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Results From An Action- Research Project on Ethical Approaches to Co- Producing HIV/AIDS Testimonials public education with social or community workers participation in research projects and reports interviews with media professionals (c) 2014 Mensah et al.

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BEFORE Recruit Meet Motivations Autorisations Consent Rehearsals Training Logistics DURING Logistics Attendance Listening Intervening Setting limits Coaching Respect … Supporting the voice and public visibility of people living with HIV/AIDS AFTER Follow ups Evaluate Meet Document Refer Mobilisation Dissemination … (c) 2014 Mensah et al.

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Page 1: Results From An Action-Research Project on Ethical Approaches to Co- Producing HIV/AIDS Testimonials public education with social or community workers

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Results From An Action-Research Project on Ethical Approaches to Co-

Producing HIV/AIDS Testimonials• public education with social or community workers • participation in research projects and reports• interviews with media professionals

Page 2: Results From An Action-Research Project on Ethical Approaches to Co- Producing HIV/AIDS Testimonials public education with social or community workers

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Community-University Research •Collaborative Methods• Environmental scan• Professional training • Inventory of “Best Ethical Practices”• Publication of an information kit (Le Porte-Voix)

•Ethical Issues • Paying the storyteller• The right to one’s own image• Freedom of the press• Etc.

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BEFORE• Recruit• Meet• Motivations • Autorisations • Consent• Rehearsals• Training • Logistics

DURING• Logistics • Attendance• Listening• Intervening • Setting limits• Coaching• Respect• …

Supporting the voice and public visibility of people living with HIV/AIDS

AFTER• Follow ups• Evaluate• Meet• Document• Refer• Mobilisation• Dissemination• …

Page 4: Results From An Action-Research Project on Ethical Approaches to Co- Producing HIV/AIDS Testimonials public education with social or community workers

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www.testimonialcultures.ca

Maria Nengeh Mensah | Professor, School of Social Work, UQAMRené Légaré | Communications Coordinator, COCQ-SIDAMarie-Eve Gauvin | Project Coordinator Aurélie Hot | Community Research Coordinator, COCQ-SIDA

Thank you !