit In April, RI-CART participated in the 15th annual Imagine Walk and Family Fun Day, organized by The Autism Pro- ject. Almost 8,000 people turned out for the event! We enjoyed seeing you all there! Imagine Walk 2017 Upcoming Events Sensory-Friendly Film for Teens & Adults Conference Presentations—IMFAR and APS In the past month, many RI-CART faculty, staff, and affiliates presented at the Interna- tional Meeting for Autism Research in San Francisco and the Association for Psychologi- cal Science in Boston. To see some of the academic posters we presented, please click the title to view the PDFs below. Cinemaworld Lincoln, along with RI-CART and the Center for Autism and Related Disorders, is hosting a sensory-friendly showing of Pi- rates of the Caribbean (rated PG-13) on Saturday, June 17th at 1 p.m. Your Life Your Canvas Your Life Your Canvas is a group that utilizes expressive arts techniques to empower partici- pants while bringing awareness and insight to life experiences. Eligible teens are invited to participate in a 10-week group session that harnesses the power of artmaking to promote health and overall wellbeing. Groups are filled based on age, clinical presentation, and best fit with other group members. All materials provided; the one-time fee is $25. For more infor- mation, call Melissa at 401-432-1119 or visit the website. LOCATION: Bradley Hospital, East Providence, RI DATE: Weekly, beginning Tuesday, July 11th TIME: 4 to 5:30 p.m. Boston Children’s Museum Morningstar Access Program The PHOEBE Study—Physiology of Emotion, Behavior, and Engagement Invite a Friend! If you know anyone who hasn’t yet joined RI-CART, please feel free to share this newsletter with them or invite them to attend an event! If anyone would like to hear more about RI-CART, they can visit our website at www.autismRI.org and click Contact Us . We can also be reached at 401-432-1200. Boston Children’s Museum Morningstar Access program offers children with special needs or medical needs the opportunity to enjoy the Museum in an uncrowded environment with few other visitors. Ex- perience The Power of Play! Admission for non-members is $8 (half off the regular price!) and is free for members. Registration is required. Please visit www.BostonChildrensMuseum.org/Morningstar to register. LOCATION: 308 Congress Street, Boston, MA. For directions and parking information, click here. DATE: Sunday, June 18th TIME: 4 – 6 p.m. Autism BrainNet: Promoting Research into the Causes of Autism Spectrum Disorder What is Autism BrainNet? Autism BrainNet is a new network of four university-based sites across the country that have come together to make brain donation both easier and more useful for future research. Why is Autism BrainNet important? Autism is a disorder of brain development. In order to make progress in all areas of autism research, scientists need to study brains. Understanding what is different about the genetics or structure of the brain will give autism researchers essential in- formation to develop better treatments and ultimately prevent the debilitating symptoms of autism. Visit www.takesbrains.org to learn more. Sensory Autism Spectrum Story Time Class Sensory Autism Spectrum Story Time Class is a 6 week preschool program for chil- dren who are on the autism spectrum. The program will include a picture schedule, music, movement, fun stories, and sensory activities! Children of all ages welcome! LOCATION: Children’s Caidin Room, Pawtucket Public Library, Pawtucket, RI DATE: Weekly, beginning Thursday, July 6th TIME: 2 to 3:30 p.m. John M. Williams. The Great Wall of China. Framed collage. Nehven Carvalho. Autism Atom.. Colored pencil. Children from the Center for Autism and Developmental Disabilities Inpatient Unit. When I Grow Up. Mixed media on canvas. Pupillary Response in Adults with ASD During Tasks with Social and Nonso- cial Cognitive Load Christopher Blanding-Phothisane, Carolyn McCormick, Hasmik Tokadjian, & Stephen Sheinkopf Increased Psychiatric Complexity of Autism Spectrum Disorder: Explaining Diagnostic Inconsistencies Hasmik Tokadjian, Danielle Morriss, Carolyn McCormick, Kayla Perkins, Lindsay Oberman, Thomas Anders, Eric Morrow, & Stephen Sheinkopf Preference for Nonsocial Realistic Movement in Children with ASD Carolyn McCormick, Hasmik Tokadjian, & Stephen Sheinkopf Increased Presence of Familial Psychiatric and Neurodevelopmental Disorders in Groups with Unclear or Negative Au- tism Spectrum Disorder Diagnosis in a State-wide Autism Registry Danielle Morriss, Hasmik Tokadjian, Carolyn McCormick, Lindsay Oberman, Eric Morrow, Thomas Anders, & Stephen Sheinkopf Reliability and Validity of the Brief Observation of Social Communication Change (BOSCC) Kristen Sutton, Carolyn McCormick, Hasmik Tokadjian, & Stephen Sheinkopf COBRE Pilot Study of Resting State fMRI and Relationship to TMS Response in Youths with Autism Spectrum Disorder Lauren I. Kasoff, Anacecilia Panameno, Christiana Westlin, Rachel E. Christensen, Amanda L. Ruggieri, Daniel P. Dickstein, & Lindsay M. Oberman RI-CART SPECIAL SEMINAR Social Treatments for Autism: Neurophysiological Indicators of Change Amy Vaughan Van Hecke, PhD RI-CART invites parents and individuals, researchers, clinicians and educators to attend this Special Seminar! LOCATION: Brown University, Sidney Frank Hall, Marcuvitz Auditorium, Room 220. 185 Meeting Street, Providence DATE: Thursday, June 22nd TIME: 11 a.m. Dim lighting and low sound No previews Trained and caring staff Special snacks permitted due to dietary restrictions and / or allergies PHOEBE is enrolling through August, 2017. Act now if you would like to learn more and / or schedule an appointment! We would like to say thank you to all who have participated in RI-CART and our partnering research studies. Your participation made these presentations possible! CLICK HERE to read about the Ursitti family: Superheroes for Autism Brain Research

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Page 1: RI-CART Newsletter · To see some of the academic posters we presented, please click the title to view the PDFs below. Cinemaworld Lincoln, along with RI-CART and the Center for Autism

RI-CART Newsletter

Welcome to those of you who have joined the Rhode Island Consortium for Autism Research and Treatment (RI-CART) in the past few months! Cur-

rently, more than 1400 individuals and families have enrolled. We want to thank all of you for partnering with us to learn more about autism and to

improve the lives of people with ASD. We look forward to continuing to work with you!

If you are not part of RI-CART, and are interested in learning more, please call us at 401-432-1200 or visit our website, www.AutismRI.org.

The RI-CART Team

Welcome!

Volume 3, Issue 3, June 2017

Dr. Giulia Righi is a staff psychologist at the Center for Autism and Developmental Disabilities at E. P. Bradley

Hospital and an Assistant Professor of Psychiatry and Human Behavior at the Warren Alpert Medical School of

Brown University.

Dr. Righi is focused on understanding ASD through both research and clinical services, with a primary focus on

the assessment and study of those who require significant levels of psychiatric care. Her research interests are

in the study of the phenotypic and psychophysiological characteristics of children and adolescents with ASD

and co-morbid psychopathologies, as well as on improving diagnostic accuracy and identifying factors relevant

to treatment outcomes.

Prior to joining RI-CART, Dr. Righi completed a postdoctoral fellowship at Children’s Hospital Boston where

she conducted research surrounding early markers of ASD using electroencephalography (EEG) and behavior-

al measures. She received her PhD in cognitive sciences from Brown University and completed her clinical in-

ternship at the Alpert Medical School of Brown University.

Read about one of Dr. Righi’s recent publications here: Study of Kids with Autism Identifies

Hospitalization Risk Factors

RI-CART Spotlight: Giulia Righi

Featured Study Currently Enrolling

The goal of this study is to learn more about how the bodies of children with Autism Spectrum Disorders

(ASD) react to their social environment. Another goal is to learn more about how children with ASD at-

tend to social information. By better understanding physical reactions and attention, we can improve our

abilities to diagnosis ASD and we can develop better therapies for those with ASD. To accomplish this

goal, this study is exploring potential differences in body responses during different experiences. Partic-

ipants will have their physiology (heart and nervous system responses) recorded non-invasively while

resting, while playing with toys, and while interacting with an adult. Participants will also have their vis-

ual attention recorded while viewing pictures and movies of things like objects and faces. We are enrol-

ling children two to six years old with ASD, developmental delays, and typically developing children. Par-

ticipants will be compensated for their time in the study.

Contact: Carolyn McCormick, PhD. 401-453-7637. [email protected]

CLICK HERE to see descriptions of all of our currently enrolling studies.

To remove your name from our mailing list, please e-mail [email protected].

Questions or comments? E-mail us at [email protected] or call 401.432.1200.

What We’ve Been Up To

In March, RI-CART and the Museum of Work and Culture hosted an art opening as part of Brain Week Rhode Island that featured all artists with autism

and related neurodevelopmental conditions. The Through Our Eyes art opening was featured in both the Providence Journal and the Pawtucket Times.

The exhibit featured 82 pieces created by nearly as many artists, and was curated by Hartford, Connecticut based artist, Matthew Best.

We are hoping to host a similar event next year!

Through Our Eyes Art Exhibit

In April, RI-CART participated in the

15th annual Imagine Walk and Family

Fun Day, organized by The Autism Pro-

ject. Almost 8,000 people turned out for

the event! We enjoyed seeing you all

there!

Imagine Walk 2017

Upcoming Events

Sensory-Friendly Film for Teens & Adults

Conference Presentations—IMFAR and APS

In the past month, many RI-CART faculty, staff, and affiliates presented at the Interna-

tional Meeting for Autism Research in San Francisco and the Association for Psychologi-

cal Science in Boston.

To see some of the academic posters we presented, please click the title to view the PDFs

below.

Cinemaworld Lincoln, along with RI-CART and the Center for Autism

and Related Disorders, is hosting a sensory-friendly showing of Pi-

rates of the Caribbean (rated PG-13) on Saturday, June 17th at 1 p.m.

Your Life Your Canvas

Your Life Your Canvas is a group that utilizes expressive arts techniques to empower partici-

pants while bringing awareness and insight to life experiences. Eligible teens are invited to

participate in a 10-week group session that harnesses the power of artmaking to promote

health and overall wellbeing. Groups are filled based on age, clinical presentation, and best fit

with other group members. All materials provided; the one-time fee is $25. For more infor-

mation, call Melissa at 401-432-1119 or visit the website.

LOCATION: Bradley Hospital, East Providence, RI

DATE: Weekly, beginning Tuesday, July 11th

TIME: 4 to 5:30 p.m.

Boston Children’s Museum Morningstar Access Program

The PHOEBE Study—Physiology of Emotion, Behavior, and Engagement

Invite a Friend!

If you know anyone who hasn’t yet joined RI-CART, please feel free to share this newsletter with them or invite them to attend an event!

If anyone would like to hear more about RI-CART, they can visit our website at www.autismRI.org and click Contact Us. We can also be reached at

401-432-1200.

Boston Children’s Museum Morningstar Access program offers children with special needs or medical

needs the opportunity to enjoy the Museum in an uncrowded environment with few other visitors. Ex-

perience The Power of Play! Admission for non-members is $8 (half off the regular price!) and is free

for members. Registration is required. Please visit www.BostonChildrensMuseum.org/Morningstar to

register.

LOCATION: 308 Congress Street, Boston, MA. For directions and parking information, click here.

DATE: Sunday, June 18th

TIME: 4 – 6 p.m.

Autism BrainNet: Promoting Research into the Causes of Autism Spectrum

Disorder

What is Autism BrainNet? Autism BrainNet is a new network of four university-based sites across the country that have come together to make brain

donation both easier and more useful for future research.

Why is Autism BrainNet important? Autism is a disorder of brain development. In order to make progress in all areas of autism research,

scientists need to study brains. Understanding what is different about the genetics or structure of the brain will give autism researchers essential in-

formation to develop better treatments and ultimately prevent the debilitating symptoms of autism.

Visit www.takesbrains.org to learn more.

Sensory Autism Spectrum Story Time Class

Sensory Autism Spectrum Story Time Class is a 6 week preschool program for chil-

dren who are on the autism spectrum. The program will include a picture schedule,

music, movement, fun stories, and sensory activities! Children of all ages welcome!

LOCATION: Children’s Caidin Room, Pawtucket Public Library, Pawtucket, RI

DATE: Weekly, beginning Thursday, July 6th

TIME: 2 to 3:30 p.m.

John M. Williams. The Great Wall of China. Framed collage. Nehven Carvalho. Autism Atom.. Colored pencil.

Children from the Center for Autism and Developmental Disabilities Inpatient Unit.

When I Grow Up. Mixed media on canvas.

Pupillary Response in Adults with ASD During Tasks with Social and Nonso-

cial Cognitive Load

Christopher Blanding-Phothisane, Carolyn McCormick, Hasmik Tokadjian, &

Stephen Sheinkopf

Increased Psychiatric Complexity of Autism Spectrum Disorder: Explaining Diagnostic Inconsistencies

Hasmik Tokadjian, Danielle Morriss, Carolyn McCormick, Kayla Perkins, Lindsay Oberman, Thomas Anders, Eric Morrow, &

Stephen Sheinkopf

Preference for Nonsocial Realistic Movement in Children with ASD

Carolyn McCormick, Hasmik Tokadjian, & Stephen Sheinkopf

Increased Presence of Familial Psychiatric and Neurodevelopmental Disorders in Groups with Unclear or Negative Au-

tism Spectrum Disorder Diagnosis in a State-wide Autism Registry

Danielle Morriss, Hasmik Tokadjian, Carolyn McCormick, Lindsay Oberman, Eric Morrow, Thomas Anders, & Stephen Sheinkopf

Reliability and Validity of the Brief Observation of Social Communication Change (BOSCC)

Kristen Sutton, Carolyn McCormick, Hasmik Tokadjian, & Stephen Sheinkopf

COBRE Pilot Study of Resting State fMRI and Relationship to TMS Response in Youths with Autism Spectrum Disorder

Lauren I. Kasoff, Anacecilia Panameno, Christiana Westlin, Rachel E. Christensen, Amanda L. Ruggieri, Daniel P. Dickstein, &

Lindsay M. Oberman

RI-CART SPECIAL SEMINAR Social Treatments for Autism: Neurophysiological Indicators of Change Amy Vaughan Van Hecke, PhD

RI-CART invites parents and individuals, researchers, clinicians and educators to attend this Special Seminar!

LOCATION: Brown University, Sidney Frank Hall, Marcuvitz Auditorium, Room 220. 185 Meeting Street, Providence

DATE: Thursday, June 22nd

TIME: 11 a.m.

Dim lighting and low sound

No previews

Trained and caring staff

Special snacks permitted due to dietary restrictions and / or allergies

PHOEBE is enrolling through August, 2017. Act now if you would like to learn more and / or schedule an appointment!

We would like to say thank you to all who have participated in RI-CART and our partnering research studies. Your participation

made these presentations possible!

CLICK HERE to read about the Ursitti family: Superheroes for Autism Brain Research