research on home care of patients with als in east asia kyoto japan, february 2009 care service for...
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Research on Home Care of Patients with ALS in East AsiaKyoto Japan, February 2009
Care Service for Patients with ALS in Mongolia
Davaatseren SergelenSecretaryMongolian ALS AssociationUlaanbaatar, Mongolia
Ulaanbaatar city
Ulaanbaatar city
Mongolian ALS Association
Information Centre for ALS patients
Care consulting with ALS patients
Advice against unknown treatment for ALS patients
Sector of medical service – Under transition
The 3 hospitals serve patients in Ulaanbaatar only.
The medical sector is under transformation and is funded with insufficient support by the government.
Improving the policy of medical service
3 big hospitals
The first universal hospital
The second universal hospital
The third universal hospital
State pension and support for ALS patients
Pension for disabled people is USD 40-60 per month.
Average monthly salary is USD 200-300.
Support given by relatives of PALS. PS: PALS: people with ALS
Project-funded organizations
Support given from certain projects for disabled people.
Low level of health education
Poor health protection for the people in Mongolia
Lack of health diagnosing service
Most doctors do not have enough knowledge on ALS
Current situation of medical service in Mongolia
There are few medical necessary equipments at rural hospitals.
The rural hospitals do not have medical doctors.
The rural people live far from the central hospitals.
Advantage and disadvantage of home care.
Members of a family live together because of Mongolian tradition and customs.
Members of a family help each other in their daily lives.
Monthly family income is low for all members.
Improving the home care
Need to provide care equipments to homes of ALS patients.
Need to provide medicine to keep living for ALS patients (especially, for low income ones)
Need to provide more care information and advice to cope with daily troubles at homes of PALS.
Current situation of ALS patients in Mongolia
There are 8 patients registered in Mongolia.
There are no united diagnosis information center in Mongolia.
Thank you
Domo Arigato Баярлалаа